Donor Designation Among Mature Latinas and Lay Health Educators (Promotoras): A Mixed-Methods Study

2020 ◽  
pp. 109019812097635
Author(s):  
Elisa J. Gordon ◽  
Heather Gardiner ◽  
Laura A. Siminoff ◽  
Patrick J. Kelly ◽  
Chidera Agu ◽  
...  
Keyword(s):  
Organ Donation ◽  
San Antonio ◽  
Public Attitudes ◽  
The United States ◽  
Solid Organ ◽  
Health Educators ◽  
Organ Trafficking ◽  
Telephone Surveys ◽  
Attitudes And Practices ◽  
Group Interviews

Background Despite positive public attitudes toward solid organ donation in the United States, some of the lowest rates of donor designation persist among older adults and Latinx populations. Aims To identify barriers and facilitators to organ donation and donor designation among lay health educators ( promotoras) and mature Latina (50+ years). Methods An explanatory sequential mixed-method design was employed, with telephone surveys followed by focus group interviews, to assess and understand the nuances of organ donation and donor designation knowledge, attitudes, and practices among promotoras and mature Latinas in Chicago (IL), Philadelphia (PA), and San Antonio (TX). Descriptive statistics summarized quantitative survey data; thematic content analysis was performed on qualitative data. Results Twenty-nine promotoras and 45 mature Latina participated in both the surveys and focus groups ( N = 74). Most participants (90%) had limited knowledge of organ donation but reported being “somewhat” or “strongly” in favor of donation (70%); 40.5% were registered donors. Participants lacked knowledge about the registration process and its legal standing and upheld concerns that registered donors would be vulnerable to organ traffickers or targets for murder. Themes emerging from the group interviews revealed additional barriers to designation including distrust of the medical establishment, perceptions of inequities in organ allocation, and family resistance to discussing death. Discussion Low donor designation rates are primarily driven by concerns about organ trafficking and the fairness of the allocation system, particularly for undocumented immigrants. Conclusions The results informed development of a culturally targeted educational and communication skills intervention to increase donor designation in Latinx communities. Trial registration ClinicalTrials.gov NCT04007419.

scholarly journals Cognitive mapping as an approach to facilitate organ donation among African Americans

2021 ◽  
Vol 104 (3) ◽  
pp. 003685042110294
Author(s):  
Jayme E Locke ◽  
Rhiannon D Reed ◽  
Richard M Shewchuk ◽  
Katherine L Stegner ◽  
Haiyan Qu
Keyword(s):  
Decision Making ◽  
African Americans ◽  
Organ Donation ◽  
Cognitive Mapping ◽  
The United States ◽  
Two Dimensions ◽  
Nominal Group ◽  
Solid Organ ◽  
Related Information ◽  
Empirical Framework

Making up 13.4% of the United States population, African Americans (AAs) account for 28.7% of candidates who are currently waiting for an organ donation. AAs are disproportionately affected by end-organ disease, particularly kidney disease, therefore, the need for transplantation among this population is high, and the high need is also observed for other solid organ transplantation. To this end, we worked with the AA community to derive an empirical framework of organ donation strategies that may facilitate AA decision-making. We used a cognitive mapping approach involving two distinct phases of primary data collection and a sequence of data analytic procedures to elicit and systematically organize strategies for facilitating organ donation. AA adults ( n = 89) sorted 27 strategies identified from nominal group technique meetings in phase 1 based on their perceived similarities. Sorting data were aggregated and analyzed using Multidimensional scaling and hierarchical cluster analyses. Among 89 AA participants, 68.2% were female, 65.5% obtained > high school education, 69.5% reported annual household income ≤ $50,000. The average age was 47.4 years (SD = 14.5). Derived empirical framework consisted of five distinct clusters: fundamental knowledge, psychosocial support, community awareness, community engagement, and system accountability; and two dimensions: Approach, Donor-related Information. The derived empirical framework reflects an organization scheme that may facilitate AA decision-making about organ donation and suggests that targeted dissemination of donor-related information at both the individual-donor and community levels may be critical for increasing donation rates among AAs.

scholarly journals The Impact of Religion and Provision of Information on Increasing Knowledge and Changing Attitudes to Organ Donation: An Intervention Study

2019 ◽  
Vol 59 (4) ◽  
pp. 2082-2095 ◽  
Author(s):  
Ferid Krupic
Keyword(s):  
Organ Donation ◽  
Qualitative Content Analysis ◽  
Theory And Practice ◽  
Organ Donors ◽  
Focus Group Interviews ◽  
Attitudes And Practices ◽  
Group Interviews ◽  
Changing Attitudes ◽  
Religious Aspects ◽  
The Impact

AbstractOne of the most significant developments in recent history has probably been organ donation and organ transplantation. They are frequently the only treatment available in certain cases. However, there is an ever-increasing discrepancy between the number of people needing transplantation and the organs available, because the decision to donate an organ is up to each individual. The study aims to assess the impact of the intervention on knowledge, attitudes and practices on organ donation among religious immigrants in Sweden. Data were collected through three group interviews using open-ended questions and qualitative content analysis. Thirty-six participants, 18 males and 18 females from six countries, participated in the focus group interviews. The analysis of the collected data resulted in two main categories: “Religion in theory and practice” and “More information—more knowledge about organ donation” including seven subcategories. Understanding of religion and religiosity, happiness by taking the class, the practice of religion in everyday life, the overcoming the prejudices in religion, having more information about organ donation and the donations process, as well as that the increased information changes people’s minds, were some of things the informants emphasised as predictors of the decision of organ donation. A class dealing with religion, the religious aspects of organ donation and the way the Swedish healthcare system is organised increased people’s knowledge and changed their attitudes so they became potential organ donors. More intervention studies are needed in every field of medicine to build confidence and give time to educate and discuss issues with potential organ donors in Sweden.

Using Online Communication Skills Training to Increase Organ Donation Authorization

2020 ◽  
Vol 30 (3) ◽  
pp. 212-219 ◽  
Author(s):  
Laura A. Siminoff ◽  
Heather M. Gardiner ◽  
Gerard P. Alolod ◽  
Maureen Wilson-Genderson
Keyword(s):  
Organ Donation ◽  
Communication Skills ◽  
Online Communication ◽  
Skills Training ◽  
The United States ◽  
Individual Performance ◽  
Decision Makers ◽  
Evidence Based ◽  
Solid Organ ◽  
Family Decision

Introduction: Family denial of organ donation from deceased donor-eligible patients is a major contributor to the deficit of transplantable organs in the United States. Research Question: Does an evidence-based communication intervention improve deceased organ donor authorization rates from family decision-makers? Design: This implementation and dissemination study used Communicating Effectively about Donation on Organ Procurement Organization professionals responsible for discussing donation and obtaining authorization from family decision-makers. A 14-month, nationwide social marketing campaign generated a sample of 682 requesters, yielding a final analyzable sample of 253 participants. Serving as their own controls, participants spent the first 3 months in a preintervention period, completed the web-based intervention, and progressed to a 3-month postintervention period. Participants completed brief online weekly surveys to assess the intervention’s impact on their communication skills. Results: Authorization rates did not improve overall between the pre- and postintervention periods. A differential effect of the intervention on 3 distinct groups of requesters was found: one group exhibited high and stable authorization rates pre–post (78%-74%); a second group had low initial authorization rates that increased after exposure to the intervention (46%-73%); the third had low and variable rates of authorization that failed to improve after the intervention (45%-36%). Conclusion: This study underscores the value of evidence-based communication training. Training targeted to requesters’ skill levels is needed to realize overall improvements in individual performance, the quality of donation discussions, and rates of family decision-maker authorization to solid organ donation.

Solid organ donation after death in the United States: Data‐driven messaging to encourage potential donors

2020 ◽  
Vol 20 (6) ◽  
pp. 1642-1649 ◽  
Author(s):  
Kiran Bambha ◽  
Alexandra Shingina ◽  
Jennifer L. Dodge ◽  
Kevin O’Connor ◽  
Sue Dunn ◽  
...  
Keyword(s):  
United States ◽  
Organ Donation ◽  
The United States ◽  
Data Driven ◽  
Solid Organ ◽  
States Data

scholarly journals Another Story: What Public Opinion Data Tell Us about Refugee and Humanitarian Policy

2017 ◽  
Vol 5 (2) ◽  
pp. 379-400 ◽  
Author(s):  
Brad Blitz
Keyword(s):  
Foreign Policy ◽  
Public Opinion ◽  
Public Attitudes ◽  
The United States ◽  
European Social Survey ◽  
Humanitarian Assistance ◽  
The European Union ◽  
Media Campaigns ◽  
Refugee Protection ◽  
Muslim Communities

The global reaction to US President Donald Trump's executive order, “Protecting the Nation from Foreign Terrorist Entry into the United States” of January 27, 2017,1 revealed great public sympathy for the fate of refugees and the principle of refugee protection. In the case of Europe, such sympathy has, however, been dismissed by politicians who have read concerns regarding security and integration as reason for introducing restrictive policies on asylum and humanitarian assistance. These policies are at odds with public sentiment. Drawing upon public opinion surveys conducted by Amnesty International, the European Social Survey (ESS), and Pew Global Attitudes Survey across the European Union and neighboring states, this article records a marked divide between public attitudes towards the treatment of refugees and asylum seekers and official policies regarding asylum and humanitarian assistance, and seeks to understand why this is the case. The article suggests that post-9/11 there has been a reconfiguration of refugee policy and a reconnecting of humanitarian and security interests which has enabled a discourse antithetical to the universal right to asylum. It offers five possible explanations for this trend: i) fears over cultural antagonism in host countries; ii) the conflation of refugees and immigrants, both those deemed economically advantageous as well as those labelled as “illegal”; iii) dominance of human capital thinking; iv) foreign policy justification; and v) the normalization of border controls. The main conclusion is that in a post-post-Cold War era characterized in part by the reconnecting of security and humanitarian policy, European governments have developed restrictive policies despite public sympathy. Support for the admission of refugees is not, however, unqualified, and most states and European populations prefer skilled populations that can be easily assimilated. In order to achieve greater protection and more open policies, this article recommends human rights actors work with the United Nations High Commissioner for Refugees (UNHCR) and its partners to challenge the above discourse through media campaigns and grassroots messaging. Further recommendations include: • Challenging efforts to normalize and drawing attention to the extreme and unprecedented activities of illegal and inhumane practices, e.g., detention, offshore processing, and the separation of families through the courts as part of a coordinated information campaign to present a counter moral argument. • Identifying how restrictive asylum policies fail to advance foreign policy interests and are contrary to international law. • Evidencing persecution by sharing information with the press and government agencies on the nature of claims by those currently considered ineligible for refugee protection as part of a wider campaign of information and inclusion. • Engaging with minority, and in particular Muslim, communities to redress public concerns regarding the possibility of cultural integration in the host country. • Clarifying the rights of refugees and migrants in line with the UNHCR and International Organization for Migration (IOM) guidelines and European and national law in order to hold governments to account and to ensure that all — irrespective of their skills, status, nationality or religion — are given the opportunity to seek asylum. • Identifying and promoting leadership among states and regional bodies to advance the rights of refugees.

Campaign Advertising and the Cultivation of Crime Worry: Testing Relationships With Two Large Datasets From the 2016 U.S. Election Cycle

2021 ◽  
pp. 194016122110209
Author(s):  
Jiawei Liu ◽  
Rosemary J. Avery ◽  
Erika F. Fowler ◽  
Laura Baum ◽  
Sarah E. Gollust ◽  
...  
Keyword(s):  
Political Communication ◽  
Public Attitudes ◽  
The United States ◽  
Large Datasets ◽  
Cumulative Exposure ◽  
Political Campaign ◽  
Political Factors ◽  
Campaign Ads ◽  
Voter Choice ◽  
Campaign Advertising

Previous research has documented that political information in the mass media can shape attitudes and behaviors beyond voter choice and election turnout. The current study extends this body of work to examine associations between televised political campaign advertising (one of the most common forms of political communication people encounter) and worry about crime and violence in the context of the 2016 U.S. presidential election. We merge two large datasets—Kantar/CMAG data on televised campaign advertisement airings ( n = 3,767,477) and Simmons National Consumer Survey (NCS) data on television viewing patterns and public attitudes ( n = 26,703 respondents in the United States)—to test associations between estimated exposure to campaign ads about crime and crime worry, controlling for demographics, local crime rates, and political factors. Results from multivariate models show that estimated cumulative exposure to campaign ads about crime is associated with higher levels of crime worry. Exposure to campaign ads about crime increased crime worry among Republicans, but not Democrats.

scholarly journals A Qualitative Study on Making Rural Communities More Dementia-Friendly

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 281-281
Author(s):  
Melissa OConnor ◽  
Megan Pedersen ◽  
Rachel Grace
Keyword(s):  
Rural Communities ◽  
The United States ◽  
Community Dwelling ◽  
Community Leaders ◽  
Survey Question ◽  
Telephone Surveys ◽  
Know How ◽  
Intergenerational Programs ◽  
The World ◽  
Personal Connections

Abstract Recent studies on attitudes toward dementia in the United States, such as the World Alzheimer Report 2019, have found that fear and stigma are still widespread among the general public. This may be particularly true in rural communities. In the current study, community-dwelling adults in small Midwestern communities responded to the open-ended survey question, “What do you think could be done to make your community more welcoming for people with Alzheimer’s disease and other forms of dementia?” Participants (N=242) ranged in age from 18-88 (M=40, SD=21). The sample was 68% female, and 61% lived in communities of 50,000-150,000 people, while 39% lived in smaller towns. Most participants (61.2%) did not personally know someone with dementia. Data were collected via paper and telephone surveys. Responses to the open-ended question were analyzed using open, axial, and selective coding. The following themes emerged: greater exposure to individuals with dementia; educational workshops about dementia; more intergenerational programs; greater accessibility of respite care and other services; more fundraising efforts; and community leaders talking about dementia. Responses included, “Have more intergenerational programs that bring together Alzheimer’s patients and children in a positive environment.” “When I was in school, we visited an Alzheimer’s unit. That was a great experience.” “I know what it is, but I don’t know anything else. I wish I was more informed. I don’t know how to help.” These findings indicate that residents of rural communities are motivated to help individuals with dementia, but need more guidance, education, and personal connections/exposure.

scholarly journals Direct-Acting Antivirals and Organ Transplantation: Is There Anything We Can’t Do?

2020 ◽  
Vol 222 (Supplement_9) ◽  
pp. S794-S801
Author(s):  
Matthew R Kappus ◽  
Cameron R Wolfe ◽  
Andrew J Muir
Keyword(s):  
Organ Transplantation ◽  
The United States ◽  
Virologic Response ◽  
Hcv Infection ◽  
Solid Organ ◽  
Direct Acting Antiviral ◽  
Transplant Candidates ◽  
Direct Acting ◽  
High Sustained Virologic Response ◽  
Waitlist Mortality

Abstract The opioid epidemic has resulted in an increase in organ donors with hepatitis C virus (HCV) infection in the United States. With the development of direct-acting antiviral regimens that offer high sustained virologic response rates even in the setting of immunosuppression after transplantation, these HCV-viremic organs are now being offered to transplant candidates with or without preexisting HCV infection. Strategies for HCV treatment with HCV-viremic organs have included delayed and preemptive approaches. This review will discuss key studies in the different solid organ transplants, recent reports of adverse events, and ethical and regulatory considerations. The efficacy of current HCV therapies has created this important opportunity to improve survival for patients with end-organ failure through greater access to organ transplantation and decreased waitlist mortality rate.

A Hygiene Experiment in Rural Bangladesh

1989 ◽  
Vol 32 (2) ◽  
pp. 245-255
Author(s):  
Kurshida Khanom ◽  
Robert C. Leonard
Keyword(s):  
Third World ◽  
Sociological Theory ◽  
Participant Observation ◽  
Health Educators ◽  
Attitudes And Practices ◽  
Graduate Curricula ◽  
Nurses And Physicians ◽  
Farming Families ◽  
The Third World ◽  
Knowledge Attitudes And Practices

A before-after-only health education experiment was conducted by a team of a dozen health educators, nurses, and physicians who were students and faculty of the National Institute of Preventive and Social Medicine (NIPSOM). The experiment ran several months with 162 Moslem farming families in one village. Changes in sanitation-related knowledge, attitudes, and practices were measured and correlated with social class. It is suggested that the most useful sociology in the Third World is: (a) basic general sociological theory including ecosystem as well as social system, (b) multimethological including participant –observation, survey, and field experiment methods. Implications are drawn for graduate curricula in light of the trend toward increasing enrollments from Third World countries.

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