scholarly journals Improvements across a range of patient-reported domains with fremanezumab treatment: results from a patient survey study

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Dawn C. Buse ◽  
Sanjay K. Gandhi ◽  
Joshua M. Cohen ◽  
Verena Ramirez-Campos ◽  
Blaine Cloud ◽  
...  
Keyword(s):  
Patient Survey ◽  
Survey Study ◽  
Treatment Results ◽  
Patient Reported

scholarly journals Patient-Reported Burden of Illness in a Prevalent COPD Population Treated with Long-Acting Muscarinic Antagonist Monotherapy: A Claims-Linked Patient Survey Study

2019 ◽  
Vol 5 (1) ◽  
pp. 69-80 ◽  
Author(s):  
Beth Hahn ◽  
Richard H. Stanford ◽  
Alyssa Goolsby Hunter ◽  
Breanna Essoi ◽  
John White ◽  
...  
Keyword(s):  
Burden Of Illness ◽  
Patient Survey ◽  
Survey Study ◽  
Muscarinic Antagonist ◽  
Patient Reported ◽  
Long Acting

scholarly journals Examining patient distress and unmet need for support across UK renal units with varying models of psychosocial care delivery: a cross-sectional survey study

BMJ Open ◽  
2020 ◽  
Vol 10 (9) ◽  
pp. e036931
Author(s):  
Maaike Seekles ◽  
Paula Ormandy ◽  
Daiga Kamerāde
Keyword(s):  
Logistic Regression ◽  
Service Provision ◽  
Care Delivery ◽  
Unmet Need ◽  
Survey Study ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Psychosocial Service ◽  
Patient Reported ◽  
Need For Support

ObjectiveTo examine in-centre haemodialysis patients’ emotional distress and need for support across UK renal units with varying models of psychosocial service provision.DesignThe study used a cross-sectional survey design. Logistic regression analysis was used to examine patient distress, as captured by the Distress Thermometer, and need for support, across different renal units.SettingSeven renal units across England, Wales and Scotland. The units were purposively selected so that varying workforce models of renal psychosocial services were represented.ParticipantsIn total, 752 patients were on dialysis in the participating centres on the days of data collection. All adult patients, who could understand English, and with capacity (as determined by the nurse in charge), were eligible to participate in the study. The questionnaire was completed by 509 patients, resulting in an overall response rate of 67.7%.Outcome measuresThe prevalence of distress and patient-reported need for support.ResultsThe results showed that 48.9% (95% CI 44.5 to 53.4) of respondents experienced distress. A significant association between distress and models of renal psychosocial service provision was found (χ2(6)=15.05, p=0.019). Multivariable logistic regression showed that patients in units with higher total psychosocial staffing ratios (OR 0.65 (95% CI 0.47 to 0.89); p=0.008) and specifically higher social work ratios (OR 0.49 (95% CI 0.33 to 0.74); p=0.001) were less likely to experience distress, even after controlling for demographic variables. In addition, a higher patient-reported unmet need for support was found in units where psychosocial staffing numbers are low or non-existent (χ2(6)=37.80, p<0.001).ConclusionsThe novel findings emphasise a need for increased incorporation of dedicated renal psychosocial staff into the renal care pathway. Importantly, these members of staff should be able to offer support for psychological as well as practical and social care-related issues.

scholarly journals What happens to patient experience when you want to see a doctor and you get to speak to a nurse? Observational study using data from the English General Practice Patient Survey

BMJ Open ◽  
2018 ◽  
Vol 8 (2) ◽  
pp. e018690 ◽  
Author(s):  
Charlotte A M Paddison ◽  
Gary A Abel ◽  
Jenni Burt ◽  
John L Campbell ◽  
Marc N Elliott ◽  
...  
Keyword(s):  
General Practice ◽  
Patient Experience ◽  
Secondary Analysis ◽  
Patient Survey ◽  
Models Of Care ◽  
Unintended Consequences ◽  
Multidisciplinary Teams ◽  
Face To Face ◽  
Patient Reported ◽  
Practice Patient

ObjectivesTo examine patient consultation preferences for seeing or speaking to a general practitioner (GP) or nurse; to estimate associations between patient-reported experiences and the type of consultation patients actually received (phone or face-to-face, GP or nurse).DesignSecondary analysis of data from the 2013 to 2014 General Practice Patient Survey.Setting and participants870 085 patients from 8005 English general practices.OutcomesPatient ratings of communication and ‘trust and confidence’ with the clinician they saw.Results77.7% of patients reported wanting to see or speak to a GP, while 14.5% reported asking to see or speak to a nurse the last time they tried to make an appointment (weighted percentages). Being unable to see or speak to the practitioner type of the patients’ choice was associated with lower ratings of trust and confidence and patient-rated communication. Smaller differences were found if patients wanted a face-to-face consultation and received a phone consultation instead. The greatest difference was for patients who asked to see a GP and instead spoke to a nurse for whom the adjusted mean difference in confidence and trust compared with those who wanted to see a nurse and did see a nurse was −15.8 points (95% CI −17.6 to −14.0) for confidence and trust in the practitioner and −10.5 points (95% CI −11.7 to −9.3) for net communication score, both on a 0–100 scale.ConclusionsPatients’ evaluation of their care is worse if they do not receive the type of consultation they expect, especially if they prefer a doctor but are unable to see one. New models of care should consider the potential unintended consequences for patient experience of the widespread introduction of multidisciplinary teams in general practice.

scholarly journals Toward a Core Domain Set for Glucocorticoid Impact in Inflammatory Rheumatic Diseases: The OMERACT 2018 Glucocorticoid Impact Working Group

2019 ◽  
Vol 46 (9) ◽  
pp. 1179-1182 ◽  
Author(s):  
Jonathan T.L. Cheah ◽  
Rachel J. Black ◽  
Joanna C. Robson ◽  
Iris Y. Navarro-Millán ◽  
Sarah R. Young ◽  
...  
Keyword(s):  
Research Agenda ◽  
Patient Survey ◽  
Patient Reported Outcome ◽  
Inflammatory Rheumatic Diseases ◽  
Core Domain ◽  
Patient Reported ◽  
Literature Reviews ◽  
Rich Data ◽  
Validated Instrument ◽  
Core Domain Set

Objective.To understand the effects of glucocorticoids (GC), which are of importance to patients.Methods.The results of 2 literature reviews, a patient survey, and a qualitative study were presented.Results.No validated instrument exists to evaluate GC effect on patients. Survey data revealed skin thinning/bruising, sleep disturbance, and weight gain as the most frequent adverse effects. The qualitative research yielded rich data covering rapid benefits and physical and emotional consequences of GC.Conclusion.It was agreed that a patient-reported outcome to measure GC effect was required and a research agenda was developed for this goal.

Prevalence of Neuropathic Pain Symptoms in Foot and Ankle Patients

2019 ◽  
Vol 40 (6) ◽  
pp. 629-633 ◽  
Author(s):  
Eliezer Sidon ◽  
Ryan Rogero ◽  
Elizabeth McDonald ◽  
Annemarie Daecher ◽  
Rachel Shakked ◽  
...  
Keyword(s):  
Decision Making ◽  
Neuropathic Pain ◽  
Survey Study ◽  
Long Term Results ◽  
Tarsal Tunnel ◽  
Foot And Ankle ◽  
Number Of Patients ◽  
Increased Risk ◽  
Patient Reported ◽  
Moderate Effect

Background: The management of pain in patients with foot and ankle pathology can be challenging. Cumulative data suggest that, in addition to nociceptive mechanisms, other neuropathic mechanisms can contribute to pain in a subset of people with orthopedic conditions, and can be found in 10.5% to 53% of patients with chronic pain, depending on the location of the pathology. Preoperative diagnosis of neuropathic pain (NP) can potentially change decision making and management of foot and ankle pathologies. Methods: We used a validated patient-reported pain questionnaire (painDETECT) as a cross-sectional study to investigate the prevalence of NP symptoms in a population of patients undergoing foot and ankle surgery. A total of 533 patients were prospectively included and completed the painDETECT questionnaire. Results: Sixty-six patients (12.4%) were classified as having a component of NP symptoms according to their painDETECT score. Current smokers (23.2%) had a significantly higher rate of developing NP symptoms than current nonsmokers (11.1%) ( P = .016). The location of the pathology and obesity had a moderate effect on the prevalence of NP symptoms. Patients with ankle-level pathology, excluding tarsal tunnel syndrome, had a marginally increased risk of having NP symptoms (15.4%) compared to patients with forefoot pathologies, excluding Morton’s neuroma (7.5%, P = 0.06). Obesity also had a moderate effect on the NP risk, with 15.6% risk of NP symptoms for patients with BMI of 30 or more compared to 10% risk for patients with a BMI of less than 30 ( P = .06). Patients with NP symptoms reported significantly higher levels of current pain (7.2 vs 4.6, P < .001). Conclusion: A considerable number of patients with foot and ankle problems requiring surgery had a neuropathic component of pain. Evaluation of their risk factors and level of pain may help with the diagnosis, decision making, and pain control. Further research is needed to evaluate the effect of preoperative NP on the short- and long-term results of surgeries. Level of Evidence: Level II, prospective cohort survey study.

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