scholarly journals Travelling intimacies, translation and betrayal in a creative geography

2021 ◽  
pp. 147447402199341
Author(s):  
Caleb Johnston ◽  
Geraldine Pratt
Keyword(s):  
Social Science ◽  
Cultural Geography ◽  
Dementia Care ◽  
Creation Process ◽  
Documentary Theatre ◽  
Private Care ◽  
The Family ◽  
Care Facilities ◽  
Global North ◽  
Multi Media

In 2019, we collaborated with German theatre artists to co-create Between Worlds: Outsourcing Dementia Care, an immersive, multi-media piece performed in Newcastle and Berlin. This performance work animated and staged our interviews conducted with the owners of and caregivers working in private care facilities recently built in northern Thailand to provide dementia care for overseas guests from across the Global North. This creation process also drew from interviews we conducted with the family members who had chosen this option for their loved ones with dementia. Incorporating elements of documentary theatre, movement and cinematic projection, Between Worlds was designed to bring audiences into an intimate space, drawing them close to the complexities of the outsourcing of dementia care in order to prompt public conversation and reflection on dementia care in both Thailand and the Global North. Here, we consider the performance of the play and the method that our theatre collaborators used to render transparent the process of translation within performance. We critically assess the outcome to question the possible betrayals implicit in creative and social science work and in the doing of cultural geography.

scholarly journals Reconnecting Life of those with dementia back to their families and the wider society

2021 ◽  
Author(s):  
◽  
Grachia Kusjanto
Keyword(s):  
Life Experience ◽  
Care Facility ◽  
Dementia Care ◽  
Outdoor Environment ◽  
The Public ◽  
The Family ◽  
Care Facilities ◽  
Wide Group ◽  
Person With Dementia ◽  
Design Ideas

<p>Dementia has become one of the most feared diseases. It is feared more than cancer for those over 50 years of age. The progressive and distressing nature of the symptoms have been widely known to affect both the person with dementia as well as their families. Eventually, the family has to decide whether to take care of their loved ones themselves or send them to a professional care facility. Currently, dementia care facilities are generally disconnected from the community, confine the residents and lack stimulation. Inactive bodies and minds can result in agitation and faster progression of the disease.  Through multidisciplinary literature review, first-hand observations of the patient behaviours and a review of existing case studies, this thesis explores how landscape architecture can help in creating a better life experience for those with dementia who live in a care facility. The design ideas are near Te Hopai, an existing dementia care facility in Newtown, Wellington.  To overcome the stigmatised environment in the existing facility, this thesis explores the possibilities for bringing the residents out and encouraging the public into their territory, increasing social interaction. A wide group of people such as carers, families and the wider community were considered in the design. Te Hopai’s surroundings, which are currently empty spaces and car parks, have been transformed into a functional and welcoming landscape which the public can use. The landscape has also been designed to encourage residents with dementia who were previously confined inside to experience the outdoor environment. Through designing a socially active, accessible and experiential space that is easy to navigate and interact with, this thesis hope to reconnect and improve the life experience of the person with dementia as well as their community.</p>

scholarly journals Reconnecting Life of those with dementia back to their families and the wider society

2021 ◽  
Author(s):  
◽  
Grachia Kusjanto
Keyword(s):  
Life Experience ◽  
Care Facility ◽  
Dementia Care ◽  
Outdoor Environment ◽  
The Public ◽  
The Family ◽  
Care Facilities ◽  
Wide Group ◽  
Person With Dementia ◽  
Design Ideas

<p>Dementia has become one of the most feared diseases. It is feared more than cancer for those over 50 years of age. The progressive and distressing nature of the symptoms have been widely known to affect both the person with dementia as well as their families. Eventually, the family has to decide whether to take care of their loved ones themselves or send them to a professional care facility. Currently, dementia care facilities are generally disconnected from the community, confine the residents and lack stimulation. Inactive bodies and minds can result in agitation and faster progression of the disease.  Through multidisciplinary literature review, first-hand observations of the patient behaviours and a review of existing case studies, this thesis explores how landscape architecture can help in creating a better life experience for those with dementia who live in a care facility. The design ideas are near Te Hopai, an existing dementia care facility in Newtown, Wellington.  To overcome the stigmatised environment in the existing facility, this thesis explores the possibilities for bringing the residents out and encouraging the public into their territory, increasing social interaction. A wide group of people such as carers, families and the wider community were considered in the design. Te Hopai’s surroundings, which are currently empty spaces and car parks, have been transformed into a functional and welcoming landscape which the public can use. The landscape has also been designed to encourage residents with dementia who were previously confined inside to experience the outdoor environment. Through designing a socially active, accessible and experiential space that is easy to navigate and interact with, this thesis hope to reconnect and improve the life experience of the person with dementia as well as their community.</p>

A younger onset dementia toolkit: Innovative practice

Dementia ◽  
2018 ◽  
Vol 19 (4) ◽  
pp. 1299-1307
Author(s):  
Caroline Vafeas ◽  
Elisabeth Jacob ◽  
Alycia Jacob
Keyword(s):  
Expert Panel ◽  
Aged Care ◽  
Dementia Care ◽  
Care Providers ◽  
Community Environment ◽  
Innovative Practice ◽  
Care Workers ◽  
The Family ◽  
Specific Care ◽  
The Individual

A diagnosis of younger onset dementia requires specific care tailored to the individual and the family. Dementia care workers often do not have the skills and experience necessary to offer this care within the residential and community environment. This article reports the development of an interactive resource to educate those employed to care for people living with younger onset dementia. Prescription for Life, a talking e-Flipbook was developed and piloted in two states of Australia. Feedback from the pilots was incorporated in the resource prior to a national rollout. The project was supported by an expert panel, including experts from national aged care providers.

The influence of individualistic and collectivistic morality on dementia care choices

2018 ◽  
Vol 26 (7-8) ◽  
pp. 2047-2057 ◽  
Author(s):  
Ingrid Hanssen ◽  
Phuong Thai Minh Tran
Keyword(s):  
Research Question ◽  
Family Members ◽  
Family Care ◽  
Dementia Care ◽  
Family Carers ◽  
Severe Dementia ◽  
Professional Help ◽  
The Balkans ◽  
The Family ◽  
Ethical Approval

Background: If collectivistic-oriented family carers choose professional care for dependents with dementia, they risk being stigmatised as failing their obligation. This may influence dementia care choices. Research question: How may individualistic and collectivistic values influence choices in dementia care? Method: Qualitative design with in-depth interviews with a total of 29 nurses, 13 family members in Norway and the Balkans and 3 Norwegian dementia care coordinators. A hermeneutic content-focused analysis was used. Ethical considerations: Ethical approval was obtained from the Regional Ethics Committee for Research, South-Eastern Norway, and the nursing homes’ leadership. Findings: Family domain reasons why institutionalisation of dependents with dementia was seen as a last resort: obligation towards family members, particularly parents; worry about other family members’ reactions and inability to cope with the care for the person with dementia. Social domain reasons: feelings of shame and stigma regarding dementia, particularly in connection with institutionalisation of family members. Discussion: Children’s obligation towards their parents is an important aspect of the morality of collectivistic societies. Institutionalising parents with dementia may cause feelings of guilt and shame and worry about being stigmatised and ostracised. To avoid blame and rejection, caregiver(s) try to keep the fact that family members have dementia ‘in the family’. The decision to accept professional healthcare for dependents with severe dementia or have them admitted to a geriatric institution was postponed as long as possible. Conclusion: Family care morality may constitute a significant barrier against seeking professional help for persons with dementia, a barrier based on the expectation that the family will care for their old, even when suffering from severe dementia. Hence, stigma and shame may significantly affect the provision of care. Culturally tailored information may encourage family carers to seek professional help before the disruptive influence of the disease makes institutionalisation the only feasible option.

Alternative Models of Peasant Families : A Critique of the New Home Economics

1984 ◽  
Vol 6 (1) ◽  
pp. 97-121
Author(s):  
Ellen Wiegandt ◽  
Urs Luterbacher
Keyword(s):  
Social Science ◽  
Social Institutions ◽  
Chicago School ◽  
Home Economics ◽  
Alternative Models ◽  
The Family ◽  
The One ◽  
Neoclassical Analysis

In presenting some ideas about the organization of families, this paper includes an explicit criticism of « economistic » theories of the family and social institutions. Broadly conceived, « economism », or the explanation of societal forms and phenomena through economic and productive processes, has become one of the dominant paradigms in modem social science. Two powerful currents of thought have largely contributed to the development of this perspective – Marxism on the one hand and, more recently, the Chicago school of economics which applies so-called neoclassical analysis to all kinds of institutions ranging from slavery (Fogel and Engerman 1974), to feudalism (North and Thomas 1971), to the family (Becker 1981), and to legal organizations (Posner 1981).

Exile and Social Science

2018 ◽  
pp. 145-163
Author(s):  
Seyla Benhabib
Keyword(s):  
Social Science ◽  
Comparative Advantage ◽  
Real World ◽  
The State ◽  
Competitive System ◽  
Albert Hirschman ◽  
The Family ◽  
The Future ◽  
Quality Of Products

This chapter focuses on how Albert Hirschman presented that the image of the economy as a fully competitive system where changes in the fortunes of individual firms are exclusively caused by basic shifts of comparative advantage is certainly an inaccurate representation of the real world. In associations such as the family, the state, and religious, civic, and professional institutions, loyalty dominates and often trumps exit in favor of voice. “Exit” means leaving behind a product, a service, a firm, or a country to seek others, whereas “voice” refers to the choice to seek influence and have a say in determining the future quality of products or institutions. The chapter shows how Hirschman knew about exit, the search for voice, and the conflicts of loyalties first-hand through his eventful life and travels.

Private Dental Care Benefits Non-Indigenous Children More Than Indigenous Children

2019 ◽  
Vol 5 (3) ◽  
pp. 244-253
Author(s):  
R. Nair ◽  
L. Luzzi ◽  
L. Jamieson ◽  
A.J. Spencer ◽  
K.M.B. Hanna ◽  
...  
Keyword(s):  
Dental Care ◽  
Oral Care ◽  
Effect Modification ◽  
Health Care Facilities ◽  
Excess Risk ◽  
Public Care ◽  
Relative Excess Risk ◽  
Private Care ◽  
Care Facilities ◽  
Indigenous Children

Introduction: Various arrangements for funding health care facilities can have different levels of performance of care provision on different groups of people. Such differential performance of oral care is not previously known concerning Indigenous communities. Objective: This study aimed to assess the effect of visiting a public or private dental care facility on the performance of oral care experienced by Indigenous versus non-Indigenous children in Australia. Methods: Data from the National Child Oral Health Survey were used with a representative sample of children from all the states and territories of Australia. The performance of oral care was measured with the Child Oral Care Performance Assessment Scale (COPAS), which contains 37 items from 9 domains (Effective, Appropriate, Efficient, Responsive, Accessible, Safe, Continuous, Capable, and Sustainable) with a score ranging from 0 to 148. Mixed effects models that accounted for stratum and sampling weights were used for the stratified analyses (Indigenous vs. non-Indigenous) that assessed the effect of public versus private care on the COPAS. Relative excess risk due to interaction was calculated to assess effect modification. Results: Among the Indigenous children, private care was similar to public care (regression coefficient [RC] = −1.27, 95% CI = −9.5 to 6.97), whereas private care was higher than public care among non-Indigenous children (RC = 4.60, 95% CI = 3.67 to 6.18). This trend was similar among the 9 domains of the COPAS as well, except for Effectiveness, which was similar for private and public facilities among non-Indigenous children (RC = −0.03, 95% CI = −0.29 to 0.23). Based on the continuous COPAS score, effect modification was 4.46 (95% CI = 0.11 to 8.82) on the additive scale and 1.06 (1.01, 1.13) on the multiplicative scale. The relative excess risk due to interaction reported an excess chance of 1.17 (95% CI = 0.01 to 0.33), which was consistent with the stratified analyses and effect modification measured with the continuous score. Conclusion: Thus, this study found a higher performance of oral care in private care locations among non-Indigenous children versus Indigenous children. Knowledge Transfer Statement: The findings caution policy makers and other stakeholders that moving oral care from public to private care facilities can increase the inequity faced by Indigenous children in Australia.

Social science findings and the “Family wars”

Society ◽  
2001 ◽  
Vol 38 (4) ◽  
pp. 13-19 ◽  
Author(s):  
Norval D. Glenn
Keyword(s):  
Social Science ◽  
The Family
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