Exploring The Views Of Stroke Survivors Around Post Stroke Fatigue In Saudi Arabia: A Qualitative Interview Study

2019 ◽  
Vol 26 (6) ◽  
pp. 6-6
Author(s):  
Wafa Alahmari ◽  
Ahmed Alhowimel ◽  
Mazyad Alotaibi ◽  
Eirini Kontou ◽  
Pip Logan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Saudi Arabia ◽  
Standard Deviation ◽  
Fatigue Severity Scale ◽  
Stroke Survivors ◽  
Severity Scale ◽  
Post Stroke ◽  
Fatigue Severity

Background/Aims Among stroke survivors, post-stroke fatigue is highly prevalent, ranging from 25% to 85% and has a significant impact on their quality of life. The available literature on post-stroke fatigue is still rudimentary, especially from middle-eastern countries such as Saudi Arabia, which is a country with a complex health care system and diverse population. The aim of this study is to explore the post-stroke survivors' experiences and perceptions of their post-stroke fatigue. To our knowledge, this is the first attempt to understand post-stroke fatigue among stroke survivors living in Saudi Arabia. Methods This was a qualitative study where semi-structured interviews were conducted with stroke survivors who were diagnosed to have fatigue based on the Fatigue Severity Scale. A total of eight participants were recruited using a purposive sampling technique for the study. Interviews with the participants were recorded, transcribed verbatim and analysed using inductive thematic analysis. Validity was ensured through data triangulation with participants. Results The 8 participants (male=4; female=4), aged between 27 and 65 years (mean 52, standard deviation 14), were interviewed. Their scores on the Fatigue Severity Scale ranged from 4.5 to 6 (mean 5.3, standard deviation 0.5). On analysing the interview transcripts, 8 over-arching themes were generated: fatigue after stroke; symptomatology of post-stroke fatigue; pre-stroke fatigue levels and lifestyle; stroke survivors' perspectives of post-stroke fatigue; post-stroke fatigue's impact on daily living; coping with post-stroke fatigue; post-stroke fatigue patients' perception on physiotherapy; type of support from family and health care professional. Conclusions The results from this study highlights the lack of awareness about fatigue after stroke among stroke survivors. Also, the themes indicate that there is a need to educate stroke patients and their caregivers about post-stroke fatigue and how they should manage it. Based on patients ‘experiences’, physiotherapy seems to be helpful in reducing fatigue symptoms after stroke, but sill there is a need to design specific physiotherapy interventions with suitable frequency and intensity to target fatigue after stroke. In summary, post-stroke fatigue has a significant impact on their quality of life concerning social participation and their daily life. Stroke survivors did not receive enough support from health care professionals with respect to post-stroke fatigue, and it is highly essential to train health care practitioners to identify and acknowledge post-stroke fatigue appropriately.

Comparing the effects of multi-session anodal trans-cranial direct current stimulation of primary motor and dorsolateral prefrontal cortices on fatigue and quality of life in patients with multiple sclerosis: a double-blind, randomized, sham-controlled trial

2020 ◽  
Vol 34 (8) ◽  
pp. 1103-1111
Author(s):  
Marzieh Mortezanejad ◽  
Fatemeh Ehsani ◽  
Nooshin Masoudian ◽  
Maryam Zoghi ◽  
Shapour Jaberzadeh
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Prefrontal Cortex ◽  
Direct Current ◽  
Dorsolateral Prefrontal Cortex ◽  
Fatigue Severity Scale ◽  
Severity Scale ◽  
Dorsolateral Prefrontal ◽  
Fatigue Severity

Objective: To compare the effects of anodal trans-cranial direct current stimulation (a-tDCS) over primary motor and dorsolateral prefrontal cortices on Fatigue Severity Scale and its lasting effect on fatigue reduction and improvement in quality of life in patients with multiple sclerosis. Design: A randomized, double-blinded, sham-controlled parallel clinical trial study. Setting: Neurological physiotherapy clinics. Subjects: Thirty-nine participants were randomly assigned to three groups: dorsolateral prefrontal cortex a-tDCS, primary motor a-tDCS (experimental groups) and sham a-tDCS. Finally, 36 participants completed the whole study ( n = 12 in each group). Interventions: Participants in the experimental groups received six-session a-tDCS (1.5 mA, 20 minutes) during two weeks (three sessions per week). The sham group received six sessions of 20-minute sham stimulation. Main measures: The Fatigue Severity Scale and quality of life were assessed before, immediately and four weeks after the intervention. Results: Findings indicated a significant reduction in the Fatigue Severity Scale and a significant increase in the quality of life in both experimental groups, immediately after the intervention ( P < 0.001), while Fatigue Severity Scale and quality of life changes were not significant in the sham a-tDCS group ( P > 0.05). In addition, improvement of the variables remained four weeks after the intervention in dorsolateral prefrontal cortex a-tDCS (mean differences (95% confidence interval): 0.03 (−0.63 to 0.68) as compared to primary motor (−0.62 (−0.11 to −1.14) and sham a-tDCS groups (−0.47 (−1.37 to 0.43)). Conclusion: Both primary motor and dorsolateral prefrontal cortex a-tDCS as compared to sham intervention can immediately improve fatigue and quality of life. However, the effects last up to four weeks only by the dorsolateral prefrontal cortex a-tDCS.

scholarly journals Assessment of energy expenditure in individuals with post-poliomyelitis syndrome

2017 ◽  
Vol 75 (3) ◽  
pp. 147-152
Author(s):  
Roberto Dias Batista Pereira ◽  
Tatiana Mesquita e Silva ◽  
Abrahão Augusto Juviniano Quadros ◽  
Marco Orsini ◽  
Beny Schmidt ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Energy Expenditure ◽  
Fatigue Severity Scale ◽  
Habitual Physical Activity ◽  
Control Group ◽  
Occupational Physical Activity ◽  
Severity Scale ◽  
Fatigue Severity

ABSTRACT The objective of this study was to identify energy expenditure, retrospectively, in individuals with post-poliomyelitis syndrome (PPS) in the Brazilian population. Methods The Baecke questionnaire for the evaluation of habitual physical activity (HPA), assessment of quality of life (WHOQOL-Bref), and the Fatigue Severity Scale were administered to patients with PPS, poliomyelitis sequelae (PS) and to a control group (CG). Participated in the study 116 individuals (PPS=52,PS= 28,CG=36). Results Patients with PPS tended to increase their HPA from 10 to 20 years of age, compared with those in the PS group and the CG. In the period from 21 to 30 years of age, there was significant increase in the PPS group’s occupational physical activity compared to the PS group, and the occupational physical activity (21-30 years of age) correlated with the onset of symptoms of PPS. Conclusion Patients with PPS had a higher energy expenditure during life, especially in occupational physical activity at ages 21-30 years, suggesting this decade is critical for the development of PPS.

scholarly journals RELIABILITY OF THE FATIGUE SEVERITY SCALE IN CIRRHOTIC AND CORRELATION WITH DEPRESSION AND QUALITY OF LIFE: preliminary assessment

2016 ◽  
Vol 53 (3) ◽  
pp. 203-205 ◽  
Author(s):  
Danusa ROSSI ◽  
Lucas Homercher GALANT ◽  
Claudio Augusto MARRONI
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Short Form ◽  
Fatigue Severity Scale ◽  
Severity Scale ◽  
Brazilian Version ◽  
Sf 36 ◽  
Significant Difference ◽  
Fatigue Severity

ABSTRACT Background Fatigue is a common complaint in patients with liver disease and may be considered a disabling symptom, affecting their quality of life and mental health. The Brazilian version of the Fatigue Severity Scale showed sensitivity to assess fatigue in some populations, but has not been tested in cirrhotic individuals. Objective The aim of this study was to evaluate the reliability of the Fatigue Severity Scale and association with depression and quality of life in patients with liver cirrhosis. Methods A prospective cohort study where the same interviewer applied to 25 patients Fatigue Severity Scale questionnaires, Brazilian version of the Beck Depression Inventory II (BDI- II) and Brazilian version of the Short Form Health Survey II (SF-36 v.II). Evaluating the reliability of the Fatigue Severity Scale through internal consistency and reproducibility was conducted. Results Statistical analysis showed strong internal consistency (Cronbach's alpha = 0.917) and intraobserver reproducibility test, there was no significant difference between both moments (P=0.828). Fatigue Severity Scale was significantly associated with BDI- II (r=0.478; P=0.016) and quality of life in areas PF (r=-0.484; P=0.014), BP (r=-0.402; P=0.046) and GH (r=-0.406; P=0.044) and SF (r=-0.520; P=0.008). Conclusion The Fatigue Severity Scale showed satisfactory reliability in evaluation of fatigue in cirrhotic and can be used as a tool for this purpose. Fatigue is related to depression and quality of life in the physical aspects domains, pain, general health and social aspects.

scholarly journals Hubungan Fatigue Terhadap Kualitas Hidup Pasien Hemodialisa

2021 ◽  
Vol 7 (3) ◽  
pp. 33-39
Author(s):  
Gina Nurdina ◽  
Dian Anggraini
Keyword(s):  
Quality Of Life ◽  
Kidney Disease ◽  
Short Form ◽  
Fatigue Severity Scale ◽  
P Value ◽  
Severity Scale ◽  
Cross Sectional ◽  
Consecutive Sampling ◽  
Fatigue Severity

Latar Belakang : Hemodialisa membantu meningkatkan harapan hidup pasien penyakit ginjal kronis, namun pasien juga sering melaporkan masalah dari pengobatan tersebut salah satunya fatigue yang merupakan gejala paling umum dari pasien hemodialisa dan sering dikaitkan dengan masalah kualitas hidup . Tujuan : Mengetahui hubungan fatigue terhadap kualitas hidup pasien hemodialisis. Metode : Desain penelitian yang digunakan adalah studi korelasional dengan pendekatan cross-sectional. Populasi penelitian ini adalah pasien yang menjalani hemodialisis di berbagai Klinik Hemodialisis di Kota Bandung dengan tehnik pengambilan sampel menggunakan consecutive sampling . Instrumen yang digunakan dalam penelitian ini yaitu the Fatigue Severity Scale (FSS) dan  Kidney Disease Quality of Life Short Form 36 (KDQoL-SF36). Analisis univariat menggunakan distribusi frekuensi. Analisis bivariat dilakukan dengan menggunakan uji korelasi pearson. Hasil : Dari 34 responden sebagian besar pasien mengalami fatigue dengan rerata tingkat fatigue 41.18 (SD=17.11). Sekitar 41% responden memiliki skor fatigue tinggi (45<FAS<=63). Rerata skor KDQoL-SF36 pada aspek daftar gejala/masalah 66.02 (SD=9.06), aspek efek penyakit ginjal 43.70 (SD=10.68), aspek beban penyakit ginjal 12.13 (SD=5.94), aspek komponen kesehatan fisik 35.7 9 (SD=6.58) dan aspek komponen kesehatan mental 45.51 (SD=7.82).  Terdapat hubungan antara fatigue dengan aspek beban penyakit ginjal dan  komponen kesehatan fisik terlihat dari nilai p value <0.05 dengan nilai koefisien korelasi sebesar (-0.491) dan (-0.515). Kesimpulan: Semakin tinggi skor fatigue maka semakin rendah skor aspek kualitas hidupnya

The role of transformative healthcare technology on quality of life during the COVID-19 pandemic

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Mohammad Asif Salam ◽  
Saleh Bajaba
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Saudi Arabia ◽  
Service Delivery ◽  
Health Care System ◽  
Service System ◽  
Content Type ◽  
Care System

Purpose The purpose of this study is to investigate the role of the COVID-19 health-care system quality (HSQ) and its impact on the individual (satisfaction) and social (quality of life [QOL]) outcomes in the context of a transformative health-care delivery system using service-dominant logic (SDL). Design/methodology/approach A sample consisting of 1,008 individuals who have experienced the COVID-19 health-care system was drawn from four different regions of Saudi Arabia using the simple random sampling technique. The survey was conducted using an online survey and 1,008 respondents answered, based on their experience and knowledge of the COVID-19 health-care system. Partial least squares structural equation modeling was applied to test the proposed research model. Findings The study findings suggest that service system satisfaction (SAT) significantly mediates the role of the HSQ in delivering and enhancing the QOL. HSQ also has a significant role to play on the SAT as well as the QOL. These findings contribute to the body of knowledge on SDL in the context of HSQ in understanding the significant role of technologies can play in enhancing service satisfaction and better QOL during a crisis such as COVID-19. This study also improves the understanding of the importance of customer-centricity, real-time visibility through tracking and tracing of service flow, agile decision-making, fewer but better-defined service objectives, and finally shaping mindsets and behaviors of all the relevant parties involved in the HSQ service delivery process. Research limitations/implications One of the major limitations of this study is that, although COVID-19 is an ongoing global pandemic, cross-sectional data were collected in only one country. The findings may not be generalizable across subsequent waves of the pandemic. The best practices of HSQ could be studied around the globe and the results used to support continuous improvement. Originality/value This study advances the understanding of the SDL in the context of a transformative health-care system for a transitional economy by focusing on individual and social well-being during an unexpected crisis such as the COVID-19 pandemic. This study also contributes toward the understanding of the roles of enabling technologies to improve the service delivery system which results in an improved SAT, as well as better QOL for the society at large. Based on SDL this research validates the HSQ model, relevant measures and its overall impact on SAT and QOL in the context of a transformative health-care service system in Saudi Arabia.

scholarly journals The Nottingham Fatigue after Stroke (NotFAST) study: factors associated with severity of fatigue in stroke patients without depression

2017 ◽  
Vol 31 (10) ◽  
pp. 1406-1415 ◽  
Author(s):  
Avril Drummond ◽  
Louise Hawkins ◽  
Nikola Sprigg ◽  
Nick S Ward ◽  
Amit Mistri ◽  
...  
Keyword(s):  
Fatigue Severity Scale ◽  
Outcome Variable ◽  
Severity Scale ◽  
Cross Sectional ◽  
Mobility Index ◽  
Factors Associated ◽  
Post Stroke ◽  
Brief Assessment ◽  
Fatigue Severity ◽  
Anxiety Index

Objective: To identify factors associated with post-stroke fatigue in a sample of stroke survivors without depression. Design: Cross-sectional cohort study. Setting: Recruitment was from four stroke units in the UK. Subjects: Participants were assessed within four to six weeks of first stroke; those with high levels of depressive symptoms (score ⩾7 Brief Assessment Schedule Depression Cards) were excluded. Main measures: Participants were assessed after stroke on the Fatigue Severity Scale of the Fatigue Assessment Inventory, the Rivermead Mobility Index, Nottingham Extended Activities of Daily Living scale, Beck Anxiety Index, Sleep Hygiene Index, 6m walk test, and measures of cognitive ability. Results: Of the 371 participants recruited, 103 were excluded and 268 were assessed. Of the latter, the mean age was 67.7 years (SD 13.5) and 168 (63%) were men. The National Institutes of Health Stroke Scale mean score was 4.96 (SD 4.12). Post-stroke fatigue was reported by 115 (43%) of participants, with 71 (62%) reporting this to be a new symptom since their stroke. Multivariate analysis using the Fatigue Severity Scale as the outcome variable found pre-stroke fatigue, having a spouse/partner, lower Rivermead Mobility Index score, and higher scores on both the Brief Assessment Schedule Depression Cards and Beck Anxiety Index were independently associated with post-stroke fatigue, accounting for approximately 47% of the variance in Fatigue Severity Scale scores. Conclusions: Pre-stroke fatigue, lower mood, and poorer mobility were associated with post-stroke fatigue.

scholarly journals PSYCHOMETRIC PROPERTY OF FATIGUE SEVERITY SCALE AND CORRELATION WITH DEPRESSION AND QUALITY OF LIFE IN CIRRHOTICS

2017 ◽  
Vol 54 (4) ◽  
pp. 344-348 ◽  
Author(s):  
Danusa ROSSI ◽  
Lucas Homercher GALANT ◽  
Claudio Augusto MARRONI
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Construct Validity ◽  
Discriminant Validity ◽  
Depressive Symptomatology ◽  
Severity Scale ◽  
Fatigue Severity ◽  
Cirrhotic Patients ◽  
The Mean

ABSTRACT BACKGROUND: Fatigue is a common complaint in cirrhotic patients and may be considered a debilitating symptom with negative impact on quality of life. Research on its etiology and treatment has been hampered by the lack of relevant and reproducible measures of fatigue. OBJECTIVE: To evaluate the psychometric properties of the Fatigue Severity Scale (FSS) in cirrhotic patients and to correlate with depressive symptomatology and quality of life. METHODS: Cross-sectional study with a convenience sample of 106 cirrhotic patients, aged between 18 and 70 years, both genders, literate, pre and post liver transplantation in outpatient follow-up. Internal consistency, reproducibility, discriminant validity, criterion validity, construct validity, responsiveness criterion, depressive symptomatology and quality of life were evaluated through questionnaires between January and October 2015. RESULTS: The mean age was 54.75±9.9 years, 65.1% male and 32.1% of the sample had cirrhosis due to hepatitis C virus. The mean FSS score was 4.74±1.64. Cronbach’s alpha was 0.93, and the Intraclass Correlation Coefficient was 0.905 (95% CI: 0.813-0.952). For discriminant validity, FSS differentiated scores from different groups (P=0.009) and presented a correlation with the Modified Fatigue Impact Scale (r=0.606, P=0.002). FSS correlated significantly and positively with depressive symptomatology and correlated negatively with the SF-36 domains for construct validity. For responsiveness, no significant changes were observed in the fatigue scores in the pre and post-liver transplantation periods (P=0.327). CONCLUSION: FSS showed good psychometric performance in the evaluation of fatigue in patients with cirrhosis. Fatigue presented a strong correlation with depressive symptomatology and quality of life.

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