Relationship Between Quality of Life of Children With Cancer and Caregiving Competence of Main Family Caregivers

2020 ◽  
pp. 104345422097569
Author(s):  
Angie López León ◽  
Sonia Carreño Moreno ◽  
Mauricio Arias-Rojas
Keyword(s):  
Quality Of Life ◽  
Marital Status ◽  
Family Caregivers ◽  
Sociodemographic Characteristics ◽  
Children With Cancer ◽  
Cross Sectional ◽  
Proxy Report ◽  
Study Results ◽  
Main Family

Objective: The purpose of this study was to describe the caregiver’s proxy-report of the quality of life (QoL) of children with cancer and the main family caregiver’s competence, and to examine the role of said competence and other care-related variables in their proxy-reported QoL of children with cancer. Method: This was a cross sectional, correlation design study conducted with 97 main family caregivers of children between the ages of 8 and 12 years with cancer residing in Colombia. The following variables were collected: main family caregiver and child sociodemographic characteristics (Survey for Dyad Care; GCPC-UN-D), The Pediatric Quality of Life Inventory 4.0 Cancer Module, and the Competence Instrument (caregiver version). Results: The mean of the children’s QoL was 102.0 points, and the caregivers’ competence score was 211.24. Caregiver’s competence ( t = 5.814, p < .01), marital status ( t = 1.925, p < .05), time as a caregiver ( t = 2.087, p < .05), number of hours spent caring for the child ( t = 2.621, p < .05), and caregiver’s previous caring experiences ( t = 2.068, p < .05) were found to influence caregiver’s proxy-report of the QoL of children with cancer. Conclusions: High competence in main family caregivers positively influence caregiver’s proxy-report of the QoL of children with cancer. Study results also suggest that nurses should consider the caregivers’ sociodemographic characteristics such as marital status, time as a caregiver, number of hours spent caring for the child, and caregiver’s previous experiences because those aspects influence main family caregivers’ proxy-report about their children’s QoL.

scholarly journals Correlation between quality of life and burden of family caregivers of infants with cleft lip and palate

2019 ◽  
Vol 53 ◽  
Author(s):  
Marli Luiz Beluci ◽  
Cleide Carolina da Silva Demoro Mondini ◽  
Armando dos Santos Trettene ◽  
Rosana Aparecida Spadoti Dantas
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Cleft Lip ◽  
Family Income ◽  
Cleft Lip And Palate ◽  
World Health ◽  
Cross Sectional ◽  
World Health Organization Quality ◽  
Environment Domain

ABSTRACT Objective: To evaluate the correlation between measures of quality of life and burden in family caregivers of infants with cleft lip and palate and to analyze possible associations between quality of life and sociodemographic variables. Method: Exploratory, cross-sectional study conducted in hospital specialized in the treatment of craniofacial anomalies, with caregivers who answered the following data collection instruments: sociodemographic characterization form, World Health Organization Quality of Life - BREF questionnaire and the Burden Interview Scale. The statistical analysis was conducted using the Pearson’s Correlation test, the Student’s t-test and the ANOVA test with a level of significance of 0.05. Results: 77 caregivers participated in the study. There was an inverse correlation between quality of life and burden in the Physical Health, Psychological, Social Relationships and Environment domains. There was a positive correlation between quality of life and family income in the Environment domain. Conclusion: The greater the burden on the caregiver, the lower was their perception of quality of life. Caregivers with higher family income and greater level of education presented a better perception quality of life in the Environment domain.

scholarly journals Impact of malocclusion on the quality of life of children aged 8 to 10 years

2018 ◽  
Vol 23 (2) ◽  
pp. 46-53 ◽  
Author(s):  
Sônia Rodrigues Dutra ◽  
Henrique Pretti ◽  
Milene Torres Martins ◽  
Cristiane Baccin Bendo ◽  
Miriam Pimenta Vale
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Significance Level ◽  
Normal Occlusion ◽  
Study Results ◽  
Belo Horizonte ◽  
The Impact

ABSTRACT Objective: The aim of the present cross-sectional study was to assess the impact of malocclusion on the quality of life of children aged 8 to 10 years attending public elementary schools in Belo Horizonte, State of Minas Gerais, Brazil. Methods: The Brazilian version of the Child Perceptions Questionnaire 8-10 (CPQ8-10) was used to evaluate oral health-related quality of life. The children were examined for the diagnosis of malocclusion using the Dental Aesthetic Index (DAI). The data were analyzed by bivariate and multivariate descriptive statistics using Poisson regression at a 5% significance level. A total of 270 children participated in the study. Results: Children with normal occlusion or mild malocclusion (DAI ≤ 25) were 56% less likely (95%CI: 0.258-0.758; p= 0.003) to have their quality of life affected compared with children diagnosed with extremely severe malocclusion (DAI ≥ 36). Children with a maxillary anterior overjet ≥ 3 mm had higher CPQ8-10 mean scores (19.4; SD = 17.1) than those with an overjet < 3 mm (13.6; SD = 11.7; p= 0.038). Conclusions: Extremely severe malocclusion and pronounced maxillary anterior overjet were associated with a negative impact on quality of life.

Caring for the caregiver: factors associated with the quality of life of family caregivers to palliative care patients

2015 ◽  
Vol 3 (3) ◽  
pp. 352
Author(s):  
Macarena Quesada ◽  
Manuel Madrigal ◽  
Aurelio Luna ◽  
Maria D Perez-Carceles
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Family Caregivers ◽  
Care Patient ◽  
Terminal Phase ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Factors Associated ◽  
The Impact

Purpose: The aim was to investigate the factors associated with the quality of life (QoL) of family caregivers to palliative care patients. Methods: A cross-sectional survey was conducted of 125 family caregivers of patients in the terminal phase of their illness and included in palliative care programs. Data were collected using WHOQOL-BREF, the socio-demographic characteristics of both caregiver and patient, clinical questions and information about caregiving. Results: The QoL of caregivers was lower than that of the national average for healthy people. Significantly lower QoL scores were obtained in the case of caregivers if they were women, over 55 years, uneducated, unemployed or the patient’s spouse. Cancer diagnosis and patients who were dependent for their Activities of Daily Living also lower caregiver QoL. The factors associated with higher caregiver QoL in each domain differed: being employed in the physical domain (OR:3.3; 95% CI:1.47-7.4), the patient receiving palliative care in hospital in the psychological domain (OR:3.05; 95% CI:1.19-7.7), a higher level of caregiver´s education in the social domain (OR:3.3; 95% CI:1.4-9.8) and caregivers between 45-55 years in the environmental domain (OR:5.4; 95% CI:1.6-9.2).Conclusion: Family caregivers of palliative care patients are highly burdened during caregiving. Characteristics of the patient and caregiver and the conditions under which care is performed, significantly affect QoL. We consider it essential to increase health professionals’ awareness of the importance of the role of the caregiver in providing services to the terminally ill, given the impact of the caregiver’s QoL on the QoL of the palliative care patient and its importance for the delivery of person-centered care at the end of life.    

scholarly journals RELATIONSHIP BETWEEN FAMILY INTERACTION, FAMILY BURDEN AND QUALITY OF LIFE AMONG CAREGIVERS OF PATIENTS WITH EPILEPSY

2016 ◽  
Vol 4 (4) ◽  
pp. 108-114
Author(s):  
M. Senthil
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Demographic Data ◽  
Family Interaction ◽  
Interaction Pattern ◽  
Family Burden ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
The Impact

Living with epilepsy imposes great challenges on both patients and their family caregivers but most researchers only explored the impact on patients, with less attention given to family caregivers. Our study intended to explore the needs and problems of epilepsy family caregivers of epilepsy patients encountered during the caregiving process. The present study was an attempt to assess the relationship between Family interaction pattern, family burden schedule and Quality of life of the caregivers of individuals with epilepsy. This study was conducted at the Ranchi Institute of Neuro-Psychiatry and Allied Sciences, Ranchi. It was a cross sectional study and purposive sampling was used. The present study was conducted among 60 caregivers of epilepsy, those who were willing to participate and those who have satisfied with inclusion and exclusion criteria have been included in the study. The socio demographic data sheet had been used for collecting socio demographic details of the caregivers of individuals with epilepsy. Family interaction pattern scale, family burden interview schedule and WHO Quality of life scale were applied on the caregivers of individuals with epilepsy. Statistical analysis was performed by using the SPSS programme 16.0 version. The result found that family interaction pattern has effect on family burden and quality of life. Likewise family burden has greater impact on quality of life. The study highlights the need for family interventional programs to address the specific issues related to family interaction, burden and quality of life of caregivers.

scholarly journals Relationship of Ability of Family Caregivers and Society’s Stigma to Prevent Relapse and Improve the Quality of Life for People with Mental Disorders

2021 ◽  
Vol 9 (E) ◽  
pp. 1190-1193
Author(s):  
Agustin Widyowati ◽  
Bhisma Murti ◽  
Aris Sudiyanto
Keyword(s):  
Quality Of Life ◽  
Mental Disorders ◽  
Family Caregivers ◽  
Sampling Technique ◽  
Disease Recurrence ◽  
High Recurrence Rate ◽  
Cross Sectional ◽  
Relationship Of ◽  
The Relationship

People with mental disorders will experience a relapse even after 1 month of getting treatment or care from a health facility. The high recurrence rate can cause a decrease in quality of life. Efforts to prevent recurrence by involving family caregivers and reducing stigma from the community. This study aims to analyze the relationship between the ability of family caregivers and community stigma to prevent recurrence and improve the quality of life of people with mental disorders. This study used a cross-sectional approach. The research location is in Kediri Regency, East Java, Indonesia. Sampling was done by using the multistage random sampling technique. The number of samples is 76 respondents. The variables in this study were the ability of family caregivers, community stigma, disease recurrence, and quality of life for people with mental disorders. The data were analyzed using path analysis with the help of STATA 13. There is a relationship between the ability of family caregivers and community stigma to prevent recurrence and improve the quality of life of people with mental disorders.

scholarly journals Spirituality relationship to the quality of life of children with cancer in Dr. Sardjito general hospital

2018 ◽  
Vol 5 (3) ◽  
pp. 880 ◽  
Author(s):  
Etik Pratiwi ◽  
Sri Mulatsih ◽  
Sri Setiyarini
Keyword(s):  
Quality Of Life ◽  
Positive Influence ◽  
Mixed Design ◽  
Children With Cancer ◽  
Cross Sectional ◽  
The Social ◽  
Cross Sectional Design ◽  
The Relationship ◽  
Depth Interviews

Background: In Indonesia, the prevalence of cancer up to 1.4 per 1000 population. Acute lymphocyte leukemia is one of type of cancers. Sspirituality is an element that increasing and is recognized by many patients with the disease at an advanced stage. Assessment of spirituality in children acute lymphocyte leukemia had ever done by the researcher before shows that spirituality contributes a positive influence to the coping and the achievement of adaptation. Aim of this research was to know how the relationship between spirituality with quality of life in children with cancer.Methods: This study used a mixed design (mixed method), with sequential explanatory strategy. Quantitative approach to the cross-sectional design and in- depth interviews in qualitative data collection. Research has received permission from the The Medical and Health Research Ethics Committee (MHREC).Results: There is a relationship between spirituality and the quality of life of children with cancer with a total value of p=0.001. Spirituality related to the children quality of life emotional, school, and physical domains with each value of p=0.001, p=0.026, p=0.028. Spirituality is not related to the social domains with p=0.054. Qualitative analysis shows that there are six categories from in-depth interviews, that is namely; prayer as a healing pain, the joy and gratitude; the interaction of the source of happiness; loneliness sadness source; socialitation with the enviroment; seek help in overcoming difficulties.Conclusions: There was correlation between spirituality and quality of life of children with cancer. 

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