Clear conscience grounded in relations: Expressions of Persian-speaking nurses in Sweden

2015 ◽  
Vol 24 (3) ◽  
pp. 349-361 ◽  
Author(s):  
Monir Mazaheri ◽  
Eva Ericson-Lidman ◽  
Ali Zargham-Boroujeni ◽  
Joakim Öhlén ◽  
Astrid Norberg
Keyword(s):  
Residential Care ◽  
Large City ◽  
Ethical Review ◽  
Full Time ◽  
Care Providers ◽  
Immigrant Background ◽  
Cultural Frameworks ◽  
People With Dementia ◽  
Different Cultures ◽  
The Voice

Background: Conscience is an important concept in ethics, having various meanings in different cultures. Because a growing number of healthcare professionals are of immigrant background, particularly within the care of older people, demanding multiple ethical positions, it is important to explore the meaning of conscience among care providers within different cultural contexts. Research objective: The study aimed to illuminate the meaning of conscience by enrolled nurses with an Iranian background working in residential care for Persian-speaking people with dementia. Research design: A phenomenological hermeneutical method guided the study. Participants and research context: A total of 10 enrolled nurses with Iranian background, aged 33–46 years, participated in the study. All worked full time in residential care settings for Persian-speaking people with dementia in a large city, in Sweden. Ethical considerations: The study was approved by the Regional Ethical Review Board for ethical vetting of research involving humans. Participants were given verbal and written study information and assured that their participation was voluntary and confidential. Findings: Three themes were constructed including perception of conscience, clear conscience grounded in relations and striving to keep a clear conscience. The conscience was perceived as an inner guide grounded in feelings, which is dynamic and subject to changes throughout life. Having a clear conscience meant being able to form a bond with others, to respect them and to get their confirmation that one does well. To have a clear conscience demanded listening to the voice of the conscience. The enrolled nurses strived to keep their conscience clear by being generous in helping others, accomplishing daily tasks well and behaving nicely in the hope of being treated the same way one day. Conclusion: Cultural frameworks and the context of practice needed to be considered in interpreting the meaning of conscience and clear conscience.

Non-pharmacological interventions for people with dementia: A review of reviews

Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1927-1954 ◽  
Author(s):  
Claudia Meyer ◽  
Fleur O’Keefe
Keyword(s):  
Emotional Disorders ◽  
Residential Care ◽  
Light Therapy ◽  
Review Literature ◽  
Care Quality ◽  
Cognitive Stimulation ◽  
Rapid Review ◽  
Care Providers ◽  
Pharmacological Interventions ◽  
People With Dementia

Objective Aged care services increasingly respond to the needs of people with dementia. Non-pharmacological approaches are preferable to reduce responsive behaviours, improve/maintain functional capacity and reduce emotional disorders. This rapid review of systematic reviews aimed to consolidate the evidence for non-pharmacological interventions and determine outcome effectiveness. Methods Systematic review literature was comprehensively searched for non-pharmacological interventions for dementia in residential care. Quality ratings used adapted GRADE methodology, and ease of implementation assessed. Results Of 629 abstracts screened, 81 full-text articles were retrieved, 38 articles included. The strongest evidence for reducing responsive behaviours was music, sensory stimulation, simulated presence and validation therapies. Exercise and light therapy improved/maintained activities of daily living, while cognitive stimulation and reminiscence improved cognition. Strongest evidence for reducing emotional disorders was music, psychological interventions and reminiscence. Conclusion Much evidence of varying quality exists, with resource-constrained residential care providers now able to make evidence-based decisions about non-pharmacological interventions.

The Path to Adulthood: A Mixed-Methods Approach to the Exploration of the Experiences of Unaccompanied Minors in Portugal

2021 ◽  
Author(s):  
Carla Moleiro ◽  
Sandra Roberto
Keyword(s):  
Young Adults ◽  
Mixed Methods ◽  
Residential Care ◽  
Host Country ◽  
Qualitative Interviews ◽  
Autobiographical Narratives ◽  
Unaccompanied Minors ◽  
Mixed Methods Approach ◽  
Age Of Majority ◽  
The Voice

Abstract Unaccompanied minors who reach the age of majority often experience this transition as a complex stage. Insecurity and helplessness may arise and, in some cases, survival without the support of the institutions and services that previously protected them as minors in the host country may mean becoming at risk for social exclusion. The objective of the present study was to characterize unaccompanied minors in Portugal (N = 67) and understand the processes of transition into the age of majority, using a mixed-methods approach. Quantitative (survey) and qualitative (interviews on autobiographical narratives) methodologies were used as a means of acknowledging the voice of minors/young adults in their trajectories and experiences. Two groups were included, with minors (in residential care) and youths who had already reached adulthood (living independently). Results illustrate diverse reasons for arrival in Portugal and distinct strengths and struggles in the integration experiences, with both positive and negative aspects being identified in the transition to autonomy.

scholarly journals Caregiver-Centered Care Health Workforce Competencies: Developing Consistent Support for Family Caregivers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 15-15
Author(s):  
Jasneet Parmar ◽  
Sharon Anderson ◽  
Lisa Poole ◽  
Wendy Duggleby ◽  
Jayna Holyroyd-Leduc ◽  
...  
Keyword(s):  
Health System ◽  
Family Caregivers ◽  
Health Providers ◽  
Care Providers ◽  
Modified Delphi ◽  
Healthcare Settings ◽  
Delphi Approach ◽  
People With Dementia ◽  
Health And Social Care ◽  
Centered Care

Abstract Family caregivers [FCGs] are the backbone of the health system. They provide over 80% of the care for people with dementia, chronic illnesses and impairments. Despite evidence of their contributions and consequences of caregiving, support for FCGs has not been a health system priority. Education to prepare health providers to effectively identify, engage, assess, and support FCGs throughout the care trajectory is an innovative approach in addressing inconsistent system of supports for FCGs. We report on development and validation of the Caregiver-Centered Care Competency Framework to help with curricular design and subsequent evaluation of effectiveness of care providers working within healthcare settings to engage and support FCGs. We used a three round modified Delphi approach. An expert panel of 42 international, national, and provincial stakeholders agreed to participate. In the first 2 rounds, multi-level, interdisciplinary participants, rated the indicators in terms of importance and relevance. In the 3rd round consensus meeting, participants validated the six competency domains, including indicators in small group sessions. Thirty-four experts (81%) participated in the round 1, 36 (85.7%) in round 2, and 42 people (100%) in round 3. There was stable consensus across all three rounds, 96.07% of participants rated the indicators as essential or important (Round 1, 95.81%; Round 2, 94.15; Round 3, 98.23%). FCG research has been primarily focussed on educating FCGs to provide care. These competencies will shape the design of educational curricula and interdisciplinary training programs aimed at supporting the health and social care workforce to provide caregiver-centered care.

scholarly journals Care staff and the creative arts: exploring the context of involving care personnel in arts interventions

2017 ◽  
Vol 29 (12) ◽  
pp. 1979-1991 ◽  
Author(s):  
Emma Broome ◽  
Tom Dening ◽  
Justine Schneider ◽  
Dawn Brooker
Keyword(s):  
Residential Care ◽  
Web Of Science ◽  
Care Staff ◽  
Care Practice ◽  
Search Process ◽  
Creative Arts ◽  
Daily Care ◽  
People With Dementia ◽  
Arts Programs ◽  
Intervention Context

ABSTRACTBackground:Arts-based interventions play an important role in the care of people with dementia. Yet, creative arts are seldom implemented as a tool to enhance the care and wellbeing of people with dementia.Methods:We examined the involvement of care staff in creative arts activities in residential care. Aspects of involvement that appear to influence outcomes in people with dementia were identified and analyzed. A broad systematic literature search of MedLine, EMBASE, PsychInfo, CINAHL, ASSIA, SCOPUS, and Web of Science led to the identification of 14 papers. The studies identified through the search process were examined in terms of intervention, context, mechanism and outcome, and the relationships between these aspects.Results:Training sessions were identified as an opportunity to educate care personnel on useful techniques that are relevant to daily care practice. Evidence from the literature suggests that creative arts programs play a significant role in the way staff and residents interact and as a result influence the care practice of staff. Under certain conditions creative arts programs, that involve and engage staff, facilitate enhanced interactions and improve care strategies, which leads to the recognition and validation of personhood in residents with dementia.Conclusions:These findings provide a basis for illustrating which elements of care staff involvement in creative arts programs could be implemented in residential care contexts in order to have the upmost benefit.

scholarly journals Involving Family Members of People with Dementia in  the Music Therapy Process at a Residential Care Facility

2021 ◽  
Author(s):  
◽  
Patrice Dennis
Keyword(s):  
Music Therapy ◽  
Residential Care ◽  
Family Involvement ◽  
Theoretical Perspective ◽  
Family Members ◽  
Care Facility ◽  
Therapy Process ◽  
Residential Care Facility ◽  
Music Therapist ◽  
People With Dementia

<p>The therapeutic use of music with older adults with dementia is widely documented, and family involvement is encouraged in both music therapy practice and dementia care services. This qualitative study explores and describes the experience of a student music therapist involving the family members of people with dementia in the music therapy process in a residential care facility. Grounded theory methodology informed analysis of the data sources. Secondary data was analysed and a theoretical perspective regarding family involvement in the music therapy process in this setting was developed. The findings are presented in main categories consisting of: building relationships, sharing information, unplanned family involvement in music therapy sessions, flexibility, spontaneity, joy and humour, and negotiation of the music therapist role in the community of the facility. The emergent theoretical perspective suggests that involving family members in the music therapy process in residential care facility is valuable in fostering and strengthening a sense of community between residents, family members and care staff.</p>

scholarly journals Sounding diasporic dislocation: The object voice in postcolonial short stories

2021 ◽  
Vol 11 (1-2) ◽  
pp. 11-25
Author(s):  
Jorge Sacido-Romero
Keyword(s):  
Short Stories ◽  
Acoustic Field ◽  
Short Story ◽  
Jacques Lacan ◽  
Black Atlantic ◽  
Introductory Part ◽  
Central Characters ◽  
Different Cultures ◽  
The Voice ◽  
Limited Scope

Jacques Lacan conceives of the voice as more than meets the ear: that is, as an objet a that must be subtracted from the acoustic field to preserve the coherence of reality as a symbolically constructed order in which subjects are inserted and from which they derive a sense of identity. Disruptive manifestations of the object voice are frequent in the modernist and postmodernist British short story, a form which, on account of its brevity and limited scope, renders more sharply the traumatic nature of such episodes, which thus become more memorable and engaging for readers. The short story, likewise, is an apt vehicle for postcolonial and diasporic subjectivities characterized by the tensions and psychic distress provoked by their liminal location between different cultures and their heterogenous and often conflicting interpellations. After an introductory part which elaborates on the interrelations between object voice, the short story genre and the postcolonial subject, this article examines two recent stories by Koye Oyedeji (‘Postscript from the Black Atlantic’) and Diriye Osman (‘Earthling’), in which existential conflicts become so acute that they trigger aural hallucinations, which determine the central characters’ predicament in the context of the migrant diaspora in Britain.

scholarly journals 211 - Changes to post-diagnostic dementia support in England and Wales during the COVID-19 pandemic

2021 ◽  
Vol 33 (S1) ◽  
pp. 13-13
Author(s):  
Alison Wheatley ◽  
Marie Poole ◽  
Louise Robinson
Keyword(s):  
Social Care ◽  
Third Sector ◽  
Full Time ◽  
England And Wales ◽  
Team Meetings ◽  
Use Of Technology ◽  
People With Dementia ◽  
Health And Social Care ◽  
The Impact ◽  
Diagnostic Support

Background:The COVID-19 pandemic precipitated widespread change across health and social care in England and Wales. A series of lockdowns and UK Government guidance designed to reduce the spread of COVID-19 which emphasised social distancing and increased use of personal protective equipment led to changes such as increased use of remote consultation technologies and the closure of services deemed non-essential. This included many services for people with dementia and their families, such as day centres and dementia cafes.Objective:To explore the changes made to services during the pandemic and the impact of these changes on the delivery of good post-diagnostic dementia support.Method:Professionals who had previously been recruited to the ongoing PriDem qualitative study were approached for follow up interview. Eighteen interviews with a total of 21 professionals working in health, social care and the third sector were conducted using telephone or video conferencing.Interviews were audio recorded, transcribed and checked prior to thematic analysis.Results:Key themes emerging from preliminary analysis of the data include: uncertainty about the future and the need to adapt quickly to shifting guidance; changing job roles and ways of working; the emotional and physical impact of the pandemic on staff working with people with dementia and their families; and the impact of changes made (e.g. increased PPE, remote working) on the ability to deliver post-diagnostic support. However, there were also some unintended positive outcomes of the changes. These included the ability to include family members living at a distance in remote consultations, allowing for more robust history-taking, as well as the uptake of technology to facilitate cross-sector and multidisciplinary working between professionals.Conclusion:Delivering post-diagnostic dementia support during COVID-19 was challenging and forced dementia services to make adaptations. Participants expected that some of these changes would be incorporated into post-pandemic work, for example increased use of technology for multidisciplinary team meetings or blended approaches to patient-facing services involving both virtual and face to face work as appropriate. However, most participants agreed that it was not appropriate nor desirable to provide fully remote post-diagnostic support on a full time basis.

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