scholarly journals Caregiver burden in Buruli ulcer disease: Evidence from Ghana

2021 ◽  
Vol 15 (6) ◽  
pp. e0009454
Author(s):  
Yaw Ampem Amoako ◽  
Nancy Ackam ◽  
John-Paul Omuojine ◽  
Michael Ntiamoah Oppong ◽  
Abena Gyawu Owusu-Ansah ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Buruli Ulcer ◽  
Medical Intervention ◽  
Health Issues ◽  
Structured Interviews ◽  
Early Medical Intervention ◽  
Psychological Burden ◽  
Ulcer Disease ◽  
Caregiver Interventions ◽  
The Impact

Background Buruli ulcer disease (BUD) results in disabilities and deformities in the absence of early medical intervention. The extensive role of caregiving in BUD is widely acknowledged, however, associated caregiver burden is poorly understood. In this paper we assessed the burden which caregivers experience when supporting patients with BUD in Ghana. Method/ principal findings This qualitative study was conducted in 3 districts in Ghana between August and October 2019. 13 semi-structured interviews were conducted on caregivers of BUD patients in the local language of Twi. Data was translated into English, coded into broad themes, and direct content analysis approach was used to analyse results. The results show the caregivers face financial, psychological and health issues as a consequence of their caregiving role. Conclusion/ significance This study found significant caregiver burden on family members. It also highlighted the psychological burden caregivers experience and the limited knowledge of the disease within endemic communities. Further research is needed to quantify the caregiver burden of BUD at different economic levels in order to better understand the impact of possible caregiver interventions on patient outcomes.

scholarly journals Teaching health education

2017 ◽  
Vol 117 (3) ◽  
pp. 323-340 ◽  
Author(s):  
Karen Pickett ◽  
Willeke Rietdijk ◽  
Jenny Byrne ◽  
Jonathan Shepherd ◽  
Paul Roderick ◽  
...  
Keyword(s):  
Health Promotion ◽  
Health Education ◽  
Life Experience ◽  
Education Programme ◽  
Practical Experience ◽  
Early Career ◽  
Health Issues ◽  
Structured Interviews ◽  
Content Type ◽  
The Impact

Purpose The purpose of this paper is to understand early career teachers’ perceptions of the impact of a pre-service health education programme on their health promotion practice in schools and the contextual factors that influence this. Design/methodology/approach Semi-structured interviews were conducted with 14 primary and secondary trainee and qualified teachers who had trained at a university in England. Data were analysed using thematic analysis. Findings The teachers found the training to be a useful introduction, particularly when it was relevant to their practice. They valued gaining practical skills at university, on placement and in school once qualified. They reported that witnessing pupils’ lives in school had increased their awareness that health education is important. Their personal qualities, life experience, the school’s ethos and competing pressures influenced their practice. Teachers considered that building relationships with colleagues, pupils and parents facilitated health promotion, and that health education needs to be relevant to pupils. Some teachers expressed that teaching about health could be a “minefield”. They also discussed whether schools or parents are responsible for educating pupils about health issues and the place of health promotion within education’s wider purpose. Originality/value Few studies have followed-up trainee teachers once they are in teaching posts to explore the longer-term perceived impact of pre-service health education training. The findings suggest that teachers’ development takes place via an interaction between training and practice, suggesting that training could particularly aim to provide teachers with a contextualised understanding of health issues and practical experience.

Violence on Television and Imitative Behavior: Impact on Parenting Practices

PEDIATRICS ◽  
1985 ◽  
Vol 75 (6) ◽  
pp. 1120-1123
Author(s):  
Robert Wharton ◽  
Frederick Mandell
Keyword(s):  
Aggressive Behavior ◽  
Parenting Practices ◽  
Parental Behavior ◽  
Direct Consequence ◽  
Medical Intervention ◽  
Imitative Behavior ◽  
Specific Reference ◽  
Early Medical Intervention ◽  
Television Violence ◽  
The Impact

In the past 30 years, four federal government commissions have reported on the relationship between television violence and aggressive behavior. The latest report concluded categorically that there is a causal relationship between television violence and aggressive behavior. Two infants were seen at an emergency room as a direct consequence of their socially isolated single mothers seeing a particular made-for-television movie. In one case, the infant died as a possible result of a parent imitating an act of child abuse; in the other case, early medical intervention precluded possible tragedy. These cases illustrate another way in which children may be victimized by violence on television; namely, by parents imitating inappropriate parental behavior. The origins of imitative behavior are discussed with specific reference to the impact on vulnerable parents. The concept of media-influenced parenting behavior is presented and implications for physicians are discussed.

scholarly journals Responding to rural adversity: a qualitative study of alcohol and other drug service users’ experiences of service response to COVID-19 in Western Australia’s Southwest

2021 ◽  
pp. 103985622110361
Author(s):  
Mathew Coleman ◽  
Michael Taran ◽  
Beatriz Cuesta-Briand
Keyword(s):  
Qualitative Study ◽  
Rural Areas ◽  
Service Provision ◽  
Lived Experiences ◽  
Service Users ◽  
Health Issues ◽  
Structured Interviews ◽  
Mental Health Issues ◽  
Southwest Region ◽  
The Impact

Objective This study reports on the impact of the COVID-19 pandemic on the lived experiences of people with substance use problems in accessing services in the Southwest region of Western Australia, and its implications for preparedness in a context of rural adversity. Method This was a qualitative study informed by the principles of phenomenology. Data were collected through semi-structured interviews and subjected to thematic analysis. Results Twenty-two participants were interviewed. Two main themes were identified: disruption to supportive connections; and bridging the connection gap: local service response to the COVID-19 pandemic. Conclusions The COVID-19 pandemic restrictions exacerbated social isolation and mental health issues, and disrupted services and treatment in the Southwest. Our results demonstrate that local alcohol and other drug services in rural areas can successfully respond to crises by assertively and flexibly adapting their service provision.

scholarly journals Mental health and quality of life burden in Buruli ulcer disease patients in Ghana

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Yaw Ampem Amoako ◽  
Nancy Ackam ◽  
John-Paul Omuojine ◽  
Michael Ntiamoah Oppong ◽  
Abena Gyawu Owusu-Ansah ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Physical Health ◽  
Buruli Ulcer ◽  
Active Infection ◽  
Past Infection ◽  
Ulcer Disease ◽  
Self Reporting Questionnaire ◽  
The Impact

Abstract Background Buruli ulcer disease (BUD) is a necrotic skin neglected tropical disease (NTD) that has both a mental and physical health impact on affected individuals. Although there is increasing evidence suggesting a strong association between neglected tropical diseases (NTDs) and mental illness, there is a relative lack of information on BUD’s impact on the mental health and quality of life (QoL) of affected individuals in Ghana. This study is to assess the impact of BUD on mental health and quality of life of patients with active and past BUD infection, and their caregivers. Methods We conducted a case control study in 3 BUD endemic districts in Ghana between August and November 2019. Face-to-face structured questionnaire-based interviews were conducted on BUD patients with active and past infection, as well as caregivers of BUD patients using WHO Quality of Life scale, WHO Disability Assessment Schedule, Self-Reporting Questionnaire, Buruli Ulcer Functional Limitation Score and Hospital Anxiety and Depression Scale data tools. Descriptive statistics were used to summarize the characteristics of the study participants. Participant groups were compared using student t test and chi-square (χ2) or Fisher’s exact tests. Mean quality of life scores are reported with their respective 95% confidence intervals. Data was analysed using STATA statistical software. Results Our results show that BUD patients with active and past infection, along with their caregivers, face significant levels of distress and mental health sequelae compared to controls. Depression (P = 0.003) was more common in participants with active (27%) and past BU infection (17%), compared to controls (0%). Anxiety was found in 42% (11/26) and 20% (6/29) of participants with active and past BUD infection compared to 14% (5/36) of controls. Quality of life was also significantly diminished in active BUD infection, compared to controls. In the physical health domain, mean QoL scores were 54 ± 11.1 and 56 ± 11.0 (95% CI: 49.5‒58.5 and 52.2‒59.7) respectively for participants with active infection and controls. Similarly in the psychological domain, scores were lower for active infection than controls [57.1 ± 15.2 (95% CI: 50.9‒63.2) vs 64.7 ± 11.6 (95% CI: 60.8‒68.6)]. Participants with past infection had high QoL scores in both physical [61.3 ± 13.5 (95% CI: 56.1‒66.5)] and psychological health domains [68.4 ± 14.6 (95% CI: 62.7‒74.0)]. Conclusions BUD is associated with significant mental health distress and reduced quality of life in affected persons and their caregivers in Ghana. There is a need for integration of psychosocial interventions in the management of the disease. Graphic abstract

Evaluation of a co-facilitated information and learning programme for service users: the EOLAS programme

2019 ◽  
Vol 37 (2) ◽  
pp. 89-98 ◽  
Author(s):  
A. Higgins ◽  
C. Downes ◽  
M. Monahan ◽  
D. Hevey ◽  
F. Boyd ◽  
...  
Keyword(s):  
Peer Influence ◽  
Education Programme ◽  
Sequential Design ◽  
Service Users ◽  
Formal Learning ◽  
Health Issues ◽  
Structured Interviews ◽  
Mental Health Issues ◽  
The Difference ◽  
The Impact

Background:The co-production and co-facilitation of recovery-focused education programmes is one way in which service users may be meaningfully involved as partners.Objectives:To evaluate the impact of a clinician and peer co-facilitated information programme on service users’ knowledge, confidence, recovery attitudes, advocacy and hope, and to explore their experience of the programme.Methods:A sequential design was used involving a pre–post survey to assess changes in knowledge, confidence, advocacy, recovery attitudes and hope following programme participation. In addition, semi-structured interviews with programme participants were completed. Fifty-three participants completed both pre- and post-surveys and twelve individuals consented to interviews.Results:The results demonstrated statistically significant changes in service users’ knowledge about mental health issues, confidence and advocacy. These improvements were reflected in the themes which emerged from the interviews with participants (n = 12), who reported enhanced knowledge and awareness of distress and wellness, and a greater sense of hope. In addition, the peer influence helped to normalise experiences for participants, while the dual facilitation engendered equality of participation and increased the opportunity for meaningful collaboration between service users and practitioners.Conclusions:The evaluation highlights the potential strengths of a service user and clinician co-facilitated education programme that acknowledges and respects the difference between the knowledge gained through self-experience and the knowledge gained through formal learning.

scholarly journals THE IMPACT OF “TELE-SAVVY” ON THE CAREGIVING EXPERIENCE OF DEMENTIA FAMILY CAREGIVERS: QUALITATIVE FINDINGS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S871-S871
Author(s):  
Fayron Epps ◽  
Elizabeth Maloch ◽  
Patricia Griffiths ◽  
Ken Hepburn
Keyword(s):  
Usual Care ◽  
Family Caregivers ◽  
Controlled Trial ◽  
Attention Control ◽  
Care Group ◽  
Healthy Living ◽  
Structured Interviews ◽  
Active Attention ◽  
Caregiver Interventions ◽  
The Impact

Abstract Tele-Savvy is a 3-arm randomized controlled trial (RCT) of a psychoeducation intervention that equips family caregivers of people living with dementia with the knowledge and skills they need to provide care to their person, while also caring for themselves. This RCT is currently underway, with cohorts rotating through over a period of 12 months. The purpose of this presentation is to describe the effectiveness of Tele-Savvy (active) versus Healthy Living Intervention (attention control) or usual care (wait-list) on the caregiving experience among dementia family caregivers. We conducted semi-structured interviews with 16 caregivers at the 6 month time point and after their initial participation in either the active, attention control, or usual care groups. Interviews elicited caregivers’ perceptions regarding the program’s influence on their caregiving experience. Caregivers who participated in Tele-Savvy reported positive experiences such as recognizing that their experience has become more pleasurable and happier. They also shared that the program expanded their knowledge and allowed them to become patient while implementing caregiving strategies learned. Majority of caregivers who participated in the Healthy Living program indicated that nothing changed related to their caregiving experience. Half of the caregivers in the usual care group, expressed frustration and unhappiness, while the others expressed no change in their caregiving experience. Results suggest that psychoeducation caregiver interventions are meaningful and can enact positive changes in their outlook on caregiving. Thus, results of this study may guide future policies and further development of caregiver programs and interventions.

Living Through the Pandemic: The Voices of Persons With Dementia and Their Caregivers

2021 ◽  
pp. 073346482110363
Author(s):  
Kristin L. Rising ◽  
Venise J. Salcedo ◽  
Grace Amadio ◽  
Robin Casten ◽  
AnnaMarie Chang ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Risk Mitigation ◽  
Qualitative Content Analysis ◽  
Cognitive Impairments ◽  
Kappa Coefficient ◽  
Structured Interviews ◽  
Loved One ◽  
Memory Problems ◽  
The Impact ◽  
Detrimental Impact

Social-distancing guidelines from the COVID-19 pandemic have potential to compound morbidity in persons with dementia (PwD) and increase caregiver burden. This qualitative study utilized semi-structured interviews between August-November 2020 to explore the impact of COVID-19 on PwD and caregivers. Conventional qualitative content analysis was used. Inter-coder reliability was confirmed using the kappa coefficient. Twenty-five interviews were completed with four themes emerging: disruption of socialization, fear and risk mitigation, coping strategies, and caregiver burden. Participants described how lack of socialization and confinement led to feelings of loneliness, depression, and worsening memory problems. Caregivers reported increased burden and heightened feelings of responsibility for their loved one. Increased isolation imposed by the pandemic has a detrimental impact on PwD. Further work is needed to develop interventions to support PwD and other cognitive impairments and caregivers during the pandemic and when in-person socialization is not possible.

Impact and Challenges of Centres for Education and Community Action in Cameroon’s North West Region

2018 ◽  
Vol 8 (2) ◽  
pp. 51-74
Author(s):  
Fonteh Athanasius Amungwa
Keyword(s):  
Rural Development ◽  
Economic Crisis ◽  
Formal Education ◽  
Community Education ◽  
Sampling Technique ◽  
Community Action ◽  
Structured Interviews ◽  
North West ◽  
West Region ◽  
The Impact

This paper examines the impact of community education and challenges facing Centres for Education and Community Action as a rural development strategy in Cameroon. The study was conducted in the North-West Region of Cameroon, employing field observations, semi-structured interviews with key informants using a convenient sampling technique and through elaborate review of documents. These research instruments were blended into what is termed triangulation and the data collected was analysed descriptively. The main focus of qualitative analysis is to understand the ways in which people act and the accounts that people give for their actions. This paper posits that extreme dependence on the provision of Western formal education cannot solve the problems of a rapidly changing society like Cameroon, which is facing a long-term economic crisis and persistent unemployment issues of graduates. Consequently, education should be redefined in the context of the prevailing economic crisis to make it responsive to the aspirations of rural communities. Findings showed that community education had contributed towards rural development immensely but has suffered many challenges due to neglect of the field in the policy agenda. This paper recommends the integration of community education with formal education to facilitate group and community betterment in particular and rural transformation in general.

A general practice provider federation in a mixed health economy in England: a case study investigation

2018 ◽  
Vol 68 (suppl 1) ◽  
pp. bjgp18X696929
Author(s):  
Jill Mitchell
Keyword(s):  
General Practice ◽  
Shared Vision ◽  
Health Economy ◽  
Structured Interviews ◽  
The North ◽  
Common Strategy ◽  
Common Purpose ◽  
Collaborative Working ◽  
The Impact

BackgroundThere is an emerging debate that general practice in its current format is out-dated and there is a requirement to move to a federated model of provision where groups of Practices come together. The emergence of federations has developed over the past 5 years but the factors that influence how federations develop and the impact of this new model is an under researched area.AimThe study explored the rationale around why a group of independent GP practices opted to pursue an alternative business venture and the benefits that this strategy offered.MethodA single organisational case study of a federation in the North of England was conducted between 2011–2016. Mixed methods data collection included individual and group semi-structured interviews and quantitative surveys.ResultsFederations promote collaborative working, relying on strategic coherence of multiple individual GP practices through a shared vision and common purpose. Findings revealed many complexities in implementing a common strategy across multiple independent businesses. The ability of the federation to gain legitimacy was two dimensional – externally and internally. The venture had mixed successes, but their approach to quality improvement proved innovative and demonstrated outcomes on a population basis. The study identified significant pressures that practices were experiencing and the need to seek alternative ways of working but there was no shared vision or inclination to relinquish individual practice autonomy.ConclusionOrganisational development support is critical to reform General Practice. Whether central funding through the GP Five Year Forward View will achieve the scale of change required is yet to be evidenced.

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