scholarly journals Regional Differences in the Beliefs and Practices Among Adults with Sickle Cell Disease Regarding Reproductive Health and Family Planning: A Sub-Analysis

Blood ◽  
2019 ◽  
Vol 134 (Supplement_1) ◽  
pp. 2114-2114
Author(s):  
Laura Ibidunni ◽  
Kristin Paulyson Nunez ◽  
Jude C Jonassaint ◽  
Laura De Castro
Keyword(s):  
Genetic Counseling ◽  
Family Planning ◽  
Reproductive Health ◽  
Board Of Directors ◽  
Sickle Cell ◽  
Health Knowledge ◽  
Genetic Counselor ◽  
African Countries ◽  
Advisory Committees ◽  
Reproductive Health Knowledge

Background. Sickle cell disease (SCD) remains the most common genetic hematologic disorder, with a disproportionally high incidence and prevalence in African countries. It is associated with an increased risk of maternal and infant morbidity and mortality compared to the general population. As more young adults living with SCD reach healthier reproductive ages, it is imperative that there is open communication between providers and patients regarding reproductive health, maternal risks associated with childbirth, and the risk of having children who inherit SCD. It is also important that providers understand reproductive health knowledge and perceptions within this population and methods to improve family planning education. We performed a survey-based study aimed to quantify current knowledge and perceptions regarding reproductive health choices, family planning and genetic counseling-presented in another abstract-. Here we present a sub-analysis, aiming to quantify differences, based on the participants region, concerning reproductive health knowledge and perceptions amongst adults with SCD. Methodology. All study participants were at least 18 years old and have a SCD diagnosis. They were asked to complete an anonymous survey instrument consisting of 43 questions, administered using Qualtrics Survey Software. The survey was comprised of questions about participants' demographics, knowledge base and perceptions about reproductive health and genetic counseling. Participants were recruited using convenience sampling in two ways. The first was through reaching sickle cell patient groups online via social media through Facebook and Twitter. The second was at an adult SCD clinic where participants were invited to complete the survey in clinic or afterwards. 152 participants accessed the survey, and 105 that completed more than 90% of the survey were included in the primary analysis. Further analysis was done to compare data from 70 participants who did not migrate from their reported birth country. Comparison groups were generated using reported birth country and current location. Forty-seven participants from North American (U.S. and Canada) and 23 from African Countries (Nigeria, Zambia, Kenya, and South Africa) were included in this analysis. Results. Demographics: Among the 70 analyzed, 47 (67.1%) respondents were from North America (N.A.) and 23 (32.9%) were from African Countries (A.C). Knowledge: People from both N.A. and A.C. agreed that women with SCD were at higher risk of pregnancy complications (91.5% and 87%, respectively), and understood the chance of having a child with SCD if both parents have the trait (78.7% and 78.3%). Perception: Participants from N.A. reported receiving most of their information about family planning, partner screening, and reproductive health from healthcare providers more frequently than participants from A.C. (67% vs 39%). More participants from A.C, 21 (91.3%), agreed that having children in the future was important to them, while 21 (45%) of the participants from N.A agreed to this. Participants from A.C. and N.A. equally agreed that is it important to know if their partner has the sickle cell trait (SCT) (95.7% and 93.6%). However, more participants from A.C., 21 (91.3%), reported having any discussion with their partner about being screened for the SCT, versus 29 (61.8%) from N.A. Participants from N.A. and A.C. were equally knowledgeable about what a genetic counselor is (72% v. 70%, respectively), and utilized genetic counseling at low rates (37% v. 39.1%, respectively). Most participants reported that they do not know how to get in contact with a genetic counselor in their community, 31 (66%) from N.A. and 18 (78.3%) from A.C. Many have not been referred to a genetic counselor in the past by a healthcare provider, 39 (83%) from N.A. and 20 (87%) from A.C. Conclusion. Our study suggests that there are differences in reproductive health and genetic counseling knowledge and perceptions when comparing SCD participants living in two world regions. Independently of regional differences, many people with SCD appear to lack key reproductive health and genetic counseling knowledge and resources. We believe there is a need for improved communication between providers and patients in family planning education, as well as further studies to address access to reproductive health and genetic counseling resources. Disclosures Nunez: American Board of Genetic Counseling: Membership on an entity's Board of Directors or advisory committees; Foundation for Women and Girls with Blood Disorders: Membership on an entity's Board of Directors or advisory committees. De Castro:Novartis: Membership on an entity's Board of Directors or advisory committees; Global Blood Therapeutics: Membership on an entity's Board of Directors or advisory committees; Pfizer: Consultancy.

scholarly journals Beliefs and Practices Among Adults with Sickle Cell Disease Regarding Reproductive Health Decisions and Family Planning

Blood ◽  
2019 ◽  
Vol 134 (Supplement_1) ◽  
pp. 2101-2101
Author(s):  
Laura Ibidunni ◽  
Kristin Paulyson Nunez ◽  
Jude C Jonassaint ◽  
Laura De Castro
Keyword(s):  
Genetic Counseling ◽  
Family Planning ◽  
Sickle Cell Disease ◽  
Reproductive Health ◽  
Board Of Directors ◽  
Sickle Cell ◽  
Genetic Counselor ◽  
Cell Disease ◽  
Advisory Committees ◽  
The Past

Background. With improvements in early diagnosis and health care for those with sickle cell disease (SCD), many affected are living longer and having families of their own. Despite medical advancements in this field, pregnancy in this population is still associated with an increased risk for maternal and infant morbidity and mortality compared to the general population. Due to increased maternal risks associated with childbirth and the risk of having children who inherit the disease, communication between providers and patients regarding reproductive health is imperative. However, providers' understanding of reproductive health knowledge and perceptions within this population and methods to improve family planning education which can result in autonomous and informed decisions amongst adults with SCD is still limited. Our study aims to quantify current knowledge and perceptions in adults with SCD regarding reproductive health choices and genetic counseling. Methodology. Study participants had to be at least 18 years old and have a diagnosis of SCD. Participants were asked to complete an anonymous survey instrument consisting of 43 questions that was administered using Qualtrics Survey Software. The survey was comprised of questions about participants' demographics, knowledge base and perceptions about reproductive health and genetic counseling. Participants were recruited using convenience sampling in two ways: 1) through online social media via Facebook and Twitter sickle cell patient groups; 2) patients at an adult sickle cell clinic were invited to complete the survey in clinic or afterwards. A total of 152 participants accessed the survey, and of those, 105 that completed more than 90% of the survey, were used in the analysis. Results. Demographics: Participants were between 18-57 years of age, 85 females (81.0%), 19 males (18.1%), and 1 transgender (1.0%). Among 99 people who disclosed their place of birth, 49 (49.5%) were from North America (U.S. and Canada), 38 (38.4%) were from African countries, and 12 (12.1%) were from other parts of the world. Fifty-six (53.5%) reported having no children and 49 (46.7%) had a minimum of one child. Knowledge: Ninety-three (88.6%) agreed that women with SCD are at a higher risk of pregnancy complications and 82 (78.1%) understood the chance of having a child with SCD if both parents have the trait. However, one-third (33.3%) did not know that women with hemoglobin SS will always pass down the trait to their children, and 90 (85.7%) were unaware of contraceptive methods available that have been shown to reduce the risk of sickle cell crisis. Perception: Sixty-four (61.5%) participants agreed that having children in the future was very important to them. Majority, 96 (91.4%), also agree that they want to avoid having a child with SCD. Fifty-eight (55.2%) indicated they received a majority of their information about partner screening, and reproductive health from a healthcare provider while 47 (44.8%) reported receiving most of their information from other sources (school, family members, friends, and independent research). Fifty-nine (59.6%) out of the 89 participants who responded agreed that they wished they had more conversations about partner screening and reproductive health with their hematologist. Seventy-five (72.1%) respondents reported that they know what a genetic counselor is and 40 (39.2%) reported having formal genetic counseling in the past. Among those who know what a genetic counselor was, only 30 (40.0%) actually knew how to get in contact with a genetic counselor in their community. Of those that have had formal genetic counseling in the past 15 (37.5%) reported having formal genetic counseling by a genetic counselor, while 25 (62.5%) had some form of counseling by another healthcare provider (i.e. hematologist, gynecologist, PCP, other); and 24 (60%) had one child or more. Conclusion. Our study suggests that many individuals with SCD may still lack important reproductive health and genetic counseling knowledge and resources. We believe that improved communication between healthcare providers and SCD patients is wanted and needed by this population to prevent pregnancy-related complications and improve outcomes. Future studies should focus on genetic counseling access, and reproductive health and family planning education to promote ongoing discussions and increase knowledge of both providers and individuals with SCD. Disclosures Nunez: American Board of Genetic Counseling: Membership on an entity's Board of Directors or advisory committees; Foundation for Women and Girls with Blood Disorders: Membership on an entity's Board of Directors or advisory committees. De Castro:Global Blood Therapeutics: Membership on an entity's Board of Directors or advisory committees; Novartis: Membership on an entity's Board of Directors or advisory committees; Pfizer: Consultancy.

scholarly journals A participation model based on community forum as a reproductive health knowledge transaction space to increase male participation in vasectomy

2018 ◽  
Vol 31 (1) ◽  
pp. 1
Author(s):  
Noverman Duadji ◽  
Novita Tresiana
Keyword(s):  
Family Planning ◽  
Reproductive Health ◽  
Support System ◽  
Health Knowledge ◽  
Secondary Data ◽  
Lack Of Information ◽  
Community Forum ◽  
Qualitative Descriptive ◽  
Knowledge Transaction ◽  
Reproductive Health Knowledge

The first background of this research is the low participation of male vasectomy KB due to lack of information and low male contraceptive services. The second background of this research is Friedmann’s (2011) idea of citizen forum as transaction space which becomes communication media in the form of equal dialogue.This study aims to analyse the causes of low participation in the vasectomy method of family planning (KB) in South Lampung Regency; analyse the grassroots organisations in the community as the support system for a potential increase in the society’s participation in vasectomy as a part of family planning (KB); and develop a model of vasectomy to increase the participation in South Lampung Regency. This study utilised primary and secondary data which were collected and analysed using qualitative-descriptive method. The research was conducted in nine villages in South Lampung Regency. The findings showed that the major failure for participation in the vasectomy method of family planning (KB) was caused by a lack of a representative knowledge transaction space in family planning (KB) and reproductive health. On the other hand, the existing active societal-institutional support system can be utilised as the space for knowledge transaction. A solution to enhance a social participation model through community forums is urgently needed.

REPRODUCTIVE HEALTH KNOWLEDGE AND USE OF SERVICES AMONG YOUNG ADULTS IN DAKAR, SENEGAL

2002 ◽  
Vol 34 (2) ◽  
pp. 215-231 ◽  
Author(s):  
KAREN KATZ ◽  
CHRISTINE NARÉ
Keyword(s):  
Young Adults ◽  
Family Planning ◽  
Reproductive Health ◽  
Focus Groups ◽  
Health Knowledge ◽  
Contraceptive Use ◽  
Sexual Experience ◽  
Household Survey ◽  
Premarital Sexual ◽  
Reproductive Health Knowledge

A study was conducted in Dakar, Senegal, to measure reproductive health knowledge and contraceptive use among young adults, and access to family planning services. A household survey was conducted with 1973 single and married women aged 15–24 and 936 single men aged 15–19. Two focus groups and a simulated client study were also conducted. The survey and focus groups noted gaps in knowledge of family planning methods and reproductive health. There were misconceptions about methods and only one-third of men and women aged 15–19 correctly identified the time of the menstrual cycle when a women is most likely to get pregnant. Contraceptive use at time of first premarital sexual experience was less than 30%. The simulated client study noted many barriers to services. ‘Clients’ felt uncomfortable in the clinics and felt that providers were reluctant to take care of them. None of the ‘clients’ who requested contraception received it.

scholarly journals Assessment of Knowledge, Attitudes, and Practice on Contraceptive Use among Women Attending Family Planning Services in Some Health Centers of Muhima District Hospital, Rwanda

2017 ◽  
Vol 2 (3) ◽  
Author(s):  
Tegera Mpamya Frederic ◽  
Kanyange Phoibe ◽  
Joseph Ntaganira
Keyword(s):  
Family Planning ◽  
Health Education ◽  
Reproductive Health ◽  
Health Knowledge ◽  
Contraceptive Use ◽  
District Hospital ◽  
Family Planning Services ◽  
The Family ◽  
Reproductive Health Knowledge ◽  
The Impact

Introduction: In developing countries, especially in Africa, reproductive health is a great concern to many stakeholders as maternal mortality and morbidity are very high compared to that in the developed world. Moreover, reproductive health knowledge and access to quality maternal health services in Africa are poor with significant health consequences. Appropriate reproductive health knowledge and attitude can empower women to access quality family planning services (preventive and curative), which are essential for improvement of women’s reproductive health. Objectives: This research aimed to assess reproductive health knowledge, attitude, and practice on contraceptive use among women attending family planning services at Muhima district hospital.  Methods and Materials: The study was cross-sectional in nature involving 326 randomly selected respondents among women attending family planning services at Muhima district hospital. The study instrument was a self-administered questionnaire. Data was analyzed using SPSS (Statistical Package for Social Science) statistics software 17.0 version. Hypothesis: Looking at the aforementioned objective, one may wonder if the health education on contraceptive use given by health staff of Muhima district hospital is well done; we may also wonder about reproductive health beliefs and determinants of contraceptive use among women attending the family planning service; and to what extent women in Muhima district hospital have access to health education on contraceptive use. Trying to find an interim response to this question, we have come to realize that the impact of belief in personal and community health practices is strong; but individual beliefs may not be scientifically true and as such, may make one rightly or wrongly access health care. Results: The majority of the respondents knew when pregnancy can occur and believed that having sex even once with a man may result in pregnancy. 90.0% of respondents had knowledge of benefits of family planning. Consideration about personal health (86.0%) and husband’s approval (74.9%) were major determinants of respondents’ use of contraceptives.  Conclusions: Though respondents were knowledgeable about the benefits of family planning, there is the need for continuous education of women about reproductive health issues and integration of men’s participation in the family planning program to increase utilization of family planning services at Muhima district hospital. 

Reproductive Health Knowledge, Sexual Partners, Contraceptive Use and Motives for Premarital Sex among Female Sub-Urban Nigerian Secondary Students

2008 ◽  
Vol 28 (3) ◽  
pp. 229-238 ◽  
Author(s):  
O. A. Moronkola ◽  
J. A. Fakeye
Keyword(s):  
Health Education ◽  
Reproductive Health ◽  
Secondary Students ◽  
Health Knowledge ◽  
Contraceptive Use ◽  
Sexual Partners ◽  
Premarital Sex ◽  
Sexually Active ◽  
Reproductive Health Education ◽  
Reproductive Health Knowledge

Adolescents in sub-Saharan African countries constitute a large proportion of the population. They are sexually active, engage in unsafe reproductive health behavior with attendant consequences but lack appropriate reproductive health education. In the Nigeria Nation Reproductive Health Strategy Framework and Plan, the status of adolescents' reproductive health care is considered low. This study assessed reproductive health knowledge, sexual partners, contraceptive use, and motives for premarital sex among female sub-urban Nigerian secondary students. The study was cross-sectional, involving 500 senior secondary 1 and 2 female sub-urban students. The instrument used was a self-administered questionnaire. Data were analyzed using SPSS. More than 70.0% of the respondents had knowledge of all reproductive health items; male and female condoms were popular contraceptives. At least 53.4% were sexually active and a majority (49.6%) had boyfriends as sex partners. Peer pressure (31.6%) and fun/pleasure (29.2%) were major motives for engaging in premarital sex. Majority (40.3%) terminated pregnancies through self-medication. Though respondents had knowledge of reproductive health, there is need to introduce health education (incorporating reproductive health education) as a core subject in schools as well as provision of youth-friendly health facilities.

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