scholarly journals My mind is still mine: a self-portrait in a photography project for adolescents and young adults with cancer

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Andrea Ferrari ◽  
Alice Patriccioli ◽  
Matteo Silva ◽  
Matteo Davide Bonvicini ◽  
Maura Massimino
Keyword(s):  
Young Adults ◽  
Young People ◽  
Cancer Patients ◽  
Holistic Approach ◽  
Adolescents And Young Adults ◽  
Age Group ◽  
Person Centered Approach

AbstractThis commentary describes the unusual self-portrait contributed by a 26-year-old receiving treatment for relapsing medulloblastoma to a photography project undertaken by a group of patients as part of the Youth Project, a scheme dedicated to young cancer patients with the dual aim of optimizing medical aspects of their care and promoting a holistic approach to their needs. The article briefly describes how creative projects can play an important part in giving young people with cancer new ways to tell their stories and express their feelings. There is still a limited understanding of the specific needs of adolescents and young adults with cancer, and it is important to draw attention to them and to the need to devise a person-centered approach to cancer patients in this age group.

Transitional endocrinology

2021 ◽  
pp. 609-626
Author(s):  
Helena Gleeson
Keyword(s):  
Growth Hormone ◽  
Young Adults ◽  
Young People ◽  
Growth Hormone Deficiency ◽  
Developmentally Appropriate ◽  
Young Person ◽  
Adolescents And Young Adults ◽  
Hormone Deficiency ◽  
Age Group ◽  
Adult Care

This chapter covers endocrine concerns in the age group 10-24 years. It starts with an overview of transitional endocrinology and biopsychosocial development, aspects of developmentally appropriate healthcare, and how to perform a consultation for adolescents and young adults. It covers common clinical endocrine presentations of young people during adolescence, and how to approach a young person with an endocrine condition undergoing transition into adult care. The management of young people with hypopituitarism and growth hormone deficiency is outlined.

“Christmas Balls”: A Christmas Carol by the Adolescent Cancer Patients of the Milan Youth Project

2017 ◽  
Vol 103 (2) ◽  
pp. e9-e14 ◽  
Author(s):  
Andrea Ferrari ◽  
Stefano Signoroni ◽  
Matteo Silva ◽  
Paola Gaggiotti ◽  
Laura Veneroni ◽  
...  
Keyword(s):  
Young Adults ◽  
Young People ◽  
Cancer Patients ◽  
Pediatric Oncology ◽  
Hospital Ward ◽  
Adolescents And Young Adults ◽  
Adolescent Cancer ◽  
Cancer Hospital ◽  
Oncology Unit

The Youth Project is a program developed at the Pediatric Oncology Unit at the Istituto Nazionale Tumori in Milan, dedicated to adolescents and young adults with cancer. Among its various goals, the Youth Project organizes structured creative activities with the support of professionals, with the objective of offering young people a new way to express their hopes and fears. This article describes a project centered around music: patients created a Christmas carol with the help of musicians and authors. The adolescents explained with their own words the meaning of the lyrics, telling the story of a Christmas spent in a cancer hospital ward.

Risk of Depression in Adolescents and Young Adults with Rheumatic Diseases

2020 ◽  
Vol 62 (1) ◽  
pp. 38-42
Author(s):  
Anna Kostiukow ◽  
Wojciech Strzelecki ◽  
Mateusz W. Romanowski ◽  
Marta Rosołek ◽  
Ewa Mojs ◽  
...  
Keyword(s):  
Young Adults ◽  
Young People ◽  
Rheumatic Diseases ◽  
Disease Risk ◽  
Statistical Significance ◽  
Energy Levels ◽  
Young Patients ◽  
Depression Scale ◽  
Adolescents And Young Adults ◽  
Control Group

Introduction: The study is aimed at drawing the attention of the medical environment to the mental health aspects of young patients as a factor that significantly influences the efficiency of their rheumatic disease treatment. Aim: This paper is to check the risk of depression among a group of adolescents and young adults with rheumatic diseases. Material and Methods: The study was conducted among a group of 68 late adolescents and young adults (18-22 years old) with rheumatic diseases. The control group consisted of 102 young people (18-22 years old) without a diagnosed chronic disease. Risk of depression was measured using a screening tool – the Kutcher Adolescent Depression Scale (KADS). Results: The analysis showed that the probability of depression in the study group was 35.3%. In the control group, this rate was 19.6%. The results were statistical significance (p=0.028). Conclusions: The results of this study prove that the risk of depression among adolescents and young adults with rheumatic diseases is significantly higher than in healthy young people. The highest risk of depression is related to feeling tired, fatigue, low energy levels and lack of motivation as well as feeling worried, nervous, panicky, tense, keyed-up and anxious.

Perception of Inpatient Oncologic Rehabilitation in Children, Adolescents and Young Adults Diagnosed with Cancer in Switzerland

2020 ◽  
Vol 232 (06) ◽  
pp. 294-299
Author(s):  
Maria Otth ◽  
Sibylle Denzler ◽  
Sibylle Schmid ◽  
Birgitta Setz ◽  
Katrin Scheinemann
Keyword(s):  
Young Adults ◽  
Cancer Patients ◽  
Peer Group ◽  
Inpatient Rehabilitation ◽  
Cross Sectional Study ◽  
Adolescents And Young Adults ◽  
Cross Sectional ◽  
Rehabilitation Programs ◽  
Specialized Institutions ◽  
Strobe Statement

Abstract Background Inpatient rehabilitation improves physical and psychosocial performance in childhood cancer patients and their families. Two kinds of inpatient rehabilitation are available in specialized institutions in Germany: family-oriented rehabilitation or peer group-oriented rehabilitation for adolescents and young adults (AYA). Our study aimed to find out what Swiss childhood and AYA cancer patients and their families thought about the rehabilitation programs in which they had participated. Patients and methods We conducted a questionnaire-based, cross-sectional study of Swiss childhood and AYA cancer patients and their families whose inpatient rehabilitation stays were scheduled to take place in Germany between May 2012 and March 2019. We analyzed the data descriptively and present our findings in accordance with the STROBE statement. Results Of the 57 eligible families contacted, 38 (67%) responded. Most rated the rehabilitation stay as very good (68%) or good (26%). Nearly all participants emphasized that these programs should be available to all affected patients and their families. Most (80%) thought the program gave them enough valuable information to enable them to cope with daily life after the stay ended. Only one fifth (19%) of the rehabilitation stays were fully funded by the health or disability insurance. Conclusion Participants expressed an overwhelmingly positive opinion about the rehabilitation programs they attended. We are convinced that childhood and AYA cancer patients and their families in Switzerland benefit from these programs and encourage insurances to cover the costs.

Dietary Events for Social Activity in Children, Adolescents and Young Adults Cancer Patients

2021 ◽  
Vol 13 (1) ◽  
pp. 9-14
Author(s):  
Takashi Aoyama ◽  
Saori Yamanashi ◽  
Ayako Yamada ◽  
Moeri Ikeda ◽  
Mariko Mori ◽  
...  
Keyword(s):  
Young Adults ◽  
Cancer Patients ◽  
Social Activity ◽  
Adolescents And Young Adults

Interventions available to adolescents and young adults bereaved by familial cancer: a systematic literature review

2019 ◽  
pp. bmjspcare-2019-001959 ◽  
Author(s):  
Veronica Ing ◽  
Pandora Patterson ◽  
Marianna Szabo ◽  
Kimberley R Allison
Keyword(s):  
Young Adults ◽  
Young People ◽  
Familial Cancer ◽  
Well Being ◽  
Adolescents And Young Adults ◽  
Positive Effects ◽  
Online Databases ◽  
Self Reports ◽  
And Coping ◽  
Further Development

ObjectivesTo assess the availability and efficacy of interventions open to adolescents and young adults (AYAs; 15-25 years) bereaved by a parent’s or sibling’s cancer.MethodsA systematic review of peer-reviewed literature on interventions available to AYAs bereaved by a parent’s or sibling’s cancer was conducted through searches of six online databases (PsycINFO, Medline, Scopus, Embase, SWAB and Web of Science Core Collection).ResultsDatabase and reference searches yielded 2985 articles, 40 of which were included in the review. Twenty-two interventions were identified that were available for bereaved young people. However, only three were specific to young people bereaved by familial cancer, and none were specific to AYAs. Interventions primarily provided opportunities for participants to have fun, share their experiences and/or memorialise the deceased; psychoeducation about bereavement, grief and coping was less common. Only six interventions had been satisfactorily evaluated, and no intervention targeted or analysed data for AYAs separately. Overall, some evidence suggested that interventions (especially those that were theoretically grounded) had positive effects for bereaved young people. However, benefits were inconsistently evidenced in participants’ self-reports and often only applied to subgroups of participants (eg, older youths and those with better psychological well-being at baseline).ConclusionsConsidering the very limited number of interventions specific to bereavement by familial cancer and the lack of interventions targeting AYAs specifically, it is unclear whether currently available interventions would benefit this population. The population of AYAs bereaved by familial cancer is clearly under-serviced; further development and evaluation of interventions is needed.

Skin cancer on Instagram: implications for adolescents and young adults

2020 ◽  
Vol 0 (0) ◽  
Author(s):  
Corey H. Basch ◽  
Grace C. Hillyer
Keyword(s):  
Young Adults ◽  
Skin Cancer ◽  
Preventive Measures ◽  
Sun Exposure ◽  
Adolescents And Young Adults ◽  
Skin Cancer Prevention ◽  
Age Group ◽  
Protective Gear ◽  
Considerable Portion

AbstractGiven the popularity and reach of Instagram among American adolescents and young adults (AYA), the well-known influence of social media on the behaviors of youth, and the rising rates of melanoma in this age group, this study sought to examine and describe the content of a sample of Instagram posts related to skin cancer. At three different times, a search of Instagram was conducted using #skincancer as the hashtag. Descriptive analyses of Instagram characteristics and content was performed. Overall, content focused on prevention (33.3%), skin cancer treatment (29.3%) and preventive measures such as using sunscreen and protective gear (29.3%). Nearly one-quarter discussed the ABCDEs (Asymmetrical; Borders are irregular; Color is not even; Diameter is large; Evolving) of screening and detection. Instagram postings that covered skin cancer prevention (n = 50, 33.3%) more often discussed the role of sun exposure in the development of skin cancer (28.0% vs. 10.0%, p = 0.005) and use of sunscreen and protective gear (62.0% vs. 13.0%, p < 0.001). The findings of this study indicate that a considerable portion of the Instagram posts included in this study focused on prevention. Thus, indicating that Instagram could be used to promote health, particularly among AYA.

Review of services to inform clinical frameworks for adolescents and young adults with severe, persistent and complex mental illness

2019 ◽  
Vol 24 (3) ◽  
pp. 503-528
Author(s):  
Charlotte Woody ◽  
Amanda Baxter ◽  
Eryn Wright ◽  
Kate Gossip ◽  
Elizabeth Leitch ◽  
...  
Keyword(s):  
Mental Illness ◽  
Young Adults ◽  
Young People ◽  
Family Involvement ◽  
Developmental Stages ◽  
Continuum Of Care ◽  
Adolescents And Young Adults ◽  
Multidisciplinary Teams ◽  
Service Models ◽  
Effective Community

Objective: Severe, persistent and complex mental illness (SPCMI) affects a small proportion of young people but is associated with severe disability and a large burden on families and health services. This article identifies and describes service models for adolescents and young adults with SPCMI. Methods: A systematic search was conducted for services for young people aged 12–25 years with SPCMI. The review sought service models providing extended care and/or multidisciplinary services to meet the complex and long-term needs of this population. Results: A total of 43 sources were identified. Evidence of effectiveness was found for both community- and bed-based services. Specific components suggested as important in service delivery included care provided by multidisciplinary teams, consumer and family involvement in care planning, intensive case management and service integration through the continuum of care. Conclusion: Clinical frameworks for this population must incorporate effective community care integrated with inpatient treatment of short duration. Frameworks require consumer and family-centred care with flexibility to support progression through developmental stages and tasks while addressing issues related to risk management, fluctuation in illness severity and stages of recovery. A continuum of care is necessary to meet the needs that arise from SPCMI in adolescents and young adults.

scholarly journals Sexuality and cancer in adolescents and young adults - a comparison between reproductive cancer patients and patients with non-reproductive cancer

BMC Cancer ◽  
2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Julian Mütsch ◽  
Michael Friedrich ◽  
Katja Leuteritz ◽  
Annekathrin Sender ◽  
Kristina Geue ◽  
...  
Keyword(s):  
Young Adults ◽  
Cancer Patients ◽  
Adolescents And Young Adults ◽  
Sexuality And Cancer

Music exposure and hearing health education: A review of knowledge, attitude, and behaviour in adolescents and young adults

2011 ◽  
Vol 71 (6) ◽  
pp. 709-724 ◽  
Author(s):  
Fei Zhao ◽  
David French ◽  
Vinaya KC Manchaiah ◽  
Maojin Liang ◽  
Sharon M Price
Keyword(s):  
Young Adults ◽  
Health Education ◽  
Attitude Change ◽  
Adolescents And Young Adults ◽  
Age Group ◽  
Music Culture ◽  
Modern Music ◽  
Literature Searches ◽  
Hearing Health ◽  
Insight Into

Introduction: Adolescents and young adults have been shown to be the age group most at risk of music-induced hearing loss (MIHL), which is already evident and increasing among this group. Objective: The purpose of this review is to provide further insight into the effectiveness of education programmes on attitude and behaviour towards loud music exposure in adolescents and young adults, and to suggest positive and influential ways of delivering hearing health education. Methods: Literature searches were conducted using various databases, including PubMed, Google Scholar and Cumulative Index to Nursing and Allied Health Literature (CINAHL). Authors went through the abstracts of these articles to identify those which were potentially relevant; subsequently the full articles were retrieved. Results: This review highlights the dangers of significant exposure to music on hearing mechanics in adolescents and young adults, and shows that this danger continues to increase with modern music culture. Because the consequences are not immediate, it is difficult for the young to perceive the seriousness of a problem that may not present itself for many years. Conventional education may go a little way in helping to raise awareness but a raised awareness of consequences does not, in itself, change behaviour. There is a significant gap in literature regarding effective methods of education that will inspire attitude change, and have a bearing on actions. Conclusion: This review has concluded that there is a lack of understanding of how to best influence and educate adolescents and young adults in a way that will motivate and encourage a change in listening habits. It is of vital importance that these groups are made aware of the immediate and future dangers, and how changes in listening behaviour do not necessarily lower their enjoyment.

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