scholarly journals Measuring participation in people with spondyloarthritis using the social role participation questionnaire

2011 ◽  
Vol 70 (10) ◽  
pp. 1765-1769 ◽  
Author(s):  
Aileen M Davis ◽  
Marvilyn P Palaganas ◽  
Elizabeth M Badley ◽  
Dafna D Gladman ◽  
Robert D Inman ◽  
...  
Keyword(s):  
Depressive Symptoms ◽  
Ankylosing Spondylitis ◽  
Construct Validity ◽  
Disease Severity ◽  
Social Role ◽  
Correlation Coefficients ◽  
Measurement Properties ◽  
Illness Intrusiveness ◽  
Scaling Properties ◽  
The Social

ObjectivesPeople with spondyloarthritis (SpA), ankylosing spondylitis (AS) and psoriatic arthritis (PsA) have identified the importance of understanding how their disease and its treatment impacts on their social roles. This requires a reliable and valid standardised measure, and this study evaluates these measurement properties of the Social Role Participation Questionnaire (SRPQ).Methods109 participants (44 with AS, 65 with PsA) completed questionnaires on demographics, participation measures (SRPQ, Keele Assessment of Participation (KAP), Late Life Disability Instrument (LLDI)), disease severity (physician global) and activity (pain, fatigue, Bath Ankylosing Spondylitis Disease Activity Index), psychological measures (depressive symptoms (Hospital Anxiety and Depression Scale), Illness Intrusiveness)) and function (Health Assessment Questionnaire, Bath Ankylosing Spondylitis Functional Index). After testing scaling properties, test-retest reliability of the SRPQ was evaluated using intraclass correlation coefficients (ICC) and hypotheses of construct validity were evaluated using correlation coefficients.ResultsPatients with AS had a mean age of 40 years and 65% were male, whereas patients with PsA had a mean age of 53 years and 63% were male. Although there were some differences between AS and PsA participants in their social role participation, scaling properties were good for both groups. ICCs were >0.90 for the satisfaction subscales of the SRPQ. For construct validity, SRPQ satisfaction subscales were moderately correlated with the KAP and LLDI (0.64–0.78), and less satisfaction was associated with higher disease severity and activity, more depressive symptoms, more illness intrusiveness and more disability (coefficients −0.67 to −0.88).ConclusionSocial role participation is an important concept for people with SpA, and the SRPQ is a reliable and valid measure for use with people with AS and PsA.

Development and Validation of a Short Form of the Social Role Participation Questionnaire in Patients with Ankylosing Spondylitis

2016 ◽  
Vol 43 (7) ◽  
pp. 1386-1392 ◽  
Author(s):  
Martijn Oude Voshaar ◽  
Marloes van Onna ◽  
Simon van Genderen ◽  
Mart van de Laar ◽  
Désirée van der Heijde ◽  
...  
Keyword(s):  
Ankylosing Spondylitis ◽  
Disease Activity ◽  
Social Role ◽  
Short Form ◽  
International Classification Of Functioning ◽  
Measurement Properties ◽  
Satisfaction With Life Scale ◽  
General Role ◽  
Sf 36 ◽  
The Social

Objective.The Social Role Participation Questionnaire (SRPQ) assesses the influence of health on 11 specific roles and 1 general role along 4 dimensions. In this study, a shortened version of the SRPQ (s-SRPQ) was developed in patients with ankylosing spondylitis (AS) to facilitate data collection in clinical studies and practice.Methods.Using data from 246 patients with AS and population controls, the fit of each role to the different participation dimensions, the contribution of each role to the measurement precision, and the correlation between dimensions were evaluated using item response theory. Representation of the 3 participation chapters of the International Classification of Functioning, Disability, and Health was ensured. Reliability of each dimension of both versions of the SRPQ was compared by correlating scores to the Medical Outcomes Study Short Form-36 (SF-36) and the Satisfaction With Life Scale (SWLS), and by comparing ability to discriminate between patients and controls and between patients with low and high disease activity (Bath Ankylosing Spondylitis Disease Activity Index ≥ 4).Results.The s-SRPQ, which assesses participation across 6 social roles along 2 dimensions (physical difficulty and satisfaction with performance), was proposed. Both dimensions of the s-SRPQ were highly reliable (r ≥ 0.86) and were shown to have construct validity as indicated by a similar pattern of correlations with the SF-36 and SWLS as the original SRPQ dimensions. Both versions discriminated well between patients and controls and between patients with high versus low disease activity (relative validity ≥ 0.72).Conclusion.The s-SRPQ retains the measurement properties of the original SRPQ and seems useful for measuring the effect of AS on participation.

scholarly journals Functional Index-3: A Valid and Reliable Functional Outcome Assessment Measure in Patients With Dermatomyositis and Polymyositis

2020 ◽  
Vol 48 (1) ◽  
pp. 94-100 ◽  
Author(s):  
Floranne C. Ernste ◽  
Christopher Chong ◽  
Cynthia S. Crowson ◽  
Tanaz A. Kermani ◽  
Orla Ni Mhuircheartaigh ◽  
...  
Keyword(s):  
Construct Validity ◽  
Interrater Reliability ◽  
Intraclass Correlation ◽  
Health Assessment ◽  
Correlation Coefficients ◽  
Measurement Properties ◽  
Muscle Endurance ◽  
Spearman Correlation ◽  
Intrarater Reliability ◽  
Functional Index

Objective.Patients with dermatomyositis (DM) and polymyositis (PM) have reduced muscle endurance.The aim of this study was to streamline the Functional Index-2 (FI-2) by developing the Functional Index-3 (FI-3) and to evaluate its measurement properties, content and construct validity, and intra- and interrater reliability.Methods.A dataset of the previously performed and validated FI-2 (n = 63) was analyzed for internal redundancy, floor, and ceiling effects. The content of the FI-2 was revised into the FI-3. Construct validity and intrarater reliability of FI-3 were tested on 43 DM and PM patients at 2 rheumatology centers. Interrater reliability was tested in 25 patients. The construct validity was compared with the Myositis Activities Profile (MAP), Health Assessment Questionnaire (HAQ), and Borg CR-10 using Spearman correlation coefficient.Results.Spearman correlation coefficients of 63 patients performing FI-3 revealed moderate to high correlations between shoulder flexion and hip flexion tasks and similar correlations with MAP and HAQ scores; there were lower correlations for neck flexion task. All FI-3 tasks had very low to moderate correlations with the Borg scale. Intraclass correlation coefficients (ICC) of FI-3 tasks for intrarater reliability (n = 25) were moderate to good (0.88–0.98). ICC of FI-3 tasks for interrater reliability (n = 17) were fair to good (range 0.83–0.96).Conclusion.The FI-3 is an efficient and valid method for clinically assessing muscle endurance in DM and PM patients. FI-3 construct validity is supported by the significant correlations between functional tasks and the MAP, HAQ, and Borg CR-10 scores.

scholarly journals Measurement properties of the ASAS Health Index: results of a global study in patients with axial and peripheral spondyloarthritis

2018 ◽  
Vol 77 (9) ◽  
pp. 1311-1317 ◽  
Author(s):  
Uta Kiltz ◽  
Désirée van der Heijde ◽  
Annelies Boonen ◽  
Nurullah Akkoc ◽  
Wilson Bautista-Molano ◽  
...  
Keyword(s):  
Construct Validity ◽  
Intraclass Correlation ◽  
Correlation Coefficients ◽  
Good Health ◽  
Poor Health ◽  
Measurement Properties ◽  
Health Index ◽  
Asas Classification Criteria ◽  
Smallest Detectable Change ◽  
The Impact

ObjectivesTo evaluate construct validity, interpretability, reliability and responsiveness as well as determination of cut-off points for good and poor health within the original English version and the 18 translations of the disease-specific Assessment of Spondyloarthritis international Society Health Index (ASAS HI) in 23 countries worldwide in patients with spondyloarthritis (SpA).MethodsA representative sample of patients with SpA fulfilling the ASAS classification criteria for axial (axSpA) or peripheral SpA was used. The construct validity of the ASAS HI was tested using Spearman correlation with several standard health outcomes for axSpA. Test–retest reliability was assessed by intraclass correlation coefficients (ICCs) in patients with stable disease (interval 4–7 days). In patients who required an escalation of therapy because of high disease activity, responsiveness was tested after 2–24weeks using standardised response mean (SRM).ResultsAmong the 1548 patients, 64.9% were men, with a mean (SD) age 42.0 (13.4) years. Construct validity ranged from low (age: 0.10) to high (Bath AnkylosingSpondylitisFunctioning Index: 0.71). Internal consistency was high (Cronbach’s α of 0.93). The reliability among 578 patients was good (ICC=0.87 (95% CI 0.84 to 0.89)). Responsiveness among 246 patients was moderate-large (SRM=−0.44 for non-steroidal anti-inflammatory drugs, −0.69 for conventional synthetic disease-modifying antirheumatic drug and −0.85 for tumour necrosis factor inhibitor). The smallest detectable change was 3.0. Values ≤5.0 have balanced specificity to distinguish good health as opposed to moderate health, and values ≥12.0 are specific to represent poor health as opposed to moderate health.ConclusionsThe ASAS HI proved to be valid, reliable and responsive. It can be used to evaluate the impact of SpA and its treatment on functioning and health. Furthermore, comparison of disease impact between populations is possible.

scholarly journals Depression in ankylosing spondylitis and the role of disease-related and contextual factors: a cross-sectional study

2019 ◽  
Vol 21 (1) ◽  
Author(s):  
Casper Webers ◽  
Laura Vanhoof ◽  
Carsten Leue ◽  
Annelies Boonen ◽  
Sebastian Köhler
Keyword(s):  
Depressive Symptoms ◽  
Ankylosing Spondylitis ◽  
Structural Equation ◽  
Social Role ◽  
Activity Index ◽  
Contextual Factors ◽  
Related Factor ◽  
Related Factors ◽  
Cross Sectional ◽  
Final Model

Abstract Background Patients with ankylosing spondylitis (AS) have a higher prevalence of depression compared to the general population. Comorbid depression in AS likely has a multifactorial origin. While several disease-related and contextual factors have been associated with depressive symptoms in AS, a comprehensive model of their interrelations is currently lacking. Such a model could help understand the mechanisms leading to, or maintaining, depression in AS. The objectives of the current study were to determine which factors are associated with depressive symptoms in AS and to understand their underlying relationships. Methods Data from a cross-sectional survey-based multicentre study were used. Potential determinants included both contextual and disease-related factors. Depressive symptoms were assessed by the Hospital Anxiety and Depression Subscale (HADS-D). Direct and indirect associations between risk factors and the latent depressive symptom outcome were explored using structural equation modelling. A final model was selected based on model fit criteria and clinical plausibility. Results Among 245 patients, median HADS-D score was 3 (interquartile range 1–6), and 44 patients (18%) had a HADS-D score ≥ 8, indicating possible depression. In the final model, contextual factors significantly associated with depressive symptoms were male gender, being employed, lower income, lower mastery and worse satisfaction with social role participation. Bath AS Disease Activity Index (BASDAI) was the only disease-related factor that was associated with depressive symptoms, acted only indirectly via mastery, and its standardized total effect on depressive symptoms was smaller than that of several contextual factors. Mastery had a central role in the path diagram and mediated the effects of BASDAI, income and satisfaction with social role participation on depressive symptoms. The final model explained 64% of the variance in the depression outcome. Conclusions Both contextual and disease-related factors are associated with depressive symptoms in AS. Mastery, the extent to which one feels in control over life and disease, has a key role in this process. Results support a relevance of self-efficacy in disease management and patient education. In order to improve patients’ mental health, research is warranted whether mastery and its relation with depression can be modified.

scholarly journals Social Role Participation Questionnaire for patients with ankylosing spondylitis: translation into Dutch, reliability and construct validity

RMD Open ◽  
2016 ◽  
Vol 2 (1) ◽  
pp. e000177 ◽  
Author(s):  
Simon van Genderen ◽  
Guy Plasqui ◽  
Diane Lacaille ◽  
Suzanne Arends ◽  
Floris van Gaalen ◽  
...  
Keyword(s):  
Ankylosing Spondylitis ◽  
Construct Validity ◽  
Social Role

Assessing the Measurement Properties of the Fitbit Zip® Among Adults Living With HIV

2020 ◽  
Vol 17 (3) ◽  
pp. 293-305
Author(s):  
Matthieu Dagenais ◽  
Nancy M. Salbach ◽  
Dina Brooks ◽  
Kelly K. O’Brien
Keyword(s):  
Physical Activity ◽  
Construct Validity ◽  
A Priori ◽  
Intraclass Correlation ◽  
Correlation Coefficients ◽  
Measurement Properties ◽  
Activity Questionnaires ◽  
Walking Speeds ◽  
Living With Hiv ◽  
Walk Tests

Purpose: To assess the criterion and construct validity of the Fitbit Zip® to measure physical activity among adults living with HIV. Methods: Participants were video recorded completing 2 walk tests while wearing the Fitbit Zip® and completed 3 self-reported physical activity questionnaires 1 week later. The authors calculated intraclass correlation coefficients (ICCs) to determine agreement between the number of steps taken and distance walked (Fitbit Zip®) with the visual count of number of steps taken and actual distance walked (walk tests). The authors tested 15 a priori hypotheses about predicted associations between questionnaire scores and physical activity measured by the Fitbit Zip®. Results: Among the 34 participants, there was “excellent” agreement between the number of steps taken measured by the Fitbit Zip® and visually counted number of steps taken (ICC = .99) and number of steps taken at slow (ICC = .75), moderate (ICC = .85), and fast (ICC = .78) walking speeds. There was “poor” agreement between the Fitbit Zip® recorded distance and actual determined distance walked (ICC = .20). Three (20%) construct validity hypotheses were confirmed. Conclusions: The Fitbit Zip® demonstrated criterion validity for its ability to measure number of steps taken but not distance walked, and did not demonstrate construct validity for measuring physical activity among adults with HIV.

scholarly journals Performance of the inFLUenza Patient-Reported Outcome Plus (FLU-PRO Plus©) instrument in patients with COVID-19

2021 ◽  
Author(s):  
Stephanie A Richard ◽  
Nusrat Epsi ◽  
Simon Pollett ◽  
David A Lindholm ◽  
Allison M W Malloy ◽  
...  
Keyword(s):  
Data Collection ◽  
Construct Validity ◽  
Disease Severity ◽  
Intraclass Correlation ◽  
Patient Reported Outcome ◽  
Measurement Properties ◽  
Military Health ◽  
Research Activities ◽  
Patient Reported ◽  
Tract Infections

Abstract Background The FLU-PRO Plus is a patient-reported outcome data collection instrument assessing symptoms of viral respiratory tract infections across eight body systems. This study evaluated the measurement properties of FLU-PRO Plus in a study enrolling individuals with COVID-19. Methods Data from a prospective cohort study (EPICC) in US Military Health System (MHS) beneficiaries evaluated for COVID-19 was utilized. Adults with symptomatic SARS-CoV-2 infection with FLU-PRO Plus survey information within one week of symptom onset were included. Reliability of FLU-PRO Plus was estimated using intraclass correlation coefficients (ICC; 2 days reproducibility). Known-groups validity was assessed using patient global assessments (PGA) of disease severity. Patient report of return to usual health was used to assess responsiveness (day 1-6/7). Results 226 SARS-CoV-2 positive participants were included in the analysis. Reliability among those who reported no change in their symptoms from one day to the next was high for most domains (ICC range 0.68-0.94 for day 1 to day 2). Construct validity was demonstrated by moderate to high correlation between the PGA rating of disease severity and domain and total scores (e.g., total scores correlation: 0.69 (influenza-like illness severity), 0.69 (interference in daily activities), and -0.58 (physical health)). In addition, FLU-PRO Plus demonstrated good known-groups validity, with increasing domain and total scores observed with increasing severity ratings. Conclusions FLU-PRO Plus performs well in measuring signs and symptoms in SARS-CoV-2 infection with excellent construct validity, known-groups validity, and responsiveness to change. Standardized data collection instruments facilitate meta-analyses, vaccine effectiveness studies, and other COVID-19 research activities.

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