scholarly journals Sadness, despair and anger when a patient dies alone from COVID-19: A thematic content analysis of Twitter data from bereaved family members and friends

2021 ◽  
pp. 026921632110170
Author(s):  
Lucy E Selman ◽  
Charlotte Chamberlain ◽  
Ryann Sowden ◽  
Davina Chao ◽  
Daniel Selman ◽  
...  
Keyword(s):  
Public Health ◽  
Content Analysis ◽  
End Of Life ◽  
English Language ◽  
Qualitative Content Analysis ◽  
Care Providers ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Twitter Data ◽  
Health And Social Care

Background: To inform clinical practice and policy, it is essential to understand the lived experience of health and social care policies, including restricted visitation policies towards the end of life. Aim: To explore the views and experiences of Twitter social media users who reported that a relative, friend or acquaintance died of COVID-19 without a family member/friend present. Design: Qualitative content analysis of English-language tweets. Data sources: Twitter data collected 7–20th April 2020. A bespoke software system harvested selected publicly-available tweets from the Twitter application programming interface. After filtering we hand-screened tweets to include only those referring to a relative, friend or acquaintance who died alone of COVID-19. Data were analysed using thematic content analysis. Results: 9328 tweets were hand-screened; 196 were included. Twitter users expressed sadness, despair, hopelessness and anger about their experience and loss. Saying goodbye via video-conferencing technology was viewed ambivalently. Clinicians’ presence during a death was little consolation. Anger, frustration and blame were directed at governments’ inaction/policies or the public. The sadness of not being able to say goodbye as wished was compounded by lack of social support and disrupted after-death rituals. Users expressed a sense of political neglect/mistreatment alongside calls for action. They also used the platform to reinforce public health messages, express condolences and pay tribute. Conclusion: Twitter was used for collective mourning and support and to promote public health messaging. End-of-life care providers should facilitate and optimise contact with loved ones, even when strict visitation policies are necessary, and provide proactive bereavement support.

Key Drivers of State Preemption of Food, Nutrition, and Agriculture Policy: A Thematic Content Analysis of Public Testimony

2019 ◽  
Vol 33 (6) ◽  
pp. 894-902 ◽  
Author(s):  
Jennifer L. Pomeranz ◽  
Mark Pertschuk
Keyword(s):  
Public Health ◽  
Content Analysis ◽  
Multinational Corporations ◽  
Local Control ◽  
Local Governments ◽  
Food Policy ◽  
State Legislature ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Food Nutrition

Purpose: Local communities are often active public health policy makers, so state preemption—when the state withdraws authority from local governments—can hinder public health progress. Kansas enacted the most sweeping law in the nation preempting food, nutrition, and agricultural policy. Design: Qualitative thematic content analysis was used on public comments to identify and evaluate common and key arguments. A codebook was developed using an iterative process. Open coding was applied to all comments. Setting: All testimony and comments submitted by individuals and organizations to the Kansas State Legislature on the preemptive bill. Participants: Eight types of commentators submitted 34 written and 12 oral comments. Measures: The data were evaluated on a latent level to examine underlying drivers of preemption. Results: Comments addressed 18 themes, referenced 366 times; 68% in opposition. Common themes included local control, food labeling, public health, need for statewide standards, and debate over food regulation. Key themes included the need for state and federal uniformity to support businesses and consumers, debate over topics not in the bill, the value of local control, confusion over bill coverage, and outside influences. Conclusion: Confusion about bill language and coverage, the combination of food and agricultural issues, and backing by multinational corporations helped propel preemption forward in Kansas. Food policy stakeholders nationally can anticipate similar arguments and strategies in their state.

The experience of being next of kin to an older person in the last phase of life

2010 ◽  
Vol 8 (1) ◽  
pp. 17-26 ◽  
Author(s):  
Magdalena Andersson ◽  
Anna K. Ekwall ◽  
Ingalill R. Hallberg ◽  
Anna-Karin Edberg
Keyword(s):  
Content Analysis ◽  
Everyday Life ◽  
End Of Life ◽  
Social Care ◽  
Qualitative Content Analysis ◽  
Qualitative Interviews ◽  
Older Person ◽  
Next Of Kin ◽  
Health And Social Care ◽  
Professional Care

AbstractObjective:The aim of the study was to investigate the experience of being next of kin to an older person in the last phase of life as narrated after the older person's death.Method:Qualitative interviews were performed with the next of kin (n = 17) to people aged 75 years and older who had recently died and had received help and/or care from the municipality in the last phase of life. Eleven women and six men participated, of whom seven were spouses, nine were children, and one was a grandchild. The interviews were analysed using qualitative content analysis.Results:The experience of the next of kin could be understood as being a devoted companion during the transition toward the inevitable end, embracing the categories of living in the shadow of death; focusing on the needs of the dying person, making adjustments to everyday life; feeling the major responsibility; struggling with the health and social care system; and gaining strength from support.Significance of results:Being next of kin to an old person at the end of life means being a devoted companion during the transition toward the inevitable end, including the feeling of bearing the major responsibility and the need to be acknowledged by professionals. This study points to the importance of having access to professional care when it is needed, to complement and support the next of kin when his or her own resources and strength falter. This also includes support to enable the next of kin to remain involved in the care of his or her loved ones, thereby fulfilling their own wishes.

Fall Prevention Program Characteristics and Experiences of Older Adults and Program Providers in Canada: A Thematic Content Analysis

2019 ◽  
Vol 39 (10) ◽  
pp. 1124-1133 ◽  
Author(s):  
Humna Malik ◽  
Briana Virag ◽  
Fiona Fick ◽  
Paulette V. Hunter ◽  
Sharon Kaasalainen ◽  
...  
Keyword(s):  
Older Adults ◽  
Content Analysis ◽  
Health Care Providers ◽  
Fall Prevention ◽  
Prevention Programs ◽  
Care Providers ◽  
Structured Interviews ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Accessible Information

Objectives: To document the characteristics of fall prevention programs in specific regions in two Canadian provinces and to explore older adults’ and program providers’ experiences with these programs. Methods: Semi-structured interviews were conducted with 16 program providers/managers from 12 different programs. Ten semi-structured focus groups were conducted with 59 older adults. Data were analyzed using thematic content analysis. Results: Older adults reported functional and social benefits. Program providers identified barriers to program success, including cognitive impairment, frailty, and lack of motivation. The need for general attitudinal changes toward older adults’ needs and broader community changes were identified as important by the older adults. Discussion: Easily accessible information about fall prevention programs for older adults and no-cost, ongoing initiatives were critical. Health care providers play keys roles in disseminating information, facilitating referrals, and advocating for initiatives that best meet the needs of older adults in their communities.

scholarly journals What arguments and from whom are most influential in shaping public health policy: thematic content analysis of responses to a public consultation on the regulation of television food advertising to children in the UK

BMJ Open ◽  
2019 ◽  
Vol 9 (8) ◽  
pp. e028221 ◽  
Author(s):  
Ahmed Razavi ◽  
J Adams ◽  
Martin White
Keyword(s):  
Public Health ◽  
Content Analysis ◽  
Health Policy ◽  
Public Health Policy ◽  
Television Advertising ◽  
Public Consultation ◽  
Food Advertising ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Advertising To Children

ObjectivesWe explore one aspect of the decision making process—public consultation on policy proposals by a national regulatory body—aiming to understand how public health policy development is influenced by different stakeholders.DesignWe used thematic content analysis to explore responses to a national consultation on the regulation of television advertising of foods high in fat, salt and sugar aimed at children.SettingUK.Results139 responses from key stakeholder groups were analysed to determine how they influenced the regulator’s initial proposals for advertising restrictions. The regulator’s priorities were questioned throughout the consultation process by public health stakeholders. The eventual restrictions implemented were less strict in many ways than those originally proposed. These changes appeared to be influenced most by commercial, rather than public health, stakeholders.ConclusionsPublic health policy making appears to be considered as a balance between commercial and public health interests. Tactics such as the questioning and reframing of scientific evidence may be used. In this example, exploring the development of policy regulating television food advertising to children, commercial considerations appear to have led to a watering down of initial regulatory proposals, with proposed packages not including the measures public health advocates considered to be the most effective. This seems likely to have compromised the ultimate public health effectiveness of the regulations eventually implemented.

Dealing with troubled conscience in municipal care of older people

2013 ◽  
Vol 20 (3) ◽  
pp. 300-311 ◽  
Author(s):  
Eva Ericson-Lidman ◽  
Gunilla Strandberg
Keyword(s):  
Content Analysis ◽  
Quality Of Care ◽  
Older People ◽  
Healthcare Personnel ◽  
Care Providers ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Daily Work

Troubled conscience may jeopardize the health of healthcare personnel and, hence, the quality of care provided. Learning more about how personnel deal with their troubled conscience therefore seems important. The aim of this study was to describe personnel’s experiences of how they deal with troubled conscience generated in their daily work in municipal care of older people. Interviews were conducted with 20 care providers and analysed with a thematic content analysis. The findings show that in order to deal with troubled conscience, personnel dialogued with themselves and with others. They took measures in a direction they perceived to be correct, and they expressed a need for distancing and re-energizing. It is of importance to share situations that generate troubled conscience in order to find ways to deal with them. Reconsidering one’s ways of dealing with troubled conscience may give care providers an opportunity to reach consensus within themselves.

Ongeschoold maakt onbemind

2012 ◽  
Vol 40 (3) ◽  
Author(s):  
Bram Spruyt
Keyword(s):  
Content Analysis ◽  
Qualitative Content Analysis ◽  
Symbolic Capital ◽  
Social Representation ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Highly Educated ◽  
The Social ◽  
Social Presentation ◽  
Low Educated

Uneducated, unloved. A thematic content analysis on the social presentation of the low- and high educated in two Flemish newspapers Uneducated, unloved. A thematic content analysis on the social presentation of the low- and high educated in two Flemish newspapers This paper contributes to the growing body of research that documents the social representation of social groups in the media. Whereas this type of research repeatedly has been applied to groups defined by gender, ethnicity or social class, we apply it to groups defined by educational level. A qualitative content analysis on 824 articles published by two Flemish newspapers during the periods 1990-2000 and 2009-2010, reveals six meaning constructions of meaning that contribute to the social representation of low en highly educated groups and their mutual relationship. In line with the literature that considers educational credentials a form of symbolic capital, it is found that the differences between high and low educated people are represented as very large but in an essentially non-conflicting manner.

scholarly journals Closing the gaps in defining and conceptualising acceptability of healthcare: A synthesis review and thematic content analysis

2020 ◽  
Author(s):  
Blaise Joy Bucyibaruta ◽  
Doriccah Peu ◽  
Lesley Bamford ◽  
Annatjie van der Wath
Keyword(s):  
Public Health ◽  
Content Analysis ◽  
Conceptual Framework ◽  
Public Health Research ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
The Public ◽  
Health Community ◽  
Acceptability Of Healthcare ◽  
Definition Of

Abstract Background: Acceptability of healthcare is gaining ground in public health research and practice. Overlooking healthcare acceptability when designing, implementing, monitoring and assessing healthcare interventions may lead to those interventions failing. Despite the importance of acceptability, the public health community still has to agree on an explicit definition and conceptual framework of acceptability. We considered different definitions and conceptual frameworks of healthcare acceptability, and identified commonalities to develop an integrated definition of healthcare acceptability. Methods: We conducted a synthesis review and thematic content analysis of research articles that attempt to define healthcare acceptability. We searched online databases including MEDLINE/PubMed, Cochrane Library and Google Scholar for relevant articles. The retained articles were imported into ATLAS.ti 8.4. Using thematic content analysis, we deductively and inductively coded categories and themes related to definitions and frameworks of healthcare acceptability. Results: Our review of the literature described the complexity of healthcare acceptability. The concept of acceptability remains poorly defined limiting its application in public health. We propose a definition of acceptability that includes the needs and expectations of the healthcare recipient, healthcare provider as well as the capacity of the healthcare systems. We define acceptability as a multi-construct concept describing nonlinear cumulative combination in parts or in whole of expected and experienced degree of healthcare from patient, provider or health systems and policy perspectives in a given context. We provide a conceptual framework of acceptability, applicable to the public health research and practice. Conclusion: We present a definition of acceptability that can be applied to different actors of public health including patients, providers, and health systems or policy. The proposed definition of acceptability, together with the conceptual framework provides a coherent conceptualisation that can be used by the broader public health community.

scholarly journals Building Sustainable Rural Age-Friendly Communities: Grassroots Perspectives

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 698-698
Author(s):  
Patricia Oh
Keyword(s):  
Content Analysis ◽  
Rural Communities ◽  
Community Engagement ◽  
Local Knowledge ◽  
Peer To Peer ◽  
Effect Change ◽  
Thematic Content Analysis ◽  
Thematic Content ◽  
Technical Advice ◽  
Rural Work

Abstract Joining the AARP Network of Age-Friendly States and Communities does not make a community age-friendly; the age-friendly team must cultivate community engagement, develop collaborations with diverse stakeholders, mobilize resources, and document achievements. Little research describes the tools age-friendly rural communities use to effect change and develop sustainability. Thematic content analysis of 67 interviews conducted between December 09, 2018 and January 24, 2020 with age-friendly leaders in rural Maine communities suggested that peer-to-peer networking, privileging local knowledge, engaging local and regional partners, technical advice from a trusted source, and fun were among the tools used to move age-friendly rural work forward.

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