Assessing the generalisability of a multicentre qualitative dementia research: the experience and challenges faced by the MinD project in Europe

Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living. Methods: Polit and Beck (2010)’s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description. Results: While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck’s strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.

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Applying a multicentre, interdisciplinary approach to strengthen the generalisability of qualitative dementia research: the experience and challenges faced by the MinD project in Europe

Open Research Europe ◽

10.12688/openreseurope.13700.1 ◽

2021 ◽

Vol 1 ◽

pp. 64

Author(s):

Jennifer N.W. Lim ◽

Kristina Niedderer ◽

Isabelle Tournier ◽

Rosa Almeida ◽

Dew Harrison ◽

...

Keyword(s):

Lived Experience ◽

Quantitative Research ◽

Interdisciplinary Approach ◽

Thick Description ◽

People With Dementia ◽

Time To Build ◽

Depth Analysis ◽

Dementia Research ◽

The Mind ◽

Everyday Living

Background: Generalisation of findings is an important aspect of research and essential for evidence-based practice. While generalisation is common in quantitative research, there is a lack of generalisability in qualitative research. This paper presents the experience and challenges faced by the Designing for People with Dementia (MinD) project in meeting the requirements to strengthen the generalisation of findings on the lived experience of people living with dementia and their engagement to co-create designs to empower their everyday living. Methods: Polit and Beck (2010)’s strategies to generalise qualitative findings were applied: (1) replication in sampling; (2) replication of studies; (3) meta-synthesis of findings; (4) reflexivity and conceptualization; (5) immersion with the data; and (6) thick description. Results: While it is possible to increase the generabilisabilty of qualitative evidence through the replication of the sampling to attain a large, heterogeneous sample in different and multiple contexts and environments; implementation of sound and robust research; conducting in-depth analysis and interpretation collaboratively for emergent themes; and meeting the thick description requirement, there are challenges that the project team faced in implementing some of the Polit and Beck’s strategies because of the condition, namely dementia, that our participants are having. Other challenges faced were: the language and cultural diversity in the team; diverse work and organisational procedures; and the inter-disciplinary differences relating to the methods of enquiry, approaches and techniques to conduct research. These challenges will need to be identified and addressed at the start of the project with a strong leadership to ensure a seamless journey to complete the project successfully. Trust between the researchers and participants, and time to build this trust are critical to recruitment and participation in the study; these factors are of utmost important in research involving participants with condition such as dementia.

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Public and patient involvement in dementia research: Time to reflect?

Dementia ◽

10.1177/2397172x18802501 ◽

2018 ◽

Vol 17 (8) ◽

pp. 1064-1067 ◽

Cited By ~ 7

Author(s):

Georgina Charlesworth

Keyword(s):

Lived Experience ◽

Patient Involvement ◽

Individual Experience ◽

Consensus Building ◽

People With Dementia ◽

Scientific Fact ◽

Lay Members ◽

Dementia Research ◽

The Individual ◽

Public And Patient Involvement

Public and patient involvement in research is a well-established requirement for applications to many grant-awarding bodies. Numerous models of consultation, collaboration and leadership have been developed to support all stages of research, from ideas development through to project execution and dissemination of findings. However, the interface between researchers and lay members is not always a happy one; scientific ‘fact’ may not square with lived experience; clinical researchers may regard their accumulated knowledge from working with many people with dementia and their families as ‘more valid’ than the individual experience(s) of a small number of public and patient involvement representatives; public and patient involvement members can fall victim to tokenism and manipulation. In this opinion piece, I consider the nature of representation in public and patient involvement in dementia research, and whether identifying disconfirmatory cases provides greater value than current consensus building approaches. I conclude by encouraging researchers to listen, reflect and embrace the opportunity to engage with alternative perspectives.

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How automated feedback from a digital mathematics textbook affects primary students’ conceptual development: two case studies

ZDM ◽

10.1007/s11858-021-01263-0 ◽

2021 ◽

Author(s):

Sebastian Rezat

Keyword(s):

Quantitative Research ◽

Conceptual Development ◽

Large Body ◽

Learning Processes ◽

Mathematics Textbooks ◽

School Students ◽

Mathematics Textbook ◽

Depth Analysis ◽

Probability Task ◽

Automated Feedback

AbstractOne of the most prevalent features of digital mathematics textbooks, compared to traditional ones, is the provision of automated feedback on students’ solutions. Since feedback is regarded as an important factor that influences learning, this is often seen as an affordance of digital mathematics textbooks. While there is a large body of mainly quantitative research on the effectiveness of feedback in general, very little is known about how feedback actually affects students’ individual content specific learning processes and conceptual development. A theoretical framework based on Rabardel’s theory of the instrument and Vergnaud’s theory of conceptual fields is developed to study qualitatively how feedback actually functions in the learning process. This framework was applied in a case study of two elementary school students’ learning processes when working on a probability task from a German 3rd grade digital textbook. The analysis allowed detailed reconstruction of how students made sense of the information provided by the feedback and adjusted their behavior accordingly. This in-depth analysis unveiled that feedback does not necessarily foster conceptual development in the desired way, and a correct solution does not always coincide with conceptual understanding. The results point to some obstacles that students face when working individually on tasks from digital mathematics textbooks with automated feedback, and indicate that feedback needs to be developed in design-based research cycles in order to yield the desired effects.

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Home care in dementia: The views of informal carers from a co-designed consultation

Dementia ◽

10.1177/1471301221990504 ◽

2021 ◽

pp. 147130122199050

Author(s):

Elizabeth L Dalgarno ◽

Vincent Gillan ◽

Amy Roberts ◽

Jean Tottie ◽

David Britt ◽

...

Keyword(s):

Home Care ◽

Working Conditions ◽

Public Involvement ◽

Framework Analysis ◽

Electronic Survey ◽

The United Kingdom ◽

People With Dementia ◽

Dementia Research ◽

Informal Carers ◽

A Current

Background In the United Kingdom, there is a current priority for high-quality dementia care provided at home. However, home care or domiciliary care is an area where problems have been reported, in terms of a lack of consistency, coordination and appropriate responses to the specific needs of those with dementia. The views of informal carers, who often must respond to these problems when supporting relatives, are crucial in shedding light on the issues and in seeking to promote solutions. Methods This study explored the views of informal carers of those with dementia concerning home care, through a consultation using an electronic survey. The survey questions were designed by informal carers, through a public involvement group within an existing programme of dementia research. The survey elicited responses from 52 informal carers in 2017/18. The data were analysed qualitatively using framework analysis. Findings Carers’ views focused on the need for investment into meaningful personalisation, recognising the value of providing care and valuing formal carers, systemic failings of care coordination and provision and the importance of ongoing collaboration and care planning. Conclusion Based on a framework drawn from the views of informal carers themselves, this study articulated issues of concern for home care and its delivery for people with dementia. Attempts should be made to make dementia home care more consistently personalised, inclusive and collaborative with informal carers and key others involved. Further areas to explore include working conditions of formal carers and current models utilised in homecare provision.

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P1-390: Lower Gait Speed is Independently Associated with Increased Mortality Risk Among People with Dementia in Low- and Middle-Income Countries: Results from The 10/66 Dementia Research Group Population-Based Cohort Study

Alzheimer s & Dementia ◽

10.1016/j.jalz.2016.06.1142 ◽

2016 ◽

Vol 12 ◽

pp. P582-P582 ◽

Cited By ~ 1

Author(s):

Ronaldo D. Piovezan ◽

Daysi Acosta ◽

Mariella Guerra ◽

Y. Huang ◽

Juan J. Llibre Rodriguez ◽

...

Keyword(s):

Cohort Study ◽

Mortality Risk ◽

Research Group ◽

Gait Speed ◽

Population Based ◽

Middle Income ◽

Middle Income Countries ◽

People With Dementia ◽

Dementia Research ◽

Group Population

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From Developmental Metaphor To Developmental Model: The Shrinking Role of Language in the Talking Cure

Journal of the American Psychoanalytic Association ◽

10.1177/00030651060540031501 ◽

2006 ◽

Vol 54 (3) ◽

pp. 877-901 ◽

Cited By ~ 18

Author(s):

Jeanine M. Vivona

Keyword(s):

Lived Experience ◽

Quantitative Research ◽

Infant Development ◽

Clinical Situation ◽

Developmental Model ◽

Therapeutic Action ◽

Developmental Models ◽

Psychoanalytic Treatment ◽

Interpersonal Experience ◽

Talking Cure

Psychoanalysts have invoked infant development diversely to understand nonverbal and unspoken aspects of lived experience. Two uses of developmental notions and their implications for understanding language and the therapeutic action of psychoanalysis are juxtaposed here: Hans Loewald's conception of developmental metaphors to illuminate ineffable aspects of the clinical situation and Daniel Stern's currently popular developmental model, which draws on findings from quantitative research to explain therapeutic action in the nonverbal realm. Loewald's metaphorical use of early development identifies and thus potentiates a central role for language in psychoanalytic treatment. By contrast, Stern and his colleagues exaggerate the abstract, orderly, and disembodied qualities of language, and consequently underestimate the degree to which lived interpersonal experience can be meaningfully verbalized, as demonstrated here with illustrations from published clinical material. As contemporary psychoanalysis moves toward embracing developmental models such as Stern's, it is concluded, psychoanalysts accept a shrinking role for language in the talking cure.

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A visual and creative approach to exploring people with dementia’s experiences of being students at a school in Denmark

Dementia ◽

10.1177/1471301218786636 ◽

2018 ◽

Vol 19 (3) ◽

pp. 786-804

Author(s):

Alison Ward ◽

Diana Schack Thoft ◽

Helen Lomax ◽

Jacqueline Parkes

Keyword(s):

Early Stage ◽

Research Process ◽

Photo Elicitation ◽

Learning And Development ◽

Group Discussions ◽

Home Life ◽

Life Long Learning ◽

People With Dementia ◽

Dementia Research

In dementia research, there is limited knowledge about how people with dementia experience their daily life including how they experience the services they attend. This means a lack of knowledge about how people with dementia judge the quality of services provided for them. In this study visual and creative methods were used to understand the experience of people with early stage dementia who attend an adult school, Voksenskolen for Undervisning og Kommunikation (VUK) in Denmark. The study explored the students’ experience of being a student at VUK and what it means to engage in life-long learning. Alongside the aim to evaluate the service provided for them, seen from their perspective. Photo-elicitation was used, with cameras provided to each student, who took photographs of their school and home life. Students’ photographs were used to support focus group discussions, with the images integral to the process of talking about and recalling stories. Ten students were recruited to participate in four weekly sessions. Two groups were run with five students in each group. Each session was video recorded, these sessions were then transcribed and analysed using Braun and Clarke’s thematic analysis. Visual images were found to support the students’ memory of current experiences and prompted reminiscences about the past, leading to rich descriptions about being a student at VUK and their experiences of living with dementia. Being able to attend VUK was found to be important for these students with dementia, providing them with a sense of purpose, a way to support their cognitive function and also to develop new friendships. The method provided a way for people with dementia to be active in the research process and provide their perspective about a novel service, which promotes an ethos of learning and development.

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Cross-cultural adaptation of the German version of the Quality of Life in Alzheimer's Disease scale - Nursing Home version (QoL-AD NH)

International Psychogeriatrics ◽

10.1017/s1041610216000107 ◽

2016 ◽

Vol 28 (8) ◽

pp. 1399-1400 ◽

Cited By ~ 6

Author(s):

Martin Nikolaus Dichter ◽

Eva-Maria Wolschon ◽

Gabriele Meyer ◽

Sascha Köpke

Keyword(s):

Quality Of Life ◽

Alzheimer’S Disease ◽

Alzheimer's Disease ◽

Community Dwelling ◽

Positive Effects ◽

People With Dementia ◽

The Us ◽

Dementia Research ◽

Almost All

Dementia is a chronic and currently incurable syndrome. Therefore, quality of life (QoL) is a major goal when caring for people with dementia (Gibson et al., 2010) and a major outcome in dementia research (Moniz-Cook et al., 2008). The measurement of QoL, especially proxy-rating, is challenging because of the proxy-perspective (Pickard and Knight, 2005), reliability (Dichter et al., 2016), validity (O'Rourke et al., 2015), and responsiveness (Perales et al., 2013). Probably due to these challenges, it has not been possible to show positive effects for QoL in almost all non-pharmacological interventions for people with dementia (Cooper et al., 2012). One recommended (Moniz-Cook et al., 2008) and frequently used instrument is the Quality of Life in Alzheimer's Disease scale (QoL-AD), which was originally developed in the US for community-dwelling people with dementia. The QoL-AD consists of 13 items based on a 4-point Likert scale ranging from “1”=poor to “4”=excellent (Logsdon et al., 1999). The original instrument has been adapted for people living in nursing homes (NH) by Edelmann et al. (2005).

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Exploring the Relation between the Use of HRIS and their Implementation in Spanish Firms

Global Business ◽

10.4018/978-1-60960-587-2.ch406 ◽

2011 ◽

pp. 967-975

Author(s):

José Antonio Fernández-Sánchez ◽

Susana de Juana-Espinosa ◽

Jorge Valdés-Conca

Keyword(s):

Information System ◽

Resource Management ◽

Human Resource Management ◽

Human Resource ◽

Quantitative Research ◽

Resource Information ◽

Depth Analysis ◽

Information Products ◽

Definition Of ◽

Practical Implications

An information system (IS) is “a set of people, procedures, and resources that collects, transforms, and disseminates information in an organization. A system that accepts data resources as input and processes them into information products as output” (O’Brien & Marakas, 2005). Likewise, the definition of human resource information Systems (henceforth HRIS) can be expressed as an IS that deals only with information related directly to the human resource management (HRM) area (Tannenbaum, 1990). Initially, computerized HRIS were only useful for administrative purposes. However, in the course of the last decade, that tendency has changed markedly and a strategic re-orientation of these applications is nowadays considered desirable and necessary for companies competing in today’s uncertain, complex and ever-developing environment. This phenomenon has turned HRIS into a major strategic means, capable of providing information about the actual capacity of the firm, its potential, and the potential of its competitors. This research paper aims to provide an in-depth analysis of HRIS usage as a tool for assisting in recruitment decisions. This was carried out in accordance with the empirical findings of a quantitative research on selection and recruitment processes in Spanish firms. This paper reports and evaluates the major results of this current study and discusses its theoretical and practical implications with a view to increasing the effectiveness of HRIS usage for its recruitment processes.

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