scholarly journals COVID-19: Lessons Learned About Communication Between Family Members and Healthcare Professionals—A Qualitative Study on How Close Family Members of Patients Hospitalized in Intensive Care Unit With COVID-19 Experienced Communication and Collaboration With Healthcare Professionals

2021 ◽  
Vol 58 ◽  
pp. 004695802110600
Author(s):  
Camilla Bernild ◽  
Malene Missel ◽  
Selina Berg
Keyword(s):  
Intensive Care ◽  
Intensive Care Units ◽  
Healthcare Professionals ◽  
Qualitative Interviews ◽  
Family Members ◽  
Theoretical Concept ◽  
Lessons Learned ◽  
The Family ◽  
General Experience ◽  
Close Family

Family members to patients admitted to intensive care units in general experience a psychological crisis with elevated levels of needs in support, information, assurance, and proximity. During COVID-19, this has been made more difficult as visiting restrictions prevent proximity and cause less access to communication with healthcare professionals. This study aims to explore and understand how communication with healthcare professionals was experienced by family members to patients admitted to intensive care units with COVID-19. To gain knowledge about this, 12 qualitative interviews with family members of patients hospitalized with COVID-19 were conducted. Adopting Reflexive Methodology, the interpretation is carried out following 4 levels, where the empirically grounded themes are analyzed and discussed using Habermas’s theoretical concept of communication. The analysis brought forward 2 interconnected themes about how family members experienced the communication with the healthcare professionals during their loved one’s hospitalization with COVID-19: The Structure and Form of the Communication and The Contents of the Communication. The study concludes that the family members experienced large variation in the ways that healthcare professionals communicated with them. This variation in communication goes for the when, how, what, and who—all adding to the level of uncertainty. The analyses show that the family members need more fixed patterns for the communication, more continuity in terms of who they speak to, and that they wish that the communication be conducted in a way that is true, right, and truthful.

Dignified death: Concept development involving nurses and doctors in Pediatric Intensive Care Units

2011 ◽  
Vol 18 (5) ◽  
pp. 694-709 ◽  
Author(s):  
Kátia Poles ◽  
Regina Szylit Bousso
Keyword(s):  
Intensive Care ◽  
End Of Life ◽  
Intensive Care Units ◽  
Healthcare Professionals ◽  
Pediatric Intensive Care ◽  
Concept Development ◽  
Pediatric Intensive Care Units ◽  
The Family ◽  
Values And Beliefs ◽  
Depth Interviews

The aim of this study was to develop the concept of the dignified death of children in Brazilian pediatric intensive care units (PICUs). The Hybrid Model for Concept Development was used to develop a conceptual structure of dignified death in PICUs in an attempt to define the concept. The fieldwork study was carried out by means of in-depth interviews with nine nurses and seven physicians working in PICUs. Not unexpectedly, the concept of dignified death was found to be a complex phenomenon involving aspects related to decisions made by the multidisciplinary team as well as those related to care of the child and the family. Knowledge of the concept’s dimensions can promote reflection on the part of healthcare professionals regarding the values and beliefs underlying their conduct in end-of-life situations. Our hope is that this study may contribute to theoretic and methodological development in the area of end-of-life care.

scholarly journals Family perception of humane care provided by health care personnel

2018 ◽  
Vol 15 (2) ◽  
pp. 8-23
Author(s):  
Luz Marina Bautista Rodríguez ◽  
Yari Paola García Calderón ◽  
Lessly Johana Medina Chaves ◽  
Karley Ginary Cruz Hernández
Keyword(s):  
Intensive Care ◽  
Intensive Care Units ◽  
Family Members ◽  
Nursing Program ◽  
Cross Sectional ◽  
A Value ◽  
The Family ◽  
The University ◽  
Care Perception

Objective: To determine the perception the family has about the humane care in the Intensive Care Units of three Health Service Institutions in the city of Cucuta (Colombia). Materials and Methods: A quantitative cross-sectional descriptive study was performed with a sample of 220 family members that met the requirements of inclusion; for the recollection of the information, the instrument used was denominated Family perception about humanization in the intensive care units, designed and validated in Cucuta by students and teachers of VIII semester from the Nursing Program at the University Francisco de Paula Santander in 2016. To determine the liability the Cronbach’s Alpha was used, obtaining a value of 0.89. Results: The humane care perception by family members was moderate in 63% of the participants. The communication and information, emotional support and family participation were the highest rating categories, while coping and visits had the lowest ratings. Conclusions: The participants of the study perceive as moderate the humane care, since they relate this to the quality of the care provided, considering the evaluated categories in the research. On the other hand, the family members point out that they receive the necessary information and support to involve themselves in the care activities, allowing them for more interaction with the hospitalized familiar and the personnel.

Half the family members of intensive care unit patients do not want to share in the decision-making process: A study in 78 French intensive care units*

2004 ◽  
Vol 32 (9) ◽  
pp. 1832-1838 ◽  
Author(s):  
Élie Azoulay ◽  
Frédéric Pochard ◽  
Sylvie Chevret ◽  
Christophe Adrie ◽  
Djilali Annane ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Decision Making ◽  
Intensive Care ◽  
Intensive Care Units ◽  
Family Members ◽  
Decision Making Process ◽  
The Family

scholarly journals Family Members’ Informal Roles in End-of-Life Decision Making in Adult Intensive Care Units

2012 ◽  
Vol 21 (1) ◽  
pp. 43-51 ◽  
Author(s):  
Jill R. Quinn ◽  
Madeline Schmitt ◽  
Judith Gedney Baggs ◽  
Sally A. Norton ◽  
Mary T. Dombeck ◽  
...  
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Intensive Care ◽  
End Of Life ◽  
Intensive Care Units ◽  
Family Members ◽  
The Family ◽  
Decision Making Processes ◽  
End Of Life Decision ◽  
Life Decision

Background To support the process of effective family decision making, it is important to recognize and understand informal roles that various family members may play in the end-of-life decision-making process. Objective To describe some informal roles consistently enacted by family members involved in the process of end-of-life decision making in intensive care units. Methods Ethnographic study. Data were collected via participant observation with field notes and semistructured interviews on 4 intensive care units in an academic health center in the mid-Atlantic United States from 2001 to 2004. The units studied were a medical, a surgical, a burn and trauma, and a cardiovascular intensive care unit. Participants Health care clinicians, patients, and family members. Results Informal roles for family members consistently observed were primary caregiver, primary decision maker, family spokesperson, out-of-towner, patient’s wishes expert, protector, vulnerable member, and health care expert. The identified informal roles were part of families’ decision-making processes, and each role was part of a potentially complicated family dynamic for end-of-life decision making within the family system and between the family and health care domains. Conclusions These informal roles reflect the diverse responses to demands for family decision making in what is usually a novel and stressful situation. Identification and description of these informal roles of family members can help clinicians recognize and understand the functions of these roles in families’ decision making at the end of life and guide development of strategies to support and facilitate increased effectiveness of family discussions and decision-making processes.

scholarly journals Effect of Programmed Family Presence in Coronary Care Units on Patients’ and Families’ Anxiety

2020 ◽  
Vol 9 (2) ◽  
pp. 104-112
Author(s):  
Seyyedeh Halimeh Kamali ◽  
Masoomeh Imanipour ◽  
Hormat Sadat Emamzadeh Ghasemi ◽  
Zahra Razaghi
Keyword(s):  
Intensive Care ◽  
Intensive Care Units ◽  
Family Members ◽  
Control Group ◽  
Negative Consequences ◽  
Family Presence ◽  
Significant Difference ◽  
The Family ◽  
Coronary Care ◽  
Experimental Group

Introduction: Hospitalization of patients in the intensive care units always has negative consequences such as anxiety and concern for patients and their families. This study aimed to investigate the effect of programmed family presence in intensive care units on patients’ and families’ anxiety. Methods: This was a quasi-experimental study conducted in Iran. The eligible patients and a member of their families were assigned into two groups (N = 80) through convenience sampling. The family members in the experimental group were allowed to attend twice a day for 15 minutes in a planned way beside the patient and contribute to their clinical primary care. In the control group, the family members had a strict limitation to visit their patients based on the usual policy. Anxiety in both groups at the beginning and on the third day of patient’s admission was measured, using Spielberger’s questionnaire. The data were analyzed with SPSS version13. Results: The mean score of anxiety in the control group did not show significant difference in patients and in families, however it had decreased significantly in the experimental group after the intervention for both patients and families. The results showed that mean differences between the two groups was statistically significant in patients and families. Conclusion: The planned presence of the family of patients in coronary care unit (CCU) played a crucial role in reducing the anxiety of patients and their family. Furthermore, it is recommended that strategies of visiting policy in intensive care units (ICUs) should be revised and the possibility be provided for the families’ planned presence and participation in the patient care.

Redefining the Circumstances in which Family Hardship Should Mitigate Sentence Severity

2019 ◽  
Author(s):  
Mirko Bagaric
Keyword(s):  
Family Members ◽  
Case Law ◽  
Financial Hardship ◽  
The Family ◽  
Family Connections ◽  
Criminal Penalties ◽  
Close Family

The hardship stemming from prison goes well beyond the pain experienced by offenders. The family and dependants of prisoners often experience significant inconvenience and hardship. Family members of prisoners have not engaged in wrongdoing and hence arguably their suffering should be a mitigating consideration in sentencing. However, this approach potentially unfairly advantages offenders with close family connections and undermines the capacity of courts to satisfy a number of important sentencing objectives, including the imposition of proportionate penalties. The courts and legislatures have not been able to find a coherent manner in which to reconcile this tension. There is conflicting case law regarding the circumstances in which family hardship can mitigate the severity of criminal penalties. This article examines these competing positions and proposes that family hardship should mitigate penalty severity only when incarcerating the offender would cause severe financial hardship to his or her dependants.

Making a Connection: Family Experiences With Bedside Rounds in the Intensive Care Unit

2018 ◽  
Vol 38 (3) ◽  
pp. 18-26 ◽  
Author(s):  
Shawn E. Cody ◽  
Susan Sullivan-Bolyai ◽  
Patricia Reid-Ponte
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Health Care Providers ◽  
Family Members ◽  
Management Style ◽  
Family Management ◽  
Care Providers ◽  
Bedside Rounds ◽  
The Family ◽  
The Future

Background The hospitalization of a family member in an intensive care unit can be stressful for the family. Family bedside rounds is a way for the care team to inform family members, answer questions, and involve them in care decisions. The experiences of family members with intensive care unit bedside rounds have been examined in few studies. Objectives To describe (1) the experiences of family members of patients in the intensive care unit who participated in family bedside rounds (ie, view of the illness, role in future management, and long-term consequences on individual and family functioning) and (2) the experiences of families who chose not to participate in family bedside rounds and their perspectives regarding its value, their illness view, and future involvement in care. Methods A qualitative descriptive study was done, undergirded by the Family Management Style Framework, examining families that participated and those that did not. Results Most families that participated (80%) found the process helpful. One overarching theme, Making a Connection: Comfort and Confidence, emerged from participating families. Two major factors influenced how that connection was made: consistency and preparing families for the future. Three types of consistency were identified: consistency in information being shared, in when rounds were being held, and in informing families of rounding delays. In terms of preparing families for the future, families appeared to feel comfortable with the situation when a connection was present. When any of the factors were missing, families described feelings of anger, frustration, and fear. Family members who did not participate described similar feelings and fear of the unknown because of not having participated. Conclusion What health care providers say to patients’ families matters. Families may need to be included in decision-making with honest, consistent, easy-to-understand information.

Main information requests of family members of patients in Intensive Care Units

2018 ◽  
Vol 42 (6) ◽  
pp. 337-345
Author(s):  
J.M. Velasco Bueno ◽  
A. Alonso-Ovies ◽  
G. Heras La Calle ◽  
C. Zaforteza Lallemand
Keyword(s):  
Intensive Care ◽  
Intensive Care Units ◽  
Family Members ◽  
Information Requests
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