Experiences and Support Needs for AAC Use and Self-Determination in Adults with Cerebral Palsy using Personal Assistant Service

2021 ◽  
Vol 9 (1) ◽  
pp. 27-58
Author(s):  
Ara Cho ◽  
Hyesin An ◽  
Eunhye Park
Keyword(s):  
Cerebral Palsy ◽  
Self Determination ◽  
Support Needs ◽  
Personal Assistant

“I'm Supposed to Be In Charge”: Self-Advocates' Perspectives on Their Self-Determination Support Needs

2011 ◽  
Vol 49 (5) ◽  
pp. 327-340 ◽  
Author(s):  
Stacy L Nonnemacher ◽  
Linda M Bambara
Keyword(s):  
Intellectual Disability ◽  
Social Influences ◽  
Social Supports ◽  
Qualitative Interview ◽  
Support Staff ◽  
Self Determination ◽  
Support Needs ◽  
Advocacy Group ◽  
Self Advocacy ◽  
Qualitative Interview Study

Abstract In this qualitative interview study, we explored the perceptions of adults with intellectual disability regarding interpersonal or social supports needed to express their own self-determination. Specifically, 10 adults, all members of a self-advocacy group, were asked to discuss their understanding of the term self-determination and ways in which support staff have either supported or inhibited their self-determination. Ten themes characterizing supportive and impeding staff actions were identified. The need for greater exploration of environmental and social influences on self-determination is emphasized.

Domestic spaces: uses and meanings in the daily lives of older people

2002 ◽  
Vol 22 (6) ◽  
pp. 729-749 ◽  
Author(s):  
JOHN PERCIVAL
Keyword(s):  
Older People ◽  
Large Scale ◽  
Qualitative Data ◽  
Sense Of Self ◽  
Self Determination ◽  
Sheltered Housing ◽  
Support Needs ◽  
Daily Lives ◽  
Domestic Spaces ◽  
Large Scale Survey

This paper examines older people's everyday routines and their implications for older people's uses and perceptions of domestic spaces in both mainstream and sheltered housing settings. It draws from qualitative data collected during a large-scale survey of the housing and support needs of older people, and specifically the responses of 60 informants to personal interviews. The findings are that domestic spaces have a significant influence on the scope that older people have to retain a sense of self-determination. It is shown that environmental defects, such as poorly configured domestic spaces, have consequences for older people's sense of continuity and choice. The conclusions are that domestic spaces are living spaces that embody personal and family-oriented priorities. It is suggested that older people require adequate, accessible and personalised domestic spaces in order to facilitate three important objectives: routines, responsibilities and reflection.

Development of Mathematics and Self-Determination Skills for Young Adults With Extensive Support Needs

2020 ◽  
pp. 002246692090276
Author(s):  
Deidre P. Gilley ◽  
Jenny R. Root ◽  
Sarah K. Cox
Keyword(s):  
Young Adults ◽  
Problem Solving ◽  
Task Analysis ◽  
Mathematical Problem ◽  
Functional Relation ◽  
Self Determination ◽  
Support Needs ◽  
Self Monitoring ◽  
Instructional Supports ◽  
Based Instruction

The purpose of this study was to support the development of mathematics and self-determination skills of young adults with extensive support needs. Mathematical problem solving is a natural context for teaching two component skills of self-determination: self-monitoring and goal setting. Three young adults with extensive support needs (i.e., autism and intellectual disability) were taught to solve real-world thematic word problems using modified schema-based instruction (MSBI). To build self-determination skills, participants self-monitored completion of problem-solving steps using a task analysis, self-graphed steps completed independently correct and then set goals for subsequent sessions. Generalization was measured within the context of scaling ingredients from a recipe without instructional supports of a task analysis or graphic organizer. Results of the multiple probe across participants design indicate a functional relation between MSBI and steps of problem solving completed independently correct. Implications for practice and research are discussed.

Evaluating the Effects of Performance-Focused Swimming Training on People with Cerebral Palsy Who Have High Support Needs – A Study Protocol Using Single-Case Experimental Design

2019 ◽  
Vol 21 (2) ◽  
pp. 217-234
Author(s):  
I. M. Dutia ◽  
M. J. Connick ◽  
E. M. Beckman ◽  
L. M. Johnston ◽  
P. J. Wilson ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Experimental Design ◽  
Single Case ◽  
Phase 1 ◽  
Maintenance Phase ◽  
Support Needs ◽  
Training Phase ◽  
Phase 2 ◽  
Swimming Training ◽  
High Support

AbstractBackground:People with cerebral palsy (CP) are less physically active than the general population and, consequently, are at increased risk of preventable disease. Evidence indicates that low-moderate doses of physical activity can reduce disease risk and improve fitness and function in people with CP. Para athletes with CP typically engage in ‘performance-focused’ sports training, which is undertaken for the sole purpose of enhancing sports performance. Anecdotally, many Para athletes report that participation in performance-focused sports training confers meaningful clinical benefits which exceed those reported in the literature; however, supporting scientific evidence is lacking. The aim of this paper is to describe the protocol for an 18-month study evaluating the clinical effects of a performance-focused swimming training programme for people with CP who have high support needs.Methods:This study will use a concurrent multiple-baseline, single-case experimental design across three participants with CP who have high support needs. Each participant will complete a five-phase trial comprising: baseline (A1); training phase 1 (B1); maintenance phase 1 (A2); training phase 2 (B2); and maintenance phase 2 (A3). For each participant, measurement of swim velocity, health-related quality of life and gross motor functioning will be carried out a minimum of five times in each of the five phases.Discussion:The study described will produce Level II evidence regarding the effects of performance-focused swimming training on clinical outcomes in people with CP who have high support needs. Findings are expected to provide an indication of the potential for sport to augment outcomes in neurological rehabilitation.

Implementing the SDLMI With Students With Significant Support Needs During Transition Planning

2019 ◽  
Vol 43 (2) ◽  
pp. 115-121 ◽  
Author(s):  
Kathryn M. Burke ◽  
Karrie A. Shogren ◽  
A. Anthony Antosh ◽  
Terri LaPlante ◽  
Laurie H. Masterson
Keyword(s):  
Postsecondary Education ◽  
Goal Setting ◽  
Transition Planning ◽  
Critical Role ◽  
Self Determination ◽  
Support Needs ◽  
Teaching Model ◽  
Transition From High School ◽  
Communication Needs ◽  
Significant Support

Self-determination, defined by acting as the causal agent in one’s life, plays a critical role in the transition from high school to postsecondary education, employment, and community living for all students, including students with significant support needs. The Self-Determined Learning Model of Instruction (SDLMI) is a teaching model designed to enable teachers to promote self-determined action by focusing on the goal setting and attainment process. In this article, we focus specifically on the implementation of the SDLMI with students with significant support needs, including those who have complex communication needs. We describe the SDLMI process in detail with specific examples for implementation with students with significant support needs based on several recent research studies.

Is health a priority? Examining health-related support needs in adults with intellectual disability through a self-determination framework

2021 ◽  
pp. 174462952110096
Author(s):  
Romina Rinaldi ◽  
Jordan Duplat ◽  
Marie-Claire Haelewyck
Keyword(s):  
Intellectual Disabilities ◽  
Psychological Health ◽  
Self Determination ◽  
Health Needs ◽  
Support Needs ◽  
Major Health ◽  
Health Related ◽  
People With Intellectual Disabilities ◽  
A Priority ◽  
Adults With Intellectual Disabilities

Background: People with intellectual disabilities experience inequities in healthcare. Those are maintained by individual limitations as well as environmental factors. In this context, health needs are less likely to be expressed, identified and met. Method: We led a survey in 832 adults with intellectual disabilities to identify if health was set as a priority and if so, what were their major health-related support needs (in terms of physical, social and psychological health). Results: 67.1% of participants reported at least one need. Most frequently, two or more types of needs were reported with gender and living facility having an effect on whether participants would report these needs, but these did not affect which type of needs were reported. Conclusions: Health-related support needs are highly prevalent and diversified in people with intellectual disabilities. This study emphasizes the importance to consider health as a global concept as well as the relationships between health and self-determination.

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