Managing Cancer as a Family Disease - Feasibility, Satisfaction and Family Functioning after Short-Time Counselling for Families with Parental Cancer

2021 ◽  
pp. 106648072110524
Author(s):  
Verena Ehrbar ◽  
Salomé Roos ◽  
Anna Denzinger ◽  
Martina Barbara Bingisser ◽  
Sandra Scherer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Communication ◽  
Family Members ◽  
Small Sample ◽  
Anxiety And Depression ◽  
Parental Cancer ◽  
Short Term ◽  
Post Intervention ◽  
Counselling Intervention

Background: Parental cancer affects not only the patient, but all family members. Access to psychological support for the entire family is highly relevant, but still scarce. The aim of the present research project was to develop, implement, and evaluate the effectiveness of a short-term counselling intervention for families with parental cancer. Methods: The short-term counselling intervention consisted of six sessions and was developed based on pre-existing evaluated concepts. All participating family members had to complete questionnaires prior and post-intervention. These questionnaires investigated changes in family communication and satisfaction levels, parental anxiety and depression levels, parental partnership quality and self-assessed quality of life of children and adolescents. Furthermore, feasibility of and satisfaction with the intervention was assessed. Results: Acceptability of short-term counselling was high in participating families, although feasibility was limited with regard to the final inclusion rate (n  =  10). Comparison of pre and post intervention measures showed a significant increase in family communication and satisfaction levels. Anxiety and depression levels were low, quality of parental partnership within the normal range, and quality of life reported from children was high. These scores remained stable from pre to post intervention. Conclusions: The counselling intervention most likely had positive effects in all family members with either stabilizing or increasing all measured outcomes. Although interpretation of the results is limited due to the small sample size, we believe that integrated in clinical routine of adult care of a hospital, this additional offer might be a valuable benefice to cancer patients and their families. Clinical Trial Registration Number: NCT03097458 (clinicaltrials.gov)

Voice-Related Quality of Life, Anxiety, and Depression in Female Teachers: Finger Kazoo Intensive Short-Term Vocal Therapy

2020 ◽  
Author(s):  
Mara Keli Christmann ◽  
Fabricio Scapini ◽  
Joziane Padilha de Moraes Lima ◽  
Bruna Franciele da Trindade Gonçalves ◽  
Gabriele Rodrigues Bastilha ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Anxiety And Depression ◽  
Short Term ◽  
Female Teachers ◽  
Related Quality

Feasibility and Acceptability of Digital Legacy-Making: An Innovative Story-Telling Intervention for Adults With Cancer

2020 ◽  
pp. 104990912097156
Author(s):  
Susan DeSanto-Madeya ◽  
Jennifer Tjia ◽  
Christina Fitch ◽  
Amy Wachholtz
Keyword(s):  
Quality Of Life ◽  
Digital Video ◽  
Depression Scale ◽  
Anxiety And Depression ◽  
Life Outcomes ◽  
Hospital Anxiety ◽  
Post Intervention ◽  
Pilot Intervention ◽  
General Fact

Background: This study examined the feasibility, burden and acceptability of a legacy-making intervention in adults with cancer and preliminary effects on patient quality-of-life (QOL) measures. Method: We conducted a Stage IB pilot, intervention study. The intervention was a digital video legacy-making interview of adults with advanced cancer to create a digital video of their memories and experiences. Baseline and post-video QOL assessments included: Functional Assessment of Cancer Therapy—General (FACT-G), Patient Dignity Inventory (PDI), Hospital Anxiety and Depression Scale (HADS), and Emotional Thermometers for distress, anxiety, anger, help and depression. Participants received a final copy of the digital video for distribution to their families. Results: Adults (n = 16) ages 38-83 years old with an advanced or life-limiting cancer diagnosis completed an intervention. Feasibility and acceptability was strong with 0% attrition. While the pilot study was not powered for quantitative significance, there were changes from baseline to post-intervention in the participants’ total or subscale FACT-G scores, PDI, HADS anxiety or depression scores, and Emotional Thermometer scores. Conclusions: A digital video legacy-making intervention is feasible for adults with cancer without significant negative outcomes for individuals completing the study. It remains unclear whether this intervention contributes to positive quality of life outcomes.

scholarly journals Family members of cancer patients: Needs, quality of life and symptoms of anxiety and depression

2011 ◽  
Vol 50 (2) ◽  
pp. 252-258 ◽  
Author(s):  
Nanna Friðriksdóttir ◽  
Þórunn Sævarsdóttir ◽  
Svandís Íris Halfdánardóttir ◽  
Arndís Jónsdóttir ◽  
Hrefna Magnúsdóttir ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Family Members ◽  
Anxiety And Depression

scholarly journals Efficacy of meaning-centered group psychotherapy for cancer survivors: a randomized controlled trial

2017 ◽  
Vol 47 (11) ◽  
pp. 1990-2001 ◽  
Author(s):  
N. van der Spek ◽  
J. Vos ◽  
C. F. van Uden-Kraan ◽  
W. Breitbart ◽  
P. Cuijpers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Group Psychotherapy ◽  
Well Being ◽  
Personal Meaning ◽  
Anxiety And Depression ◽  
Post Intervention ◽  
Psychological Well Being ◽  
Mental Adjustment

BackgroundThe aim of this study was to assess the efficacy of meaning-centered group psychotherapy for cancer survivors (MCGP-CS) to improve personal meaning, compared with supportive group psychotherapy (SGP) and care as usual (CAU).MethodA total of 170 cancer survivors were randomly assigned to one of the three study arms: MCGP-CS (n = 57); SGP (n = 56); CAU (n = 57). The primary outcome measure was the Personal Meaning Profile (PMP; total score). Secondary outcome measures were subscales of the PMP, psychological well-being (Scales of Psychological Well-being; SPWB), post-traumatic growth (Posttraumatic Growth Inventory), Mental Adjustment to Cancer (MAC), optimism (Life Orientation Test-Revised), hopelessness (Beck's Hopelessness Scale), psychological distress (anxiety and depression, Hospital Anxiety and Depression Scale; HADS) and quality of life (European Organization for Research and Treatment of Cancer Quality of Life Questionnaire; EORTC QLQ-C30). Outcome measures were assessed before randomization, post-intervention, and after 3 and 6 months of follow-up (FU).ResultsLinear mixed model analyses (intention-to-treat) showed significant differences between MCGP-CS, SGP and CAU on the total PMP score, and on (sub)scales of the PMP, SPWB, MAC and HADS. Post-hoc analyses showed significantly stronger treatment effects of MCGP-CS compared with CAU on personal meaning (d = 0.81), goal-orientedness (d = 1.07), positive relations (d = 0.59), purpose in life (d = 0.69); fighting spirit (d = 0.61) (post-intervention) and helpless/hopeless (d = −0.87) (3 months FU); and distress (d = −0.6) and depression (d = −0.38) (6 months FU). Significantly stronger effects of MCGP-CS compared with SGP were found on personal growth (d = 0.57) (3 months FU) and environmental mastery (d = 0.66) (6 months FU).ConclusionsMCGP-CS is an effective intervention for cancer survivors to improve personal meaning, psychological well-being and mental adjustment to cancer in the short term, and to reduce psychological distress in the long run.

scholarly journals The effects of therapeutic group singing on voice, cough and quality of life in parkinson’s disease

2021 ◽  
Vol 6 (2) ◽  
pp. 79-88
Author(s):  
Cecilia Brooks ◽  
Danielle Porter ◽  
Daniel Furnas ◽  
Judith Maige Wingate
Keyword(s):  
Quality Of Life ◽  
Repeated Measures ◽  
Outpatient Setting ◽  
Small Sample ◽  
Speaking Rate ◽  
Post Intervention ◽  
Main Effect ◽  
Pitch Level ◽  
Potential Improvement

Purpose: To examine the effect of a group therapeutic singing intervention on voice, cough, and quality of life in persons with Parkinson Disease (PD) in a community-based outpatient setting using a repeated measures design.Methods: 19 volunteer participants with PD completed the study. Ten participants participated in the intervention and nine served voluntarily as controls. Participants completed one hour group singing sessions over 12 weeks led by a music therapist. Sessions consisted of 30 min of high intensity vocal exercise and 15 to 20 minutes of group singing. Data on phonation, speech, cough, and quality of life were collected pre-intervention and one week post intervention with final data collection 12 weeks post-intervention.Results: No significant change in voice measures although 50% of participants showed improvement. A main effect was found for breathiness (p=0.023), appropriate pitch level (p=0.037) and speaking rate (p=0.009). No main effect for cough but pairwise comparisons were nearly significant pre to post intervention (p=0.053) and pre-intervention to final follow up (p=0.023). No main effect found for QOL but singing participants demonstrated better QOL scores than controls.Conclusions: Results from this small sample suggest that there are some speech benefits from singing intervention as well as potential improvement in cough for airway clearance. Additional study is needed to confirm these results.

scholarly journals Impact on the quality of life after mitral clip implantation

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
J Valverde Bernal ◽  
J Ruiz Gabalda ◽  
FJ Delgado Sanchez ◽  
G Berga Congost ◽  
A Marquez Lopez
Keyword(s):  
Quality Of Life ◽  
Mitral Regurgitation ◽  
Short Form ◽  
Mitral Insufficiency ◽  
Short Term ◽  
Post Intervention ◽  
Daily Life Activities ◽  
Katz Index ◽  
Sf 36

Abstract Background and objectives Mitral regurgitation is a very limiting disease for the patient. The objetctive is to analitze the effectiveness of the mitral clip implantation on the quality of life and the degree of dependence in patients with mitral regurgitation Methods Almost experiment study of time series. The quality of life was evaluated with the Minnesota Living With Heart Failure (MLWHFQ) and Short-Form 36 (SF-36) questionnaire, 6 months before the intervention, 1 day before, 1 month after and 6 months later. The degree of dependence was evaluated with the Katz Index. The intervention was considered effective when the MLWHDQ decreased in 10 points and/or the Katz Index 1 point. Other variables were socio-demographic and clinical factors Results Twenty patients were introduced with a mean age of 78,6 ± mostly men (75%) and with very prevalent cardiovascular risk factors. The total MLWHFQ score decreased significantly after the intervention by 26.63 points (p = 0.004) and in the physical dimension by 12.13 points (p = 0.004) and 5.75 points (p = 0.007). In contrast, the modification of the score in the Katz Index was 0.14 points (p = 0.257) There was a significant decrease in pre and post intervention symptoms: dyspnea (p = 0.063), fatigue (p = 0.000) and maleolar oedema (p = 0.063) In the SF-36 health transition question, 75% of patients reported feeling better or much better after 6 months of the intervention. Conclusions These results suggest that mitral clip implantation improves short-term quality of life in patients with mitral insufficiency, although it doesn"t change the degree of dependence for short-term daily life activities. In addition, mitral clip implantation improves the limiting symptoms of these patients and the health perception at 6 months.

scholarly journals Latent Dysphoria in the Structure of Emotional Disorders in Patients with Functional Constipation

2021 ◽  
Vol 10 (4) ◽  
pp. 68-92
Author(s):  
M.A. Morozova ◽  
G. Rupchev ◽  
A. Alekseev ◽  
A.I. Ulyanin ◽  
E.A. Poluektova ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Functioning ◽  
Emotional Disorders ◽  
Somatic Symptoms ◽  
Functional Constipation ◽  
Emotional Disturbances ◽  
Small Sample ◽  
Anxiety And Depression ◽  
Hamilton Depression Scale

Psychoemotional disturbances are an important component of the functional gastrointestinal disorders. It was suggested that Latent Dysphoria along with anxiety and depression are important features of negative emotions in patients with functional constipation (FC) and it has a major impact on social functioning. 60 women with FC according to the IV Rome criteria, aged from 18 to 62 (34.72±11.43 years) and duration of the disease ― 12.84±11.34 years were included into the study. The assessment of emotional disorders and quality of life was performed by State-Trait Anxiety Inventory, Hamilton Depression Scale, the four-dimensional questionnaire (4DSQ), SF-36 Questionnaire, new Latent Dysphoria Checklist. The assessment of the severity of somatic symptoms was carried out using methods accepted in the practice of gastroenterologists. Results: 73% of patients showed increased anxiety, 50% ― signs of depression. Latent dysphoria by Latent Dysphoria Checklist was found in 48% of patients. The patients were divided into two subgroups according to the presence / absence of the latent dysphoria. There was no difference in severity of somatic symptoms between subgroups. As for emotional disturbances the difference was found. Indicators of emotional disturbances (anxiety, distress, depression, somatization) were significantly higher in the subgroup of patients with latent dysphoria (p<0.05) and the quality of life indicators ― significantly lower (p<0.05). Thus, our findings support the hypothesis that emotional disturbances in women with FC include latent dysphoria together with anxiety and depression. This complex but not severity of somatic symptoms negatively affects social functioning. The main limitations of the study are as follows: the small sample size, the absence of a comparison group, and the inapplicability of the findings for the male population. The study of the prevalence and specificity of latent dysphoria in other pathological conditions will be the subjects of the further research.

scholarly journals Strengthening individual and family resilience against leprosy-related discrimination: A pilot intervention study

2021 ◽  
Vol 15 (4) ◽  
pp. e0009329
Author(s):  
Anna T. van’t Noordende ◽  
Zoica Bakirtzief da Silva Pereira ◽  
Pritha Biswas ◽  
Mohammed Ilyas ◽  
Vijay Krishnan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Urban Areas ◽  
Family Members ◽  
Family Resilience ◽  
Post Intervention ◽  
Maximum Score ◽  
Telangana State ◽  
Family Based

Background Leprosy and leprosy-related stigma can have a major impact on psychosocial wellbeing of persons affected and their family members. Resilience is a process that incorporates many of the core skills and abilities which may enable people to address stigma and discrimination. The current study aimed to develop and pilot an intervention to strengthen individual and family resilience against leprosy-related discrimination. Methodology We used a quasi-experimental, before-after study design with a mixed methods approach. The 10-week family-based intervention was designed to strengthen the resilience of individuals and families by enhancing their protective abilities and capacity to overcome adversity. The study was conducted in two sites, urban areas in Telangana state, and in rural areas in Odisha state, India. Persons affected and their family members were included using purposive sampling. Two questionnaires were used pre-and post-intervention: the Connor-Davidson Resilience Scale (CD-RISC, maximum score 100, with high scores reflecting greater resilience) and the WHOQOL-BREF (maximum score of 130, with higher scores reflecting higher quality of life). In addition, semi-structured interviews were conducted post-intervention. Data were collected at baseline, a few weeks after completion of the intervention, and in the Odisha cohort again at six months after completion. Paired t-tests measured differences pre- and post- intervention. Qualitative data were thematically analysed. Findings Eighty participants across 20 families were included in the study (23 persons affected and 57 family members). We found a significant increase in CD-RISC scores for persons affected and family members from Odisha state (baseline 46.5, first follow-up 77.0, second follow-up 70.0), this improvement was maintained at six-month follow-up. There was no increase in CD-RISC scores post-intervention among participants from Telangana state. WHOQOL-BREF scores were significantly higher at follow-up for persons affected in both states, and for family members in Odisha state. No families dropped out of the study. In the qualitative feedback, all participants described drawing benefit from the programme. Participants especially appreciated the social dimensions of the intervention. Conclusion This pilot study showed that the 10-week family-based intervention to strengthen resilience among persons affected by leprosy and their family members was feasible, and has the potential to improve resilience and quality of life. A large-scale efficacy trial is necessary to determine the effectiveness and long-term sustainability of the intervention.

scholarly journals Changes over time in family members of adults with mild traumatic brain injury

2019 ◽  
Vol 21 (2) ◽  
pp. 154-172 ◽  
Author(s):  
Kelly Jones ◽  
Alice Theadom ◽  
Philip Prah ◽  
Nicola Starkey ◽  
Suzanne Barker-Collo ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Members ◽  
Well Being ◽  
Anxiety And Depression ◽  
Health Related Quality ◽  
Mild Tbi ◽  
Related Quality ◽  
Health Related ◽  
Over Time

AbstractObjective:The impact of traumatic brain injury (TBI) extends beyond the person who was injured. Family caregivers of adults with moderate to severe TBI frequently report increased burden, stress and depression. Few studies have examined the well-being of family members in the mild TBI population despite the latter representing up to 95% of all TBIs.Methods:Five areas of well-being were examined in 99 family members (including parents, partners, siblings, other relatives, adult children, friends or neighbours) of adults (aged ≥16 years) with mild TBI. At 6- and 12-month post-injury, family members completed the Bakas Caregiver Outcomes Scale, Short Form-36 Health Survey, EQ-5D-3L, Hospital Anxiety and Depression Scale and the Pittsburgh Sleep Quality Index. Outcomes and change over time and associated factors were examined.Results:At 6 months, group mean scores for health-related quality of life for mental and physical components and overall health status were similar to the New Zealand (NZ) population. Mean scores for sleep, anxiety and depression were below clinically significant thresholds. From 6 to 12 months, there were significant improvements in Bakas Caregiver Outcomes Scale scores by 2.61 (95% confidence interval: 0.72–4.49), health-related quality of life (mental component) and EQ-5D-3L overall health (P = 0.01). Minimally clinically important differences were observed in overall health, anxiety, health-related quality of life and depression at 12 months. Female family members reported significant improvements in physical health over time, and more positive life changes were reported by those caring for males with TBI.Conclusions:The findings suggest diminished burden over time for family members of adults with mild TBI.

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