scholarly journals Audit into post diagnostic support in newly diagnosed dementia patients

BJPsych Open ◽  
2021 ◽  
Vol 7 (S1) ◽  
pp. S335-S335
Author(s):  
Madhumanti Mitra ◽  
Raghupathy Paranthaman
Keyword(s):  
Support Group ◽  
Random Number Generator ◽  
Patient Choice ◽  
Newly Diagnosed ◽  
Department Of Health ◽  
Dementia Patients ◽  
Health And Social Care ◽  
Diagnosis Of Dementia ◽  
Potential Factors ◽  
Diagnostic Support

AimsThis audit aims to identify whether newly diagnosed dementia patients are offered post diagnostic support and potential factors influencing patient choice.BackgroundA diagnosis of dementia can be life changing and hence post-diagnostic support for dementia is key. Multiple guidelines suggest that post diagnostic support need to be offered to all patients diagnosed with dementia. The Department of Health and Social Care and other national/ local guidelines suggest that post diagnostic support is offered to all patients diagnosed with dementia.MethodData were collected for 40 patients diagnosed with dementia. Using random number generator, patient group was selected from pool of patients diagnosed with dementia between July’ 2017 - December’ 2017. Data included whether they had been offered support during the initial appointment and what post-diagnostic support was offered. Demographic details obtained to identify patterns of support accessed by patients.ResultAll patients were offered post-diagnostic support. Diagnosis was discussed in appointment in about 93% of patients. Medication was discussed in 82% patients. Driving was discussed in only 64% patients and LPA was discussed in only 63% patients. When given choice between Post diagnostic support group (PDSG) and Dementia adviser (DA), slightly more women tend to choose PDSG group. The only 2 ethnic minority patients chose DA. 21% more patients opted for PDSG group when they had a carer.ConclusionThe positive is that some post-diagnostic support is offered to all patients. Although discussion of diagnosis with patients was done well, discussion of medication, driving and LPA can be improved upon. Ethnicity and family structure/ carer may have a bearing on patient choice of post-diagnostic support.

Global Perspectives on Brief Cognitive Assessments for Dementia Diagnosis

2021 ◽  
pp. 1-13
Author(s):  
Elena Tsoy ◽  
Alissa Bernstein Sideman ◽  
Stefanie D. Piña Escudero ◽  
Maritza Pintado-Caipa ◽  
Suchanan Kanjanapong ◽  
...  
Keyword(s):  
Older Adult ◽  
Adult Population ◽  
Dementia Diagnosis ◽  
Cognitive Assessments ◽  
Middle Income ◽  
Global Perspectives ◽  
Dementia Patients ◽  
Diagnosis Of Dementia ◽  
Theme Identification ◽  
Diagnostic Decision Making

Background: Timely diagnosis of dementia is a global healthcare priority, particularly in low to middle income countries where rapid increases in older adult populations are expected. Objective: To investigate global perspectives on the role of brief cognitive assessments (BCAs) in dementia diagnosis, strengths and limitations of existing measures, and future directions and needs. Methods: This is a qualitative study of 18 dementia experts from different areas of the world. Participants were selected using purposeful sampling based on the following criteria: 1) practicing in countries with projected growth of older adult population of over 100%by 2050; 2) expertise in dementia diagnosis and treatment; 3) involvement in clinical practice and training; and 4) recognition as a national dementia expert based on leadership positions within healthcare system, research, and/or policy work. Participants were individually interviewed in their language of choice over secure videoconference sessions. Interviews were analyzed by a multidisciplinary team using theme identification approach. Results: Four domains with subthemes emerged illustrating participants’ perspectives: 1) strengths of BCAs; 2) limitations of BCAs; 3) needs related to the use of BCAs; and 4) characteristics of an ideal BCA. While most experts agreed that BCAs were important and useful for dementia diagnosis, the themes emphasized the need for development and validation of novel measures that are sensitive, psychometrically sound, and culturally appropriate. Conclusion: BCAs are important for guiding diagnosis and care for dementia patients. Findings provide a roadmap for novel BCA development to assist in diagnostic decision making for clinicians serving a rapidly growing and diverse dementia population.

scholarly journals Introducing the Care Certificate Evaluation: Innovative practice

Dementia ◽  
2017 ◽  
Vol 19 (2) ◽  
pp. 512-517
Author(s):  
Elaine Argyle ◽  
Louise Thomson ◽  
Antony Arthur ◽  
Jill Maben ◽  
Justine Schneider ◽  
...  
Keyword(s):  
Staff Development ◽  
Social Care ◽  
Policy Research ◽  
Research Programme ◽  
Direct Care ◽  
Care Staff ◽  
Care Provision ◽  
Front Line ◽  
Department Of Health ◽  
Health And Social Care

Although investment in staff development is a prerequisite for high-quality and innovative care, the training needs of front line care staff involved in direct care have often been neglected, particularly within dementia care provision. The Care Certificate, which was fully launched in England in April 2015, has aimed to redress this neglect by providing a consistent and transferable approach to the training of the front line health and social care workforce. This article describes the early stages of an 18-month evaluation of the Care Certificate and its implementation funded by the Department of Health Policy Research Programme.

scholarly journals Incidence and outcome of delirium during Helmet CPAP treatment in COVID-19 patients

2021 ◽  
Author(s):  
Federica Samartin ◽  
Emanuele Salvi ◽  
Anna Maria Brambilla ◽  
Stella Ingrassia ◽  
Alessandro Torre ◽  
...  
Keyword(s):  
Risk Factors ◽  
Mortality Rate ◽  
Adverse Outcomes ◽  
Psychiatric Condition ◽  
Course Of Disease ◽  
Cpap Treatment ◽  
Dementia Patients ◽  
Previous Diagnosis ◽  
Diagnosis Of Dementia ◽  
Ventilated Patients

It is estimated that almost one-third of patients with COVID-19 develop delirium in the course of disease, actually it may be the only presenting symptom, especially in dementia patients. In COVID-19 patients delirium is associated with higher mortality rate, increased length of stay and a greater rate of admission in Intensive Care Unit and ventilator utilisation. We hypothesized a greater rate of delirium in Helmet CPAP COVID-19 ventilated patients because many known risk factors for delirium co-exist in these kind of patients (i.e. isolation, noise, dehydration). The first aim of our study is to investigate the incidence of delirium occurring during Helmet CPAP therapy in COVID-19 patients. Moreover, we wanted to verify if there are predictable risk factors for delirium and to determine if delirium increases the risk of adverse outcomes (need of endotracheal intubation and death). The cohort of CPAP ventilated COVID-19 patients were composed by 194 patients. Of them, 57 patients (29.3%) developed delirium during CPAP, more than two third in the first 48h. Age over 70 years, previous diagnosis of dementia or psychiatric condition, P/F < 150 after starting CPAP and Gr/Lys >8 resulted risk factors for delirium. Delirium group had a significantly higher mortality rate (47% vs 23%) and lower intubation rate (12% vs 26%) compared to non-delirious ones. Despite many potential predisposing factors are common in CPAP ventilated patients, delirium incidence in our population seems not to differ from what reported by other studies. Moreover, the occurrence of delirium seems not to be related to prolonged CPAP treatment, indeed no correlation between time spent in CPAP and delirium onset was found.

scholarly journals Automated Classification of Normal Control and Early-Stage Dementia Based on Activities of Daily Living (ADL) Data Acquired from Smart Home Environment

2021 ◽  
Vol 18 (24) ◽  
pp. 13235
Author(s):  
Lee-Nam Kwon ◽  
Dong-Hun Yang ◽  
Myung-Gwon Hwang ◽  
Soo-Jin Lim ◽  
Young-Kuk Kim ◽  
...  
Keyword(s):  
Activities Of Daily Living ◽  
Normal Control ◽  
Daily Living ◽  
Smart Home ◽  
Early Stage ◽  
Machine Learning Techniques ◽  
Evaluation Tool ◽  
Dementia Patients ◽  
Diagnosis Of Dementia

With the global trend toward an aging population, the increasing number of dementia patients and elderly living alone has emerged as a serious social issue in South Korea. The assessment of activities of daily living (ADL) is essential for diagnosing dementia. However, since the assessment is based on the ADL questionnaire, it relies on subjective judgment and lacks objectivity. Seven healthy seniors and six with early-stage dementia participated in the study to obtain ADL data. The derived ADL features were generated by smart home sensors. Statistical methods and machine learning techniques were employed to develop a model for auto-classifying the normal controls and early-stage dementia patients. The proposed approach verified the developed model as an objective ADL evaluation tool for the diagnosis of dementia. A random forest algorithm was used to compare a personalized model and a non-personalized model. The comparison result verified that the accuracy (91.20%) of the personalized model was higher than that (84.54%) of the non-personalized model. This indicates that the cognitive ability-based personalization showed encouraging performance in the classification of normal control and early-stage dementia and it is expected that the findings of this study will serve as important basic data for the objective diagnosis of dementia.

scholarly journals How effective are governmental and university campaigns for increasing meningitis vaccine uptake?

2021 ◽  
Author(s):  
Ayushi Ramjee ◽  
Chloe Ogilvie ◽  
Africa Couto ◽  
Teresa Matini ◽  
Claudia Anaele ◽  
...  
Keyword(s):  
Student Perceptions ◽  
Vaccine Uptake ◽  
Disease Spread ◽  
Awareness Campaigns ◽  
Department Of Health ◽  
Behavioural Patterns ◽  
Health And Social Care ◽  
Catchment Areas ◽  
Student Cohorts ◽  
E Mail

ObjectivesUniversity student cohorts have a potential for significant impacts on public health policies. Health impacts arise from wide geographic catchment areas and behavioural patterns that enhance infectious disease spread and occasional cases of meningococcal meningitis and septicaemia, measles and mumps. Universities and the Department of Health and Social Care have tackled these serious problems through advertising campaigns and by offering free MenACWY and MMR vaccines to university students. Our study aimed to assess the engagement of universities with these vaccine campaigns and student awareness of this information. Study DesignInformation was accrued by a combination of e-mail and telephone interactions with welfare officers at universities. Student perceptions of meningitis vaccine campaigns were studied through use of questionnaires with University of Leicester students. ResultsInformation provided by 17 universities indicated that all universities run meningitis awareness campaigns whereas on campus meningitis campaigns were infrequent and of variable penetration into student cohorts. Assessment of 272 students from a 2019-2020 cohort found that 17.5% and 58% of students did not know or had not had the MMR and MenACWY vaccines. Only 37% of students were aware that these vaccines were free and available from a university-linked GP practice with lack of this knowledge being significantly associated with uncertainty or perceived absence of immunisation. This latter group were significantly associated with a preference for on campus immunisation. DiscussionThis information is important for understanding how to target a critical cohort with effective campaigns for uptake of meningitis, MMR and COVID-19 vaccines.

scholarly journals Does the advice requested by carers of people who live with dementia reflect the level of commissioned post-diagnostic support? A retrospective evaluation of calls to the Me2U dementia day centre 24-hour advice line

BJPsych Open ◽  
2021 ◽  
Vol 7 (S1) ◽  
pp. S337-S337
Author(s):  
Rajan Nathan ◽  
Stephen Callaghan ◽  
Kelly Walker ◽  
Angela Mason ◽  
Rosemarie Whittington
Keyword(s):  
Social Care ◽  
Social Issues ◽  
Urgent Care ◽  
Retrospective Evaluation ◽  
Common Time ◽  
Health And Social Care ◽  
The Mean ◽  
Unplanned Admissions ◽  
The Impact ◽  
Diagnostic Support

AimsThe aim was to examine the reasons for advice requests by carers of people who live with dementia (PLWD) that attend the Me2u dementia day centre in order to identify key explanatory themes. We hypothesised that requests were related mainly to coordinating care and clinical issues due to limited post-diagnostic support (PDS) in our area.BackgroundThe Me2u dementia day centre (Merseyside) cares for PLWD and also supports carers. As part of the service, a 24-hour advice line is included for PLWD and their carers who attend the centre. Locally, there is limited PDS and most carers navigate the health and social care system alone mirroring the findings by the National Collaborating Centre for Mental Health (NCCMH).MethodWe undertook a retrospective evaluation of 244 advice calls, from 64 carers, between 01/06/2019 and 31/12/2019. We analysed time of call, type of advice, type of dementia, age and whether the advice was for the PLWD or for the carer.ResultOf the 244 calls, the most common time to call was between 09.00 - 14.00 (n = 168; (68.8%) peak 09.00 - 10.00 (n = 38). Average age of the person about whom the advice was sought was 79.08 years. 91.4% of the advice calls related to PLWD (most common dementia Alzheimer's) and 8.6% to the carer only. The mean number of calls per person was 3.8 (range 1–24).Advice data were grouped into 9 broad themes namely, related to symptoms/behaviour (32.79%, n = 80), request for Me2u to coordinate care (20.08%, n = 49), general advice (14.75%, n = 36), personal care (9.42%, n = 23), carer only advice (8.60%, n = 21), social issues (6.14%, n = 15), social care (4.50%, n = 11), safeguarding (2.46%, n = 6), non-health and social care issue (1.23%, n = 3).ConclusionReasons for limited/poor PDS given by the NCCMH are; absence of named coordinators of care, over-reliance on families and carers to manage and facilitate appointments, poor recognition and management of comorbidities. This data show that 52.87% of calls were for clinical advice and coordination of care reflecting NCCMH findings. The interventions post-call reduced the impact on providers of urgent care.These findings provide support for the provision of a [24-hour] advice line as a routine part of post-diagnostic support services, especially in areas that have limited or poor PDS. Commissioners of PDS services in areas that have limited or poor PDS should make this a priority to prevent unplanned admissions to hospital and carer breakdown.

scholarly journals 211 - Changes to post-diagnostic dementia support in England and Wales during the COVID-19 pandemic

2021 ◽  
Vol 33 (S1) ◽  
pp. 13-13
Author(s):  
Alison Wheatley ◽  
Marie Poole ◽  
Louise Robinson
Keyword(s):  
Social Care ◽  
Third Sector ◽  
Full Time ◽  
England And Wales ◽  
Team Meetings ◽  
Use Of Technology ◽  
People With Dementia ◽  
Health And Social Care ◽  
The Impact ◽  
Diagnostic Support

Background:The COVID-19 pandemic precipitated widespread change across health and social care in England and Wales. A series of lockdowns and UK Government guidance designed to reduce the spread of COVID-19 which emphasised social distancing and increased use of personal protective equipment led to changes such as increased use of remote consultation technologies and the closure of services deemed non-essential. This included many services for people with dementia and their families, such as day centres and dementia cafes.Objective:To explore the changes made to services during the pandemic and the impact of these changes on the delivery of good post-diagnostic dementia support.Method:Professionals who had previously been recruited to the ongoing PriDem qualitative study were approached for follow up interview. Eighteen interviews with a total of 21 professionals working in health, social care and the third sector were conducted using telephone or video conferencing.Interviews were audio recorded, transcribed and checked prior to thematic analysis.Results:Key themes emerging from preliminary analysis of the data include: uncertainty about the future and the need to adapt quickly to shifting guidance; changing job roles and ways of working; the emotional and physical impact of the pandemic on staff working with people with dementia and their families; and the impact of changes made (e.g. increased PPE, remote working) on the ability to deliver post-diagnostic support. However, there were also some unintended positive outcomes of the changes. These included the ability to include family members living at a distance in remote consultations, allowing for more robust history-taking, as well as the uptake of technology to facilitate cross-sector and multidisciplinary working between professionals.Conclusion:Delivering post-diagnostic dementia support during COVID-19 was challenging and forced dementia services to make adaptations. Participants expected that some of these changes would be incorporated into post-pandemic work, for example increased use of technology for multidisciplinary team meetings or blended approaches to patient-facing services involving both virtual and face to face work as appropriate. However, most participants agreed that it was not appropriate nor desirable to provide fully remote post-diagnostic support on a full time basis.

Caregivers of Dementia Patients Support Group Measure

2003 ◽  
Author(s):  
Janine Diehl ◽  
T. Mayer ◽  
Hans Förstl ◽  
Alexander Friedrich Kurz
Keyword(s):  
Support Group ◽  
Dementia Patients ◽  
Group Measure

E-Health Decision Support Systems for the Diagnosis of Dementia Diseases

2013 ◽  
pp. 84-97
Author(s):  
Isabella Castiglioni ◽  
Maria Carla Gilardi ◽  
Francesca Gallivanone
Keyword(s):  
Decision Support ◽  
Decision Support Systems ◽  
Support Systems ◽  
Diagnostic Tools ◽  
Diagnostic Process ◽  
Dementia Patients ◽  
Health Decision ◽  
Diagnosis Of Dementia ◽  
Dementia Diseases

The increase of incidence and prevalence of dementia diseases makes urgent the clinical community to be supported in the difficult diagnostic process of dementia patients. E-health decision support systems, based on innovative algorithms able to extract information from in vivo neuroimaging studies, can make a quite different way to perform neurological diagnosis and enlarge domains and actors involved in the diagnostic process. A number of image-processing methods that extract potential biomarkers from the in vivo neuroimaging studies have been proposed (e.g. volume segmentation, voxel-based statistical mapping). A number of new shape descriptors have also been developed (e.g. texture-based). Other approaches (e.g. machine learning, pattern recognition) have been proven effective, for both structural and functional data, in making automatic diagnoses. The integration of these sophisticated diagnostic tools into secure, efficient, and wide e-infrastructures is the prerequisite for the real implementation of e-health support services to the clinical and industrial communities managing dementia patients.

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