scholarly journals Building a culture of engagement at a research centre for childhood disability

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Kinga Pozniak ◽  
Francine Buchanan ◽  
Andrea Cross ◽  
Jennifer Crowson ◽  
Barb Galuppi ◽  
...  

Abstract Background Engaging patients and family members as partners in research studies has become a widespread practice in healthcare. However, relatively little has been documented about what happens after the research study ends. For example, is patient and family engagement embedded in the wider infrastructure of organizations, and if so how? What are the long-term effects of engaging parents on research teams on the culture of how research is conducted? This study seeks to address these two gaps by examining how a culture of family engagement has been built over time at CanChild Centre for Childhood Disability Research at McMaster University in Ontario, Canada. Methods This study is based on ethnographic research methodology and combines elements of organizational ethnography, interviews, and collaborative auto-ethnography with parent partners, researchers, staff, and trainees. Results Since the inception of CanChild Centre for Childhood Disability Research at McMaster University in 1989, parents have been involved in research studies. Over time, this involvement evolved from being consulted on research studies to undertaking decision-making roles as partners and most recently as co-principal investigators. A growing infrastructure fosters a community of engagement that goes beyond the individual research study, and often beyond CanChild. This infrastructure consists of training, knowledge mobilization and social networking. In addition, the “softer” building blocks of CanChild’s culture of engagement are an openness to learning from others, a commitment to relationship building, and a drive to grow and improve. These values are espoused by the leadership and are instilled in the next generation of researchers to inform both research and clinical work. While some challenges should be acknowledged when researchers and family partners work together on research studies, we identify a number of strategies that we have used in our studies to foster authentic and meaningful family–researcher partnerships. Conclusion Engaging patients and families as partners in research constitutes a culture shift in health research, whereby studies about patients and families are carried out with them. Developing a community of engagement that transcends an individual research study is a step towards creating a culture of research that is truly shaped by the people about whom the research is being done.

2021 ◽  
Vol 12 (1) ◽  
Author(s):  
Samantha Micsinszki ◽  
Rachel Teplicky ◽  
Dayle McCauley ◽  
Jan Willem Gorter ◽  
Michelle Phoenix

Background: Knowledge translation (KT) can be challenging to do effectively. Capturing the progress of KT activities and their impact is critical, but few resources exist for research organizations to systematically evaluate these. A status update was completed to understand the progress of KT at a childhood disability research centre five years after a KT strategic plan was developed.Analysis: A survey was completed by researchers, trainees, and staff to report on their KT activities, rate the importance of six priority areas, and rate their satisfaction.Conclusion and implications: This article highlights examples of KT activities and provides recommendations for KT advancement in childhood disability research organizations. Contexte : L’application des connaissances (AC) peut être difficile de faire effectivement. L’évaluation du progrès et de l’impact des activités d’AC est essentielle, mais il existe peu de ressources qui peuvent soutenir les organisations de recherche souhaitant faire une évaluation systématique. Un rapport de situation a été complété pour mieux comprendre comment l’AC a été fait dans un centre de recherche pour les enfants en situation de handicap, cinq ans après qu’une stratégie d’AC ait été développée.Analyse : Un sondage a été rempli par les chercheurs, les étudiants, et le personnel au centre de recherche pour indiquer les activités d’AC réalisées et pour évaluer l’importance de six domaines prioritaires et leur satisfaction.Conclusion et implications : Cet article souligne des exemples d’activités d’AC et fourni des recommandations pour l’avancement de l’AC dans les organisations de recherche en réadaptation pédiatrique.


2016 ◽  
Vol 37 (3) ◽  
pp. 181-193 ◽  
Author(s):  
Aire Mill ◽  
Anu Realo ◽  
Jüri Allik

Abstract. Intraindividual variability, along with the more frequently studied between-person variability, has been argued to be one of the basic building blocks of emotional experience. The aim of the current study is to examine whether intraindividual variability in affect predicts tiredness in daily life. Intraindividual variability in affect was studied with the experience sampling method in a group of 110 participants (aged between 19 and 84 years) during 14 consecutive days on seven randomly determined occasions per day. The results suggest that affect variability is a stable construct over time and situations. Our findings also demonstrate that intraindividual variability in affect has a unique role in predicting increased levels of tiredness at the momentary level as well at the level of individuals.


2021 ◽  
Vol 54 (2) ◽  
pp. 1-36
Author(s):  
Suha S. Al-Thanyyan ◽  
Aqil M. Azmi

Text simplification (TS) reduces the complexity of the text to improve its readability and understandability, while possibly retaining its original information content. Over time, TS has become an essential tool in helping those with low literacy levels, non-native learners, and those struggling with various types of reading comprehension problems. In addition, it is used in a preprocessing stage to enhance other NLP tasks. This survey presents an extensive study of current research studies in the field of TS, as well as covering resources, corpora, and evaluation methods that have been used in those studies.


2013 ◽  
Vol 44 (7) ◽  
pp. 1349-1360 ◽  
Author(s):  
M. Wichers

The examination of moment-to-moment, ‘micro-level’ patterns of experience and behaviour using experience sampling methodology has contributed to our understanding of the ‘macro-level’ development of full-blown symptoms and disorders. This paper argues that the micro-level perspective can be used to identify the smallest building blocks underlying the onset and course of mental ill-health. Psychopathology may be the result of the continuous dynamic interplay between micro-level moment-to-moment experiences and behavioural patterns over time. Reinforcing loops between momentary states may alter the course of mental health towards either a more or less healthy state. An example with observed data, from a population of individuals with depressive symptoms, supports the validity of a dynamic network model of psychopathology and shows that together and over time, this continuous interplay between momentary states may result in the cluster of symptoms we call major depressive disorder. This approach may help conceptualize the nature of mental disorders, and generate individualized insights useful for diagnosis and treatment in psychiatry.


2021 ◽  
Vol 34 (02) ◽  
pp. 130-140
Author(s):  
Purnima Shukla ◽  
Purak Misra ◽  
Risabh Kumar Jain ◽  
Rajiv Kumar Misra

AbstractPhyllodes tumours (PTs) of the breast are rare biphasic fibroepithelial neoplasm. They have potentiality to recur and metastasise. Majority of them follow a benign clinical course. We have treated one patient suffering from PT at the out-patient department of Sri Ram Medical & Homoeopathic Research Centre, Gorakhpur, India. After detailed case taking and repertorisation, first Conium maculatum and later on Phytolacca decandra and Calcarea fluorica were prescribed on the basis of individualisation to treat the case. Outcomes were assessed clinically every month for subjective improvement and objectively by ultrasonography reports at every 6-month interval. Gradual improvement was noted over time. The case has been assessed with MONARCH Inventory, which shows ‘definite’ association between the medicine and the outcome.


1991 ◽  
Vol 71 (4) ◽  
pp. 545-549
Author(s):  
G. H. Neilsen ◽  
E. J. Hogue ◽  
P. B. Hoyt

Nine years after liming a sandy loam orchard soil to pH 6.0 with calcium hydroxide or dolomitic lime, pH and extractable Ca and Mg were still higher where limed than where unlimed. However, pH had decreased below 5.0 in the limed and N-fertilized plots. Delicious (Malus domestica Borkh.) apple tree nutrition benefited from the two soil amendments. Leaf Mg was increased by dolomite. Leaf Ca was increased by calcium hydroxide. Leaf Mn, although highest in unlimed soils, increased over time for both limed and unlimed soil. Key words: Apple, lime application, reacidification


10.29007/5xsb ◽  
2018 ◽  
Author(s):  
Alicia Martínez-Flor ◽  
Esther Usó-Juan

Studies analysing the positive role of pragmatic instruction in formal settings have increased over the last decades. Within this area of interventional pragmatics, some studies have particularly examined whether the effectiveness of the instruction implemented is sustained over time. In order to shed more light on the long-term effects of instruction, this research investigates English as a Foreign Language learners’ use of complaining formulas not only after immediately receiving instruction, but also two months later. Results show that learners keep using a variety of appropriate complaining formulas two months after having participated in the instructional period. These findings are discussed and directions for future research suggested.


2020 ◽  
Vol 1 (1) ◽  
pp. 14-19
Author(s):  
Durga Prasanna Misra ◽  
Vikas Agarwal

A hypothesis is a statement of the expected outcome of a research study, generally based on analysis of prior published knowledge, or with reference to the previous work of the investigators. The hypothesis forms the foundation of a research proposal. A study based, and planned, on a sound hypothesis may have a greater likelihood of meaningfully contributing to science. After the generation of a hypothesis, it is equally important to appropriately design and adequately power a study (by ensuring a sufficient sample size) in order to test the hypothesis. Adhering to principles discussed forthwith shall help young researchers to generate and test their own hypotheses, and these are best learnt with experience.


2012 ◽  
Vol 141 (9) ◽  
pp. 1928-1936 ◽  
Author(s):  
A. F. A. PIRES ◽  
J. A. FUNK ◽  
C. A. BOLIN

SUMMARYA 3-year longitudinal study was conducted on a multi-site farrow-to-finish production system. For each of 18 cohorts at three finishing sites, 50 pigs were randomly selected. Faecal samples were collected every 2 weeks for 16 weeks. Salmonella was cultured from 453 (6·6%) of 6836 faecal samples. The pig-level incidence of Salmonella was 20·8% (187/899 pigs). Salmonella prevalence varied between cohorts and within pigs. The adjusted Salmonella prevalence decreased over the finishing period from 6·4% to 0·8%. Intermittent detection of Salmonella was found in more than 50% of pigs that were positive at more than one collection. The finding that the majority of pigs shed intermittently has implications for surveillance and research study design when determining Salmonella status. The variability in shedding over time, as well as between and within cohorts and pigs suggests that there may be time-variant risk factors for Salmonella shedding in swine.


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