scholarly journals Patients’ experiences of eHealth in palliative care: an integrative review

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Cecilia Widberg ◽  
Birgitta Wiklund ◽  
Anna Klarare
Keyword(s):  
Palliative Care ◽  
Patient Safety ◽  
Well Being ◽  
Integrative Review ◽  
World Population ◽  
Main Theme ◽  
Use Of Resources ◽  
Individualized Care ◽  
Sense Of Security ◽  
Health Applications

Abstract Background With a growing world population, a longer life expectancy, and more deaths due to chronic diseases, the need for palliative care is increasing. Palliative care aims to alleviate suffering and to promote well-being for patients with progressive, incurable disease or injury. E-Health entails using of information and communication technology for healthcare provision. It is unclear to how patients experience use of eHealth technology within palliative care. Methods The aim of this study was to describe patients’ experiences of eHealth in palliative care. A systematic integrative review was performed using six databases: Cinahl Complete; MEDLINE; PubMed; Psychology and Behavioral Sciences Collection; Nursing and Allied Health; and PsycINFO. Twelve studies met the inclusion criteria of adult patients in palliative care, English language, published 2014–2019: comprising 397 patients. Six studies were from European countries, four from North America, one from South America and one from Oceania. Seven were feasibility or pilot studies. Results The findings are synthesized in the main theme: E-health applications – promoting communication on patients’ and families’ terms, and three sub- themes: usability and feasibility of eHealth applications; symptom control and individualized care; and use of eHealth applications increased sense of security and patient safety. Patients’ experiences were that eHealth promoted individualized care, sense of security, better symptom management and participation in care. Communication was facilitated by the inherent flexibility provided by technology. Conclusions E-Health applications seem promising in promoting equal, individualized care, and may be a tool to endorse accessibility and patient participation in palliative care settings. Indications are that eHealth communication resulted in patients and families receiving more information, which contributed to experiences of patient safety and feelings of security. At organizational and societal levels, eHealth may contribute to sustainable development and more efficient use of resources.

scholarly journals Patients' experiences of eHealth in palliative care: An integrative review

2020 ◽  
Author(s):  
Cecilia Widberg ◽  
Birgitta Wiklund ◽  
Anna Klarare
Keyword(s):  
Palliative Care ◽  
Patient Safety ◽  
Well Being ◽  
Integrative Review ◽  
World Population ◽  
Main Theme ◽  
Use Of Resources ◽  
Individualized Care ◽  
Sense Of Security ◽  
Health Applications

Abstract Background: With a growing world population, a longer life expectancy, and more deaths due to chronic diseases, the need for palliative care is increasing. Palliative care aims to alleviate suffering and to promot e well-being for patients with progressive, incurable disease or injury. E - Health entails us ing of information and communication technology for healthcare provision . I t is unclear to how patients experience use of eHealth technology within palliative care Methods: The aim of this study was to describe patients’ experiences of eHealth in palliative care. A systematic integrative review w as performed using six databases: Cinahl Complete; MEDLINE; PubMed; Psychology and Behavioral Sciences Collection; Nursing and Allied Health; and PsycINFO . Twelve studies met the inclusion criteria of adult patients in palliative care, English language , published 2014-2019: comprising 397 patients . S ix studies were from European countries, four from North America, one from South America and one from Oceania . Seven were feasibility or pilot studies. Results: The findings are synthesized in the main theme: E-health applications – promoting communication on patients’ and families’ terms , and three sub- themes: usability and feasibility of eHealth applications; symptom control and individualized care; and use of eHealth applications increased sense of security and patient safety. Patients ’ experiences were that eHealth promoted individualized care, sense of security, better symptom management and participation in care . Communication was facilitated by the inherent flexibility provided by technology . Conclusions: E-Health applications seem promising in promoting equal, individualized care, and may be a tool to endorse accessibility and patient participation in palliative care settings. I ndications are that eHealth communication resulted in patients and families receiving more information, which contributed to experiences of patient safety and feelings of security. At organizational and societal levels, eHealth may contribute to sustainable development and more efficient use of resources.

scholarly journals Patients’ experiences of eHealth in palliative care: an integrative review.

2020 ◽  
Author(s):  
Cecilia Widberg ◽  
Birgitta Wiklund ◽  
Anna Klarare
Keyword(s):  
Palliative Care ◽  
Patient Safety ◽  
Information And Communication Technology ◽  
Communication Technology ◽  
Integrative Review ◽  
World Population ◽  
Use Of Resources ◽  
Individualized Care ◽  
Information And Communication ◽  
Health Applications

Abstract Background: With a growing world population, a longer life expectancy, and more deaths due to chronic diseases, the need for palliative care is increasing. E-Health involves the use of information and communication technology to provide care, and also to transmit health information through the Internet and related technologies. E-Health can be an effective way of supporting communication between patient and healthcare providers, but it is unclear to how patients regard information and communication technology (ICT) within palliative careMethods: The aim of this study was to describe patients’ experiences of eHealth in palliative care. An integrative review with a systematic literature search of six databases: Cinahl Complete; MEDLINE with Full Text; PubMed; Psychology and Behavioral Sciences Collection; Nursing and Allied Health; and PsycINFO generated 12 scientific articles. The articles were evaluated, data extracted, analyzed and synthesized, according to the aim.Results: The results are presented in the main theme: E-health applications – promoting communication on patients’ and families’ terms, and three sub- themes: usability and feasibility of eHealth applications; symptom control and individualized care promoted through eHealth applications; and use of eHealth applications increased sense of security and patient safety. Patients described ease of use, usability and feasibility of eHealth applications. Equal and individualized care, security, better symptom management, participation through increased accessibility and increased patient safety were described.Conclusions: E-Health applications promoted equal, individualized care, and may be a tool to promote accessibility and patient participation in palliative care settings. Furthermore, care transparency increased with eHealth communication when patients and families received more information, and experiences were that patient safety and feelings of security also were promoted. At organizational and societal levels, eHealth may contribute to sustainable development and more efficient use of resources in palliative care.

Circumstances Related to Moral Distress in Palliative Care: An Integrative Review

2020 ◽  
pp. 104990912097882
Author(s):  
Carla Corradi-Perini ◽  
Julianna Rodrigues Beltrão ◽  
Uiara Raiana Vargas de Castro Oliveira Ribeiro
Keyword(s):  
Palliative Care ◽  
Healthcare Professionals ◽  
Moral Distress ◽  
Well Being ◽  
Integrative Review ◽  
Death Process ◽  
Communication Problems ◽  
Ethical Conflicts ◽  
Relief Of Suffering ◽  
The Face

Background: The practice of palliative care is involved with ethical conflicts related to the life-death process and relief of suffering. The inability to act in the face of such dilemmas, due to internal or external barriers, can cause moral distress in the healthcare professionals. Objective: The purpose of this integrative review is to analyze which circumstances cause moral distress in healthcare professionals who work in palliative care. Methods: An integrative review of the literature was made in the SCIELO and PubMed databases, based on the descriptors “palliative care” and “moral distress.” Articles published between 2015-2020, in Portuguese, Spanish and English were included, following the PRISMA criteria. Results: From a selection of 97 documents, 56 were completed reviewed and 23 studies were included in the review. Most articles refer to the nursing area, followed by multidisciplinary studies. The circumstances related to moral distress were identified involving: personal aspects; patients and caregivers; team; environment and organization. Communication problems, lack of resources and witnessing professionals giving false hope to patient and family members were the events related to moral distress most mentioned by the articles in the review. Recommendations for reducing and preventing moral distress include empowerment and educational programs in bioethics and palliative care. Conclusions: Moral distress is an evident phenomenon in palliative care, involving different situations that can impact on quality-of-care provided as well as the well-being of the healthcare professionals.

Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review

2018 ◽  
Vol 33 (2) ◽  
pp. 250-256 ◽  
Author(s):  
Anita Chung ◽  
Aileen Collier ◽  
Merryn Gott
Keyword(s):  
Palliative Care ◽  
Grey Literature ◽  
Well Being ◽  
Research Literature ◽  
Integrative Review ◽  
Empirical Literature ◽  
Family Carers ◽  
Care Needs ◽  
Palliative Care Needs ◽  
Support Family

Background: Public health approaches to palliative care prioritise community-focused initiatives to support people with palliative care needs and their families. The nature and extent of these initiatives have not previously been reported. Aim: To identify community-led and/or focused initiatives that have been developed to support family carers of people with palliative care needs and for which evaluation information is reported in the empirical literature. Design: An integrative study design was undertaken using systematic methods. Data sources: CINAHL, Medline, PsycINFO, Embase, Cochrane, Sociological Abstracts, Proquest Social Science Database, and grey literature were searched using standardised search terms. Results: Two quantitative, two qualitative and two mixed method studies were identified ( n = 6). All community initiatives identified were professionally led, although three had consumer input. Most aimed to improve carer psychosocial well-being and all were reported to have been beneficial. Conclusions: This integrative review identified only six community-focused and evaluated initiatives supporting family carers in the international palliative care research literature. Further evaluation is needed. However, appropriate evaluation methods and reporting require further discussion and debate between all stakeholders. Service users and communities themselves must be central to this process.

scholarly journals Arts Engagement Facilitated by Artists With Individuals With Life-limiting Illness: An Integrative Review of the Literature

2021 ◽  
Author(s):  
Jennifer Baxley Lee ◽  
Sonja McIlfatrick ◽  
Lisa Fitzpatrick
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Visual Arts ◽  
Well Being ◽  
Integrative Review ◽  
Future Research ◽  
Review Of The Literature ◽  
Knowledge Gaps ◽  
Arts Engagement ◽  
Eol Care

Abstract BackgroundLiving with life-limiting illness significantly impacts quality of life. A growing body of evidence suggests that arts engagement, facilitated by artists, promotes a sense of well-being and connection with others. However, much of the evidence is drawn from the use of the arts in broad health contexts or from creative arts therapies’ literature. This review aimed to systematically identify and synthesize existing evidence in order to reveal key knowledge gaps and to inform future research and practice. MethodsAn integrative review of the literature was conducted using a pre-defined, comprehensive search strategy. Databases searched included: PubMed inclusive of MEDLINE, CINAHL, PsycINFO, Scopus, Web of Science, and Embase. Search terms included variations on visual arts, literary arts, and performing arts; service users or patients; and palliative care or end-of-life care. The quality and rigor of articles were scored using Hawker and colleagues’ tool designed to systematically appraise disparate studies. Synthesis was conducted using a constant comparison method as outlined in the integrative review framework.ResultsEight reviewed studies explored literary, performing, and visual arts engagement in residential hospice, day hospice, and hospitals in England, the United States, France, and Canada. Seven of eight studies used qualitative methods and one study engaged in mixed methods. Patient perspectives were most commonly represented followed by health care professionals and family members. Creative writing, music, and visual art were predominant modalities whilst dance and theatre were underrepresented. Themes identified across studies associated arts engagement with 1) a sense of well-being, 2) a newly discovered, or re-framed, sense of self, 3) connection with others, 4) challenges associated with practice. ConclusionThis review synthesized current evidence and key knowledge gaps regarding artists' facilitation of arts engagement in palliative and end-of-life (EOL) care. It serves as a starting point in the consideration of next steps in standardizing professional practice and preparation for artists working in palliative and EOL care settings specifically. Recommendations for future research include exploring the value of collaboration between artists and palliative care teams when engaging with individuals living with life-limiting illness.

SenCity – Evaluating Users’ Experiences of Intelligent Lighting for Well-Being in Smart Cities

2018 ◽  
pp. 60-67
Author(s):  
Henrika Pihlajaniemi ◽  
Anna Luusua ◽  
Eveliina Juntunen
Keyword(s):  
Case Studies ◽  
Smart City ◽  
Smart Cities ◽  
Well Being ◽  
Evaluation Methods ◽  
Data Analyses ◽  
Sense Of Security ◽  
System Data

This paper presents the evaluation of usersХ experiences in three intelligent lighting pilots in Finland. Two of the case studies are related to the use of intelligent lighting in different kinds of traffic areas, having emphasis on aspects of visibility, traffic and movement safety, and sense of security. The last case study presents a more complex view to the experience of intelligent lighting in smart city contexts. The evaluation methods, tailored to each pilot context, include questionnaires, an urban dashboard, in-situ interviews and observations, evaluation probes, and system data analyses. The applicability of the selected and tested methods is discussed reflecting the process and achieved results.

Social Capital and Sustainable Health Care: An Analysis of Community Based Palliative Care Model of Kerala

2015 ◽  
Vol 1 (1) ◽  
Author(s):  
Abdul Azeez. E.P
Keyword(s):  
Social Capital ◽  
Palliative Care ◽  
Social Services ◽  
Social Inclusion ◽  
Well Being ◽  
Vital Role ◽  
Voluntary Organizations ◽  
Community Based ◽  
The Social ◽  
Palliative Care Units

Social Capital is the most crucial asset which significantly influence the efficacy and resilience of any community. Social capital is a dependent variable that depends upon the competence and coherence of the individuals in the community and mode of social relationships, trust and networks they maintain. It is one of the most sustainable social resources that originate from human relations and results on the mutual support of people. Utilization of Social capital has a wide applicability in the process of social inclusion, especially in dealing with the vulnerable and disadvantaged sections in the community itself. Voluntary organizations are very keen to utilize the social capital for community/social services and community development in a sustainable manner. Community based de-institutionalized Palliative Care is one of the foremost among such organizations that made social capital in a strategic way for social inclusion and community well being. This paper analyses the extent to which different elements of social capital helps in initiating the sustainable community based palliative care movement by assessing the unique intervention strategies carried out by the palliative care. This paper explores conceptual questions of how social capital and voluntary community based services are correlated. A case study method was adopted for the study in which ten palliative care units were analyzed. The results show that a number of social capital elements are playing a vital role in the sustainability of community palliative care movement in Kerala.

scholarly journals Physical activity as a therapeutic strategy in mental health: an integrative review with implication for nursing care

2017 ◽  
Vol 21 (3) ◽  
Author(s):  
Bruno da Silva Lourenço ◽  
Maria Angélica de Almeida Peres ◽  
Isaura Setenta Porto ◽  
Rosane Mara Pontes de Oliveira ◽  
Virginia Faria Damásio Dutra
Keyword(s):  
Physical Activity ◽  
Mental Disorders ◽  
Nursing Care ◽  
Therapeutic Strategy ◽  
Scientific Evidence ◽  
Well Being ◽  
Integrative Review ◽  
Healthy Lifestyles ◽  
Practical Effect ◽  
Selection Of

Abstract This study is an integrative review with the aim to identify and describe the scientific evidence of the practical effect of physical activity in people with mental disorders. For the selection of articles, the databases CINAHL, MEDLINE, LILACS, SciELO, Cochrane and Scopus were used. The sample of this review consisted of eight articles. Their analysis resulted in the categories: obesity and metabolic syndrome, specialized nursing, sedentary and healthy lifestyles, support and social network, incentive to the practice of physical activity, and anxiety and physical activity. The benefits to physical health were partially elucidated by the sample. The implications for nursing care arise from the therapeutic efficacy of physical activity by people with mental disorders, adding individual and collective benefits that provide socialization and promotion of well-being.

The effectiveness of hope-fostering interventions in palliative care: A systematic review and meta-analysis

2021 ◽  
pp. 026921632199472
Author(s):  
Natalia Salamanca-Balen ◽  
Thomas V Merluzzi ◽  
Man Chen
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Palliative Care ◽  
Meta Analysis ◽  
Symptom Burden ◽  
Well Being ◽  
Medium Effect ◽  
Spiritual Well Being ◽  
Quasi Experimental

Background: The concept of hope is an important theme in chronic illness and palliative care and has been associated with increased psycho-spiritual well-being and quality of life. Psycho-spiritual interventions have been described in this population, but no systematic review of hope-enhancing interventions or hopelessness-reducing interventions has been conducted for persons with palliative care diseases. Aim: To describe and assess the effectiveness of interventions in palliative care that measure hope and/or hopelessness as an outcome. Design: This systematic review and meta-analysis was pre-registered (Prospero ID: CRD42019119956). Data sources: Electronic databases, journals, and references were searched. We used the Cochrane criteria to assess the risk of bias within studies. Results: Thirty-five studies (24 randomized controlled trials, 5 quasi-experimental, 6 pre-post studies) involving a total of 3296 palliative care patients were included. Compared with usual/standard cancer care alone, interventions significantly increased hope levels at a medium effect size ( g = 0.61, 95% confidence interval (CI) = 0.28–0.93) but did not significantly reduce hopelessness ( g = −0.08, 95% CI = −0.18 to 0.02). It was found that interventions significantly increase spirituality ( g = 0.70, 95% CI = 0.02–1.37) and decrease depression ( g = −0.29, 95% CI = −0.51 to −0.07), but had no significant effect over anxiety, quality of life, and symptom burden. Overall, quality of evidence across the included studies was rated as low. Conclusions: Evidence suggests that interventions can be effective in increasing hope in palliative care patients.

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