scholarly journals Seeking cancer treatment for their children: experience of parents from areas distant from Lima-Peru

2021 ◽  
Vol 42 ◽  
Author(s):  
Gladys Carmela Santos Falcón ◽  
Lili Ana Ordoñez Espinoza ◽  
María del Carmen Velandres Siles ◽  
Roberto Zegarra Chapoñan ◽  
Jhon Alex Zeladita Huaman
Keyword(s):  
Cancer Treatment ◽  
Health Professionals ◽  
Cancer Care ◽  
Qualitative Approach ◽  
Access To Health Services ◽  
Structured Interviews ◽  
Children With Cancer ◽  
Remote Areas ◽  
Access To Health ◽  
Personal Experiences

ABSTRACT Objective: To understand the experiences of parents of children with cancer who come from areas distant from Lima-Peru during the search for cancer treatment for their children. Method: A descriptive-exploratory qualitative approach study. Focus groups and semi-structured interviews were carried out. The sample consisted of 18 parents who come from remote areas from Lima who attended specialized hospitals. The qualitative analysis was of thematic content, proposed by Minayo. Results: Three categories emerged: Accessing cancer care in Lima hospitals; Having diverse personal experiences during their child’s treatment; and Reporting the socioeconomic and labor impact during their stay in Lima. Final considerations: Understanding these experiences could help health professionals to implement strategies of socioeconomic support to facilitate access to health services for children with cancer. Hospitals must guarantee the satisfaction of the basic needs of parents.

scholarly journals Accessing community health services: challenges faced by poor people with disabilities in a rural community in South Africa

2012 ◽  
Vol 1 (1) ◽  
Author(s):  
Lisbet Grut ◽  
Gubela Mji ◽  
Stine H. Braathen ◽  
Benedicte Ingstad
Keyword(s):  
Health Services ◽  
Family Members ◽  
People With Disabilities ◽  
Community Health Services ◽  
Poor People ◽  
Social Forces ◽  
Access To Health Services ◽  
Structured Interviews ◽  
Her Family ◽  
Access To Health

Poor people with disabilities who live in poor rural societies experience unique problems in accessing health services. Their situation is influenced by multiple factors which unfold and interplay throughout the person’s life course. The difficulties do not only affect the person with a disability and his or her family, but also impact on the relevant care unit. The barriers are rooted in a life in poverty, upheld and maintained by poverty-reinforcing social forces of the past and the present, and reinforced by the lack of the person’s perspective of the health services. This article explores how difficulties may interact and influence access to and utilisation of health services, and how this may render health services out of reach even when they are available. The study reveals that non-compliance is not necessarily about neglect but could as well be a matter of lived poverty. The study was based on in-depth interviews with people with disabilities and family members, and semi-structured interviews with health personnel. The data analysis is contextual and interpretive. When offering health services to people with disabilities living in resource-poor settings, services should take into consideration the person’s history, the needs, and the resources and abilities of the family group. Rethinking access to health services should transcend a narrow medical institutionalization of health professional’s training, and include a patient’s perspective and a social vision in understanding and practice. Such rethinking requires health service models that integrate the skills of health professionals with the skills of disabled people and their family members. Such skills lie dormant at community level, and need to be recognized and utilized.

scholarly journals Engagement in HIV Care and Access to Cancer Treatment Among Patients With HIV-Associated Malignancies in Uganda

2019 ◽  
pp. 1-8
Author(s):  
Daniel H. Low ◽  
Warren Phipps ◽  
Jackson Orem ◽  
Corey Casper ◽  
Rachel A Bender Ignacio
Keyword(s):  
Cancer Treatment ◽  
Cancer Care ◽  
Barriers To Care ◽  
Sub Saharan Africa ◽  
Hiv Care ◽  
Structured Interviews ◽  
Cancer Symptoms ◽  
Initial Symptoms ◽  
Hiv And Cancer ◽  
Engagement In Hiv Care

PURPOSE Health system constraints limit access to HIV and cancer treatment programs in sub-Saharan Africa. Limited access and continuity of care affect morbidity and mortality of patients with cancer and HIV. We assessed barriers in the care cascade of comorbid HIV and cancer. PATIENTS AND METHODS Structured interviews were conducted with 100 adult patients with HIV infection and new diagnoses of cancer at the Uganda Cancer Institute. Participants completed follow-up questionnaires after 1 year to assess ongoing engagement with and barriers to care. RESULTS The median time from new-onset cancer symptoms to initiation of cancer care at the Uganda Cancer Institute was 209 days (interquartile range, 113 to 384 days). Persons previously established in HIV care waited less overall to initiate cancer care ( P = .04). Patients established in HIV care experienced shorter times from initial symptoms to seeking of cancer care ( P = .02) and from seeking of care to cancer diagnosis ( P = .048). Barriers to receiving care for HIV and cancer included difficulty traveling to multiple clinics/hospitals (46%), conflicts between HIV and cancer appointments (23%), prohibitive costs (21%), and difficulty adhering to medications (15%). Reporting of any barriers to care was associated with premature discontinuation of cancer treatment ( P = .003). CONCLUSION Patients with HIV-associated malignancies reported multiple barriers to receiving care for both conditions, although knowledge of HIV status and engagement in HIV care before presentation with malignancy reduced subsequent time to the start of cancer treatment. This study provides evidence to support creation and evaluation of integrated HIV and cancer care models.

scholarly journals Piloting a trachomatous trichiasis patient case-searching approach in two localities of Sudan

2020 ◽  
Vol 114 (8) ◽  
pp. 561-565
Author(s):  
Angelia M Sanders ◽  
Maha Adam ◽  
Nabil Aziz ◽  
E Kelly Callahan ◽  
Belgesa E Elshafie
Keyword(s):  
Control Program ◽  
Case Finding ◽  
Access To Health Services ◽  
Patient Case ◽  
Medical Assistants ◽  
Remote Areas ◽  
Care Services ◽  
Access To Health ◽  
Advanced Stages ◽  
Trachomatous Trichiasis

Abstract Background Approximately 1.9 million people have become blind or visually impaired from trachoma, the leading cause of infectious blindness. Trachoma prevalence surveys conducted in Sudan have shown that thousands of Sudanese suffer from the advanced stages of the disease, trachomatous trichiasis (TT), and warrant sight-saving surgery. Sudan’s National Trachoma Control Program (NTCP) provides free TT surgery; however, given that many TT patients live in remote areas with limited access to health services, identifying patients and providing eye care services has proved challenging. For this reason, the Sudan NTCP piloted a systematic TT case-finding approach to identify patients. Methods In Gedarif state, 11 villages in Baladyat el Gedarif locality and 21 villages in West Galabat locality were included in a TT case-searching activity from September to November 2018. TT case finders were selected from the villages where the activity took place and were trained by ophthalmic medical assistants to identify possible patients. Results Of 66 626 villagers examined, 491 were identified as having TT by TT case finders. Of those, 369 were confirmed as true cases by the TT surgeons, a 75.2% (369/491) success rate. Conclusions The TT case-finding approach provides an example of an effective method for identifying TT patients and should be expanded to other parts of the country known to be endemic for trachoma.

scholarly journals Barriers and Facilitators to Accessing Health Services: A Qualitative Study Amongst People with Disabilities in Cameroon and India

2019 ◽  
Vol 16 (7) ◽  
pp. 1126 ◽  
Author(s):  
Maria Zuurmond ◽  
Islay Mactaggart ◽  
Nanda Kannuri ◽  
Gudlavalleti Murthy ◽  
Joseph Oye ◽  
...  
Keyword(s):  
Health Services ◽  
Access To Health Care ◽  
Social Inclusion ◽  
Service Providers ◽  
People With Disabilities ◽  
Personal Factors ◽  
Access To Health Services ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Access To Health

Background: Article 25 of the UNCRPD stipulates the right of people with disabilities to the highest attainable standard of health, and the timely uptake of appropriate health and rehabilitation services. This study seeks to explore the factors which influence access to health care among adults with disabilities in Cameroon and India. Methods: A total of 61 semi-structured interviews were conducted with a purposive sample of adults with vision, hearing or musculoskeletal impairments, using data from an earlier cross-sectional disability survey. In addition, 30 key informants were interviewed to provide contextual information about the local services and context. Results: Key themes included individual-level factors, understanding and beliefs about an impairment, and the nature of the impairment and interaction with environmental factors. At the community and household level, key themes were family dynamics and attitudes, economic factors, social inclusion and community participation. Intersectionality with gender and age were cross-cutting themes. Trust and acceptability of health service providers in India and poor understanding of referral processes in both countries were key service-level themes. Conclusions: The interaction of environmental and personal factors with the impairment and their levels of participation and inclusion in community structures, all contributed to the take up of services. This study illustrated the need for a multi-faceted response to improve access to health services for people with disabilities.

The reported benefits of telehealth for rural Australians

2010 ◽  
Vol 34 (3) ◽  
pp. 276 ◽  
Author(s):  
Jennifer J. Moffatt ◽  
Diann S. Eley
Keyword(s):  
Professional Development ◽  
Cost Effectiveness ◽  
Health Services ◽  
Rural Health ◽  
Health Professionals ◽  
Access To Health Services ◽  
Rural And Remote ◽  
Remote Locations ◽  
Access To Health

Objective.A literature review was conducted to identify the reported benefits attributed to telehealth for people living and professionals working in rural and remote areas of Australia. Data sources.Scopus and relevant journals and websites were searched using the terms: telemedicine, telehealth, telepsychiatry, teledermatology, teleradiology, Australia, and each state and territory. Publications since 1998 were included. Study selection.The initial search resulted in 176 articles, which was reduced to 143 when research reporting on Australian rural, regional or remote populations was selected. Data synthesis.A narrative review was conducted using an existing ‘benefits’ framework. Patients are reported to have benefited from: lower costs and reduced inconvenience while accessing specialist health services; improved access to services and improved quality of clinical services. Health professionals are reported to have benefited from: access to continuing education and professional development; provision of enhanced local services; experiential learning, networking and collaboration. Discussion.Rural Australians have reportedly benefited from telehealth. The reported improved access and quality of clinical care available to rural Australians through telemedicine and telehealth may contribute to decreasing the urban–rural health disparities. The reported professional development opportunities and support from specialists through the use of telehealth may contribute to improved rural medical workforce recruitment and retention. What is known about the topic?An extensive international literature has reported on the efficacy of telehealth, and to a lesser extent the clinical outcomes and cost-effectiveness of telemedicine. Systematic reviews conclude that the quality of the studies preclude definitive conclusions being drawn about clinical and cost-effectiveness, although there is some evidence of effective clinical outcomes and the potential for cost-benefits. Little attention has been paid to the benefits reported for people who live in rural and remote Australia, despite this being a rationale for the use of telehealth in rural and remote locations. What does this paper add?Patients in rural and remote locations in Australia are reported to benefit from telehealth by increased access to health services and up-skilled health professionals. Health professionals are reported to benefit from telehealth by up-skilling from increased contact with specialists and increased access to professional development. The review findings suggest that one strategy, the increased use of telehealth, has the potential to reduce the inequitable access to health services and the poorer health status that many rural Australians experience, and contribute to addressing the on-going problem of the recruitment and retention of the rural health workforce. What are the implications for practitioners?The use of telehealth appears to be a path to up-skilling for rural and remote practitioners.

Practices employed by South African healthcare providers to obtain consent for treatment from children

2016 ◽  
Vol 25 (5) ◽  
pp. 640-652
Author(s):  
Michelle Bester ◽  
Yolanda Havenga ◽  
Zea Ligthelm
Keyword(s):  
Health Services ◽  
South African ◽  
Research Design ◽  
Healthcare Providers ◽  
Healthcare Services ◽  
Mental Capacity ◽  
Access To Health Services ◽  
Structured Interviews ◽  
Medical Practitioners ◽  
Access To Health

Background: The ability to consent promotes children’s access to health services. Healthcare providers should assess and arrive at a clinical judgement about the child’s maturity and mental capacity to obtain valid consent. Research objective: The objective of the study was to determine practices employed by South African healthcare providers to obtain consent for treatment from children. Research design: A qualitative, explorative, descriptive research design was used and the study was contextual. Participants and research context: In all, 24 healthcare providers (professional nurses and medical practitioners) were purposively sampled from a hospital and primary health clinics. Semi-structured interviews were used. Ethical consideration: Ethical approval was obtained from the Institutional Review Board and gatekeepers. Written informed consent was obtained from each participant. Findings: Healthcare providers’ current practices in obtaining consent from children revealed inconsistency in implementation as well as the yardstick used to determine children’s mental capacity. Building trust with children, sharing information and assessment were interlinked in obtaining consent. Discussion: The inconsistent practice has implications for children’s access to healthcare services. Conclusion: Inconsistent practices in the implementation of consent laws have the potential to violate children’s rights to bodily and psychological integrity, access to health services and having their opinions heard and be taken into consideration. Through uncovering the current perceptions and practices and a literature review, guidelines intended for use by the Department of Health could be developed.

scholarly journals Fatigue in children and adolescents with cancer from the perspective of health professionals

2016 ◽  
Vol 24 (0) ◽  
Author(s):  
Michele Cristina Miyauti da Silva ◽  
Luís Carlos Lopes Júnior ◽  
Lucila Castanheira Nascimento ◽  
Regina Aparecida Garcia de Lima
Keyword(s):  
Content Analysis ◽  
Continuing Education ◽  
Children And Adolescents ◽  
Health Professionals ◽  
Exploratory Study ◽  
Physical Therapists ◽  
Qualitative Approach ◽  
Structured Interviews ◽  
Thematic Content Analysis ◽  
Assistant Nurses

ABSTRACT Objective: to investigate health professionals' knowledge about the concept, assessment and intervention in fatigue in children and adolescents with cancer. Method: exploratory study with qualitative approach, with 53 health professionals (10 nurses, 33 assistant nurses, 3 physicians, 3 nutritionists, 2 psychologists and 2 physical therapists). Semi structured interviews were held, which were recorded and analyzed by means of inductive thematic content analysis. Results: the data were organized around three themes: knowledge of health professionals about fatigue; identification of fatigue and interventions to relieve fatigue. Conclusion: the results indicate the health professionals' limited knowledge about fatigue, as well as the lack of investment in their training and continuing education. Most of all, the lack of research on the theme in the Brazilian context remains a barrier to support improvements in care for this symptom in children and adolescents with cancer.

scholarly journals Transphobia and gender identity: social representations of trans women from Brazil and Colombia

2021 ◽  
Vol 26 (11) ◽  
pp. 5793-5804
Author(s):  
María del Mar Sánchez-Fuentes ◽  
Ludgleydson Fernandes de Araújo ◽  
Sandra Milena Parra-Barrera ◽  
Érika Rhayane Sousa Fontes ◽  
José Victor de Oliveira Santos ◽  
...  
Keyword(s):  
Gender Identity ◽  
Family Support ◽  
Social Representations ◽  
Qualitative Approach ◽  
Structured Interviews ◽  
The Social ◽  
Personal Experiences ◽  
Trans Women ◽  
And Gender

Abstract The present research aimed to identify and discuss the social representations of trans women related to gender identity and transphobia in Brazil and Colombia. In this study participated 43 Trans women, 22 from Brazil, aged between 18 and 55 years (M=29.09, SD=8.53) and 21 from Colombia, aged between 21 and 41 years (M=28.19, SD=7.63). This study adopted a qualitative approach in which semi-structured interviews were used. The data were analyzed by the Iramuteq software, which identified the social representations in classes. The results showed what the participants understood about transphobia and how they regarded their experiences with this gender identity. The participants presented negative social representations, aiming at their personal experiences related to their social context. Themes related to violence, discrimination, prejudice, denial of rights and family support emerged from both the Brazilian and Colombian sample. Implications for Tran´s quality of life are discussed.

scholarly journals Attitudes, knowledge and skills of nurses in the Xingu Indigenous Park

2020 ◽  
Vol 73 (6) ◽  
Author(s):  
Juliana Cláudia Leal Martins ◽  
Cleide Lavieri Martins ◽  
Lavínia Santos de Souza Oliveira
Keyword(s):  
Health Professionals ◽  
Cultural Difference ◽  
Descriptive Study ◽  
Qualitative Approach ◽  
Analysis Method ◽  
Structured Interviews ◽  
Categorical Analysis ◽  
Knowledge And Skills ◽  
New Knowledge ◽  
Indigenous Territories

ABSTRACT Objective: to analyze the attitudes, knowledge and skills that make up the professional competencies of nurses working in indigenous territories. Method: this is an exploratory-descriptive study with a qualitative approach, conducted with nurses working in the Xingu Indigenous Park in 2016. Data were obtained in semi-structured interviews and treated according to the thematic-categorical analysis method. Results: the nurse’s performance in the Xingu Indigenous Park has a multifaceted character, being defined by the territory’s interculturality and specificities and by how the service is organized. Technical skills, concepts from anthropology and attitudes that facilitate a respectful dialogue with cultural difference are required for a professional to act in this context. Final considerations: the performance of health professionals in indigenous territories requires specificities associated with the acquisition of new knowledge, attitudes and skills geared to the intercultural dimension of the work developed.

Professionals’ knowledge of the family health program on the actions taken by the sector of control, evaluation, regulation and audit

2011 ◽  
Vol 5 (3) ◽  
pp. 741
Author(s):  
Adna De Araújo Silva ◽  
Lucilane Maria Sales da Silva ◽  
Maria Verônica Sales da Silva ◽  
Marcelo Costa Fernandes
Keyword(s):  
Health Services ◽  
Family Health ◽  
Access To Health Services ◽  
Structured Interviews ◽  
Family Health Program ◽  
Health Strategy ◽  
Access To Health ◽  
The Family ◽  
Family Health Strategy ◽  
Control Evaluation

ABSTRACTObjective: to check the knowledge of professionals in the Family Health Strategy on activities undertaken by the sector of control, evaluation, regulation and audit. Methodology: this is about a descriptive study from qualitative approach. It was applied a semi-structured interviews with three doctors and 16 nurses who are part of the team from Family Health Strategy in the municipality of Morada Nova/CE, in October 2007. This study was approved by the ethics committee of the Federal University of Ceara with the protocol number COMEP No. 208/07. Results: according to the statements, the study subjects understand the actions performed in the industry as a set of control actions, evaluating and monitoring the work of health professionals, but also to regulate users' access to health services. Most professionals are unaware of the current team that makes up the CARA of the municipality, however agree that the team should be composed of a multidisciplinary team, preferably with specialization in the area. Conclusion: let us consider how the actions performed by CARA may contribute to the improvement of the SUS, aiming at improving the care provided by health services to its users. Descriptors: clinical audit, family health, single health system. RESUMOObjetivo: verificar o conhecimento dos profissionais da Estratégia Saúde da Família sobre as atividades realizadas pelo setor de controle, avaliação, regulação e auditoria. Metodologia: estudo descritivo com abordagem qualitativa. Foi aplicado uma entrevista semi-estruturada com três médicos e 16 enfermeiros que fazem parte da equipe da Estratégia Saúde da Família no município de Morada Nova/CE, em outubro de 2007. Estudo aprovado pelo Comitê de Ética da Universidade Federal do Ceará com o número de protocolo Comepe nº 208/07. Resultados: de acordo com as falas, os sujeitos do estudo entendem as ações realizadas no setor como sendo um conjunto de ações de controle, avaliação e fiscalização do trabalho dos profissionais de saúde, como também de regulação do acesso dos usuários aos serviços de saúde. A maioria dos profissionais não tem conhecimento da atual equipe que compõe a CARA do município, entretanto concordam que a equipe deveria ser composta de uma equipe multidisciplinar, preferencialmente com especialização na área. Conclusão: considere-se o quanto as ações desempenhadas pela CARA podem contribuir para o aperfeiçoamento do SUS, visando à melhoria da assistência prestada pelos serviços de saúde aos seus usuários. Descritores:  auditoria clínica; saúde da família; sistema único de saúde.RESUMENObjetivo: verificar los conocimientos de los profesionales de la Estrategia de Salud de la Familia sobre las actividades realizadas por el sector de control, evaluación, regulación y fiscalización. Metodología: estudio descriptivo con enfoque cualitativo. Se aplicó una entrevista semi-estructurada con 03 médicos y 16 enfermeras que forman parte del Estrategia Salud de la Familia en el municipio de Morada Nova - CE, en octubre de 2007. Este estudio fue aprobado por el comité de ética de la Universidade Federal de Ceará con el número de protocolo Comepe N º 208/07. Resultados: de acuerdo con las declaraciones, los sujetos del estudio entienden las acciones realizadas en la industria como un conjunto de medidas de control, evaluación y seguimiento de la labor de los profesionales de la salud, sino también para regular el acceso de los usuarios a los servicios de salud. La mayoría de profesionales no son conscientes de que el equipo actual que hace que el rostro del municipio, sin embargo de acuerdo en que el equipo debe estar compuesto por un equipo multidisciplinario, preferentemente con especialización en el área. Conclusión: vamos a considerar cómo las acciones realizadas por CARA puede contribuir a la mejora del SUS, con el objetivo de mejorar la atención recibida por los servicios de salud a sus usuarios. Descriptores: auditoría clínica; salud de la família; sistema único de salud.

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