scholarly journals Community engagement approaches for Indigenous health research: recommendations based on an integrative review

BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e039736
Author(s):  
Chu Yang Lin ◽  
Adalberto Loyola-Sanchez ◽  
Elaine Boyling ◽  
Cheryl Barnabe
Keyword(s):  
Community Engagement ◽  
Health Research ◽  
Indigenous Health ◽  
Indigenous Communities ◽  
Indigenous Community ◽  
Integrative Review ◽  
Community Settings ◽  
Comprehensive List ◽  
The Usa ◽  
Research Recommendations

ObjectiveCommunity engagement practices in Indigenous health research are promoted as a means of decolonising research, but there is no comprehensive synthesis of approaches in the literature. Our aim was to assemble and qualitatively synthesise a comprehensive list of actionable recommendations to enhance community engagement practices with Indigenous peoples in Canada, the USA, Australia and New Zealand.DesignIntegrative review of the literature in medical (Medline, Cumulative Index to Nursing and Allied Health Literature and Embase) and Google and WHO databases (search cut-off date 21 July 2020).Article selectionStudies that contained details regarding Indigenous community engagement frameworks, principles or practices in the field of health were included, with exclusion of non-English publications. Two reviewers independently screened the articles in duplicate and reviewed full-text articles.AnalysisRecommendations for community engagement approaches were extracted and thematically synthesised through content analysis.ResultsA total of 63 studies were included in the review, with 1345 individual recommendations extracted. These were synthesised into a list of 37 recommendations for community engagement approaches in Indigenous health research, categorised by stage of research. In addition, activities applicable to all phases of research were identified: partnership and trust building and active reflection.ConclusionsWe provide a comprehensive list of recommendations for Indigenous community engagement approaches in health research. A limitation of this review is that it may not address all aspects applicable to specific Indigenous community settings and contexts. We encourage anyone who does research with Indigenous communities to reflect on their practices, encouraging changes in research processes that are strengths based.

scholarly journals Community Engagement Approaches for Indigenous Health Research: an Integrative Review

2020 ◽  
Author(s):  
Chu Yang Lin ◽  
Adalberto Loyola-Sanchez ◽  
Elaine Boyling ◽  
Cheryl Barnabe
Keyword(s):  
Community Engagement ◽  
Health Research ◽  
Indigenous Health ◽  
Indigenous Communities ◽  
Indigenous Community ◽  
Integrative Review ◽  
World Health ◽  
Comprehensive List ◽  
Health Organization ◽  
Cutoff Date

Abstract Background Community engagement practices in Indigenous Health research are promoted as a means of decolonizing research, but there is no comprehensive synthesis of approaches in the literature. Our aim was to assemble and qualitatively synthesize a comprehensive list of actionable recommendations to enhance community engagement practices with Indigenous Peoples.MethodsWe performed an integrative review of literature in medical (Medline, CINAHL and Embase), as well as Google and World Health Organization databases (search cutoff date November 17, 2018). Studies that contained details regarding Indigenous community engagement frameworks, principles or practices in the field of health were included, with exclusion of non-English publications. Two reviewers independently screened the articles in duplicate and reviewed full text articles. Recommendations for community engagement approaches were extracted and thematically synthesized through content analysis.Results A total of 52 studies were included in the review, with 1268 individual recommendations extracted. These were synthesized into a list of 37 recommendations for community engagement approaches in Indigenous health research, categorized by stage of research. In addition, activities applicable to all phases of research were identified: partnership and trust building, and active reflection.Conclusions We provide a comprehensive list of recommendations for Indigenous community engagement approaches in health research. A limitation of this review is that it may not address all aspects applicable to specific Indigenous community settings and contexts. We encourage anyone who does research with Indigenous communities to reflect upon their practices, encouraging changes in research processes that are strengths-based.

scholarly journals Are we walking the talk of participatory Indigenous health research? A scoping review of the literature in Atlantic Canada

PLoS ONE ◽  
2021 ◽  
Vol 16 (7) ◽  
pp. e0255265
Author(s):  
Kathleen Murphy ◽  
Karina Branje ◽  
Tara White ◽  
Ashlee Cunsolo ◽  
Margot Latimer ◽  
...  
Keyword(s):  
Community Engagement ◽  
Participatory Research ◽  
Scoping Review ◽  
Health Research ◽  
Indigenous Health ◽  
Indigenous Communities ◽  
Research Process ◽  
Atlantic Canada ◽  
Health Related ◽  
Canada Data

Introduction Participatory research involving community engagement is considered the gold standard in Indigenous health research. However, it is sometimes unclear whether and how Indigenous communities are engaged in research that impacts them, and whether and how engagement is reported. Indigenous health research varies in its degree of community engagement from minimal involvement to being community-directed and led. Research led and directed by Indigenous communities can support reconciliation and reclamation in Canada and globally, however clearer reporting and understandings of community-led research is needed. This scoping review assesses (a) how and to what extent researchers are reporting community engagement in Indigenous health research in Atlantic Canada, and (b) what recommendations exist in the literature regarding participatory and community-led research. Methods Eleven databases were searched using keywords for Indigeneity, geographic regions, health, and Indigenous communities in Atlantic Canada between 2001-June 2020. Records were independently screened by two reviewers and were included if they were: peer-reviewed; written in English; health-related; and focused on Atlantic Canada. Data were extracted using a piloted data charting form, and a descriptive and thematic analysis was performed. 211 articles were retained for inclusion. Results Few empirical articles reported community engagement in all aspects of the research process. Most described incorporating community engagement at the project’s onset and/or during data collection; only a few articles explicitly identified as entirely community-directed or led. Results revealed a gap in reported capacity-building for both Indigenous communities and researchers, necessary for holistic community engagement. Also revealed was the need for funding bodies, ethics boards, and peer review processes to better facilitate participatory and community-led Indigenous health research. Conclusion As Indigenous communities continue reclaiming sovereignty over identities and territories, participatory research must involve substantive, agreed-upon involvement of Indigenous communities, with community-directed and led research as the ultimate goal.

scholarly journals Enhancing Indigenous health research capacity in northern Ontario through distributed community engaged medical education at NOSM: A qualitative evaluation of the community engagement through research pilot program

2018 ◽  
Vol 9 (1) ◽  
pp. e21-32 ◽  
Author(s):  
Marion Maar ◽  
Lisa Boesch ◽  
Sheldon Tobe
Keyword(s):  
Medical Education ◽  
Medical Students ◽  
Community Engagement ◽  
Health Research ◽  
Research Training ◽  
Indigenous Health ◽  
Indigenous Communities ◽  
Social Accountability ◽  
Community Based ◽  
The Social

Background: The Community Engagement Through Research (CETR) program matches Indigenous communities interested in exploring their own health research questions with NOSM learners seeking experience in health services research, supervised by faculty experienced in community-based participatory research.Methods: Qualitative research was conducted using key informant interviews to examine outcomes of the matching of medical students with Indigenous distributed medical education (DME) communities in NOSM’s distributed curriculum, in particular improvements for capacity for Indigenous health research in Northern Ontario.Results: Interviews showed that community-centred research was appreciated by community, students and faculty and the social accountability aspect was acknowledged.  Students and community members found meaning in the immediate applicability of the research to real community problems and felt inspired by it. The challenges that were identified were mainly related to time and resource constraints, including providing sufficient research training for learners, and the time period required for research ethics board approvals.  Conclusions: The program successfully brought together communities interested in conducting their own health research, with medical students interested in learning about and conducting health research with Indigenous communities. It is therefore an example of successful community based participatory research supporting the social accountability mandate. Challenges are mainly administrative in nature. The program has the potential to be scalable and financially sustainable. 

scholarly journals If We Show Them Will They Come? Attitudes of Native American Youth Towards Higher Education

2020 ◽  
Vol 4 (2) ◽  
pp. 99-105
Author(s):  
Emmerentine Oliphant ◽  
Sharon B. Templeman
Keyword(s):  
Native American ◽  
Health Research ◽  
Indigenous Health ◽  
Ways Of Knowing ◽  
Indigenous Communities ◽  
Native Community ◽  
Research Methodologies ◽  
General Validity ◽  
Native Canadian ◽  
Indigenous Ways Of Knowing

Indigenous health research should reflect the needs and benefits of the participants and their community as well as academic and practitioner interests. The research relationship can be viewed as co-constructed by researchers, participants, and communities, but this nature often goes unrecognized because it is confined by the limits of Western epistemology. Dominant Western knowledge systems assume an objective reality or truth that does not support multiple or subjective realities, especially knowledge in which culture or context is important, such as in Indigenous ways of knowing. Alternatives and critiques of the current academic system of research could come from Native conceptualizations and philosophies, such as Indigenous ways of knowing and Indigenous protocols, which are increasingly becoming more prominent both Native and non-Native societies. This paper contains a narrative account by an Indigenous researcher of her personal experience of the significant events of her doctoral research, which examined the narratives of Native Canadian counselors’ understanding of traditional and contemporary mental health and healing. As a result of this narrative, it is understood that research with Indigenous communities requires a different paradigm than has been historically offered by academic researchers. Research methodologies employed in Native contexts must come from Indigenous values and philosophies for a number of important reasons and with consequences that impact both the practice of research itself and the general validity of research results. In conclusion, Indigenous ways of knowing can form a new basis for understanding contemporary health research with Indigenous peoples and contribute to the evolution of Indigenous academics and research methodologies in both Western academic and Native community contexts.

scholarly journals Traditional Medicine for Children among Kaluppini Indigenous People in South Sulawesi

2020 ◽  
pp. 319-331
Author(s):  
Nurbaya Nurbaya ◽  
Wahyu Chandra ◽  
Pramesthi Widya Hapsari
Keyword(s):  
Traditional Knowledge ◽  
Indigenous People ◽  
Indigenous Health ◽  
Indigenous Communities ◽  
Indigenous Community ◽  
Traditional Birth Attendants ◽  
Birth Attendants ◽  
South Sulawesi ◽  
Traditional Remedies ◽  
Sick Children

The traditional knowledge about the use of ancestral medicines to cure children was highly valued by the indigenous community and an essential part of their indigenous health system. This study aimed to provide insight into the traditional medication using plant-based medication to children in an indigenous community in South Sulawesi Province. This study was conducted in Kaluppini Village, Enrekang Regency, South Sulawesi. In-depth interviews and focus group discussions were conducted both in Bahasa Indonesia and the local language. Informants were traditional birth attendants and mothers of under-five. This study was carried out from January to June 2018. Data were analyzed using thematic coding. It is found that Kaluppini mothers have traditional knowledge of treatment. They used kinds of plants as traditional remedies to cure their children. This traditional medication named as pembollo’ and pejappi. Pembollo’ are traditional plants intended to cure sick children. Kaluppini people believe that pejappi is a collection of traditional plant that can treat kinds of illnesses among children, including to prevent them from supernatural things. Kaluppini indigenous people practice and believe in their traditional plants to cure their children. Traditional birth attendants play a crucial role in providing these traditional plants. Information provided in this study could be a rational basis for health-related stakeholders to develop programs of health education and promotion for indigenous communities.

scholarly journals Key Considerations: Indigenous Peoples in COVID-19 Response and Recovery

2021 ◽  
Author(s):  
Araujo, Susana Araujo, Susana ◽  
Mariah Cannon ◽  
Megan Schmidt-Sane ◽  
Alex Shankland ◽  
Mieke Snijder ◽  
...  
Keyword(s):  
South America ◽  
Community Engagement ◽  
Indigenous Peoples ◽  
Indigenous Communities ◽  
Amazon Region ◽  
Indigenous Community ◽  
Health And Development ◽  
Response And Recovery ◽  
Indigenous Voices

Indigenous peoples have experienced heightened vulnerability during the COVID-19 pandemic and face disproportionately high COVID-19 mortality. To better address these vulnerabilities, it is critical to adapt COVID-19 programmes to the particular needs of indigenous peoples, as articulated by indigenous voices. It is also vital to link up with responses already ongoing and led by indigenous peoples to mitigate this crisis. This SSHAP brief discusses key considerations for COVID-19 response and recovery, with a particular focus on the Amazon region of South America. The considerations in this brief are drawn from a review of evidence and insights provided by indigenous leaders and researchers from several different continents. The considerations are rooted in key principles for indigenous community engagement, as articulated by indigenous peoples and organisations. This brief may be of interest to health and development policymakers and practitioners working in indigenous communities and territories and can be read in conjunction with the SSHAP background report on ‘Indigenous Peoples and COVID-19.’

scholarly journals Responding to health inequities: Indigenous health system innovations

2016 ◽  
Vol 1 ◽  
Author(s):  
J. G. Lavoie ◽  
D. Kornelsen ◽  
L. Wylie ◽  
J. Mignone ◽  
J. Dwyer ◽  
...  
Keyword(s):  
Health System ◽  
Indigenous Health ◽  
Indigenous Communities ◽  
Health Inequities ◽  
Healthcare Services ◽  
International Perspective ◽  
Full Potential ◽  
Community Members ◽  
Culturally Informed ◽  
The Usa

Over the past decades, Indigenous communities around the world have become more vocal and mobilized to address the health inequities they experience. Many Indigenous communities we work with in Canada, Australia, Latin America, the USA, New Zealand and to a lesser extent Scandinavia have developed their own culturally-informed services, focusing on the needs of their own community members. This paper discusses Indigenous healthcare innovations from an international perspective, and showcases Indigenous health system innovations that emerged in Canada (the First Nation Health Authority) and Colombia (Anas Wayúu). These case studies serve as examples of Indigenous-led innovations that might serve as models to other communities. The analysis we present suggests that when opportunities arise, Indigenous communities can and will mobilize to develop Indigenous-led primary healthcare services that are well managed and effective at addressing health inequities. Sustainable funding and supportive policy frameworks that are harmonized across international, national and local levels are required for these organizations to achieve their full potential. In conclusion, this paper demonstrates the value of supporting Indigenous health system innovations.

scholarly journals “Garbage in, Garbage Out” Does Not Hold True for Indigenous Community Flood Extent Modeling in the Prairie Pothole Region

Water ◽  
2019 ◽  
Vol 11 (12) ◽  
pp. 2486
Author(s):  
Anuja Thapa ◽  
Lori Bradford ◽  
Graham Strickert ◽  
Xiaolei Yu ◽  
Anthony Johnston ◽  
...  
Keyword(s):  
Risk Management ◽  
Rural Communities ◽  
Community Engagement ◽  
Prairie Pothole Region ◽  
Good Practice ◽  
Land Use Changes ◽  
Indigenous Communities ◽  
Indigenous Community ◽  
Flood Mapping ◽  
Prairie Pothole

Extensive land use changes and uncertainties arising from climate change in recent years have contributed to increased flood magnitudes in the Canadian Prairies and threatened the vulnerabilities of many small and indigenous communities. There is, thus, a need to create modernized flood risk management tools to support small and rural communities’ preparations for future extreme events. In this study, we developed spatial flood information for an indigenous community in Central Saskatchewan using LiDAR based DEM and a spatial modeling tool, the wetland DEM ponding model (WDPM). A crucial element of flood mapping in this study was community engagement in data collection, scenario description for WDPM, and flood map validation. Community feedback was also used to evaluate the utility of the modelled flood outputs. The results showed the accuracy of WDPM outputs could be improved not only with the quality of DEM but also with additional community-held information on contributing areas (watershed information). Based on community feedback, this accessible, spatially-focused modeling approach can provide relevant information for community spatial planning and developing risk management strategies. Our study found community engagement to be valuable in flood modeling and mapping by: providing necessary data, validating input data through lived experiences, and providing alternate scenarios to be used in future work. This research demonstrates the suitability and utility of LiDAR and WDPM complemented by community participation for improving flood mapping in the Prairie Pothole Region (PPR). The approach used in the study also serves as an important guide for applying transdisciplinary tools and methods for establishing good practice in research and helping build resilient communities in the Prairies.

scholarly journals From Bi-culturalism, Multiculturalism, to a Treaty Nation: Re-Writing a Story of Indigenous Community Engagement in Canada

2017 ◽  
Vol 2 (1) ◽  
pp. i-vi
Author(s):  
Natalia Khanenko-Friesen
Keyword(s):  
Community Engagement ◽  
Indigenous Communities ◽  
Advisory Board ◽  
Indigenous Community ◽  
Special Issue ◽  
A Priority

Our Journal team is pleased to present its long-anticipated special issue on the scholarship of community engagement with Indigenous communities. Indigenous engagement has been identified by the Journal’s Advisory Board as a priority focus for our Journal and its special issues. Perhaps this emphasis is not surprising for those based in Canada, as Canadians have been witnessing and living through important societal transformations that recently have been gaining momentum in Canada.

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