Using wearable cameras to investigate health-related daily life experiences: A literature review of precautions and risks in empirical studies

2021 ◽  
pp. 174701612110540
Author(s):  
Laurel E Meyer ◽  
Lauren Porter ◽  
Meghan E Reilly ◽  
Caroline Johnson ◽  
Salman Safir ◽  
...  

Automated, wearable cameras can benefit health-related research by capturing accurate and objective information about individuals’ daily experiences. However, wearable cameras present unique privacy- and confidentiality-related risks due to the possibility of the images capturing identifying or sensitive information from participants and third parties. Although best practice guidelines for ethical research with wearable cameras have been published, limited information exists on the risks of studies using wearable cameras. The aim of this literature review was to survey risks related to using wearable cameras, and precautions taken to reduce those risks, as reported in empirical research. Forty-five publications, comprising 36 independent studies, were reviewed, and findings revealed that participants’ primary concerns with using wearable cameras included physical inconvenience and discomfort in certain situations (e.g. public settings). None of the studies reviewed reported any serious adverse events. Although it is possible that reported findings do not include all risks experienced by participants in research with wearable cameras, our findings suggest a low level of risk to participants. However, it is important that investigators adopt recommended precautions, which can promote autonomy and reduce risks, including participant discomfort.

SAGE Open ◽  
2020 ◽  
Vol 10 (4) ◽  
pp. 215824402098075
Author(s):  
H. Bassi ◽  
L. Misener ◽  
A. M. Johnson

Crowdsourcing, an open call for the public to collaborate and participate in problem solving, has been increasingly employed as a method in health-related research studies. Various reviews of the literature across different disciplines found crowdsourcing being used for data collection, processing, and analysis as well as tasks such as problem solving, data processing, surveillance/monitoring, and surveying. Studies on crowdsourcing tend to focus on its use of software, technology and online platforms, or its application for the purposes previously noted. There is need for further exploration to understand how best to use crowdsourcing for research, as there is limited guidance for researchers who are undertaking crowdsourcing for the purposes of scientific study. Numerous authors have identified gaps in research related to crowdsourcing, including a lack of decision aids to assist researchers using crowdsourcing, and best-practice guidelines. This exploratory study looks at crowdsourcing as a research method by understanding how and why it is being used, through application of a modified Delphi technique. It begins to articulate how crowdsourcing is applied in practice by researchers, and its alignment with existing research methods. The result is a conceptual framework for crowdsourcing, developed within traditional and existing research approaches as a first step toward its use in research.


Author(s):  
Linda S. Pescatello ◽  
Emily A. Hennessy ◽  
Peter T. Katzmarzyk ◽  
William E. Kraus ◽  
Anne F. Fish ◽  
...  

Background: Systematic reviews (SRs) and meta-analyses (MAs) have proliferated with a concomitant increase in reviews of SRs/MAs or “meta-reviews” (MRs). As uncovered by the 2018 US Physical Activity Guidelines Advisory Committee (PAGAC), there is a paucity of best practice guidance on MRs on physical activity health-related research. This manuscript aims to fill this gap. Methods: In total, the PAGAC conducted 38 literature searches across 3 electronic databases and triaged 20,838 titles, 4913 abstracts, and 2139 full texts from which 1130 articles qualified for the PAGAC Scientific Report. Results: During the MR process, the following challenges were encountered: (1) if the SR/MA authors had limited experience in synthesis methodology, they likely did not account for risk of bias in the conclusions they reached; (2) many SRs/MAs reviewed the same primary-level studies; (3) many SRs/MAs failed to disclose effect modifier analyses; (4) source populations varied; (5) physical activity exposures were nonstandardized; and (6) dose–response effects or effect modification of the physical activity exposure could not be identified. Conclusions: Using examples from the PAGAC Scientific Report, we provide (1) a high-level introduction to MRs; (2) recommended steps in conducting a MR; (3) challenges that can be encountered; and (4) guidance in addressing these challenges.


2019 ◽  
Vol 18 (01) ◽  
pp. A02 ◽  
Author(s):  
Artemis Skarlatidou ◽  
Alexandra Hamilton ◽  
Michalis Vitos ◽  
Muki Haklay

Although hundreds of citizen science applications exist, there is lack of detailed analysis of volunteers' needs and requirements, common usability mistakes and the kinds of user experiences that citizen science applications generate. Due to the limited number of studies that reflect on these issues, it is not always possible to develop interactions that are beneficial and enjoyable. In this paper we perform a systematic literature review to identify relevant articles which discuss user issues in environmental digital citizen science and we develop a set of design guidelines, which we evaluate using cooperative evaluation. The proposed research can assist scientists and practitioners with the design and development of easy to use citizen science applications and sets the basis to inform future Human-Computer Interaction research in the context of citizen science.


2021 ◽  
Author(s):  
Waiza Kadri ◽  
Rhiannon Halfpenny ◽  
Breege Whiten ◽  
Christina Smith ◽  
Siofra Mulkerrin

Abstract Background Swallowing impairment (dysphagia) and tracheostomy coexist. Research in this area has often provided an overview of dysphagia management as a whole, but there is limited information pertaining to specific dysphagia therapy in the tracheostomy population. The aim of this scoping review is to provide detailed exploration of the literature with regards to dysphagia therapeutic interventions in adults with a tracheostomy. The scoping review will describe current evidence and thus facilitate future discussions to guide clinical practice.Methods A scoping review using the Joanna Briggs Institute and Preferred Reporting Items for Systematic Reviews guideline will be used. Ten electronic databases from inception to July 2021and grey literature will be searched. From identified texts forward and backward citation chasing will be completed. Data extraction will compose of population demographics, aetiology and dysphagia therapy (type, design, dose and intensity). Number of citations and papers included into the scoping review will be presented visually.Discussion The scoping review aims to expand upon the existing literature in this field. A detailed description of the evidence is required to facilitate clinical discussions and develop therapeutic protocols in a tracheostomised population. The results of this scoping review will support future research in dysphagia therapy and provide the basis for development of best practice guidelines.


2017 ◽  
Vol 11 (2) ◽  
pp. 137-150 ◽  
Author(s):  
Anjali Joseph ◽  
Sara Bayramzadeh ◽  
Zahra Zamani ◽  
Bill Rostenberg

Objective: This review of empirical literature focuses on the design of operating rooms (ORs) by investigating the physical environmental features of ORs associated with patient and staff outcomes. Background: Many ORs built more than 30 years ago remain operational today. However, most are inadequately designed to handle the equipment, processes, and people that a contemporary OR needs to accommodate. However, the evidence base for designing ORs has been sorely lacking, and little guidance exists on how OR design can improve safety and performance outcomes. Method: A literature search was conducted using PubMed and the university’s linked databases. The inclusion criteria included peer-reviewed journal articles that reported some aspect of the physical environment of ORs along with outcomes. The study included empirical studies as well as nonempirical best practice papers. Results: This literature review uncovered 211 articles. The main themes that emerged include OR design-related factors, ventilation, temperature and humidity, acoustical environment, lighting, and materials. Some environmental threats to patient safety in the OR include frequent door openings, clutter, poor air quality, surface contamination, and noise. Further, staff performance and satisfaction were impacted by factors such as the OR layout and equipment and furniture ergonomics. Conclusion: This literature review provides an overview of the research organized into design-focused topic areas to support decision-making by architects and designers. This article highlights gaps in the research and identifies areas where best practice and design assumptions need to be evaluated using rigorous design research.


2007 ◽  
Vol 23 (11) ◽  
pp. 2749-2755 ◽  
Author(s):  
Luiz A. Anjos ◽  
João A. Ferreira ◽  
Jorginete J. Damião

Physiological workload is used to estimate the physical demand of tasks in the workforce, but limited information is available for the various work activities in developing countries. Eighty-three randomly selected male workers participated in the present study, aimed at assessing the physiological workload of garbage collection (GC) in Rio de Janeiro, Brazil. Heart rate (HR) was obtained on four consecutive workdays. Energy expenditure (EE) was extrapolated from heart rate data based on individual laboratory-established heart rate/oxygen consumption curve in 70 workers. Mean HR during GC was 104.0 ± 11.7bpm (± SD), representing 56.9 ± 7.5% of maximum heart rate. EE was 1608.3 ± 738.5kcal for an average of 293.1 ± 103.9 minutes of work per day. Based on all measurements, work in garbage collection in Rio de Janeiro can be considered excessively heavy. These data emphasize the need to develop appropriate classification of workload to be used in health-related research and in the development of maximum acceptable work time in association with the physiological workload, particularly in developing countries.


2016 ◽  
Vol 10 (2) ◽  
pp. 124-146 ◽  
Author(s):  
Shan Jiang ◽  
Stephen Verderber

Objective: This present literature review explores current issues and research inconsistencies regarding the design of hospital circulation zones and the associated health-related outcomes. Background: Large general hospitals are immense, highly sophisticated institutions. Empirical studies have indicated excessively institutional environments in large medical centers are a cause of negative effects to occupants, including stress, anxiety, wayfinding difficulties and spatial disorientation, lack of cognitional control, and stress associated with inadequate access to nature. The rise of patient-centered and evidence-based movements in healthcare planning and design has resulted in a general rise in the quality of hospital physical environments. However, as a core component of any healthcare delivery system, hospital circulation zones have tended to remain neglected within the comparatively broad palette of research conducted and reported to date. Method: A systematic literature review was conducted based upon combinations of key words developed vis-à-vis a literature search in 11 major databases in the realm of the health sciences and the planning and design of built environments for healthcare. Results: Eleven peer-reviewed articles were included in the analysis. Six research themes were identified according to associated health-related outcomes, including wayfinding difficulties and spatial disorientation, communication and socialization patterns, measures and control of excessive noise, patient fall incidents, and occupants’ stress and satisfaction levels. Conclusions: Several knowledge gaps as well as commonalities in the pertinent research literature were identified. Perhaps the overriding finding is that occupants’ meaningful exposure to views of nature from within hospital circulation zones can potentially enhance wayfinding and spatial navigation. Future research priories on this subject are discussed.


2021 ◽  
Vol 26 ◽  
Author(s):  
Olukemi O. Owolabi ◽  
Portia J. Jordan ◽  
Margaret Williams ◽  
Wilma Ten Ham-Baloyi

Best practice guidelines (BPGs) exist for operating theatre (OT), but strategies to implement them are lacking. To address the gap, an integrative review was undertaken to identify strategies which can be used to implement BPGs in OT. This article aimed to summarise the best existing literature in order to identify and describe strategies for the implementation of BPGs in OT. An extensive search was undertaken to include relevant literature from February 2005 to March 2020 using the following databases: CINAHL, Medline, Biomed Central, Academic Search Complete and Health Source: Nursing/Academic Edition (EBSCOhost) and the Cochrane library. This integrative literature review followed the methodology proposed by Whittemore and Knafl, namely: (1) identification of the research problem, (2) search of the literature, (3) evaluation of the data, (4) analysis of the data and (5) presentation of the results. On completion of the critical appraisal, 15 (n = 15) articles met the inclusion criteria and relevant data were synthesised. The review identified six strategies facilitating implementation of BPGs in OT, namely, communication, education materials and mass media, academic detailing, opinion leaders, audit and feedback, and teamwork and collaboration. The review validated strategies for the implementation of BPGs in OT. Implementation of BPGs is essential to both provide and improve patient care and to benefit health outcomes. This review is expected to contribute to the provision of strategies to implement BPGs in OT.


Author(s):  
S Ben Nakhi ◽  
B Drake ◽  
S English

Background: External ventricular drains are a lifesaving intervention in the management of acute hydrocephalus. EVD associated infections vary significantly, and expert panels recommend reviewing institutional policies if infection rates exceed 10%. The audit aims to identify the infection rate at our institution, whereas the literature review aims to synthesize a new institutional EVD best practice guideline. Methods: An audit of EVD catheters inserted in the time period between 07/01/2019 and 10/25/2020 was conducted. Statistical analysis to calculate absolute incidence, infections per 1000 days of catheter use. A literature review to identify best practices for the insertion and management of EVDs was conducted. Results: 75 patients required a total of 105 EVD catheters. There were 16 (15.3%) EVD related infections, equating to 14.3 infections per 1000 days. Fifty percent of patients developed an EVD related infection within 9 days of insertion. Most infections were induced by skin flora (87.5%). A comprehensive step-by-step EVD insertion and management protocol was developed aiming to reduce the risk of infection. Conclusions: The incidence of EVD associated infections at the Ottawa Hospital is significantly higher than acceptable rates as suggested by expert panels. A new evidence-based best practice guidelines should be implemented. A follow-up audit is necessary.


2020 ◽  
Author(s):  
xiaojie li ◽  
Yali Cong

Abstract Background : With the advancement of information and communication technology, sharing biomedical data across organizations has become more feasible. However, a large part of China’s biomedical details still “silent” or “isolated”. Methods: To identify what ethical challenges are considered hinder biomedical data sharing, we performed a systematic literature review pertaining to biomedical data sharing in China. A total of 1919 publications were initially identified, 56 of which were included in the final synthesis after full-text screening. We used the International Ethical Guidelines for Health-related Research Involving humans (CIMOS) to identify the related ethical principles and norms. Results: We observed an abundance of ethical challenges based upon the following five overarching themes: capacity building; equitable distribution of benefits and burdens; scientific and social values; the data subjects’ rights; public trust and engagement. Conclusion :Based on these analyses, we find current sharing practice need to balance the protection of privacy and confidentiality with the promotion of data sharing. We believe privacy concerns can be attenuated by different stakeholders’ responsible participation within a principled proportionate governance model.


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