The Impact of Medical/Behavioral Support Needs on the Supports Needed by Adolescents With Intellectual Disability to Participate in Community Life

Abstract As adolescents with intellectual disability (ID) transition to adulthood, there is a need to plan for effective community-based supports that address the post-school life. There is also a need to plan for the impact of factors (e.g., medical/behavioral support needs) on supports needed for community participation. Data from the Supports Intensity Scale—Adult Version (SIS—A) was used to examine relations between medical/behavior support needs and support needs assessed in the standardized portion of the SIS—A. Results suggested that the presence of medical/behavioral needs had a strong impact on supports needed to participate in the community activities, and that more intensive medical support needs were related to higher support needs in the Home Living, Community Living, and Health and Safety domains.

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Child Life Services in an Epilepsy Monitoring Unit

Clinical Pediatrics ◽

10.1177/0009922818769469 ◽

2018 ◽

Vol 57 (11) ◽

pp. 1269-1274 ◽

Cited By ~ 1

Author(s):

Daniel B. Lowenstein ◽

Mackenzie C. Cervenka ◽

Lauren Mitchell ◽

Noelle Stewart ◽

Eric H. Kossoff ◽

...

Keyword(s):

Intellectual Disability ◽

Job Performance ◽

Child Life ◽

Strong Impact ◽

Child Life Specialist ◽

Daily Work ◽

Perceived Impact ◽

Staff Experiences ◽

The Impact ◽

Epilepsy Monitoring

The goal of this study was to determine the value of a certified child life specialist (CCLS) on the patient and staff experiences in an epilepsy monitoring unit (EMU). We integrated a CCLS into the EMU for all children as well as adults with intellectual disability. We surveyed families to determine the impact of child life services on their stay. EMU staff completed questionnaires to determine perceived impact to their job performance from the integration of the CCLS. All of the families (pediatric and adult patients) who responded to the survey reported the presence of the CCLS improved their hospital experience. Staff reported that the CCLS improved their daily work by allowing them to focus on their assigned medical duties. This preliminary pilot study suggests that CCLS can have a strong impact on the experience of patients and staff in an EMU.

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Expectations, concerns and experiences of rehabilitation patients during the COVID-19 pandemic in Germany: a qualitative analysis of online forum posts

BMC Health Services Research ◽

10.1186/s12913-021-07354-8 ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Kübra Altinok ◽

Fabian Erdsiek ◽

Yüce Yilmaz-Aslan ◽

Patrick Brzoska

Keyword(s):

Service Providers ◽

Qualitative Content Analysis ◽

Methodological Approach ◽

Health And Safety ◽

Insurance Companies ◽

Strong Impact ◽

Online Forums ◽

Rehabilitative Treatment ◽

Rehabilitative Services ◽

The Impact

Abstract Background The COVID-19 pandemic, as well as efforts to prevent its spread, have had a strong impact on the delivery of rehabilitative services in Germany. While several studies have addressed the impact of these developments on health service providers and COVID-19 patients, little is known about its impact on patients in need of rehabilitative treatment because of other conditions. This study aims to identify expectations, concerns and experiences of rehabilitation patients related to service delivery in this situation. Methods Using a qualitative study design, user posts from six German online forums between March and Mid-November 2020 were systematically searched with respect to experiences, concerns and expectations of health care users toward receiving rehabilitative treatment. We used qualitative content analysis with inductive coding as our methodological approach. Results Users fearing physical or psychological impairment were concerned about not receiving timely or effective treatment due to closed hospitals, reduced treatments and limited admissions. In contrast, patients more concerned about getting infected with COVID-19 worried about the effectiveness of protective measures and being denied postponement of treatment by the funding bodies. During their stay, some patients reported feeling isolated due to contact restrictions and did not feel their treatment was effective, while others reported being satisfied and praised hospitals for their efforts to ensure the safety of the patients. Many patients reported communication problems before and during their treatment, including concerns about the safety and effectiveness of their treatment, as well as financial concerns and worries about future treatments. Several users felt that their concerns were disregarded by the hospitals and the funding bodies, leaving them feeling distressed, insecure and dissatisfied. Conclusions While some users report only minor concerns related to the pandemic and its impact on rehabilitation, others report strong concerns relating not only to their own health and safety, but also to financial aspects and their ability to work. Many users feel ignored and disregarded, showing a strong need for more coordinated strategies and improved communication specifically with funding bodies like health insurance companies and the German pension funds.

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Are Type, Frequency, and Daily Time Equally Valid Estimators of Support Needs in Children With Intellectual Disability? A Multitrait–Multimethod Analysis of the Supports Intensity Scale for Children (SIS-C)

Assessment ◽

10.1177/1073191117732411 ◽

2017 ◽

Vol 26 (7) ◽

pp. 1307-1319 ◽

Cited By ~ 5

Author(s):

Miguel A. Verdugo ◽

Victor B. Arias ◽

Verónica M. Guillén

Keyword(s):

Intellectual Disability ◽

Support Needs ◽

Intensity Scale ◽

Promising Tool ◽

Supports Intensity Scale ◽

Human Functioning ◽

Method Effects ◽

The Impact ◽

Daily Time ◽

Children With Intellectual Disability

Support needs represent the intensity of support required by a person with a disability in order to take part in the activities related to normative human functioning. The Supports Intensity Scale for Children (SIS-C) is possibly the most promising tool for assessing and designing individualized support programs in children with intellectual disability. The SIS-C measures support needs across 61 activities, each one assessed along three methods: type of support, frequency, and daily time during which support is to be given. We investigated the impact of method effects in the SIS-C through a bifactor approach to the analysis of multitrait–multimethod matrices. The results suggest that neither intensity nor frequency scales produced method effects that significantly distorted the measurement of support needs. However, the daily support time method had substantial undesirable effects on five of the seven subscales of support needs. Considerations about support needs assessment and future modifications of the scale are discussed.

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Altered Cl− homeostasis hinders forebrain GABAergic interneuron migration in a mouse model of intellectual disability

Proceedings of the National Academy of Sciences ◽

10.1073/pnas.2016034118 ◽

2020 ◽

Vol 118 (2) ◽

pp. e2016034118

Author(s):

Andrea Maset ◽

Luisa Galla ◽

Simona Francia ◽

Olga Cozzolino ◽

Paola Capasso ◽

...

Keyword(s):

Intellectual Disability ◽

Mouse Model ◽

Inhibitory Neurons ◽

Gabaergic Interneuron ◽

Inhibitory Interneurons ◽

Strong Impact ◽

Inhibitory Circuits ◽

Downstream Signaling ◽

Rock Inhibition ◽

The Impact

Impairments of inhibitory circuits are at the basis of most, if not all, cognitive deficits. The impact of OPHN1, a gene associate with intellectual disability (ID), on inhibitory neurons remains elusive. We addressed this issue by analyzing the postnatal migration of inhibitory interneurons derived from the subventricular zone in a validated mouse model of ID (OPHN1−/y mice). We found that the speed and directionality of migrating neuroblasts were deeply perturbed in OPHN1−/y mice. The significant reduction in speed was due to altered chloride (Cl−) homeostasis, while the overactivation of the OPHN1 downstream signaling pathway, RhoA kinase (ROCK), caused abnormalities in the directionality of the neuroblast progression in mutants. Blocking the cation–Cl− cotransporter KCC2 almost completely rescued the migration speed while proper directionality was restored upon ROCK inhibition. Our data unveil a strong impact of OPHN1 on GABAergic inhibitory interneurons and identify putative targets for successful therapeutic approaches.

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Regulatory and sustainability initiatives lead to improved polyaminopolyamide epichlorohydrin (PAE) wet-strength resins and paper products

TAPPI Journal ◽

10.32964/tj17.09.519 ◽

2018 ◽

Vol 17 (09) ◽

pp. 519-532 ◽

Cited By ~ 1

Author(s):

Mark Crisp ◽

Richard Riehle

Keyword(s):

Health And Safety ◽

Cost Effective ◽

Worker Safety ◽

Regulatory Requirements ◽

Wet Strength ◽

The Past ◽

Consumer Safety ◽

Federal Institute ◽

Sustainability Initiatives ◽

The Impact

Polyaminopolyamide-epichlorohydrin (PAE) resins are the predominant commercial products used to manufacture wet-strengthened paper products for grades requiring wet-strength permanence. Since their development in the late 1950s, the first generation (G1) resins have proven to be one of the most cost-effective technologies available to provide wet strength to paper. Throughout the past three decades, regulatory directives and sustainability initiatives from various organizations have driven the development of cleaner and safer PAE resins and paper products. Early efforts in this area focused on improving worker safety and reducing the impact of PAE resins on the environment. These efforts led to the development of resins containing significantly reduced levels of 1,3-dichloro-2-propanol (1,3-DCP) and 3-monochloropropane-1,2-diol (3-MCPD), potentially carcinogenic byproducts formed during the manufacturing process of PAE resins. As the levels of these byproducts decreased, the environmental, health, and safety (EH&S) profile of PAE resins and paper products improved. Recent initiatives from major retailers are focusing on product ingredient transparency and quality, thus encouraging the development of safer product formulations while maintaining performance. PAE resin research over the past 20 years has been directed toward regulatory requirements to improve consumer safety and minimize exposure to potentially carcinogenic materials found in various paper products. One of the best known regulatory requirements is the recommendations of the German Federal Institute for Risk Assessment (BfR), which defines the levels of 1,3-DCP and 3-MCPD that can be extracted by water from various food contact grades of paper. These criteria led to the development of third generation (G3) products that contain very low levels of 1,3-DCP (typically <10 parts per million in the as-received/delivered resin). This paper outlines the PAE resin chemical contributors to adsorbable organic halogens and 3-MCPD in paper and provides recommendations for the use of each PAE resin product generation (G1, G1.5, G2, G2.5, and G3).

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Environmental Conservation Through Study Value of Bali Aga Tenganan Pegringsingan Community Culture

Media Komunikasi Geografi ◽

10.23887/mkg.v20i2.21903 ◽

2020 ◽

Vol 21 (1) ◽

pp. 27

Author(s):

Nyoman Wijana ◽

I Gusti Agung Nyoman Setiawan ◽

Sanusi Mulyadiharja ◽

I Gede Astra Wesnawa ◽

Putu Indah Rahmawati

Keyword(s):

Cultural Values ◽

Environmental Conservation ◽

Time Orientation ◽

Cultural Value ◽

Community Culture ◽

Community Activities ◽

Orientation Time ◽

The Impact ◽

Relational Orientation

This research aimed to know the implementation of environmental conservation in terms of cultural value orientation, including humanistic nature orientation, man-nature orientation, time orientation, activity orientation, and relational orientation. The population of this research was the entire community in traditional village Tenganan Pegringsingan, Karangasem, Bali. This research sample amounted to 25 people, consisting of the conventional village apparatus, community leaders, and the general public. Methods of data collection were the method of observation, interview, questionnaire, and checklist. The collected data were analyzed descriptively. This research indicated that the orientation of cultural values of humanistic nature orientation and man-nature orientation had an excellent quality. The time orientation, activity orientation, and relational orientation parameters had good quality. Culture in the study community generally showed a positive thing, so the impact of culture on the quality of the environment, in general, was excellent. The results of observations in the field revealed that there were all community activities at Tenganan Pegringsingan that could not cause environmental pollution. Therefore, the role of traditional regulation or awig-awig to regulate environmental and social-culture.

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When Do Psychopathic Traits Affect Cooperative Behavior?: An Iterated Prisoner's Dilemma Experimental Study

10.26686/wgtn.12431003 ◽

2020 ◽

Author(s):

M Testori ◽

M Kempf ◽

RB Hoyle ◽

Hedwig Eisenbarth

Keyword(s):

Prisoner's Dilemma ◽

Cooperative Behavior ◽

Prisoner’S Dilemma ◽

Selection Procedure ◽

Psychopathic Traits ◽

Strong Impact ◽

Iterated Prisoner's Dilemma ◽

Human Decision ◽

The Impact ◽

Iterated Prisoner’S Dilemma

© 2019 Hogrefe Publishing. Personality traits have been long recognized to have a strong impact on human decision-making. In this study, a sample of 314 participants took part in an online game to investigate the impact of psychopathic traits on cooperative behavior in an iterated Prisoner's dilemma game. We found that disinhibition decreased the maintenance of cooperation in successive plays, but had no effect on moving toward cooperation after a previous defection or on the overall level of cooperation over rounds. Furthermore, our results underline the crucial importance of a good model selection procedure, showing how a poor choice of statistical model can provide misleading results.

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Met and unmet needs among adults with mild to moderate intellectual disability with and without mental health problems

10.31234/osf.io/ztrjg ◽

2020 ◽

Author(s):

Matthias Schützwohl

Keyword(s):

Mental Health ◽

Intellectual Disability ◽

Unmet Needs ◽

Mental Health Problems ◽

Psychiatric Symptoms ◽

Health Problems ◽

Service Planning ◽

Support Needs ◽

Behaviour Problem ◽

Prevalence Rates

Background: People with an intellectual disability (ID) show a great number and complex constellation of support needs. With respect to the planning of services, it is important to assess needs at the population level. ID services need to know to what extent support needs of clients with mental health problems differ from support needs of clients without any mental health problem.Aims: The aim of this study was to compare the prevalence rates of needs in relevant study groups. Methods: Data was generated from the MEMENTA-Study (“Mental health care for adults with intellectual disability and a mental disorder”). The Camberwell Assessment of Need for Adults with Intellectual Disabilities (CANDID) was used to assess met und unmet support needs. Data was available for n=248 adults with mild to moderate ID.Results: Mean total number of needs and unmet needs was associated with mental health status. However, in most particular areas under study, individuals without significant psychiatric symptoms or any behaviour problem needed as much as often help as individuals with such mental health problems. A higher rate of need for care among study participants with significant psychiatric symptoms or any behaviour problem was mainly found with regard to these specific areas (“minor mental health problems”, “major mental health problems”, “inappropriate behaviour”) or with regard to closely related areas (“safety of others”).Conclusions: Differences in prevalence rates mainly occurred in such areas of need that rather fall under the responsibility of mental health services than under the responsibility of ID services. This has implications for service planning.

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The Impact of Economic Crisis on Tourism Industry: A Bangladesh Perspective

International Research Journal of Engineering IT & Scientific Research ◽

10.21744/irjeis.v2i1.35 ◽

2016 ◽

Vol 2 (1) ◽

Author(s):

Md. Ziaul Haque

Keyword(s):

Economic Crisis ◽

Tourism Industry ◽

Political Crisis ◽

Strong Impact ◽

Negative Consequences ◽

Policy Makers ◽

Tourism Product ◽

International Tourist ◽

Sustained Recovery ◽

The Impact

The tourism sector is experiencing numerous challenges as a result of the global economic crisis. After a significant contraction in 2009, tourism rebounded strongly in 2010 and in 2011 the international tourist arrivals and receipts are projected to increase substantially. The Tourism industry is expected to show a sustained recovery in 2012. The crisis has particularly strong impact and slightly negative consequences in Bangladesh. The country is undergoing a political crisis, as well, and it seems that the forthcoming elections may be the only solution for the restoration of stability and social peace. In addition, tourism can be the driving force behind Bangladesh economic recovery. However, for its achievement the country’s policy makers should take several measures towards restructuring and improving the sector. These measures include: enhancement of alternative forms of tourism; environmental protection; creation of quality infrastructure; and boost of competitiveness through a tourism product that offers value for money

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