scholarly journals Control Beliefs among People with Dementia: A Systematic Review

2021 ◽  
pp. 1-19
Author(s):  
Ingeborg Halse ◽  
Guro Hanevold Bjørkløf ◽  
Knut Engedal ◽  
Geir Selbæk ◽  
Maria Lage Barca
Keyword(s):  
Quantitative Research ◽  
Personal Control ◽  
Well Being ◽  
Control Beliefs ◽  
Cochrane Library ◽  
Control Belief ◽  
Living Well ◽  
People With Dementia ◽  
The Cochrane Library ◽  
And Coping

<b><i>Introduction:</i></b> Dementia diseases are still incurable, and in order to assist in living well with the disease, researchers are increasing their attention to the value of control beliefs. Control beliefs are associated with coping and psychological well-being; however, knowledge on how they relate to well-being outcomes in people with dementia is limited. This review aimed to synthesize knowledge about control beliefs in this group to guide future interventions and research. <b><i>Method:</i></b> A systematic search of 6 databases (MEDLINE, CINAHL, PsychINFO, AgeLine, Embase, and the Cochrane Library) with broad search terms related to dementia, control, and coping was conducted. Studies that investigated people with a confirmed dementia diagnosis and that used a questionnaire to measure control beliefs quantitatively were included. <b><i>Results:</i></b> Eighteen studies were identified, examining self-efficacy, personal control/mastery, or locus of control. The studies varied in aim and design, with fair to good methodological quality. However, 10 studies included &#x3c;50 participants with dementia, leaving findings unreliable due to low power. Participants with dementia in the mild to moderate stages were included, with average age in the seventies. Except for one validation study, the control belief questionnaires had not been validated for people with dementia. <b><i>Conclusion:</i></b> There is a lack of knowledge about control beliefs among people with dementia, due to few and low-powered studies. Although we cannot conclude regarding control beliefs, our findings support the feasibility of quantitative research on control beliefs among people with dementia and we recommend that they be included in this type of research.

scholarly journals A systematic meta-review of self-management support for people with dementia

Dementia ◽  
2018 ◽  
Vol 19 (2) ◽  
pp. 253-269
Author(s):  
Judith G Huis in het Veld ◽  
Renate Verkaik ◽  
Berno van Meijel ◽  
Anneke L Francke
Keyword(s):  
Systematic Reviews ◽  
Well Being ◽  
Self Management ◽  
Cochrane Library ◽  
Future Research ◽  
Management Support ◽  
People With Dementia ◽  
Literature Searches ◽  
Meta Review ◽  
The Cochrane Library

Self-management support for people with dementia is important to help them and their family caregivers to cope with challenges in daily live. Insight into the effects of self-management support interventions on people with dementia is however lacking, despite existing relevant systematic reviews. We therefore conducted a meta-review of relevant systematic reviews, following the PRISMA statement. Systematic literature searches were conducted in PubMed, CINAHL, the Cochrane Library, Embase and PsycINFO. The searches were done in December 2015, and all relevant references until then were taken into consideration. No conclusions about the effects of self-management support interventions on people with dementia could be drawn. Recommendations for future research and practice include that self-management support interventions and effect measurements should be wider in scope than psychological well-being.

scholarly journals Factors determining eligibility and access to subacute rehabilitation for elderly people with dementia and hip fracture

Dementia ◽  
2015 ◽  
Vol 16 (4) ◽  
pp. 413-423 ◽  
Author(s):  
Rosemary A McFarlane ◽  
Stephen T Isbel ◽  
Maggie I Jamieson
Keyword(s):  
Hip Fracture ◽  
Best Practice ◽  
Inpatient Rehabilitation ◽  
Models Of Care ◽  
Cochrane Library ◽  
Ageing Population ◽  
Barriers To Access ◽  
People With Dementia ◽  
Vulnerable Patients ◽  
The Cochrane Library

With hip fracture and dementia increasing in incidence in the global ageing population, there is a need for the development of specific procedures targeting optimal treatment outcomes for these patients. This paper looks primarily at the factors that limit access to subacute rehabilitation services as a growing body of evidence suggests that access to timely inpatient rehabilitation increases functional outcomes for patients both with dementia and without. Information was gathered by searching electronic data bases (SCOPUS, Medline, CINAHL, Health Source Nursing/Academic Addition, Psychinfo and the Cochrane Library) for relevant articles using the search terms dementia OR Alzheimer* AND hip fracture AND subacute rehabilitation OR convalescence for the period 2005–2015. Abstracts were scanned to identify articles discussing eligibility and access. A total of nine papers were identified that directly addressed this topic. Other papers discussing success or failure of rehabilitation and improved models of care were also reviewed. Barriers to access discussed in the literature include information management, management of comorbidities, attitudes, resource availability, and the quality of evidence and education. By identifying these factors we can identify strategic points of intervention across the trajectory of prevention, treatment and rehabilitation that may improve outcomes for this growing group of vulnerable patients. Emerging best practice for these patients is also discussed.

scholarly journals Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia

2018 ◽  
Vol 48 (13) ◽  
pp. 2130-2139 ◽  
Author(s):  
Anthony Martyr ◽  
Sharon M. Nelis ◽  
Catherine Quinn ◽  
Yu-Tzu Wu ◽  
Ruth A. Lamont ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Life Satisfaction ◽  
Social Engagement ◽  
Meta Analysis ◽  
Well Being ◽  
Factors Associated ◽  
Living Well ◽  
People With Dementia

AbstractCurrent policy emphasises the importance of ‘living well’ with dementia, but there has been no comprehensive synthesis of the factors related to quality of life (QoL), subjective well-being or life satisfaction in people with dementia. We examined the available evidence in a systematic review and meta-analysis. We searched electronic databases until 7 January 2016 for observational studies investigating factors associated with QoL, well-being and life satisfaction in people with dementia. Articles had to provide quantitative data and include ⩾75% people with dementia of any type or severity. We included 198 QoL studies taken from 272 articles in the meta-analysis. The analysis focused on 43 factors with sufficient data, relating to 37639 people with dementia. Generally, these factors were significantly associated with QoL, but effect sizes were often small (0.1–0.29) or negligible (<0.09). Factors reflecting relationships, social engagement and functional ability were associated with better QoL. Factors indicative of poorer physical and mental health (including depression and other neuropsychiatric symptoms) and poorer carer well-being were associated with poorer QoL. Longitudinal evidence about predictors of QoL was limited. There was a considerable between-study heterogeneity. The pattern of numerous predominantly small associations with QoL suggests a need to reconsider approaches to understanding and assessing living well with dementia.

Subjective needs of people with dementia: a review of the literature

2007 ◽  
Vol 19 (3) ◽  
pp. 559-592 ◽  
Author(s):  
Henriëtte G. van der Roest ◽  
Franka J. M. Meiland ◽  
Raffaella Maroccini ◽  
Hannie C. Comijs ◽  
Cees Jonker ◽  
...  
Keyword(s):  
Reference Lists ◽  
Well Being ◽  
Care Needs ◽  
People With Dementia ◽  
Individual Care ◽  
To Come ◽  
The Individual ◽  
And Coping ◽  
Insight Into

Objective: Insight into the individual care needs of the growing number of people with dementia is necessary to deliver more customized care. Our study aims to provide an overview of the literature on the subjective needs of people with dementia.Method: Electronic databases were searched for publications on subjective needs between January 1985 and July 2005, and reference lists were cross-referenced. Extracts of needs were classified within problem areas of the (Dutch) National Dementia Program and quality of life domains, and the extracts were classified as a “need” (an implicitly communicated felt state of deprivation), “want” (expression of a need) or “demand” (suitable solution to fulfill a need).Results: Subjective needs were found in 34 studies with various research aims, such as awareness and coping. Few studies aimed to measure needs of people with dementia. The most frequently reported needs of people with dementia were the need to be accepted and respected as they are, the need to find adequate strategies to cope with disabilities, and the need to come to terms with their situation. Explicit wants or demands were reported less frequently than needs.Conclusion: The high number of reported needs and the limited number of wants and demands show that people with dementia do not frequently mention how they want their needs to be met. Most reported needs are not instrumental, but are related to well-being and coping. Further research to inventory these needs could help achieve more demand-directed and better attuned care in the future.

scholarly journals Interventions for improving self-direction in people with dementia: a systematic review

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Carola M. E. Döpp ◽  
Hermijntje Drenth ◽  
Paul-Jeroen Verkade ◽  
Anneke F. Francke ◽  
Iris van der Heide
Keyword(s):  
Systematic Review ◽  
Methodological Quality ◽  
Quantitative Methods ◽  
Empirical Studies ◽  
Well Being ◽  
Cochrane Library ◽  
Everyday Functioning ◽  
Positive Effects ◽  
People With Dementia ◽  
Essential Components

Abstract Background Dementia is a progressive disease that affects people’s everyday functioning, including the ability to express values, needs and wishes, which can be considered key elements of self-direction. For the purpose of this review, self-direction refers to the organization and/or coordination of your own life, including professional and other care, with the objective of having what you perceive to be a good life. The aim of this systematic review was to assess and describe interventions that aim to improve self-direction of people with dementia. Methods A systematic search was conducted in PubMed, Embase, CINAHL, PsycInfo and the Cochrane Library. Empirical studies up to April 2020 were included that used qualitative and/or quantitative methods and reported on interventions for people with dementia aimed at improving self-direction. Stepwise study selection and the assessment of methodological quality were conducted independently by two authors. Data on study and intervention characteristics, outcomes related to self-direction and well-being of people with dementia and factors influencing the feasibility were extracted systematically and described narratively. Results Ten studies were identified describing a total of nine interventions. Interventions varied in terms of goals, content, target population and duration. Overall, interventions consisted of multiple components focusing on identifying “Who am I?” (beliefs, strengths, values, goals), identifying “What is important to me?” (meaningful activities and goal setting) and/or communicating about preferences with professionals and/or caregivers. The review provides indications that people with dementia may benefit from the interventions included. Overall, positive effects were found in studies on outcomes related to self-direction and wellbeing. However, outcomes measured using quantitative methods showed inconsistent effects between the studies. Conclusions Although the methodological quality of all the studies included was ‘good’ or at least ‘fair’, the evidence base of interventions aiming to improve self-direction is still limited due to the low number of studies, the low number of participants and the frequent use of and their authors’ own non-standardized measures. Nevertheless, the review points towards positive effects on self-direction and well-being. Identifying individual beliefs, strengths, values, goals and meaningful activities can be essential components of these interventions, as well as communication about the desired care and support.

scholarly journals LONELINESS, ISOLATION, AND LIVING ALONE AMONG PEOPLE WITH DEMENTIA AND THEIR CARERS: INSIGHTS FROM THE IDEAL STUDY

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S39-S39
Author(s):  
Christina Victor ◽  
Elizabeth B Fauth
Keyword(s):  
Research Programme ◽  
Well Being ◽  
Network Size ◽  
Living Well ◽  
People With Dementia ◽  
Moderate Dementia ◽  
Scale Range ◽  
Key Indicators ◽  
The Ideal

Abstract The IDEAL research programme is national nine-year (2014-2022) ESRC/NIHR/Alzheimer’s Society UK funded longitudinal cohort study of 1547 people with mild to moderate dementia and 1283 family members or friends who provide support and aims to identify what promotes (or inhibits) people living well with dementia and their carers and how these change longitudinally. Loneliness and/or isolation are key indicators of quality of life and living well is posited as a factor which compromises wellbeing. Loneliness was measured using both the six-item de Jong Gierveld (DJG) scale (range 0-6) and isolation by the six-item Lubben social network scale (range 0 to 30). The three presentations in this symposium use data from the baseline assessment. Clare focuses upon the 18.5% of our participants who live alone and compares them with those living with others and suggests that there are few systematic differences in terms of cognition, psychological factors and well-being between these groups. Using a score of 5+ on the DJG scale, Victor reports that for people with dementia 5 % were severely lonely, which approximates to the national norm, compared with 17% for caregivers. For social isolation people with dementia had smaller social networks (mean =15.1) and higher levels of isolation as measured by a score of 12 or less on the Lubben scale (35%) compared with caregivers (mean network size=17.1 and 18% isolated). Victor and Clare use dyad data for 1089 pairs for loneliness and 1204 for isolation demonstrating congruence of 43% for loneliness and 68% for isolation

scholarly journals Potential of telepresence robots to enhance social connectedness in older adults with dementia: an integrative review of feasibility

2017 ◽  
Vol 29 (12) ◽  
pp. 1951-1964 ◽  
Author(s):  
Wendy Moyle ◽  
Urska Arnautovska ◽  
Tamara Ownsworth ◽  
Cindy Jones
Keyword(s):  
Social Connectedness ◽  
Feasibility Studies ◽  
Dementia Care ◽  
Integrative Review ◽  
Cochrane Library ◽  
Social Connection ◽  
Assistive Robots ◽  
People With Dementia ◽  
Telepresence Robots ◽  
The Cochrane Library

ABSTRACTBackground:Socially assistive robots are increasingly used as a therapeutic tool for people with dementia, as a means to improve quality of life through social connection. This paper presents a mixed-method integrative review of telepresence robots used to improve social connection of people with dementia by enabling real-time communication with their carers.Methods:A systematic search of Medline, ProQuest, PubMed, Scopus, Web of Science, CINAHL, EMBASE, and the Cochrane library was conducted to gather available evidence on the use of telepresence robots, specifically videoconferencing, to improve social connectedness, in people with dementia. A narrative synthesis was used to analyze the included studies.Results:A review of 1,035 records, identified four eligible peer-reviewed publications, reporting findings about three different mobile telepresence robots. The study designs included qualitative and mixed-methods approaches, focusing primarily on examining the feasibility and acceptability of the telepresence robots within the context of dementia care. These studies reported both positive outcomes of using telepresence robots to connect people with dementia to others, as well as barriers, such as a lack of experience in using a robot and technological issues.Conclusion:Although limited, the current literature suggests that telepresence robots have potential utility for improving social connectedness of people with dementia and their carers. However, more systematic feasibility studies are needed to inform the development of telepresence robots followed by clinical trials to establish efficacy within dementia care.

Striving for Positive Aging Among Chinese Older People: Effects of Life Stress and Control Beliefs in a Longitudinal Study

2017 ◽  
Vol 86 (4) ◽  
pp. 382-400
Author(s):  
Luo Lu ◽  
Shu-Fang Kao
Keyword(s):  
Longitudinal Study ◽  
Life Stress ◽  
Meaning In Life ◽  
Well Being ◽  
Control Beliefs ◽  
Control Belief ◽  
Positive Aging ◽  
Peace Of Mind ◽  
Older Chinese ◽  
And Control

We examined effects of life stress and control beliefs on a constellation of subjective indicators of well-being for older people, including meaning in life, happiness, peace of mind, and positive aging perception. The Chinese cultural background provided the sociocultural milieu for the present study. In a longitudinal study, 301 older Chinese adults completed a questionnaire survey twice, 6 months apart. Regression analyses found that stress caused by major life-changing events (acute) and financial hardship (chronic) were consistent negative predictors of all well-being indicators. Furthermore, primary control belief (tenacious goal pursuit) amplified the negative impacts of life events on happiness and peace of mind. Secondary control belief (submitting to circumstances), in contrast, acted as a buffer that alleviated the deleterious effects of financial hardship on peace of mind and meaning in life. Noting the threats of unfavorable life circumstances and the potency of secondary control belief for older Chinese people, theoretical and cultural implications were discussed.

Health-promoting Lifestyle, Illness Control Beliefs and Well-being of the Obese Diabetic Women

2018 ◽  
Vol 30 (2) ◽  
pp. 175-198
Author(s):  
Purnima Awasthi ◽  
Ramesh C. Mishra ◽  
S. K. Singh
Keyword(s):  
Physical Activity ◽  
Stress Management ◽  
Well Being ◽  
Psychosocial Impact ◽  
Self Control ◽  
Control Beliefs ◽  
Control Belief ◽  
Physical Discomfort ◽  
Health Promoting ◽  
Health Promoting Lifestyle

The study examines the role of health-promoting lifestyle and illness control beliefs in well-being of obese diabetic women. Measures of illness control belief, health-promoting lifestyle and obesity-related well-being were given to 100 obese diabetic women selected from outdoors of hospitals in Varanasi. Analysis revealed patients’ stronger belief in ‘doctor-control’ and ‘supernatural-control’ than ‘self-control’ of the disease. Nutrition, interpersonal relations, physical activity and stress management were given more importance in health promotion than spiritual growth-related practices. Belief in ‘self-control’ and ‘doctor-control’ of disease was negatively correlated with ‘psychosocial discomfort’, ‘physical discomfort’ and ‘psychosocial impact’ aspects of obesity, whereas ‘supernatural-control’ showed positive relationship with all aspects. All components of ‘health-promoting lifestyle’ were negatively correlated with ‘physical discomfort’, ‘psychosocial discomfort’ and ‘psychosocial impact’ aspects of obesity. Multiple regression analysis brought out ‘self-control’, ‘supernatural-control’, ‘health responsibility’, ‘physical activity’ and ‘stress management’ as significant predictors of ‘well-being’ of the obese diabetic women.

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