scholarly journals Community Engagement Approaches for Indigenous Health Research: an Integrative Review

2020 ◽  
Author(s):  
Chu Yang Lin ◽  
Adalberto Loyola-Sanchez ◽  
Elaine Boyling ◽  
Cheryl Barnabe

Abstract Background Community engagement practices in Indigenous Health research are promoted as a means of decolonizing research, but there is no comprehensive synthesis of approaches in the literature. Our aim was to assemble and qualitatively synthesize a comprehensive list of actionable recommendations to enhance community engagement practices with Indigenous Peoples.MethodsWe performed an integrative review of literature in medical (Medline, CINAHL and Embase), as well as Google and World Health Organization databases (search cutoff date November 17, 2018). Studies that contained details regarding Indigenous community engagement frameworks, principles or practices in the field of health were included, with exclusion of non-English publications. Two reviewers independently screened the articles in duplicate and reviewed full text articles. Recommendations for community engagement approaches were extracted and thematically synthesized through content analysis.Results A total of 52 studies were included in the review, with 1268 individual recommendations extracted. These were synthesized into a list of 37 recommendations for community engagement approaches in Indigenous health research, categorized by stage of research. In addition, activities applicable to all phases of research were identified: partnership and trust building, and active reflection.Conclusions We provide a comprehensive list of recommendations for Indigenous community engagement approaches in health research. A limitation of this review is that it may not address all aspects applicable to specific Indigenous community settings and contexts. We encourage anyone who does research with Indigenous communities to reflect upon their practices, encouraging changes in research processes that are strengths-based.

BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e039736
Author(s):  
Chu Yang Lin ◽  
Adalberto Loyola-Sanchez ◽  
Elaine Boyling ◽  
Cheryl Barnabe

ObjectiveCommunity engagement practices in Indigenous health research are promoted as a means of decolonising research, but there is no comprehensive synthesis of approaches in the literature. Our aim was to assemble and qualitatively synthesise a comprehensive list of actionable recommendations to enhance community engagement practices with Indigenous peoples in Canada, the USA, Australia and New Zealand.DesignIntegrative review of the literature in medical (Medline, Cumulative Index to Nursing and Allied Health Literature and Embase) and Google and WHO databases (search cut-off date 21 July 2020).Article selectionStudies that contained details regarding Indigenous community engagement frameworks, principles or practices in the field of health were included, with exclusion of non-English publications. Two reviewers independently screened the articles in duplicate and reviewed full-text articles.AnalysisRecommendations for community engagement approaches were extracted and thematically synthesised through content analysis.ResultsA total of 63 studies were included in the review, with 1345 individual recommendations extracted. These were synthesised into a list of 37 recommendations for community engagement approaches in Indigenous health research, categorised by stage of research. In addition, activities applicable to all phases of research were identified: partnership and trust building and active reflection.ConclusionsWe provide a comprehensive list of recommendations for Indigenous community engagement approaches in health research. A limitation of this review is that it may not address all aspects applicable to specific Indigenous community settings and contexts. We encourage anyone who does research with Indigenous communities to reflect on their practices, encouraging changes in research processes that are strengths based.


PLoS ONE ◽  
2021 ◽  
Vol 16 (7) ◽  
pp. e0255265
Author(s):  
Kathleen Murphy ◽  
Karina Branje ◽  
Tara White ◽  
Ashlee Cunsolo ◽  
Margot Latimer ◽  
...  

Introduction Participatory research involving community engagement is considered the gold standard in Indigenous health research. However, it is sometimes unclear whether and how Indigenous communities are engaged in research that impacts them, and whether and how engagement is reported. Indigenous health research varies in its degree of community engagement from minimal involvement to being community-directed and led. Research led and directed by Indigenous communities can support reconciliation and reclamation in Canada and globally, however clearer reporting and understandings of community-led research is needed. This scoping review assesses (a) how and to what extent researchers are reporting community engagement in Indigenous health research in Atlantic Canada, and (b) what recommendations exist in the literature regarding participatory and community-led research. Methods Eleven databases were searched using keywords for Indigeneity, geographic regions, health, and Indigenous communities in Atlantic Canada between 2001-June 2020. Records were independently screened by two reviewers and were included if they were: peer-reviewed; written in English; health-related; and focused on Atlantic Canada. Data were extracted using a piloted data charting form, and a descriptive and thematic analysis was performed. 211 articles were retained for inclusion. Results Few empirical articles reported community engagement in all aspects of the research process. Most described incorporating community engagement at the project’s onset and/or during data collection; only a few articles explicitly identified as entirely community-directed or led. Results revealed a gap in reported capacity-building for both Indigenous communities and researchers, necessary for holistic community engagement. Also revealed was the need for funding bodies, ethics boards, and peer review processes to better facilitate participatory and community-led Indigenous health research. Conclusion As Indigenous communities continue reclaiming sovereignty over identities and territories, participatory research must involve substantive, agreed-upon involvement of Indigenous communities, with community-directed and led research as the ultimate goal.


2018 ◽  
Vol 9 (1) ◽  
pp. e21-32 ◽  
Author(s):  
Marion Maar ◽  
Lisa Boesch ◽  
Sheldon Tobe

Background: The Community Engagement Through Research (CETR) program matches Indigenous communities interested in exploring their own health research questions with NOSM learners seeking experience in health services research, supervised by faculty experienced in community-based participatory research.Methods: Qualitative research was conducted using key informant interviews to examine outcomes of the matching of medical students with Indigenous distributed medical education (DME) communities in NOSM’s distributed curriculum, in particular improvements for capacity for Indigenous health research in Northern Ontario.Results: Interviews showed that community-centred research was appreciated by community, students and faculty and the social accountability aspect was acknowledged.  Students and community members found meaning in the immediate applicability of the research to real community problems and felt inspired by it. The challenges that were identified were mainly related to time and resource constraints, including providing sufficient research training for learners, and the time period required for research ethics board approvals.  Conclusions: The program successfully brought together communities interested in conducting their own health research, with medical students interested in learning about and conducting health research with Indigenous communities. It is therefore an example of successful community based participatory research supporting the social accountability mandate. Challenges are mainly administrative in nature. The program has the potential to be scalable and financially sustainable. 


Author(s):  
Emmerentine Oliphant ◽  
Sharon B. Templeman

Indigenous health research should reflect the needs and benefits of the participants and their community as well as academic and practitioner interests. The research relationship can be viewed as co-constructed by researchers, participants, and communities, but this nature often goes unrecognized because it is confined by the limits of Western epistemology. Dominant Western knowledge systems assume an objective reality or truth that does not support multiple or subjective realities, especially knowledge in which culture or context is important, such as in Indigenous ways of knowing. Alternatives and critiques of the current academic system of research could come from Native conceptualizations and philosophies, such as Indigenous ways of knowing and Indigenous protocols, which are increasingly becoming more prominent both Native and non-Native societies. This paper contains a narrative account by an Indigenous researcher of her personal experience of the significant events of her doctoral research, which examined the narratives of Native Canadian counselors’ understanding of traditional and contemporary mental health and healing. As a result of this narrative, it is understood that research with Indigenous communities requires a different paradigm than has been historically offered by academic researchers. Research methodologies employed in Native contexts must come from Indigenous values and philosophies for a number of important reasons and with consequences that impact both the practice of research itself and the general validity of research results. In conclusion, Indigenous ways of knowing can form a new basis for understanding contemporary health research with Indigenous peoples and contribute to the evolution of Indigenous academics and research methodologies in both Western academic and Native community contexts.


2020 ◽  
pp. 319-331
Author(s):  
Nurbaya Nurbaya ◽  
Wahyu Chandra ◽  
Pramesthi Widya Hapsari

The traditional knowledge about the use of ancestral medicines to cure children was highly valued by the indigenous community and an essential part of their indigenous health system. This study aimed to provide insight into the traditional medication using plant-based medication to children in an indigenous community in South Sulawesi Province. This study was conducted in Kaluppini Village, Enrekang Regency, South Sulawesi. In-depth interviews and focus group discussions were conducted both in Bahasa Indonesia and the local language. Informants were traditional birth attendants and mothers of under-five. This study was carried out from January to June 2018. Data were analyzed using thematic coding. It is found that Kaluppini mothers have traditional knowledge of treatment. They used kinds of plants as traditional remedies to cure their children. This traditional medication named as pembollo’ and pejappi. Pembollo’ are traditional plants intended to cure sick children. Kaluppini people believe that pejappi is a collection of traditional plant that can treat kinds of illnesses among children, including to prevent them from supernatural things. Kaluppini indigenous people practice and believe in their traditional plants to cure their children. Traditional birth attendants play a crucial role in providing these traditional plants. Information provided in this study could be a rational basis for health-related stakeholders to develop programs of health education and promotion for indigenous communities.


2020 ◽  
Vol 1 (1) ◽  
pp. 2-12
Author(s):  
Bruna Eliza De Dea ◽  
◽  
Grasieli de Oliveira Ramos ◽  
Lea Maria Franceschi Dallanora ◽  
Victor Angelo Martins Montalli ◽  
...  

At the end of 2019, new cases of pneumonia of unknown etiology were identified in China, the cause was attributed to a new type of coronavirus, this infection quickly spread to other countries and gained pandemic status by World Health Organization (WHO) in March 2020. Therefore, containment measures were taken, including social isolation and pause in dental care, since the aerosols generated during this care are classified as high risk for contamination by COVID-19. In this context, children do not seem to be very affected by this infection, since the number of cases is low, but they are considered asymptomatic carriers, contributing to the transmission of the virus to other people. Therefore, the aim of this study was to review the literature in an integrative way, seeking to elucidate the impacts of these factors on the clinical practice of pediatric dentistry. The search resulted in 290 articles, of which 33 were selected for full reading, and 29 articles were included in the integrative review. The COVID-19 pandemic greatly changed the practice in dentistry, new biosafety protocols were established, aiming to minimize viral spread, in pediatric dentistry, dental care was reduced to cases of urgency and emergency, as children are asymptomatic carriers of viruses and when they manifest symptoms, they are less severe when compared to adults. Another recommendation is that whenever dental intervention in pediatric dentistry is necessary, non-invasive or minimally invasive techniques that reduce aerosols should be prioritized.


2021 ◽  
Vol 4 (5) ◽  
pp. 1209-1215
Author(s):  
Usastiawaty Cik Ayu Saadiah Isnainy ◽  
Renda Wulandasari

ABSTRAK Data World Health Organization (2016) dilaporkan prevalensi gout arthritis di dunia adalah 13,6% pria dan 6,4% perempuan. Pada tahun 2015 jumlah penderita arthritis sudah mencapai 66 juta atau hampir 1 dari 3 orang menderita gangguan sendi (WHO, 2016). Hasil Riset Kesehatan Dasar (Riskesdas) tahun 2017, prevalensi arthritis gout tiga tertinggi yaitu di Bali mencapai 22,8%, Aceh 21,3%, dan Lampung 14,5%, sedangkan untuk kota Palembang pada tahun 2016 di bulan JanuariFebruari penyakit pada sistem otot dan jaringan pengikat di urutan ke 4 dari 10 penyakit terbesar sebanyak 7.304 orang, dan pada bulan Maret meningkat sebesar 3.357 orang, sedangkan pada bulan April meningkat sebanyak 5.328 (Dinkes Palembang, 2016). Sedangkan di Desa Padan Arang Kabupaten Lahat, terdapat sedikitnya 30 lansia dan kurang lebih 20 (66,67%) diantaranya mengalami masalah asam urat dengan tanda gejala nyeri pada setiap sendi-sendi baik pagi atau pun malam hari, namun terapi yang digunakan hanya sebatas melakukan kompres hangat saja.Kata Kunci: Kompres jahe merah, Nyeri Gout Atritis (Asam Urat) ABSTRACTData from World Health Organization (2016) reported that the prevalence of gout arthritis in the world is 13.6% of men and 6.4% of women. In 2015 the number of arthritis sufferers reached 66 million or almost 1 in 3 people suffer from joint disorders (WHO, 2016). The results of the Basic Health Research (Riskesdas) in 2017, the highest prevalence of arthritis of gout three, namely in Bali reached 22.8%, Aceh 21.3%, and Lampung 14.5%, while for the city of Palembang in 2016 in January February the disease in the system muscle and connective tissue ranked 4th out of the 10 largest diseases of 7,304 people, and in March it increased by 3,357 people, while in April it increased by 5,328 (Palembang Health Office, 2016). Whereas in Padan Arang Village, Lahat Regency, there are at least 30 elderly people, and approximately 20 (66.67%) of them experience gout problems with signs of pain in every joint either morning or night, but the therapy used is only limited to conducting just warm compresses. Keywords: compress red ginger, gout arthritis pain (gout)


2021 ◽  
Vol 3 (1) ◽  
pp. 76-85
Author(s):  
Ranjana Koirala ◽  
Tilarupa Bhattarai

Background: The health status of indigenous people including Tharu is very poor. Despite several studies on indigenous communities, no previous studies were found about mental illness and its awareness among the Tharu people in Nepal. Objectives: This study aims to find out the awareness of mental illness among adults of the Tharu community. Within the objective the present study specific to identify the level of awareness on mental illness and to identify an association between selected socio-demographic characteristics and level of awareness on mental illness. Method: The study was based on the descriptive cross-sectional design and was conducted in 3, 4, 6, 8, and 15 wards of the Madhyabindu municipality of Nawalpur District as the majority of the Tharu's household are located in these wards. This research administered a structured questionnaire to assess awareness of Tharu adults on mental illness. Data were collected in September and October 2018. The collected data were analyzed by using descriptive statistical methods where the researcher calculated mean, standard deviation, percentage, and frequency. Chi-square test was used for inferential statistics.Result: Our analysis revealed that the socioeconomic status of the Tharu community is based on agriculture. The overall level of awareness of respondents, 35.5 % had adequate awareness of mental illness whereas 34 % had moderate awareness and 30.5 % respondents had inadequate awareness of the mental illness. The level of awareness of mental illness is statistically significant with the age of respondents, gender, marital status, education status, and occupation status. Conclusion: Based on the findings of the study, it concluded that nearly one-third of Tharu adults have an adequate level of awareness regarding mental illness. Further, the awareness level of Tharu adults tends to vary according to age, sex, education, occupation, and marital status.Implication: The findings of this study imply that mental awareness among the indigenous community is still low and the findings of the study could be used by a mental health organization to plan and implement mental health-related awareness programs in an indigenous community.


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