scholarly journals Muscular weakness represents the main limiting factor of walk, functional independence and quality of life of myelopathy patients associated to HTLV-1

2016 ◽  
Vol 74 (4) ◽  
pp. 280-286 ◽  
Author(s):  
Renata Costa Caiafa ◽  
Marco Orsini ◽  
Lilian R. Felicio ◽  
Marzia Puccioni-Sohler
Keyword(s):  
Quality Of Life ◽  
Functional Capacity ◽  
Short Form ◽  
Functional Dependence ◽  
Functional Independence ◽  
Lower Limbs ◽  
Daily Activities ◽  
Limiting Factor ◽  
Adductor Muscles

ABSTRACT HTLV-1-associated myelopathy is a progressive disabling disease associated with gait abnormalities. Objective To identify and quantify the main muscles affected by weakness and spasticity, their impact on gait, functional capacity and on quality of life of HTLV-1-associated myelopathy patients. Method We evaluated lower limbs muscular strength according to the Medical Research Council scale, spasticity according to the modified Ashworth scale, daily activities according to the Barthel Index and quality of life according to the Short-Form Health Survey-36 of 26 HTLV-1-associated myelopathy patients. Results The muscles most affected by weakness included the dorsal flexors and knee flexors. Spasticity predominated in the hip adductor muscles and in plantar flexors. Assistance for locomotion, minimal dependence in daily activities, limitations in functional capacity and physical aspects were the most common findings. Conclusion The impairment of gait, functional dependence and quality of life were predominantly a consequence of intense muscle weakness in HTLV-1-associated myelopathy patients.

scholarly journals The impact of symptoms on daily life as perceived by patients with Charcot-Marie-Tooth type 1A disease

2021 ◽  
Author(s):  
Stefano Tozza ◽  
Dario Bruzzese ◽  
Daniele Severi ◽  
Emanuele Spina ◽  
Rosa Iodice ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Daily Life ◽  
Short Form ◽  
Lower Limbs ◽  
Charcot Marie Tooth ◽  
Rank Analysis ◽  
Sf 36 ◽  
Tooth Type ◽  
The Impact

Abstract Introduction In Charcot-Marie-Tooth type 1A (CMT1A) patients, daily life is mainly influenced by mobility and ambulation dysfunctions. The aim of our work was to evaluate the perception of disturbances that mostly impact on daily life in CMT1A patients and its difference on the basis of age, gender, disability, and quality of life. Methods Forty-one CMT1A patients underwent neurological assessment focused on establishing clinical disability through the Charcot-Marie-Tooth Neuropathy Score (CMTNS) and quality of life through the Short Form-36 (SF-36) questionnaire. We identified from CMT disturbances 5 categories [weakness in lower limbs (WLL), weakness in upper limbs (WUL), skeletal deformities (SD), sensory symptoms (SS), balance (B)] and patients classified the categories from the highest to the lowest impact on daily life (1: highest; 5: lowest). Ranking of the 5 categories, in the overall sample and in the different subgroups (dividing by gender, median of age and disease duration, CMTNS, domains of SF-36), was obtained and differences among subgroups were assessed using a bootstrap approach. Results Rank analysis showed that WLL was the most important disturbance on daily life whereas WUL had the lowest impact. In the older CMT1A group, the most important disturbance on daily life was B that was also the most relevant disturbance in patients with a greater disability. SD influenced daily life in younger patients. SS had less impact on daily life, with the exception of patients with a milder disability. Discussion Our findings demonstrated that the perception of disturbances that mostly impact on CMT1A patients’ daily life changes over the lifetime and with degree of disability.

Long-term Neurological Outcome and Quality of Life after World Federation of Neurosurgical Societies Grades IV and V Aneurysmal Subarachnoid Hemorrhage in an Interdisciplinary Treatment Concept

Neurosurgery ◽  
2017 ◽  
Vol 80 (6) ◽  
pp. 967-974 ◽  
Author(s):  
Christoph Schwartz ◽  
Thomas Pfefferkorn ◽  
Caroline Ebrahimi ◽  
Caroline Ottomeyer ◽  
Gunther Fesl ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Functional Outcome ◽  
Short Form ◽  
Functional Independence ◽  
World Federation ◽  
Long Term Survivors ◽  
Short Form Health

Abstract BACKGROUND: Detailed data on long-term functional outcome of patients with World Federation of Neurosurgical Societies (WFNS) grades IV and V aneurysmal subarachnoid hemorrhages (aSAH) are still scarce. OBJECTIVE: Assessment of long-term outcome of WFNS IV and V aSAH patients. METHODS: Functional outcome and quality of life were assessed by the modified Rankin scale (mRS) and the 36-item short-form health survey in consecutively treated aSAH WFNS IV and V patients between 2005 and 2010. Scores from the 36-item short-form health survey were compared to a healthy German population. Prognostic factors were analyzed by uni- and multivariate models. RESULTS: One hundred and seven eligible patients (median age: 53.0 years) were identified. After interdisciplinary consensus on optimal treatment, aneurysms were obliterated either by clipping (n = 35) or by coiling (n = 72). Ten patients were lost to long-term follow-up; the median clinical follow-up period was 3.2 years for the remaining 97 cases. Twenty-five of 97 died during the acute hospital phase and another 10 patients over the follow-up period leaving 62 long-term survivors. At the end of clinical follow-up, 40/97 patients, including 40/62 of long-term survivors, reached functional independence (mRS ≤ 2). Twelve of 97 patients were moderately (mRS = 3), 10/97 patients were severely disabled (mRS ≥ 4). Younger age (≤ 53 years; P = .001) and radiological absence of cerebral infarction (P = .03) were the strongest predictors for favorable outcome. Quality of life was perceived to be only moderately reduced compared to the healthy control group. CONCLUSION: Poor-grade aSAH is not necessarily associated with poor long-term functional outcome; after aneurysm repair ∼60% of patients survived and among long-term survivors ∼ 60% regained functional independence.

Relationship between eating behavior, quality of life and weight regain in women after bariatric surgery

2021 ◽  
Author(s):  
Talita Nogueira Berino ◽  
Aline Leão Reis ◽  
Manuela Maria de Lima Carvalhal ◽  
Jeane Lorena Lima Dias ◽  
Rachel Coêlho Ripardo Teixeira ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Eating Behavior ◽  
Functional Capacity ◽  
Weight Regain ◽  
Short Form ◽  
Frequent Pattern ◽  
Adult Women ◽  
Inverse Association ◽  
Physical Components

Abstract PurposeEvaluate the relationship between eating behavior, perception of Quality of Life (QOL) and weight regain in women after 24 months of bariatric surgery.MethodsTransversal study carried out with 50 adult women. Sociodemographic, anthropometric, eating behavior (Three Factor Eating Questionnaire - TFEQ-21) and perception of QOL (Item Short Form Healthy Survey - SF-36) data were collected.ResultsIn 60% (n = 30) there was weight regain (≥ 15%), with a mean weight regain of 23.3% (± 18.4). Emotional eating was the most frequent pattern (p = 0.047) in groups with and without weight regain. Regarding QOL, the functional capacity and limitation due to physical aspects domains had a better perception (p < 0.0001). Women without weight regain showed a better perception of the functional capacity aspects (p = 0.007), limitation due to physical aspects (p = 0.044), social aspects (p = 0.048) and general physical components (p = 0.016). Weight regain was associated with uncontrolled eating habits (p = 0.041) and also had an inverse association with the perception of QOL in physical components (p = 0.008).ConclusionWeight regain can damage the perception of QOL, especially physical capacity. Long-term follow-up is essential to evaluate the behavior of people who have undergone BS, in order to prevent weight regain and QOL damage.Level III - Case-control analytic study.

Impact of Lower Limb Fractures on the Quality of Life

2019 ◽  
Vol 21 (1) ◽  
pp. 33-40
Author(s):  
Marilia de Andrade Fonseca ◽  
Amanda Gilvani Cordeiro Matias ◽  
Maria de Lourdes de Freitas Gomes ◽  
Marcos Almeida Matos
Keyword(s):  
Quality Of Life ◽  
Functional Capacity ◽  
Lower Limb ◽  
Lower Limbs ◽  
Prolonged Treatment ◽  
Level Of Education ◽  
Lower Limb Fractures ◽  
Limb Fractures ◽  
Emotional Impairment

Background. Lower limb fractures are associated with severe disability, prolonged treatment and recovery time, and account for the greatest number of surgical procedures. Studies focusing on the health related quality of life (HRQOL) of patients who sustained lower limb fractures at a productive age are still scarce. The aim of the present study was to assess the HRQOL of individuals who sustained lower limb fractures at two time points: during the acute trauma period (hospitalization) and after six months. Materials and methods. A prospective observational longitudinal study was conducted including a total of 121 patients aged 18 years or older with fractures in the lower limbs evaluated based on clinical and sociodemographic variables and using the HRQOL questionnaire SF-36. The data were collected from referral trauma hospitals in two stages: during hospitalization (in-hospital period) and from the same individuals six months after the first interview. Results. At six months following the trauma, significant differences were found for the domains of functional capacity (from 2.77±7.82 to 51.11±28.43), pain (47.51±35.51 to 74.29±21.63), and emotional impairment (57.01±47.62 to 91.22±22.92) in the study period. However, no improvement was observed in the domains of physical limitations and social aspects. There was significant association for the domain “Pain” with age, level of education, and rehabilitation; the domain “Emotional impairment” was associated with treatment within 10 hours, level of education, and immediate osteosynthesis. At six months, only functional capacity exhibited significant associations with the level of education and rehabilitation. Conclusion. Lower limb fractures have a negative impact on the HRQOL that persists for at least six months after the traumatic event and is reflected in the psychosocial, physical and emotional burden imposed by the trauma.

scholarly journals Impact of lian gong on the quality of life of individuals with dizziness in primary care

2019 ◽  
Vol 53 ◽  
pp. 73
Author(s):  
Aline Lamas Lopes ◽  
Stela Maris Aguiar Lemos ◽  
Pedro Henrique Scheidt Figueiredo ◽  
Juliana Nunes Santos
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Functional Capacity ◽  
Short Form ◽  
Control Group ◽  
Short Form Health Survey ◽  
Primary Health ◽  
Form Health ◽  
Short Form Health

OBJECTIVE: To assess the effects of the lian gong practice as a rehabilitation strategy in primary health care on the quality of life and functional capacity of people with dizziness. METHODS: Randomized controlled clinical trial. Thirty-six people, who were complaining of dizziness or vertigo without the presence of central signs and were referred by the physician of primary health care participated in the study. The individuals were randomly allocated to the three experimental conditions: lian gong group (n = 11), vestibular rehabilitation group (n = 11) and control group (n = 14). The interventions were weekly, in group, with duration of 12 sessions. The participants were evaluated before and after the intervention regarding quality of life by the 36-Item Short Form Health Survey and the functional capacity by the Short Physical Performance Battery. RESULTS: The scores of all domains of the Short Form Health Survey increased after intervention in the lian gong group. This variation was higher than that observed in the control group for the domains functional capacity, limitation by physical aspects and general health status, and also higher than that found after the intervention in the Vestibular Rehabilitation Group regarding pain. No differences were found in the Short Physical Performance Battery. CONCLUSIONS: Based on the results presented, lian gong improves the quality of life of individuals with dizziness, without altering the functional capacity.

scholarly journals Pulmonary rehabilitation and tuberculosis: a new approach for an old disease

Pneumologia ◽  
2019 ◽  
Vol 68 (3) ◽  
pp. 107-113
Author(s):  
Beatrice Mahler ◽  
Alina Croitoru
Keyword(s):  
Quality Of Life ◽  
Muscle Weakness ◽  
Pulmonary Rehabilitation ◽  
Functional Independence ◽  
Daily Activities ◽  
New Approach ◽  
Antituberculous Treatment ◽  
Long Time ◽  
The Impact

Abstract Tuberculosis (TB) is still a leading cause of morbidity and mortality worldwide. The impact on patient’s life is significant, leading to physical, mental and social deconditioning, not only in active TB but also in post TB sequela. Although with specific antituberculous treatment sputum negativity can be achieved, TB extrapulmonary symptoms such as cachexia, muscle weakness and depression may persist for a long time. The pulmonary rehabilitation (PR) may be a useful tool in this patient’s therapy in active and also in sequela phase. The benefits of PR are: reducing symptomatology, improving the degree of functional independence and quality of life, and increasing the ability to perform daily activities. This article discusses the components of a PR programme in active TB and TB sequela, and the results obtained by studies so far.

scholarly journals Factors associated with health-related quality of life for adults with stroke sequelae

2011 ◽  
Vol 69 (2b) ◽  
pp. 371-376 ◽  
Author(s):  
K S S O Fróes ◽  
M T M Valdés ◽  
D P L O Lopes ◽  
C E P Silva
Keyword(s):  
Quality Of Life ◽  
Depressive Symptoms ◽  
Social Participation ◽  
Short Form ◽  
Functional Independence ◽  
Rehabilitation Program ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

OBJECTIVE: To assess health-related quality of life (HRQoL) among adults with stroke sequelae and to identify the factors that influenced the domains of HRQoL. METHOD: The subjects were adults with stroke who were admitted to a rehabilitation program between March and August 2008. They were investigated using the following instruments: Medical Outcomes 36-Item Short-Form Health Survey (SF-36), Functional Independence Measure (FIM) and Beck Depression Inventory (BDI). Sixty-four adults of mean age 58.8 years were evaluated. RESULTS: The individuals who had had their injuries for longer times and who were more independent and younger had better HRQoL regarding physical functioning. Social participation was associated with better HRQoL, and there was a difference between groups with and without depressive symptoms. CONCLUSION: HRQoL was compromised primarily with regard to functional characteristics. Moreover, the presence of depressive symptoms contributed towards a decline in HRQoL. Rehabilitation needs to focus on improving functionality and social participation, which may stimulate reductions in depressive symptoms and improvement of HRQoL.

Effects of Kinesio Taping and compression stockings on pain, edema, functional capacity and quality of life in patients with chronic venous disease: a randomized controlled trial

2020 ◽  
Vol 34 (6) ◽  
pp. 783-793
Author(s):  
Baha Naci ◽  
Semiramis Ozyilmaz ◽  
Nadir Aygutalp ◽  
Rengin Demir ◽  
Gul Baltaci ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Functional Capacity ◽  
Short Form ◽  
Chronic Venous Disease ◽  
Control Group ◽  
Venous Disease ◽  
Compression Stockings ◽  
Kinesio Taping ◽  
Experimental Group

Objective: The aim of this study was to compare the effects of Kinesio Taping and compression stockings on pain, edema, functional capacity and quality of life in patients with chronic venous disease (CVD). Design: This is a prospective, randomized, controlled, single-blind clinical trial. Setting: The study was conducted in a physiotherapy and rehabilitation unit of a university hospital. Subjects: A total of 62 patients with early-stage CVD were allocated to either an experimental group or a control group. Interventions: Experimental group ( n = 29) received Kinesio Taping intervention once a week for four weeks, while control group ( n = 29) received compression stockings for four weeks. All patients additionally undertook an exercise training programme including calf muscle pump exercises, flexibility exercises and diaphragmatic breathing. Main measures: Visual analogue scale, lower limb circumference measurements, 6-minute walk test and Short Form 36 questionnaire were applied before and after four weeks of treatment. Results: Control group showed statistically significant improvements in pain ( P < 0.001), ankle circumferences (right, P = 0.002; left, P = 0.037), calf circumferences (right, P = 0.020; left, P = 0.022), knee circumference (left, P = 0.039) and thigh circumferences (right, P = 0.029; left, P = 0.002) compared with experimental group. There were no significant differences between groups with respect to functional capacity and quality of life ( P > 0.05). Both groups significantly improved 6-minute walk distance ( P < 0.001) and Short Form 36 physical component summary (experimental group, P = 0.002; control group, P = 0.006). Conclusion: This study demonstrated that Kinesio Taping and compression stockings revealed similar improvements of functional capacity and quality of life in patients with CVD. The symptoms of pain and edema caused by CVD can be decreased more efficiently with compression stockings than Kinesio Taping intervention.

scholarly journals Implications of HAM/TSP functional incapacity in the quality of life

2011 ◽  
Vol 69 (2a) ◽  
pp. 208-211 ◽  
Author(s):  
Marcia Shublaq ◽  
Marco Orsini ◽  
Marzia Puccioni-Sohler
Keyword(s):  
Quality Of Life ◽  
Social Issues ◽  
Short Form ◽  
Functional Independence Measure ◽  
Functional Independence ◽  
Disability Score ◽  
Motor Disability ◽  
Sf 36 ◽  
Disability Status

OBJECTIVE: To identify the functional status and quality of life of HAM/TSP patients. METHOD: We evaluated prospectively 30 HAM/TSP patients (20 females) seen in the Neuroinfection Clinic of the HUGG. The functional capacity was analyzed by the functional independence measure (FIM), the expanded disability status (EDSS) scale and the Osame's motor disability score (OMDS). The quality of life was assed by the Short-Form Health Survey 36 (SF-36)TM. RESULTS: All patients need assistance device. The FIM, OMDS and EDSS scores classified 70%, 67% and 67% of the patients as dependent, respectively. The lowest scores of the SF-36 survey were found in the domains related to the physical health (D1, D2), role-emotional functioning (D7) and social functioning (D6). CONCLUSION: Our data suggest that the HAM/TSP physical impairment has an impact in the emotional and social issues, considering the limitation in the daily activities.

scholarly journals Functional Outcomes and Quality of Life After Ankle Fracture Surgically Treated: A Systematic Review

2018 ◽  
Vol 27 (3) ◽  
pp. 274-283 ◽  
Author(s):  
Viviane Ribeiro de Ávila ◽  
Teresa Bento ◽  
Wellington Gomes ◽  
José Leitão ◽  
Nelson Fortuna de Sousa
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Functional Outcomes ◽  
Emergency Services ◽  
Short Form ◽  
Evidence Synthesis ◽  
Good Health ◽  
Physical Capacity ◽  
Lower Limbs

Context:Ankle fractures (AFs) are the most common fractures of the lower limbs found in emergency services. Approximately 53% of these fractures are unstable and treated surgically.Objective:To conduct a systematic review evaluating functional outcomes and quality of life of patients with AFs surgically treated.Evidence Acquisition:A systematic review was conducted in accordance with the Preferred Reporting Items for Systematic reviews and Meta-Analyses statement. Five electronic databases were searched, without any limit on publication dates. Only patients with an unstable AF that was surgically treated were included; functional outcomes and the quality of life were controlled by the 36-Item Short-Form Health Survey instrument.Evidence Synthesis:Five studies were included in the analysis, including 267 patients. The values of the Physiotherapy Evidence Database scale ranged between a minimum of 5 and a maximum of 7 points. Patients with surgically treated AF reported less functionality and physical capacity compared with the nonfractured population. Some patients experienced vitality, emotional, and mental health limitations for a long period. Most surgically treated patients reported no pain and a good health and social status.Conclusion:Limitations in functionality and physical capacity represent the main threats to health-related quality of life in patients with surgically treated AFs.

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