scholarly journals P80 A qualitative exploration of the needs and coping strategies of people with severe asthma

Thorax ◽  
2011 ◽  
Vol 66 (Suppl 4) ◽  
pp. A100-A101
Author(s):  
E. J. Humphreys ◽  
D. A. Campbell ◽  
V. Knowles ◽  
E. Wooler ◽  
A. Caress
Author(s):  
Muhammad Iqbal Haji Mukhti ◽  
Mohd Ismail Ibrahim ◽  
Tengku Alina Tengku Ismail ◽  
Iliatha Papachristou Nadal ◽  
Sureshkumar Kamalakannan ◽  
...  

Background: Stroke is a chronic disease that requires stroke survivors to be supported long-term by their families. This is especially because of the inaccessibility to post-stroke rehabilitation outside hospitals. The Corona Virus Disease 2019 (COVID-19) crisis and the pandemic restrictions in Malaysia are expected to exponentially increase the demand from family caregivers in supporting stroke survivors. Thus, this study aims to explore the burden, experience, and coping mechanism of the family caregivers supporting stroke survivors during the COVID-19 pandemic. Methodology: A phenomenological qualitative study was conducted from November 2020 to June 2021 in Malaysia. A total of 13 respondents were recruited from two public rehabilitation centers in Kota Bharu, Kelantan. In-depth interviews were conducted with the participants. Comprehensive representation of perspectives from the respondents was achieved through purposive sampling. The interviews were conducted in the Kelantanese dialect, recorded, transcribed, and analyzed using thematic analysis. Results: Three themes on burdens and experiences were identified. They were worsening pre-existing issues, emerging new issues, and fewer burdens and challenges. Two themes on coping strategies were also identified. They were problem-focused engagement and emotion-focused engagement. Conclusions: The COVID-19 pandemic has changed the entire system of stroke management. While family caregivers mostly faced the extra burden through different experiences, they also encountered some positive impacts from the pandemic. The integrated healthcare system, especially in the era of digitalization, is an important element to establish the collaborative commitment of multiple stakeholders to compensate burden and sustain the healthcare of stroke survivors during the pandemic.


2019 ◽  
Vol 35 (2) ◽  
pp. 179-200
Author(s):  
Holly A. Muller ◽  
Thomas A. Brewer ◽  
Sita G. Patel ◽  
Dhru Desai

Qualitative interview data were used to explore parental separation and coping strategies among newcomer immigrant adolescents. Participants included 58 newcomer immigrant adolescents from 21 countries of origin. Authors used archival data from students enrolled in two public high schools in a large northeastern city in the United States that exclusively serve international students. The qualitative data were collected from an in-depth semi-structured interview. Interviews were analyzed using a directed content analysis approach with Lazarus and Folkman’s model of coping as the initial framework to identify key themes. Qualitative analysis explored two themes of coping strategies, emotion-focused and problem-focused; subtheme analysis identified six distinct emotion-focused and four distinct problem-focused strategies. A chi-square test of independence showed no significant difference in use of coping strategies between participants who had been separated from their families compared with those who had not. Findings suggest that the types of coping strategies newcomer immigrant adolescents use may be highly influenced by a multitude of individual and environmental factors. Results support the need for interventions that bolster culturally congruent coping strategies such as social support and activity engagement.


2021 ◽  
pp. 027243162110520
Author(s):  
Emma Ashworth ◽  
Anna Hunt ◽  
Jennifer Chopra ◽  
Catrin Eames ◽  
David W. Putwain ◽  
...  

The aim of this study was to explore the experiences and perceived impact of the COVID-19 lockdowns among early adolescents in the northwest of England, as well as explore the self-care and coping strategies that helped the young people continue to thrive. Fourteen adolescents, 9 boys and 5 girls, were recruited from four secondary schools in North West England. Remote online interviews were conducted. Inductive reflexive thematic analysis was used to analyse the interview data and four themes were identified: (1) change: ‘life feels weird’; (2) embracing lockdown; (3) feelings of loss; and (4) stress, worry and challenge. Processes identified will be able to help inform policy and practice for supporting adolescents in the future, including the promotion of positive coping strategies and the provision of resources for young people, schools and families.


2018 ◽  
Vol 34 (5) ◽  
pp. 352-360 ◽  
Author(s):  
Silvia Bonino ◽  
Federica Graziano ◽  
Martina Borghi ◽  
Davide Marengo ◽  
Giorgia Molinengo ◽  
...  

Abstract. This research developed a new scale to evaluate Self-Efficacy in Multiple Sclerosis (SEMS). The aim of this study was to investigate dimensionality, item functioning, measurement invariance, and concurrent validity of the SEMS scale. Data were collected from 203 multiple sclerosis (MS) patients (mean age, 39.5 years; 66% women; 95% having a relapsing remitting form of MS). Fifteen items of the SEMS scale were submitted to patients along with measures of psychological well-being, sense of coherence, depression, and coping strategies. Data underwent Rasch analysis and correlation analysis. Rasch analysis indicates the SEMS as a multidimensional construct characterized by two correlated dimensions: goal setting and symptom management, with satisfactory reliability coefficients. Overall, the 15 items reported acceptable fit statistics; the scale demonstrated measurement invariance (with respect to gender and disease duration) and good concurrent validity (positive correlations with psychological well-being, sense of coherence, and coping strategies and negative correlations with depression). Preliminary evidence suggests that SEMS is a psychometrically sound measure to evaluate perceived self-efficacy of MS patients with moderate disability, and it would be a valuable instrument for both research and clinical applications.


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