Pretend Play as an Intervention for Children With Cancer: A Feasibility Study

2019 ◽  
Vol 37 (1) ◽  
pp. 65-75
Author(s):  
Sara Frygner-Holm ◽  
Sandra Russ ◽  
Julia Quitmann ◽  
Lena Ring ◽  
Olena Zyga ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Diagnosis ◽  
Self Efficacy ◽  
Pretend Play ◽  
Well Being ◽  
Children With Cancer ◽  
Play Intervention ◽  
Intervention Measures ◽  
Before And After

Children with cancer suffer from symptoms and burdensome treatments that often cause distress to children and their families. Mortality is one aspect of cancer diagnosis, while another is the quality of life and well-being during and after the treatment. By supporting children’s communication, self-efficacy and coping ability in the care situation, children are given the possibilities for increased independence and participation and are allowed to develop an influence over their care. The aim of this study was to develop and evaluate the feasibility and acceptability of an adult-facilitated pretend play intervention for children with cancer. Five children with ongoing treatment for cancer were invited to a play intervention that consisted of six to eight sessions of structured pretend play aimed at increasing participation, independence, and well-being. A mixed method design was used to evaluate the feasibility and acceptability of the play intervention. Measures were collected before and after interventions, and in conjunction with every play session. Results suggest that the children enjoyed the play intervention. Findings indicate small improvements regarding self-efficacy in care situations and equal or increased quality of life for participants. A main finding was that no adverse events or increased worrying was reported in conjunction with play sessions. Therefore, the intervention is regarded as safe, feasible, and acceptable as reported by participants and their primary caregivers and a possible means of increasing participation and independence in children with a cancer diagnosis.

Relationships between resilience and quality of life in parents of children with cancer

2021 ◽  
pp. 135910532199080
Author(s):  
Y. H. Luo ◽  
W. H. C. Li ◽  
A. T. Cheung ◽  
L. L. K. Ho ◽  
W. Xia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Mainland China ◽  
Well Being ◽  
Children With Cancer ◽  
Psychological Well Being ◽  
Tertiary Hospitals

A child suffering from cancer can be considerably stressful for parents, exerting a negative impact on their psychological well-being and quality of life. This study explored the relationships between resilience and quality of life in parents of children with cancer. We recruited 146 parents of children with cancer in two tertiary hospitals in mainland China. The results revealed that greater parental resilience was associated with better quality of life. It is essential to develop interventions that can enhance resilience for parents of children with cancer, thereby improving their quality of life. ClinicalTrials.gov ID: NCT03631485

Quality of Life before and after Lung Transplantation in Patients with Emphysema versus other Indications

2001 ◽  
Vol 89 (3) ◽  
pp. 707-717 ◽  
Author(s):  
E. M. TenVergert ◽  
K. M. Vermeulen ◽  
A. Geertsma ◽  
P. J. van Enckevort ◽  
W. J. de Boer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Transplantation ◽  
Nottingham Health Profile ◽  
Well Being ◽  
Health Profile ◽  
Health Related Quality ◽  
Before And After ◽  
Related Quality ◽  
Health Related

Whether lung transplantation improves Health-related Quality of Life in patients with emphysema and other end-stage lung diseases before and after lung transplantation was examined. Berween 1992 and 1999, 23 patients with emphysema and 19 patients with other indications completed self-administered questionnaires before lung transplantation, and at 4, 7, 13, and 25 mo. after transplantation. The questionnaire included the Nottingham Health Profile, the State-Trait Anxiety Inventory, the Self-rating Depression Scale, the Index of Well-being, the self-report Karnofsky Index, and four respiratory-specific questions. Neither before nor after transplantation were significant differences found on most dimensions of Health-related Quality of Life between patients with emphysema and other indications. Before transplantation, both groups report major restrictions on the dimensions Energy and Mobility of the Nottingham Health Profile, low experienced well-being, depressive symptoms, and high dyspnea. About 4 mo. after transplantation, most Health-related Quality of Life measures improved significantly in both groups. These improvements were maintained in the following 21 mo.

Quality-of-life measurements in patients receiving radiation therapy for colorectal malignancies as compared to other gastrointestinal malignancies.

2011 ◽  
Vol 29 (4_suppl) ◽  
pp. 587-587
Author(s):  
B. T. Samuelson ◽  
E. K. Fromme ◽  
J. Waller ◽  
C. R. Thomas
Keyword(s):  
Quality Of Life ◽  
Colorectal Cancer ◽  
Well Being ◽  
Colorectal Disease ◽  
Definitive Treatment ◽  
Primary Malignancy ◽  
Gastrointestinal Malignancies ◽  
Before And After ◽  
Colorectal Cancer Patients

587 Background: Therapy for GI malignancies has long been known to have a marked impact on quality of life, yet this relationship remains poorly understood. Methods: A retrospective, IRB-approved chart review was performed of 722 patients receiving RT for any cancer diagnosis between 1/1/2006 and 12/31/2008. Subjects completed the Functional Assessment of Cancer Therapy General (FACT-G) questionnaire before and after RT. Pre- and immediately post-RT course scores were compared using student t-tests with Bonferroni correction for multiple comparisons (5 comparisons, alpha =.01). Results: 722 of 1369 (52.7%) possible patients participated in the database. Complete pre and post RT spirituality data were available for 73 (64.6%) patients with GI malignancies. Average age was 62 years, 58 (79%) were male and 52 (71%) received definitive treatment. 27 (37%) had esophageal or gastric cancer, 22 (30%) had colorectal cancer and 24 (33%) had other GI malignancies such as pancreatic or hepatobiliary. Colorectal cancer patients fared better in overall QOL as compared to esophageal and gastric patients, pancreatic and hepatobiliary patients and patients with GI malignancies as a whole, and were the only group in which decline in overall QOL as measured by the FACT-G (77.22 to 73.08, p=0.216) did not reach or approach significance. This appeared to be largely driven by differences in physical and especially functional well-being, in which colorectal patients demonstrated the smallest decline (16.14 to 15.59, p=0.466) of any group. Colorectal patients did, however, demonstrate a larger decline in physical well-being (22.35 to 18.05, p=0.010) and overall QOL than did all-comers with any primary malignancy (22.1 to 19.4, p<.001) and (81.3 to 78.9, p<.001) respectively. Conclusions: Physical and functional well-being, as well as overall quality of life are known to decline in patients with GI malignancies. Patients with colorectal disease appear to fare better than those with esophageal, stomach, pancreatic or hepatobiliary malignancies by these measures. Additional investigations are warranted to further define these differences. No significant financial relationships to disclose.

scholarly journals Effects of Combined Endurance and Resistance Training in Women With Multiple Sclerosis: A Randomized Controlled Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Luca Correale ◽  
Cosme Franklim Buzzachera ◽  
Giulia Liberali ◽  
Erwan Codrons ◽  
Giulia Mallucci ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Muscle Strength ◽  
Well Being ◽  
Controlled Study ◽  
Intervention Period ◽  
Maximal Voluntary Isometric Contraction ◽  
Leg Extension ◽  
Before And After

Purpose: To test the hypothesis that combined resistance and endurance training would improve muscle strength, fatigue, depression, and quality of life in persons with MS.Methods: Twenty-seven women with MS were randomly assigned to either control (CON, n = 13) or the experimental (EXP, n = 14) group. The participants in the EXP group trained twice a week for 12 weeks, followed by 12 weeks of detraining. Both CON and EXP groups were tested before and after 12 weeks of the intervention period, as well as 12 weeks after training cessation (follow-up), where measures of muscle strength, fatigue, depression, and quality of life were evaluated.Results: There were significant changes in maximal voluntary isometric contraction (MVIC), 1RM leg extension, and 1RM chest press following the intervention period in the EXP group (P &lt; 0.05), but not in the CON group (P &gt; 0.05). These changes persisted after 12 weeks of detraining. Similar findings were found for fatigue, depression, and physical and mental composites of quality of life.Conclusion: These results suggest that combined exercise training, at a minimum, prevents the disease-related deterioration of muscular performance and quality of life and well-being in persons with MS.

scholarly journals Association of attachment anxiety and satisfaction with nasal surgery

2011 ◽  
Vol 49 (1) ◽  
pp. 117-120
Author(s):  
C. Saragusty ◽  
E. Berant ◽  
E. Yaniv
Keyword(s):  
Quality Of Life ◽  
Attachment Style ◽  
Inverse Correlation ◽  
Well Being ◽  
Attachment Anxiety ◽  
Self Report ◽  
Personality Factor ◽  
Surgery Outcome ◽  
Before And After

AIM: To investigate the possible contribution of attachment anxiety (AA) to satisfaction with the outcome of surgery. METHODS: Sixty-three patients with chronic sinusitis who were scheduled for FESS with septoplasty were asked to complete a panel of self-report measures assessing attachment style, quality of life, mental health, and degree of facial pain and nasal obstruction. The questionnaires were filled out two weeks before surgery and one month after surgery. One surgeon performed all procedures. RESULTS: Participants were divided into two groups according to AA scores: high anxiety in attachment and low anxiety in attachment. Postoperatively, the group as a whole showed significant improvement in quality of life, positive thoughts and improvement in pain and sinus congestion. The high AA group reported a significantly lower quality of life than the low AA group. There was an inverse correlation between AA and well-being before and after surgery, and between AA and pain amelioration after surgery. A positive correlation was noted between AA and mental distress. CONCLUSIONS: Even a basic personality factor such as AA can significantly impact patient satisfaction with surgery outcome. Surgeons performing surgery should bear in mind that success is partly related to the patient`s mental state and personality.

scholarly journals Quality of Life, Self-Efficacy and Psychological Well-Being in Brazilian Adults with Cancer: A Longitudinal Study

Psychology ◽  
2012 ◽  
Vol 03 (04) ◽  
pp. 304-309 ◽  
Author(s):  
Elisa Kern de Castro ◽  
Clarissa Ponciano ◽  
Bruna Meneghetti ◽  
Marina Kreling ◽  
Carolina Chem
Keyword(s):  
Quality Of Life ◽  
Longitudinal Study ◽  
Self Efficacy ◽  
Well Being ◽  
Psychological Well Being

scholarly journals Use of information and communication technologies improves healthy and unhealthy elderly people’s quality of life – the key role of the training setting

2016 ◽  
Vol 8 (1) ◽  
pp. 32
Author(s):  
Orazio Licciardello ◽  
Manuela Mauceri ◽  
Graziella Di Marco
Keyword(s):  
Quality Of Life ◽  
Information And Communication Technologies ◽  
Self Efficacy ◽  
Study Data ◽  
Training Data ◽  
Age Cohorts ◽  
Digital Skills ◽  
Before And After ◽  
Information And Communication

The link between the use of ICT and QoL has only been recently theorized because ICT is not, per se, a correct and easy tool to improve elderly people’s QoL. We conducted a research consisting of two studies: the first one involved healthy and unhealthy seniors and the second one was a pilot study inspired by Action Research. We aimed to investigate whether elderly people’s QoL was influenced by higher beliefs, self-efficacy and positive attitudes towards ICT. Regarding the first study, most participants did not have any digital skills or only a very low level. Their perceived QoL was quite good. Their self-efficacy beliefs were very high. Their attitudes towards ICT were on the the mid-point scale. The QoL was affected by self-efficacy. In respect to the second study, data were collected before and after tests focused on improving the seniors’ digital skills. The post-training data were significantly more positive than pre-training. Self-efficacy was significantly higher after training, as was perceived QoL. The results provide evidence that seniors perceive their own lives as better than other age cohorts attribute to them. The quality of the relationship between seniors and trainers represents a main point that positively affects the QoL.Keywords: Seniors, Information and Communication Technology, Quality of Life, Active Training, Relationship

scholarly journals The Relationship Between Psychological Flexibility, Value-Based Living and Emotional Well-Being in People Affected by Cancer

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 115s-115s
Author(s):  
E. Smith ◽  
A. Gow ◽  
L. Forsyth ◽  
B. Bryne ◽  
L. Howells ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Diagnosis ◽  
Cancer Care ◽  
Psychological Flexibility ◽  
Well Being ◽  
Supportive Cancer Care ◽  
Valued Living ◽  
Being There ◽  
The Relationship

Background: Receiving a cancer diagnosis can have detrimental effects on an individual's psychological flexibility (ability to adapt constructively to reality), emotional well-being and ability to live aligned with personal values, for example, in relationships and work. Higher levels of psychological flexibility and emotional well-being are associated with better quality of life and lower psychological cancer-related distress. In turn, value-based living is positively associated with psychological flexibility and emotional well-being. There is, however, limited research specifically exploring the relationship between value-based living and emotional well-being within individuals affected by cancer. Maggie's Centres ( www.maggiescentres.org ) offer an innovative, multidisciplinary model of holistic supportive cancer care, widely regarded as an exemplar of best practice in cancer rehabilitation and supported self-management. In 2017 Maggie's received 249,247 visits across the network of Centres in the UK, Hong Kong and Tokyo. Principles of ACT (acceptance and commitment therapy) are incorporated within the program of individual support, psychoeducational courses and groups to help people maximize their quality of life. Aim: To explore the associations between psychological flexibility, value-based living and emotional well-being in individuals affected by cancer. Methods: Sixty-five people, affected by a cancer diagnosis personally or in a family member, were recruited from four UK Maggie's Centres. Participants completed standardized questionnaires measuring psychological flexibility, valued-based living and emotional well-being. Results: Moderate positive associations were found between emotional well-being and psychological flexibility (r=.4750), as well as emotional well-being and valued-living (r=.37983). Psychological flexibility was also positively associated with valued living (r=.443474). Multiple regression analysis revealed a significant model (F(5,54)=9.35, P < .001), accounting for 41.4% of the variance in emotional well-being (adjusted R2 = .414). Both psychological flexibility (b=.357, P = .002) and valued-living (b=.337, P = .004) were predictors of emotional well-being across all ages, gender and time since diagnosis. Conclusion: The study provides support for the positive associations between psychological flexibility, valued-living and emotional well-being and indicates that psychological flexibility and valued-living may be predictors of emotional well-being. This was a small observational study, so conclusions about causation or change over time cannot be made. Longitudinal intervention studies need to explore the potential impact valued-living and psychological flexibility may have on emotional well-being in those affected by cancer, and so contribute to understanding the potential importance of encouraging valued-living as a therapeutic tool within cancer care.

scholarly journals Longitudinal prospective evaluation of oral health-related quality of life in young patients undergoing fixed orthodontic appliance treatment as part of a randomised trial

2020 ◽  
Author(s):  
Mustafa Elhussein ◽  
Philip Benson
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Orthodontic Treatment ◽  
Well Being ◽  
Health Related Quality ◽  
Patient Reported ◽  
Before And After ◽  
Related Quality ◽  
Health Related

Abstract Background The objectives of this study were to investigate relationships between change in the aesthetic appearance before and after orthodontic treatment and patient-reported change in oral health-related quality of life (OHRQoL), and to assess the responsiveness of two OHRQoL measures to any changes from orthodontic treatment. Methods Two hundred and ten participants in a multicentre (two teaching hospitals and four specialist orthodontic practices), single blinded, randomised clinical trial with 2 parallel groups, were administered one of two age-specific questionnaires, either the Child Perceptions Questionnaire (CPQ11-14-ISF-16) or the Psychosocial Impact of Dental Aesthetics Questionnaire (PIDAQ), before and after orthodontic treatment. Clinical photographs were assessed by two groups of laypeople and orthodontists using the Index of Orthodontic Treatment Need Aesthetic Component (IOTN-AC). Results Two hundred and ten participants were randomised, and 197 completed the trial. Before and after OHRQoL data were successfully obtained from 110 participants. There was a mean reduction in the total CPQ11-14-ISF-16 scores of 3.9 (SD = 8.0), and a mean reduction of 34.2 (SD = 18.5) in the total PIDAQ score. CPQ11-14-ISF-16 demonstrated poor longitudinal construct validity (p = 0.155). Correlations between the change in total CPQ11-14-ISF-16 scores and change in IOTN-AC assessments were small for both orthodontists (r=-0.084; p = 0.516) and laypeople (r=-0.140; p = 0.225). There were higher associations between the improvement in the Social well-being (SWB) subdomain and improvement in IOTN-AC. Correlations between the changes in total PIDAQ scores and the IOTN-AC assessments, were higher in comparison to the correlations with CPQ11-14-ISF-16 (orthodontists; r = 0.223, laypeople; r = 0.025). There were no adverse effects. Conclusion CPQ11-14-ISF-16 and IOTN-AC measure different attributes. This demonstrated the role of SWB on children OHRQoL. Condition-specific measures (PIDAQ) are more responsive to change in self-reported OHRQoL than generic measures (CPQ11-14-ISF-16) after treatment. Trial Registration: The trial was registered at ClinicalTrials.gov NCT01925924.

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