scholarly journals Infodemiology and Infoveillance of Multiple Sclerosis in Italy

2013 ◽  
Vol 2013 ◽  
pp. 1-9 ◽  
Author(s):  
Nicola Luigi Bragazzi

Multiple Sclerosis (MS) is a chronic debilitating disease of probable autoimmune inflammatory nature, whose aetiology is not fully understood, despite the many efforts and investigations. In this manuscript, we review the concept of “Multiple Sclerosis 2.0”, that is to say the Internet usage by MS patients, for seeking health and disease-related material for self-care and self-management purposes, and we introduce a Google Trends-based approach for monitoring MS-related Google queries and searches, called MS infodemiology and infoveillance. Google Trends has already proven to be reliable for infectious diseases monitoring, and here we extend its application and potentiality in the field of neurological disorders.

2018 ◽  
Author(s):  
Andrzej Potemkowski ◽  
Waldemar Brola ◽  
Anna Ratajczak ◽  
Marcin Ratajczak ◽  
Jacek Zaborski ◽  
...  

BACKGROUND The internet is a source of knowledge and medium widely used in services that facilitate access to information and networking. Multiple sclerosis (MS) patients find the possibility of acquiring information relating to their condition particularly rewarding. OBJECTIVE We aimed to identify Polish MS patients’ preferences by analyzing a percentage of internet users and determining the most common search subjects and patients’ approach to information on the internet. Disability connected with the condition, its duration, and other factors that influence patients’ internet use were examined along with instances of relations established through the internet and their durability. METHODS The study examined 1045 patients (731 women, 314 men) treated in 10 Polish MS centers, of whom 932 (89.19%) declared to be internet users. Their average age was 40.65 (SD 11.06) and average MS duration was 9.08 (SD 6.97) years. The study used a proprietary survey on information seeking, the range of searched subjects, and internet usage frequency. RESULTS The majority of the patients (494/932, 53.0%) used the internet 6-7 times per week and 4.3% (40/932) declared they spent minimum 2 hours per day. The most commonly searched subjects were world news (604/932, 72.9% of patients using the internet); 60.8% (504/932) searched for information on their condition, particularly for new treatment methods (562/932, 67.8%) and the course of illness (520/932, 62.7%). One’s sex had no impact on internet usage (female vs male, odds ratio [OR] 1.13, 95% CI 0.72-1.77), although a patient’s age might, at varying degrees. We found several significant associations using a .05 significance level: a patient with higher education used the internet 9 times more often than one with primary education (OR 8.64, 95% CI 3.31-22.57); lasting relationships increased chances of internet usage by 10-fold compared to widowers (OR 0.12, 95% CI 0.05-0.31); living in a city with a population over 100,000 increased chances by nearly 6 times compared with the countryside (OR 5.59, 95% CI 2.72-11.48); the relapsing-remitting MS type saw a 2-fold increase compared with the primary progressive MS type (OR 0.47, 95% CI 0.29-0.75); and those needing assistance were 2 times less likely to use the internet than patients who could move independently (OR 0.53, 95% CI 0.31-0.89). More than half of the patients (489/932, 52.5%) did not discuss the information found on the internet with their neurologists; 15.9% (148/932) believed that relationships established through the internet can be stable. CONCLUSIONS The majority of Polish patients use the internet as a crucial information source on their condition and innovative treatment methods. The internet can be helpful in establishing new relationships, which are usually short-lived. Polish patients do not frequently discuss the information gathered on the internet with their doctors.


2019 ◽  
Vol 3 (1) ◽  
pp. 83
Author(s):  
Prita Haryani

The e-safety parenting socialization activity aims to provide knowledge about patterns of childcare in the digital era in using smartphones, especially the use of the Internet. The socialization activities were attended by 38 participants fromTrayeman village, Plered, Bantul. The method used is lecture and question and answer. Socialization material is distributed in the form of material handouts. The implementation of e-safety parenting is getting a good response. The participants were enthusiastic in listening to lectures from the speakers. This can be seen from the many questions raised related to childcare patterns in the digital age in using smartphones, especially Internet usage. After participating in this socialization, the participants of the socialization have understood the potential or risks of children using the Internet, tips on using the Internet wisely and knowing the procedures and techniques for the prevention of negative content on the Internet. Socialization participants can also practice the steps of using the Secure Parental Control App on their smartphone. It is hoped that by taking part in the socialization of e-safety parenting, they will discuss the negative impacts of using gadgets and direct the use of these gadgets for positive activities.


2020 ◽  
Author(s):  
Miguel D'Haeseleer ◽  
Piet Eelen ◽  
Nima Sadeghi ◽  
Marie Béatrice D'Hooghe ◽  
Jeroen Van Schependom ◽  
...  

BACKGROUND Telemedicine is currently flourishing in rural and emergency settings but its routine implementation in chronic neurological disorders develops more hesitatingly. OBJECTIVE To demonstrate the feasibility of planned real-time audiovisual teleconsultation over the internet in patients with multiple sclerosis (MS). METHODS Twenty subjects with MS presenting at a specialized MS center in Belgium were recruited for this study. One teleconsultation was scheduled in each participant. The approach was considered feasible if at least 80% of the planned visits could be completed at the foreseen moment. Patient satisfaction was evaluated by means of 5-point Likert scales containing the categories very unsatisfied, unsatisfied, neutral, satisfied and highly satisfied. RESULTS Seventeen out of twenty teleconsultations were successfully completed (85%). Failures were due to patients not responding (2/20) and technical issues (1/20). Rates of patients declaring themselves satisfied or highy satisfied were 17/17 for technical quality, 15/17 for convenience and 16/17 for overall quality of care. CONCLUSIONS Planned real-time audiovisual teleconsultation over the internet is feasibile and highly appreciated in patients with MS.


2018 ◽  
Vol 2 (1) ◽  
pp. 80
Author(s):  
Muhamad Mustaqim

This paper examines the education of good netizens through a hidden curriculum. The tendency of internet citizens who prefer to spread insults, hatred and even slander, is a problem for the school. Through an excellent netizen-based education strategy, students can be equipped with the values and character of how to use the internet and become good internet citizens. Procedures that can be done in building good netizens through hidden curricula, namely schools are expected to have an educational ideology oriented to multiculturalism, as well as a school culture that is paradigmatic of love and affection. Besides, the teacher must be able to be a good example, through the learning process, always tucking in the value of tolerance and ethics of internet usage. Finally, schools are expected to be able to build a favorable organizational climate.


2016 ◽  
Vol 7 (2) ◽  
pp. 111-124
Author(s):  
Alexander Pschera

"Neben der Industrie hat die Digitalisierung auch die Natur ergriffen. Die Tatsache, dass Tausende von Tieren mit GPS-Sendern aus- gerüstet und überwacht werden, erlaubt, analog zur Industrie 4.0 auch von einer Natur 4.0 zu sprechen. Dieses Internet der Tiere verändert den Begriff, den der Mensch von der Natur hat. Er transformiert die Wahrnehmung vor allem der Natur als etwas fundamental An- deren. Neben den vielen kulturellen Problematisierungen, die das Internet der Tiere mit sich bringt, lassen sich aber auch die Umrisse einer neuen, ganz und gar nicht esoterischen planetarisch-post-digitalen Kultur aufzeigen, die die conditio humana verändert. In addition to industry, digitalization has also taken hold of nature. The fact that thousands of animals are provided and monitored with GPS transmitters allows to speak of nature 4.0 by way of analogy to industry 4.0. This internet of animals changes our idea of nature. Most of all, it transforms the perception of nature as something fundamentally other. Beside the many cultural problems that the internet of animals implies, it can also outline a new, not at all esoteric planetary post-digital culture that is about to change the human condition. "


2019 ◽  
Author(s):  
Dijana Kovacevic ◽  
Ljiljana Kascelan

<p> </p> <p>the present study deals with a more detailed, and updated, modified model that allows for the identification of internet usage patterns by gender. The model was modified due to the development of the internet and new access models, on the one hand, and to the fact that previous studies mainly focuses on various individual (non-interactive) influences of certain factors, on the other.</p> <i></i><u></u><sub></sub><sup></sup> <p>The Decision Tree (DT) method, which is used in our study, does not require a pre-defined underlying relationship. In addition, the method allows a great many explanatory variables to be processed and the most important variables are easy to identify. </p><p>Obtained results can serve as to web developers and designers, since by indicating the differences between male and female internet users in terms of their behaviour on the internet it can help in deciding when, where and how to address and appeal to which section of the user base. It is especially important to know their online preferences in order to enable the adequate and targeted placement of information, actions or products and services for the intended target groups.</p><p> <b></b><i></i><u></u><sub></sub><sup></sup><br></p>


2020 ◽  
Author(s):  
Kunal Srivastava ◽  
Ryan Tabrizi ◽  
Ayaan Rahim ◽  
Lauryn Nakamitsu

<div> <div> <div> <p>Abstract </p> <p>The ceaseless connectivity imposed by the internet has made many vulnerable to offensive comments, be it their physical appearance, political beliefs, or religion. Some define hate speech as any kind of personal attack on one’s identity or beliefs. Of the many sites that grant the ability to spread such offensive speech, Twitter has arguably become the primary medium for individuals and groups to spread these hurtful comments. Such comments typically fail to be detected by Twitter’s anti-hate system and can linger online for hours before finally being taken down. Through sentiment analysis, this algorithm is able to distinguish hate speech effectively through the classification of sentiment. </p> </div> </div> </div>


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