scholarly journals Bipolar I disorder: a qualitative study of the viewpoints of the family members of patients on the nature of the disorder and pharmacological treatment non-adherence

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Nasim Mousavi ◽  
Marzieh Norozpour ◽  
Zahra Taherifar ◽  
Morteza Naserbakht ◽  
Amir Shabani

Abstract Background Bipolar disorder is a common psychiatric disorder with a massive psychological and social burden. Research indicates that treatment adherence is not good in these patients. The families’ knowledge about the disorder is fundamental for managing their patients’ disorder. The purpose of the present study was to investigate the knowledge of the family members of a sample of Iranian patients with bipolar I disorder (BD-I) and to explore the potential reasons for treatment non-adherence. Methods This study was conducted by qualitative content analysis. In-depth interviews were held and open-coding inductive analysis was performed. A thematic content analysis was used for the qualitative data analysis. Results The viewpoints of the family members of the patients were categorized in five themes, including knowledge about the disorder, information about the medications, information about the treatment and the respective role of the family, reasons for pharmacological treatment non-adherence, and strategies applied by families to enhance treatment adherence in the patients. The research findings showed that the family members did not have enough information about the nature of BD-I, which they attributed to their lack of training on the disorder. The families did not know what caused the recurrence of the disorder and did not have sufficient knowledge about its prescribed medications and treatments. Also, most families did not know about the etiology of the disorder. Conclusion The lack of knowledge among the family members of patients with BD-I can have a significant impact on relapse and treatment non-adherence. These issues need to be further emphasized in the training of patients’ families. The present findings can be used to re-design the guidelines and protocols in a way to improve treatment adherence and avoid the relapse of BD-I symptoms.

2020 ◽  
Author(s):  
Nasim Mousavi ◽  
marzieh norozpour ◽  
Zahra Taherifar ◽  
Morteza naserbakht ◽  
Amir Shabani

Abstract Background: Bipolar disorder is a common psychiatric disorder with a great psychological and social burden. Research indicates that therapeutic adherence in these patients is low. On the other hand, family knowledge about the disorder is one of the basic principles of treating this disorder. The purpose of the present study was to investigate the knowledge of family members of patients with bipolar I disorder and the reasons for treatment non-compliance in Iran.Methods: This study was conducted by qualitative content analysis method. In-depth interviews were categorized by open coded inductive method based on common meanings and continuous comparisons into subcategories and main subcategories.Results: The findings of this study indicated that the components of the viewpoints of the families of patients with bipolar I disorder, consisted of five themes: a) information about the disorder, b) information about the medications, c) information about the treatment and the role of the family in it, d) causes of patient’s medication non-compliance, and e) family guidelines for patient’s medication compliance.Conclusions: This study showed that family members did not have enough information about the nature of bipolar I disorder and related this to the lack of education. They did not know what causes the recurrence of the disorder and did not have sufficient knowledge about the prescribed drugs and treatment. Also, most families did not know the etiology of the disorder. Lack of knowledge among families can have a significant impact on relapse and therapeutic non-compliance of patients. It seems that these points need to be further emphasized in the education of families. The results of this study will be used to design guidelines and protocols for relapse prevention and family education and reduce the costs.


2018 ◽  
Author(s):  
Abdallah Badahdah ◽  
◽  
Azza Abdelmoneium ◽  
John DeFrain ◽  
Sylvia Asay ◽  
...  

All the problems in the world either begin in families or end up in families. Sometimes families create their own problems, and at other times, families are forced to deal with problems that the world has thrust upon them. For this reason, it is imperative that all societies seek to understand families in all their considerable diversity; to protect families; and to help strengthen families through intervention on the level of the family, the immediate community, the nation, and the international community. Research teams were assembled and conducted focus group studies of family members in Qatar, Jordan, and Tunisia. The purpose of this preliminary report is to discuss the qualitative research findings from focus groups with Arab family members in all three countries, revealing their perceptions of Arab family strengths and challenges, and how they see that families under stress can be better supported by society


2005 ◽  
Vol 60 (4) ◽  
pp. 317-329 ◽  
Author(s):  
Carol M. Musil ◽  
Theresa Standing

Little information exists about the daily lives of women who are grandmothers, and the differences in daily stresses based on caregiving status to grandchildren. This content analysis examines the stresses of 64 grandmothers as grouped by caregiver status (grandmothers raising grandchildren, grandmothers living in multigeneration homes, non-caregivers to grandchildren) as recorded in three-week diaries. The nature of salient issues and stressful interactions differed by caregiver groups. Grandmothers raising grandchildren reported more stresses related to grandchildren's routines, activities, and school progress, more time pressure, and difficult interactions with grandchildren. The diary entries of grandmothers in multigenerational homes reflected their supplemental role in childcare, and sometimes stressful interactions with other family members. Grandmothers with no routine caregiving to grandchildren reported more involvement with those outside the immediate family. Many general concerns about the well-being of the family represent commonalities in grandmothers despite differences in current caregiving roles to grandchildren.


2013 ◽  
Vol 2013 ◽  
pp. 1-7 ◽  
Author(s):  
I. Engqvist ◽  
K. Nilsson

The aim of the study was to describe Swedish psychiatrists’ experiences of involving the family in the treatment of women with postpartum psychosis. A qualitative design was used, and semistructured qualitative research interviews were conducted with nine psychiatrists from the south of Sweden. Data were analysed using qualitative content analysis. Four categories were found:the family as a resource,the family as coworkers,preparing the family for the future, andthe family as a burden. The result showed that the psychiatrists considered the family to be a resource to which they devoted a great deal of care and effort. It was particularly important to involve the partner, informing about the course of the illness and the steps that need to be taken in the event of a relapse and reducing any guilt feelings. The psychiatrists instilled confidence and hope for a future of health and further child bearing. The family members’ limited understanding of the treatment may impede the involvement of the family. Conclusion of the study was that the goal for family involvement was to facilitate the women’s care and treatment. Further studies are needed to provide suggestions on how to develop family involvement in the care of women suffering from postpartum psychosis.


2021 ◽  
Vol 3 (4) ◽  
pp. 139-162
Author(s):  
Içten Duygu Ozbek ◽  
Huriye Toker

Turkey, which has a rich cultural mosaic, consists of the combination of many ‘Others’, including cultural, religious and ethnic the ‘Others’; the ‘Other’ as a gender role; as refugees, emigrants, etc. In such a multicultural climate, our research aim is to identify the stereotypes that represent the ‘Other’ in TV advertisements on Turkey’s mainstream channels. For this purpose, we examined 101 prime-time TV commercials that were broadcast on the five most watched mainstream TV channels between September and December 2020. Having conducted the quantitative and qualitative content analysis of TV commercials, we revealed the symbolic annihilation of the ‘Others’ in the Turkish advertising environment, which is accordance with the conservative perception of the country. In line with the international research, we came to the conclusion that the white Turkish men with medium-high socioeconomic status were heavily represented in the prime-time Turkish TV advertising. Nevertheless, it was also revealed that gendered visibility of the others as well as women portrayals were considered only as the ‘Other’ in the Turkish TV ads. Besides, our research findings overwhelmingly reflect the hegemonic culture and highly traditional views on gender roles.


2020 ◽  
Author(s):  
fatemeh darban ◽  
Roghayeh Mehdipour_Rabori ◽  
Jamileh Farokhzadian ◽  
Esmat Nouhi ◽  
Sakineh Sabzevari

Abstract Introduction: The challenges of living with and taking care of a patient with schizophrenia can lead to positive changes depending on the experiences and reactions of the families. Such changes may directly affect the family performance and the patient's recovery stage. Therefore, the aim of this study was to explain the positive experiences reported by families of patients with schizophrenia.Materials and methods: In this qualitative study of content analysis, data were collected using semi-structured and in-depth interviews with 15 family members of patients with schizophrenia who referred to one of the psychiatric hospitals in Zahedan City, Iran. Targeted sampling method was applied and data analysis was conducted using contractual content analysis proposed by Graneheim and Lundman.Results: Data analysis resulted in a theme entitled 'family achievements in the battle with schizophrenia'. This theme included four main categories of: Developing positive personality traits in family members, Strengthening family ties, Developing insight into life, and Social mobility.Conclusion: The findings provided evidences that the experience of taking care of patients with schizophrenia led to positive consequences for the families.Highlights- Caring for a patient with schizophrenia promotes personality traits in caregivers- Participating in patient care strengthens family ties- Living with schizophrenia patients developed their insight into life.- Family members of a schizophrenic patient try to reach their previous social status


2021 ◽  
pp. 0192513X2110648
Author(s):  
Sonja Anttila ◽  
Päivi Palojoki ◽  
Jaana Vuori ◽  
Hille Janhonen-Abruquah

This study explores the negotiations taking place in LGBTQ families before a child is born or added to the family. It asks who takes part in the negotiations and what issues are negotiated about. An online questionnaire answered by LGBTQ parents (n = 74) was analyzed with qualitative content analysis. The chain of phases leading to having a child can be referred to as a family forming process with various negotiation topics. The four phases are identified as parental desires, consideration of practices, reflecting on the decision, and concrete actions toward having a child. Besides the LGBTQ parents-to-be, significant others such as friends and the family of origin and external others such as donors and fertility clinics took part in the negotiations. Future parents needed to think about their desires in advance to enable fair and equal negotiations.


2022 ◽  
pp. 026461962110597
Author(s):  
Saskia Damen ◽  
Ilse van Zadelhoff ◽  
Corrie Tijsseling

Usher syndrome is a progressive form of deafblindness, which can have significant psychological consequences. This study aimed to get insight in the perceived impact of Usher syndrome type 2 (USH2) on families with a parent affected by this syndrome, and in the experiences of these families with social, professional, and peer support. Participants were 10 parents with USH2 living in the Netherlands, 10 of their co-parents, and 10 of their children. The parents filled in questionnaires and participated in a semi-structured interview. A photo-elicitation interview and a semi-structured interview were administered to the children. Interviews were transcribed and systematically coded, using thematic and open coding. Parents rated the family’s quality of life in general as satisfactory. Both negative and positive consequences were described of USH2 for the family. Parents without USH2 and their children stated to provide support to the parent with USH2, which was often described as self-evident. Some parents without USH2, however, described their family tasks as a burden. Some parents also reported that psychological problems of the parent with USH2 affected the well-being of other family members. Several parents and some children expressed that the syndrome was hardly discussed within the family. Unfulfilled family support needs were mentioned, a lack of involvement of family members in the professional support, as well as a lack of professional and peer support for children and partners. This study revealed that USH2 in a parent has impact on the entire family. Family-centred approaches are recommended for professionals who support parents with Usher syndrome.


2004 ◽  
Vol 13 (5) ◽  
pp. 416-420 ◽  
Author(s):  
Jennifer M. Wagner

• Background During resuscitative efforts, patients’ family members are often barred from the patients’ rooms and may never have the opportunity to see their loved ones alive again. Recently, the need to ask family members to leave the room is being questioned. Little is known about families’ perceptions of cardiopulmonary resuscitation.• Objective To describe the experiences, thoughts, and perceptions of family members of critically ill patients during cardiopulmonary resuscitation in the intensive care unit.• Method Six family members whose loved ones underwent cardiopulmonary resuscitation and survived consented to an audiotaped interview. During the interview, family members were asked to describe their experiences during the resuscitation. Interviews were transcribed and were analyzed for relevant themes by using Van Manen thematic analysis.• Results One major theme emerged: Should we go or should we stay? Additionally, 2 subthemes emerged: What is going on? and You do your job. A model, the family’s experience with cardiopulmonary resuscitation, was developed to reflect the research findings.• Conclusions During the period of resuscitation, healthcare professionals neglect to recognize that patients’ family members are experiencing crisis along with the patients and that coping mechanisms are impaired. Moreover, the family members’ informational and proximity needs are often ignored during this time of crisis. Addressing these needs through appropriate nursing interventions will become increasingly important as patients’ family members begin to remain with their loved ones during cardiopulmonary resuscitation.


2013 ◽  
Vol 26 (2) ◽  
pp. 207-228
Author(s):  
Ulrich Riegel

AbstractDaily routine on Sunday is changing. Formerly a day of religious contemplation, Sunday seems to be a day of rest within the family. Does this change in activities done on a typical Sunday imply an end of spiritual quality? To answer this question this paper conceptualizes spirituality as experience of connectedness to some greater reality which is regarded as important and meaningful. Four options are possible concerning this greater reality: a transcendent reality, nature or cosmos, mankind, or the individual’s self. The data has been collected by semi-structured interview and analyzed by qualitative content analysis. 148 individuals did take part in these interviews (57% females, age range: 7 to 59; 64% Catholics and 22% Protestants). The findings point at Sunday spent with family. Further on we could identify activities representing all four types of spirituality. Together these examples point at the conclusion that Sunday still is a special day within the week. Its activities offer spiritual quality, but it is the individual to reassure it.


Sign in / Sign up

Export Citation Format

Share Document