Abstract 12926: Transition Readiness Assessment in Adolescents and Young Adults With Heart Disease: Can We Improve the Outcome?

Objective: Transition is defined as “the process by which adolescents and young adults with chronic childhood illnesses are prepared to take charge of their lives and their health in adulthood”. We previously reported common knowledge deficits and lack of transition readiness (TR) in 13-25 year olds with congenital or acquired heart disease. The aims of this study were to re-evaluate TR in these patients at follow-up (F/U) and to examine the relationship between changes in TR and quality of life (QOL). Methods: Patients (n=106) completed the TR Assessment and Pediatric Quality of Life Inventory (PedsQL) utilizing an e-tablet, web-based format at a routine F/U clinic visit. Changes from initial to F/U scores were evaluated. Results: Median patient age was 18.7 yrs at a median F/U time of 1.02 yrs. Average perceived knowledge deficit score (% of items with no knowledge) at F/U was 18.0 ± 15.2%, decreased from 24.7 ± 16.5%, p<.0001. On a 100-point scale, the mean score for self-efficacy increased from 71.4 ± 17.0 to 76.7 ± 18.2 (p=.004) and for self-management increased from 47.9 ± 18.4 to 52.0 ± 20.7 (p=.0004). While physical QOL did not change, the mean psychosocial QOL score increased significantly from 80.2 ± 13.3 to 82.5 ± 12.0, p=.02. A decrease in knowledge deficit score at F/U was significantly associated with an increased psychosocial QOL score, p=.03. An increase in self-efficacy score was associated with an increase in psychosocial QOL score (p=.04), especially social QOL (p=.02). Among patients who reported receiving specific information after initial TR assessment, knowledge deficits decreased related to medication (p=.002), symptoms to call for (p=.02), how to contact heart doctor (p=.02), and health insurance (p=.10). Self-efficacy scores improved in patients reporting receipt of information regarding how to contact the heart doctor (p=.06) and how to communicate with healthcare team (p=.05). Conclusion: While deficits in knowledge and self-management skills persist, TR assessment and recognition of deficits can improve transition readiness with improved psychosocial QOL. Routine TR assessment is important to identify transition needs. Further studies are needed to examine the relationship between TR and outcomes in young adults with heart disease.

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Transition Readiness in Adolescents and Young Adults with Heart Disease: Can We Improve Quality of Life?

The Journal of Pediatrics ◽

10.1016/j.jpeds.2019.04.060 ◽

2019 ◽

Vol 212 ◽

pp. 73-78 ◽

Cited By ~ 4

Author(s):

Karen Uzark ◽

Katherine Afton ◽

Sunkyung Yu ◽

Ray Lowery ◽

Cynthia Smith ◽

...

Keyword(s):

Quality Of Life ◽

Young Adults ◽

Heart Disease ◽

Adolescents And Young Adults ◽

Improve Quality ◽

Transition Readiness

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Self-management, self-efficacy and knowledge among patients under haemodialysis: a case in Iran

Journal of Research in Nursing ◽

10.1177/1744987120904770 ◽

2020 ◽

Vol 25 (2) ◽

pp. 128-138

Author(s):

Abbass Hafezieh ◽

Mahlagha Dehghan ◽

Mojgan Taebi ◽

Sedigheh Iranmanesh

Keyword(s):

Self Efficacy ◽

Demographic Characteristic ◽

Cross Sectional Study ◽

Self Management ◽

Sectional Study ◽

Cross Sectional ◽

Management Knowledge ◽

Effective Interventions ◽

The Mean

Background Promotion of self-management is one of the effective ways to improve the quality of life of patients under haemodialysis. Therefore, a better understanding of the factors that are effective on self-management might help nurses find an appropriate method for the promotion of self-management. Aims This study aimed to examine self-management and its correlation with self-efficacy and knowledge of haemodialysis among patients under haemodialysis in Yazd, Iran in 2016. Methods This is a cross-sectional study conducted in four haemodialysis centres. All patients who were referred to these centres were selected. Demographic characteristic forms, self-management questionnaires, haemodialysis knowledge questionnaires and chronic diseases self-efficacy scales were used to collect data. Results The score of self-management was between 32 and 80. The mean scores of self-management, knowledge and self-efficacy were 58.88 ± 10.41 (possible score 20–80), 16.15 ± 2.91 (possible score 0–25), 5.24 ± 1.99 (possible score 0–10), respectively. There was a significant positive correlation among self-management, knowledge and self-efficacy. Conclusions The level of self-management was moderate among patients under haemodialysis. Effective interventions including training related to dialysis system, laboratory tests and diet are needed to improve self-management among patients under haemodialysis.

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Knowledge, Attitude, and Self-Efficacy in Asthma Self-Management and Quality of Life

Journal of Asthma ◽

10.1080/02770903.2010.492540 ◽

2010 ◽

pp. 1-6

Author(s):

Carol A. Mancuso ◽

Wendy Sayles ◽

John P. Allegrante

Keyword(s):

Quality Of Life ◽

Self Efficacy ◽

Self Management

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The mediating effect of self‐efficacy on the relationship between family functioning and quality of life among elders with chronic diseases

Nursing Open ◽

10.1002/nop2.906 ◽

2021 ◽

Author(s):

Yuan Yuan ◽

Hui‐wen Xu ◽

Song Zhang ◽

Ying Wang ◽

Akio Kitayama ◽

...

Keyword(s):

Quality Of Life ◽

Family Functioning ◽

Chronic Diseases ◽

Self Efficacy ◽

Mediating Effect ◽

The Relationship

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Mediating role diet self-efficacy plays in the relationship between social support and diet self-management for patients with type 2 diabetes

Archives of Public Health ◽

10.1186/s13690-021-00533-3 ◽

2021 ◽

Vol 79 (1) ◽

Author(s):

Li Yang ◽

Kun Li ◽

Yan Liang ◽

Qiuli Zhao ◽

Dan Cui ◽

...

Keyword(s):

Diabetes Mellitus ◽

Social Support ◽

Type 2 Diabetes ◽

Type 2 Diabetes Mellitus ◽

Self Efficacy ◽

Self Management ◽

Mediating Role ◽

Diet Behavior ◽

The Relationship

Abstract Background It has previously been established that patients who have strong barriers to their diet self-management are more likely to have weak social support; however, the key mechanisms underlying the association between these two variables have not yet been established. This study aims to examine the potential role that diet self-efficacy plays in the relationship between social support and diet behavior in patients with type 2 diabetes mellitus (T2DM). Methods It was a cross-sectional survey. Three hundred-eighty patients diagnosed with T2DM were recruited for this study from five community health centers in China. The Chronic Disease Resource Scale (CIRS), Cardiac Diet Self-efficacy Scale (CDSE), and Food Control Behavior Scale (FCBS) were used to estimate participants’ utilization of social resources, diet self-efficacy, and diet self-management, respectively. The data were analyzed utilizing structural equation modelling. Results The results suggest that both higher levels of social support and diet self-efficacy are related to higher levels of diet self-management. The mediating effect that diet self-efficacy has on the relationship between social support and diet self-management was significant (β = .30, p < .05), explaining 55.68% of the total effect of social support on diet self-management. Conclusions Diet self-efficacy plays a mediating role in the association between social support and diet behavior in patients with type 2 diabetes mellitus.

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A Taxonomic Review of Patient Complaints in Adult Hospital Medicine

Journal of Patient Experience ◽

10.1177/23743735211007351 ◽

2021 ◽

Vol 8 ◽

pp. 237437352110073

Author(s):

Richard M Elias ◽

Karen M Fischer ◽

Mustaqeem A Siddiqui ◽

Trevor Coons ◽

Cindy A Meyerhofer ◽

...

Keyword(s):

Hospital Admissions ◽

Hospital Medicine ◽

Patient Complaints ◽

Period Data ◽

The Mean ◽

Key Features ◽

Person Characteristics ◽

The Relationship ◽

Adult Hospital

Previous studies show that patient complaints can identify gaps in quality of care, but it is difficult to identify trends without categorization. We conducted a review of complaints relating to admissions on hospital internal medicine (HIM) services over a 26-month period. Data were collected on person characteristics and key features of the complaint. The complaints were also categorized into a previously published taxonomy. Seventy-six unsolicited complaints were identified, (3.5 per 1000 hospital admissions). Complaints were more likely on resident services. The mean duration between encounter and complaint was 18 days, and it took an average of 12 days to resolve the complaint. Most patients (59%) had a complaint in the Relationship domain. Thirty-nine percent of complaints mentioned a specific clinician. When a clinician was mentioned, complaints regarding communication and humaneness predominated (68%). The results indicate that the efforts to reduce patient complaints in HIM should focus on the Relationships domain.

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Therapeutic Affordances of Social Media and Associated Quality of Life Outcomes in Young Adults

Social Science Computer Review ◽

10.1177/08944393211032940 ◽

2021 ◽

pp. 089443932110329

Author(s):

Paul Dodemaide ◽

Mark Merolli ◽

Nicole Hill ◽

Lynette Joubert

Keyword(s):

Quality Of Life ◽

Social Media ◽

Young Adults ◽

Well Being ◽

Evidence Base ◽

Social And Emotional ◽

Perceived Quality Of Life ◽

Use Of Social Media ◽

The Relationship

There is a growing body of literature exploring the general population’s use of social media for assistance in dealing with stigmatized health issues. This study presents novel research examining the relationship between social media use and young adults. It utilizes a therapeutic affordance (TA) framework. Quantitative results from this study are complemented by qualitative data. The relationships between distinct social media and their TA (a–b) are presented to highlight their potential to impact positively on social and emotional well-being outcomes. Evidence includes broad support for “connection,” “narration,” and “collaboration” TAs in this context and the relationship between the use of distinct social media and perceived quality of life (QOL) outcomes (a–c). TA provides an appropriate and valuable theoretical framework which is useful for the development of an evidence-base from the analysis of young adult’s social media usage. An analysis of the association between social media and their QOL outcomes is presented according to the TA relationship pathway (a–c–b). The adoption of a TA framework enables a nuanced analysis of significant associations between specific social media, TA, and improved QOL outcomes. This study demonstrates the significant association between social media and perceived QOL outcomes in young adults.

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Self-management factors associated with quality of life among women with endometriosis: a cross-sectional Australian survey

Human Reproduction ◽

10.1093/humrep/deaa330 ◽

2020 ◽

Author(s):

Rebecca O’Hara ◽

Heather Rowe ◽

Jane Fisher

Keyword(s):

Quality Of Life ◽

Chronic Disease ◽

Disease Management ◽

Self Efficacy ◽

Chronic Disease Management ◽

Self Management ◽

Cross Sectional ◽

Female Population ◽

Management Factors

Abstract STUDY QUESTION What self-management factors are associated with quality of life among women with endometriosis? SUMMARY ANSWER Greater self-efficacy was associated with improved physical and mental quality of life. WHAT IS KNOWN ALREADY Women with endometriosis have an impaired quality of life compared to the general female population. However, most studies have investigated quality of life in a hospital or clinic setting rather than a community setting and the association between self-management factors and quality of life have not, to date, been investigated. STUDY DESIGN, SIZE, DURATION A cross-sectional, population-based online survey was performed, which was advertised through women’s, community and endometriosis-specific groups. PARTICIPANTS/MATERIALS, SETTING, METHODS A total of 620 women completed the survey for this study. Mental and physical quality of life was assessed using the standardized SF36v2 questionnaire. Self-management factors included self-efficacy, partners in health (active involvement in managing the condition) and performance of self-care activities. Treatment approaches included the use of hormonal treatment, pain medications and complementary therapies and whether the participant had a chronic disease management plan. Hierarchical regression analyses were used to examine whether self-management and treatment factors were associated with quality of life. MAIN RESULTS AND THE ROLE OF CHANCE Both physical and mental quality of life were significantly lower among women with endometriosis compared to the mean scores of the general Australian female population (P < 0.001). Physical quality of life was positively associated with income sufficiency (P < 0.001) and greater self-efficacy (P < 0.001), but negatively associated with age (P < 0.001), pain severity (P < 0.001), use of prescription medications (P < 0.001), having a chronic disease management plan (P < 0.05) and number of self-care activities (P < 0.05). Mental quality of life was positively associated with being older (P < 0.001), partnered (P < 0.001), having a university education (P < 0.05), increasing self-efficacy (P < 0.001) and higher partners in health scores (P < 0.001). LIMITATIONS, REASONS FOR CAUTION Results are derived from a cross-sectional study and can only be interpreted as associations not as causal relationships. The sample was more educated, more likely to speak English and be born in Australia than the general Australian female population of the same age, which may influence the generalizability of these results. WIDER IMPLICATIONS OF THE FINDINGS This study investigated a knowledge gap by investigating quality of life of women with endometriosis in a large community sample. Self-efficacy was significantly associated with both physical and mental quality of life. Supporting women with endometriosis to improve self-efficacy through a structured chronic disease management programme may lead to improvements in this aspect of wellbeing. STUDY FUNDING/COMPETING INTEREST(S) R.O. undertook this research as part of her PhD at Monash University, which was supported by an Australian Government Research Training Program Stipend. J.F. is the Finkel Professor of Global Public Health, which was supported by the Finkel Family Foundation. There are no conflicts of interest to declare. TRIAL REGISTRATION NUMBER NA.

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