Quality of life of patients on chronic parenteral nutrition before and after gastrointestinal tract continuity restoration

2015 ◽  
Vol 87 (4) ◽  
Author(s):  
Michał Ławiński ◽  
Edyta Kot-Mielczarska ◽  
Aleksandra Gradowska

AbstractThe issue of the quality of life considering patients with a temporary or permanent intestinal stoma, as well as the necessity for chronic parenteral nutrition at home remain a poorly understood problem. Daily care of the intestinal stoma and the need to comply with sterile procedures required for parenteral nutrition require such patients to commit their time, which secondarily is associated with the broad aspects of social and personal life.The aim of the study was to analyse the quality of life considering patients with intestinal stomas subjected to chronic parenteral nutrition, before and after gastrointestinal tract continuity restoration.Material and methods. The survey was conducted between May and July, 2014 on a group of 71 patients (33 female and 38 male) who were under the care of the Department of General Surgery and Clinical Nutrition, Warsaw Medical University, operated during the period between 2007 and July, 2014 with a present stoma (32 patients - 45%), as well as after stoma closure (39 patients - 55%). The analysed questionnaire contained 31 questions, and the SF-36 questionnaire was additionally used, determining the quality of life.Results. Analysis of the study material showed differences in the quality of life, considering three most important determinants. Significantly worse assessment of the quality of life was reported by patients with a stoma and subject to intravenous nutrition (83.2±30.5), as compared to those after stoma closure subject to normal nutrition (52.3±33.8). Based on the SF-36 questionnaire differences between patients with a stoma and those without amounted to t(69)=2.84 (p=0.006) demonstrating that those with a stoma reported a lower quality of life. Analysis between younger and older patients, based on the SF-36 questionnaire (t(62.87)=2.49; p=0.016) showed that younger patients achieved lower results, considering dissatisfaction with life (61.55±27.5), as compared to the elderly (80.8±36.9).Conclusions. The group of patients without a stoma seem to be more independent- the vast majority do not use the help of family members (43.6%), or friends (64.1%). Patients with a stoma more often withdraw from social life. The factor that mostly reduces the quality of life is the presence of a stoma, which impairs daily functioning a lot more than the sterile procedures associated with parenteral nutrition. All patients after stoma closure consider that their overall functioning has significantly improved.

2020 ◽  
Vol 2020 ◽  
Author(s):  
Hiroko Tadaura ◽  
Norbert Feldmann ◽  
Sabine Bartholomeyczik ◽  
Niu Kaijun ◽  
Ryoichi Nagatomi ◽  
...  

Background: The number of elderly people having physical disabilities and other chronic diseases has dramatically increased with the rapid aging of society. The importance of the care has been noticed again from the viewpoint of the prevention, and the effective care is expected for both sides to be assisted Kinästhetik/Kinaesthetics (hereinafter, referred to as Kinesthetics) and is noticed. The purpose of this study was to clarify the relationship between QOL and Kinsesthetics by conducting a comparative study on QOL, pain, and sensation of movement for elderly people under long-term medical treatment, and nurses and caregivers working at the same hospital and nursing homes.Methods: The subjects were elderly people, nurses and caregivers in geriatric wards of general hospitals and nursing homes in Austria, Germany, where Kinaesthetics clinical practice has been introduced the longest. We analyzed data from VSA-QOL (Visual Analog Scale for Quality of Life), SDS (Symptom Distress Scale) modified, pain (Numerical Rating Scale: NRS-Pain), Kinesthetic senses before and after assisting with movement, medical record surveys, functional evaluation BI (Barthel-Index), and Braden Scale for the elderly. SF -36 v2, pain (NRS-Pain) before and after the movement assistance, Kinesthetic senses in the movement support, problem on the health and countermeasure, and Kinaesthetics mastery situation were analyzed for nurses and caregivers. SOPMAS (Structure of the Observed Patient Movement Assistance Skill) evaluation was also carried out for both subjects.Results: The subjects were included in 115 elderly people of Kinaesthetics group, 34 Non-Kinaesthetics group, 149 nurses and caregivers of Kinaesthetics group, and 46 nurses and caregivers of Non-Kinaesthetics group. The QOL of the elderly in the Kinaesthetics group was significantly improved after 1 month (p=0.03). The eldely in the Kinaesthetics group showed a significant improvement for SDS after 1 month (p=0.01). There was a significant difference for Bowel in SDS in repeated measures analysis of variance (spherical assumption; time x group) (p=0.01). SF -36 v2 of Nurses and caregivers using Kinaesthetics showed a significant difference in the role emotional (p=0.04). The level of pain before and movement assistance (NRS) was further significantly enhanced in the Non-Kinaesthetics group. The muscle strain was significantly higher in the Non- Kinaesthetics group for both the elderly and nurses (p=0.01).Conclusion: Kinaesthetics applications enhance QOL among the elderly, nurses, and caregivers in Germany and Austria.


2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Davide Cappon ◽  
Agata Ryterska ◽  
Harith Akram ◽  
Susie Lagrata ◽  
Sanjay Cheema ◽  
...  

Abstract Background Cluster headache (CH) is a trigeminal autonomic cephalalgia (TAC) characterized by a highly disabling headache that negatively impacts quality of life and causes limitations in daily functioning as well as social functioning and family life. Since specific measures to assess the quality of life (QoL) in TACs are lacking, we recently developed and validated the cluster headache quality of life scale (CH-QoL). The sensitivity of CH-QoL to change after a medical intervention has not been evaluated yet. Methods This study aimed to test the sensitivity to change of the CH-QoL in CH. Specifically we aimed to (i) assess the sensitivity of CH-QoL to change before and following deep brain stimulation of the ventral tegmental area (VTA-DBS), (ii) evaluate the relationship of changes on CH-QoL with changes in other generic measures of quality of life, as well as indices of mood and pain. Ten consecutive CH patients completed the CH-QoL and underwent neuropsychological assessment before and after VTA-DBS. The patients were evaluated on headache frequency, severity, and load (HAL) as well as on tests of generic quality of life (Short Form-36 (SF-36)), mood (Beck Depression Inventory, Hospital Anxiety and Depression Rating Scale), and pain (McGill Pain Questionnaire, Headache Impact Test, Pain Behaviour Checklist). Results The CH-QoL total score was significantly reduced after compared to before VTA-DBS. Changes in the CH-QoL total score correlated significantly and negatively with changes in HAL, the SF-36, and positively and significantly with depression and the evaluative domain on the McGill Pain Questionnaire. Conclusions Our findings demonstrate that changes after VTA-DBS in CH-QoL total scores are associated with the reduction of frequency, duration, and severity of headache attacks after surgery. Moreover, post VTA-DBS improvement in CH-QoL scores is associated with an amelioration in quality of life assessed with generic measures, a reduction of depressive symptoms, and evaluative pain experience after VTA-DBS. These results support the sensitivity to change of the CH-QoL and further demonstrate the validity and applicability of CH-QoL as a disease specific measure of quality of life for CH.


2006 ◽  
Vol 64 (1) ◽  
pp. 20-23 ◽  
Author(s):  
Mara Renata Fernandes ◽  
Luciane B.C. Carvalho ◽  
Gilmar F. Prado

CONTEXT: Hemiparesia changes quality of life of patients with stroke making difficult a normal life. OBJECTIVE: To evaluate the effect of Functional Eletric Orthesis (FEO) applied over the paretic leg in the quality of life of stroke patients. METHOD: The quality of life of 50 stroke patients of Associacao de Assistencia a Crianca Deficiente (AACD) was evaluated with SF-36 questionnaire before and after the treatment with a FEO for rehabilitation of walking. We analyzed data according to gender and affected hemisphere. RESULTS: The average values from all domains of SF-36 improved significantly (p<0.001). Female patients improved more than male in Emotional Domain (p=0.04) and presented a trend to be better regarding Bodily Pain and Social Functioning. Patients with right hemiparesia improved more than those with left hemiparesia (p=0.02). CONCLUSION: FEO over a paretic leg is efficient to improve quality of life of stroke patients, mainly Physical Functioning.


2021 ◽  
Vol 28 (12) ◽  
pp. 1-8
Author(s):  
Burak Yilmaz ◽  
Cagtay Maden ◽  
Begümhan Turhan

Background/aims Workers engaged in vehicle spray painting are at a risk of developing respiratory problems because of the solvents in the spray paints. Changes in respiratory functions and functional capacities caused by spray painting can be improved with respiratory exercises. The aim of this study was to examine the effects of respiratory exercises on the respiratory functions, functional capacity and quality of life in vehicle spray painters. Methods A total of 70 volunteers with similar characteristics participated in the study. The groups were divided into two groups randomly (35 study group, 35 control group). Respiratory functions (value of forced expiratory volume percentage in 1 second [FEV1]), forced vital capacity percentage [FVC], FEV1/FVC percentage, peak expiratory flow percentage [PEF (%)] and maximum voluntary ventilation percentage [MVV (%)]), functional capacity (6-Minute Walk Test) and quality of life (Short Form Health Survey [SF-36]) were evaluated. The study group undertook supervised breathing exercises 3 days a week for 6 weeks. The same exercises were given to the control group as a home programme. Home programmes were followed up by telephone calls. Evaluations were performed again after 6 weeks. Results In the study group, FEV1 (%) increased more than in the control group (P<0.05). The increase in PEF (%) was similar in both groups (P>0.05). In the study group, FEV1/FVC (%) and MVV (%) were significantly different before and after the intervention (P<0.05), but there was no difference in the control group (P>0.05). There was a greater increase in the study group than in the control group (P<0.05). 6-Minute Walk Test distance (m) before and after the intervention in both groups were similar (P>0.05). Before and after the intervention, a significant difference was found in the vitality and the social function domains of the SF-36 in the study group. In the comparisons of groups, a significant difference was found in the study group in the role-emotional, social function and bodily pain domains of the SF-36 after the intervention (P<0.05). Conclusions Breathing exercises can be recommended for vehicle spray painters to avoid an increase in respiratory resistance and to improve their quality of life.


2010 ◽  
Vol 22 (8) ◽  
pp. 1353-1361 ◽  
Author(s):  
Ehud Bodner ◽  
Sara Cohen-Fridel

ABSTRACTBackground: This study is the first to explore the relations between attachment styles, ageism, and quality of life (QoL) among elderly people. The attachment theory describes how human beings relate to each other, according to their attachment style. Previous studies have examined the connection between attachment styles and prejudice toward distinctive social groups and minorities. Ageism as a form of prejudice is a way of relating negatively to people because they are old. QoL among the elderly was found to be associated with negative age-perceptions. It was therefore hypothesized that QoL, attachments styles, and demographic characteristics can explain ageism among the elderly.Methods: Four questionnaires were administered: Fraboni Scale of Ageism (FSA), which comprises four scales (separation, affective, stereotype, and intergeneration); Experiences in Close Relationships Scale, which measures four attachment styles (secure, dismissive, fearful, and preoccupied); SF-36 health status inventory (eight scales); and sociodemographic questions. Ninety-four elderly men and women aged 64–85 years living in the community completed the questionnaires.Results: MANCOVAS indicated that securely attached individuals score higher on separation than fearfully attached individuals, and that securely and dismissively attached individuals score higher than fearful and preoccupied individuals on seven QoL scales. Multiple regression analyses showed that attachment styles, age, gender, and some QoL scales contribute to the explained variance of ageism.Conclusions: Secure attachment in late life seems to be related to less ageism and a better QoL. The enhancement of a secure attachment base in elderly people may assist in moderating ageism and improving older people's QoL.


2020 ◽  
Vol 19 (3) ◽  
pp. 202
Author(s):  
Natália Rodrigues Dos Reis ◽  
Leandro De Oliveira Sant'Ana ◽  
Felipe Faria Da Costa ◽  
Aline Aparecida De Souza Ribeiro ◽  
Yuri De Almeida Costa Campos ◽  
...  

Introduction: Aging is defined as a progressive process with biological, psychological and social changes. Objective: To identify the indicators of adherence, motivations and benefits perceived by elderly people in the gym for the elderly. Methods: 30 elderly (21 women) participated (67 ± 4 years; 76 ± 3 kg; 164 ± 7 cm; 28 ± 2 kg/m2). An individual interview was conducted, guided by questions related to the object of study. The data obtained were treated using the content analysis technique of the Bardin method. Results: For the adherence indicators, a better health condition (90%), quality of life (76%), quality of sleep (73%) and reduction of stress and weight (63%) were identified. For motivation the answers were to make new friends and get out of solitude (100%) as well as living with people of the same age group (95%). And the perceived benefits were pain reduction (27%), increased muscle capacity (25%), autonomy (21%), functional capacity (20%), balance (18%), flexibility (14%) and what all the individuals realized there was a significant improvement in quality of life (100%). Conclusion: The main indicators of adherence were health and quality of life, the motivational factors were to reduce loneliness and to increase social life, and among the most reported benefits were quality of life and health.Keywords: elderly gym, physical exercise, health.


2009 ◽  
Vol 25 (10) ◽  
pp. 2159-2167 ◽  
Author(s):  
Margareth Guimarães Lima ◽  
Marilisa Berti de Azevedo Barros ◽  
Chester Luiz Galvão César ◽  
Moisés Goldbaum ◽  
Luana Carandina ◽  
...  

As life expectancy continues to rise, one of the greatest challenges of public health is to improve the quality of later years of life. The aim of this present study was to analyze the quality of life profile of the elderly across different demographic and socioeconomic factors. A cross-sectional study was carried out in two stages, involving 1,958 individuals aged 60 years or more. Health related quality of life (HRQOL) was assessed using the SF-36 questionnaire. The lowest scores were found among measures for vitality, mental health and general health and the highest among factors including social functioning and role limitations due to emotional and physical factors. HRQOL was found to be worse among women, in individuals at advanced ages, those who practiced evangelical religions and those with lower levels of income and schooling. The greatest differences in SF-36 scores between the categories were observed in functional capacity and physical factors. The results suggest that healthcare programs for the elderly should take into account the multi-dimensionality of health and social inequalities so that interventions can target the most affected elements of HRQOL as well as the most vulnerable subgroups of the population.


2021 ◽  
pp. 26-33
Author(s):  
Alexey Viktorovich Shapovalov ◽  
Sergey Grigoryevich Tereshchenko ◽  
Anton Pavlovich Bogdanov ◽  
Pavel A. Krieger ◽  
Alexey Sergeevich Shapovalov

Dysphagia affects our most basic functions — the ability to eat and drink. It negatively affects the quality of life of patients, especially in the elderly, which can lead to exhaustion, dehydration, aspiration pneumonia and, ultimately, death. Dysphagia and its severity should be assessed accurately and in a timely manner. Many questionnaires have been proposed to monitor the severity and effectiveness of dysphagia therapy. This paper analyzes ten different self-assessment questionnaires for quality of life. Almost all currently available questionnaires need to be finalized. Based on the DHI (Dysphagia Disability Index) questionnaire, we proposed a special questionnaire that has a number of advantages over the others, it takes into account the age of patients, is universal, and is also suitable for assessing dysphagia, both before and after treatment.


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