scholarly journals Patient experiences and perceptions of chronic disease care during the COVID-19 pandemic in India: a qualitative study

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e048926
Author(s):  
Kavita Singh ◽  
Aprajita Kaushik ◽  
Leslie Johnson ◽  
Suganthi Jaganathan ◽  
Prashant Jarhyan ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Lived Experiences ◽  
Chronic Conditions ◽  
Preventive Measures ◽  
Well Being ◽  
Reciprocal Effect ◽  
Chronic Disease Care ◽  
The Social

ObjectivePeople with chronic conditions are known to be vulnerable to the COVID-19 pandemic. This study aims to describe patients’ lived experiences, challenges faced by people with chronic conditions, their coping strategies, and the social and economic impacts of the COVID-19 pandemic.Design, setting and participantsWe conducted a qualitative study using a syndemic framework to understand the patients’ experiences of chronic disease care, challenges faced during the lockdown, their coping strategies and mitigators during the COVID-19 pandemic in the context of socioecological and biological factors. A diverse sample of 41 participants with chronic conditions (hypertension, diabetes, stroke and cardiovascular diseases) from four sites (Delhi, Haryana, Vizag and Chennai) in India participated in semistructured interviews. All interviews were audio recorded, transcribed, translated, anonymised and coded using MAXQDA software. We used the framework method to qualitatively analyse the COVID-19 pandemic impacts on health, social and economic well-being.ResultsParticipant experiences during the COVID-19 pandemic were categorised into four themes: challenges faced during the lockdown, experiences of the participants diagnosed with COVID-19, preventive measures taken and lessons learnt during the COVID-19 pandemic. A subgroup of participants faced difficulties in accessing healthcare while a few reported using teleconsultations. Most participants reported adverse economic impact of the pandemic which led to higher reporting of anxiety and stress. Participants who tested COVID-19 positive reported experiencing discrimination and stigma from neighbours. All participants reported taking essential preventive measures.ConclusionPeople with chronic conditions experienced a confluence (reciprocal effect) of COVID-19 pandemic and chronic diseases in the context of difficulty in accessing healthcare, sedentary lifestyle and increased stress and anxiety. Patients’ lived experiences during the pandemic provide important insights to inform effective transition to a mixed realm of online consultations and ‘distanced’ physical clinic visits.

scholarly journals Dutch Healthcare Professionals Experiences of Assisted Dying: A Constructivist Qualitative Study Conducted in a Chronic Disease Care Centre and Hospice.

2019 ◽  
Author(s):  
Deborah Lewis ◽  
Nancy Preston
Keyword(s):  
Palliative Care ◽  
Chronic Disease ◽  
Qualitative Study ◽  
Healthcare Professionals ◽  
Recovery Period ◽  
Well Being ◽  
Psychological Support ◽  
Assisted Dying ◽  
Care Centre ◽  
Chronic Disease Care

Abstract Background: Assisted dying is a contemporary issue, but comprehensive consideration of healthcare professionals’ experiences has been lacking. This study sought to gain a deeper understanding of professionals’ experiences of assisted dying to inform the global debate surrounding its implementation. Methods: This constructivist, qualitative study, recruited twenty-one physicians, nurses and therapists from a Dutch chronic disease care centre and a hospice. Data were gathered in semi-structured interviews, conducted in English. Questioning focused on professionals’ experiences along a clinical trajectory from an initial request to beyond the death. Data were subjected to thematic analysis to identify main and subthemes. Results: Analytical procedures generated four broad themes ‘Assessment and its Challenges’, ‘Preparing Staff and Learners’, ‘Assisting a Death’ and ‘Bereavement Care and Beyond’, supported by subthemes. Assessment of requests involved all professional groups and required open dialogue, exploration of fears, palliative care optimisation and psychological evaluation. Such measures resolved the majority of requests. Assisted deaths were challenging, required careful management and were not perceived as normal. Administration of lethal drugs and reporting procedures were stressful for physicians. Structured debriefing and proactive psychological support were valued by all professionals, but resolving their emotions took time. Some physicians required a recovery period creating equity of access issues. Life and care experience aided the preparation of professionals, but resilience was also needed. Support for the provision of assisted dying was overwhelming, but this was unqualified in only a third of participants. Conclusions: Assisted dying creates significant challenges for healthcare professionals who require preparation and support. This is likely to require enhanced levels of palliative care education, legislative advice, and proactive psychological support to ensure professionals’ own well-being. Meeting these needs will have financial implications which should be addressed prior to implementing legislation which permits assisted dying.

scholarly journals Depression Survivors Among Emerging Adults: Their Healing Journey

2021 ◽  
Vol 7 (2) ◽  
pp. 47-65
Author(s):  
Wei Zhe Pui ◽  
Jamayah Saili
Keyword(s):  
Qualitative Study ◽  
Coping Strategies ◽  
Emerging Adults ◽  
Healing Process ◽  
Well Being ◽  
Building Blocks ◽  
Structured Interview ◽  
The Self ◽  
Healing Journey

This qualitative study explored the healing process of depression survivors among emerging adults with effective coping strategies utilised by them. A semi-structured interview was conducted on participants aged between 18-28 years old. A theme narrating the experience of the depression survivors were identified: The journey of healing - Crawling out of the quicksand. The survivors emphasised that to achieve healing, everything starts from within the self, and they had been putting in a lot of their extra efforts in helping themselves heal. They all went beyond recovery, where their efforts illustrated their focus on healing, thriving, and achieving optimal well-being upon recovery. Significantly, the relevance and applicability of the building blocks of Seligman’s PERMA model of well-being towards those efforts taken were revealed in the study. .

scholarly journals Loodus tuleb tagasi: delfiinid ja saurused. Libauudistest, photoshop-muistenditest ja meemidest koroonakarantiini ajal

Mäetagused ◽  
2021 ◽  
Vol 79 ◽  
pp. 167-184
Author(s):  
Eda Kalmre ◽  
Keyword(s):  
Social Media ◽  
Coping Strategies ◽  
Well Being ◽  
Point Of View ◽  
Human Existence ◽  
The Other ◽  
Fake News ◽  
The Social ◽  
Truth Value ◽  
Positive Effect

The article follows the narrative trend initiated by the social media posts and fake news during the first months of the corona quarantine, which claims that the decrease of contamination due to the quarantine has a positive effect on the environment and nature recovery. The author describes the context of the topic and follows the changes in the rhetoric through different genres, discussing the ways in which a picture can tell a truthful story. What is the relation between the context, truth, and rhetoric? This material spread globally, yet it was also readily “translated” into the Estonian context, and – what is very characteristic of the entire pandemic material – when approaching this material, truthful and fabricated texts, photos, and videos were combined. From the folkloristic point of view, these rumours in the form of fake news, first presented in the function of a tall tale and further following the sliding truth scale of legends, constitute a part of coping strategies, so-called crisis humour, yet, on the other hand, also a belief story presenting positive imagery, which surrounds the mainly apocalyptically perceived pandemic period and interprets the human existence on a wider scale. Even if these fake news and memes have no truth value, they communicate an idea – nature recovers – and definitely offer hope and a feeling of well-being.

scholarly journals Preparing student paramedics for the mental health challenges of the profession by using the wisdom of the experienced

2020 ◽  
Vol 3 (2) ◽  
Author(s):  
Lisa Holmes ◽  
Natalie Ciccone ◽  
Lynne Cohen ◽  
Richard Brightwell
Keyword(s):  
Mental Health ◽  
New Zealand ◽  
Coping Strategies ◽  
Lived Experiences ◽  
Mental Health Policy ◽  
Well Being ◽  
Undergraduate Curriculum ◽  
Positive Mental Health ◽  
Structured Interviews ◽  
Mental Health Challenges

Given the significant mental health issues affecting our paramedics, there exists an urgent need to promote positive mental health and well-being among future cohorts of student paramedics.  This study investigated the preparedness of student paramedics for the mental health challenges of the profession and explored the coping strategies used by experienced paramedics.The study was conducted in two parts. Part A comprised of two surveys which were developed and administered to 16 course coordinators and 302 students of the 16 accredited undergraduate paramedicine courses across Australia and New Zealand. The survey aimed to identify the perceived need for preparation within the curriculum.  In addition, the anticipations, confidence and fears of student paramedics, Course Coordinators and paramedics were also collected as a means to explore the preparedness through self-evaluation, reflection and discussion.Part B included twenty semi-structured interviews with experienced paramedics, from Australia and New Zealand. The interviews were conducted to gain an understanding of their experiences and the mental health coping strategies they employed, as well as capture the advice they would give to student paramedics. Results from the interviews were validated by three focus groups comprised of six paramedics each, representative of the geographic spread.Results suggest there is widespread recognition for the need to include preparation for the mental health challenges of the profession, within accredited undergraduate paramedic courses, with 100% of course coordinators and 97% of students recognising this need.The interviews with paramedics provided valuable insights into the experiences and strategies used to aid the survival of the paramedics throughout their careers.  Within the interviews, 70% of participants expressed a sincere love for the paramedic role, and 70% identified black humour as the coping strategy most used by themselves and colleagues.  In addition, extensive advice was given to students based upon the paramedics’ lived experiences.  This advice comprised of three themes; support, health and the profession.   These findings were mapped against the aims of Australia’s current Mental Health Policy to provide evidence-based and policy-informed guidelines for the integration of positive mental health strategies into undergraduate paramedicine curricula.Preparing student paramedics for the mental health challenges of the profession could be advantageous.  One way to achieve this is through the inclusion of key content within the undergraduate curriculum by utilising the relatable data collected on anticipation, confidence, fears and the advice offered by the veteran paramedics can be integrated. These lived experiences are highly credible and an opportunity for veterans to contribute positively to the future of paramedicine.

Embodying Punishment

2018 ◽  
Author(s):  
Anastasia Chamberlen
Keyword(s):  
Qualitative Study ◽  
Coping Strategies ◽  
Lived Experiences ◽  
Drug Misuse ◽  
Feminist Critique ◽  
Presentation Of Self ◽  
Simone De Beauvoir ◽  
Former Prisoners ◽  
Time Space

This book offers a theoretical and empirical exploration of women’s lived experiences of imprisonment in England. It puts forward a feminist critique of the prison, and argues that prisoner bodies are central to our understanding of modern punishment, and particularly of women’s survival and resistance during and after prison. Drawing on a feminist phenomenological framework informed by a serious engagement with scholars such as Maurice Merleau-Ponty, Simone de Beauvoir, Erwin Goffman, Michel Foucault, Sandra Lee Bartky, and Tori Moi, Embodying Punishment revisits and expands the literature on the pains of imprisonment, and offers an interdisciplinary examination of the embodiment and identities of prisoners and former prisoners to press the need for a body-aware approach to criminology and penology. The book develops this argument through a qualitative study with prisoners and former prisoners by discussing themes such as: the perception of the prison through time, space, smells, and sounds; the change of prisoner bodies; the presentation of self in and after prison, including the centrality of appearance and prison dress in the management of prisoner and ex-prisoner identities; and a range of coping strategies adopted during and after imprisonment, including prison food, drug misuse, and a case study on women’s self-injuring practices. Embodying Punishment brings to the fore and critically analyses longstanding and urgent problems surrounding women’s multifaceted oppression through imprisonment, including matters of discriminatory and gendered treatment as well as issues around penal harm, and argues for an experientially grounded critique of punishment.

scholarly journals ‘Welzijn op Recept’ (Social Prescribing): a helping hand in re-establishing social contacts – an explorative qualitative study

2017 ◽  
Vol 19 (03) ◽  
pp. 223-231 ◽  
Author(s):  
Miriam L. Heijnders ◽  
J. J. Meijs
Keyword(s):  
Primary Care ◽  
Qualitative Study ◽  
Psychosocial Problems ◽  
Well Being ◽  
Primary Care Providers ◽  
Care Providers ◽  
Social Contacts ◽  
Self Confidence ◽  
The Social

‘Welzijn op Recept’ is an intervention in which primary care providers refer patients with psychosocial problems to a community well-being organisation. Welzijn op Recept has been helping participants in the town of Nieuwegein, the Netherlands for more than three years. An impact study was carried out from September to December 2014. The qualitative study aimed to determine what happens in the chain of the social prescription and what changes the participant experiences in terms of social participation. The participants in this study were selected by the well-being coaches. A total of 10 semi-structured in-depth interviews were conducted. This study has shown that the participants had confidence in their referral to the community well-being organisation. The well-being coaches constitute a link between primary care providers, patients and the community well-being organisation. Participants have explicitly indicated that they experienced an increase in their own strength, self-confidence, self-reliance and the number of social contacts, and stated that they are experiencing better health. A point of special interest in the current programme is the planning of structured follow-up interviews after starting up an activity.

scholarly journals Athletes with Neurodegenerative Disease: A Phenomenological Exploration of Family Members’ Experiences

2021 ◽  
Author(s):  
Matthew Smith ◽  
Georgia Young ◽  
John Batten ◽  
Keith Parry ◽  
Rosie Collins ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Neurodegenerative Disease ◽  
Coping Strategies ◽  
Lived Experiences ◽  
Family Members ◽  
Emotional Responses ◽  
Raising Awareness ◽  
And Coping ◽  
Depth Interviews ◽  
Phenomenological Exploration

This qualitative study involved in-depth interviews with 15 family members (mainly partners and children) of deceased athletes who experienced deterioration in their neurological health towards the end of their life. The purpose of this study was to examine the stressors these family members experienced with the ailed players, their emotional responses to their family member’s condition, as well as the coping strategies they used. Vertical and horizontal thematic analyses were conducted on the data, which revealed five distinct temporal stages, a range of emotional responses, as well as accompanying stressors and coping strategies at each temporal stage. The findings are presented as an ethnodrama, capturing the lived experiences of participants. This ethnodrama aims to resonate with those caring for family members who are experiencing deteriorating neurological health, while also raising awareness of the various emotional responses of the individuals in these situations, as well as inviting dialogue and reflection about these issues.

scholarly journals PSYCHOLOGICAL RESPONSES, COPING STRATEGIES, AND PHYSICAL ACTIVITY DURING THE COVID – 19 PANDEMIC: BULGARIAN PERSPECTIVE

2021 ◽  
Vol 1 (2021) ◽  
pp. 93-105
Author(s):  
Zornitza Mladenova ◽  
Keyword(s):  
Physical Activity ◽  
Coping Strategies ◽  
Social Isolation ◽  
Coping Strategy ◽  
Short Form ◽  
Well Being ◽  
Preventive Strategy ◽  
Psychological Responses ◽  
Metabolic Equivalents ◽  
The Social

Nowadays our global society faces big challenges and threats in the times of the first major pandemic. The outbreak of COVID-19 has forced governments to impose the lock-down policies around the world. Social isolation became a new normal form of living. After the first confirmed case on the 8th of March in Bulgaria, the government announced on the 14th of March the lock-down as a preventive strategy for the whole Bulgarian population. Under such circumstances, the big issue became the question of how to maintain the physical and mental health of people, and how to cope with the new reality. Based on this evidence the aim of the joint research study with Ohio State University, USA, entitled “Psychological Responses, Coping Strategies, and Physical Activity during the COVID – 19 Pandemic” has been proposed from the Bulgarian perspective as follows: 1. Investigate psychological responses, coping strategies, and physical activity during the COVID – 19 lock-down periods. 2. Examine the influence of physical activity as a coping strategy in psychological health and overall well-being during social isolation. To this end, an online questionnaire containing an adapted version of the short-form of International Physical Activity Questionnaire (IPAQ-SF) has been used to assess the practiced level of physical activity and Metabolic Equivalents (MET) energy expenditure, PROMIS Item Bank v1.0 Emotional distress-Anxiety, Herth Hope Index (HHI) (Herth, 1992), and Brief Resilient Coping Scale BRCS (Sinclaire, Wallston, 2004) to evaluate psychological well-being during the social isolation. Evidence suggests that regular participation in physical activity helps decrease overall levels of anxiety and depression as a reliable coping strategy to overcome the social isolation and, as a whole, the negative aspects of lockdown

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