scholarly journals "Quality of life": a brand new concept for research and practice in psychiatry

2003 ◽  
Vol 25 (4) ◽  
pp. 249-252 ◽  
Author(s):  
Marcelo T Berlim ◽  
Marcelo P A Fleck

Since the '70s, the assessment of quality of life (QOL) has grown from a 'small cottage' industry to a formal discipline within a coherent theoretical framework, accepted methods, and manifold applications. In recent years, QOL has become increasingly popular as a useful variable tailored to assess the overall impact of diseases and medical treatments from the patient's point of view. In this updating paper, we describe the most frequently used instruments, and discuss the conceptual and practical issues concerning QOL evaluation, as applied to the study of mental disorders. In addition, we present a unifying definition of QOL that has recently been developed by the World Health Organization. Finally, we conclude that QOL measures are potentially useful methods to be applied to research and clinical practice in psychiatry - especially when used to demonstrate the impact of mental illnesses and the possible benefits of therapeutic interventions.

Author(s):  
Fernanda Karla Nascimento ◽  
Roberta Alvarenga Reis ◽  
Alexandre Saadeh ◽  
Fran Demétrio ◽  
Ivaneide Leal Ataide Rodrigues ◽  
...  

Objective: to describe attributes associated with the Quality of Life of Brazilian transgender children and adolescents according to their own perception. Method: descriptive study conducted with 32 participants between eight and 18 years old, who were either interviewed or participated in focus groups. The statements were transcribed, grouped with the aid of the Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires software, version 0.7 alpha 2 and described according to the definition of Quality of Life by the World Health Organization concerning to the mental, physical, and social dimensions. Results: it was possible to identify the family nucleus as the main social support for transgender children and adolescents. However, the experience of prejudice and discrimination were negative attributes associated with Quality of Life. Conclusion: the statements indicate that lives of transgender children and adolescents are impacted by social, physical, and mental factors due to the stigma and discrimination experienced. It is expected to contribute to the formulation of public policies related to transgender children and adolescents and expand the discussion on the citizens’ duties and rights in relation to transsexuality.


2002 ◽  
Vol 8 (2-3) ◽  
pp. 354-362
Author(s):  
M. I. Kamel

The effect of schistosomiasis on quality of life [QOL] and productivity of workers was examined. In a textile factory in Alexandria, Egypt, personal, occupational and sociodemographic data were collected from 172 workers with schistosomiasis and 172 workers without schistosomiasis. Several indicators of productivity and the World Health Organization QOL brief were used to determine the impact of schistosomiasis. The disease affected the general, physical and independence, psychological and spiritual, and social domains of QOL. Although the productivity score of workers with schistosomiasis did not differ significantly from the control group, they had significantly lower additional hours of work and lower total incentives/month. A significant relationship was found between severity of schistosomiasis and QOL domains and productivity indicators.


Author(s):  
Guang-Bin Qu ◽  
Tian-Yu Zhao ◽  
Bo-Wei Zhu ◽  
Gwo-Hshiung Tzeng ◽  
Shan-Lin Huang

Climate change-related anomalies have increased public concern regarding environmental protection. This has opened newer rural development avenues. In this regard, livability of villages is crucial; it can be evaluated based on the villagers’ quality of life (QoL). The WHOQOL-BREF, a comprehensive cross-cultural and cross-disciplinary scale proposed by the World Health Organization to assess QoL, has aided in assessing and improving QoL in different regions. However, the factors of this instrument are mutually influential, necessitating an improvement strategy considering the entire system. This problem may be resolved using the DANP-mV model. However, the traditional DANP-mV model includes many items and responding to all of them is difficult for experts. Therefore, by using the case of Xingshisi Village in China, this study proposed a modified DANP-mV model to provide additional suggestions for systematic improvement of the QoL and livability in the village. Xingshisi is a model village built according to an aspirational benchmark; however, different from the traditional definition of a benchmark, this village exhibits room for improvement. Although the modified model reduces the number of questions from 650 to 168, its effect remains similar to that of the traditional model. Moreover, in the modified model, physical capacity (D1) presented the largest dimensional gap. The interaction among the factors indicated that considering the effect of the environment (D4) and developing a systematic improvement strategy are necessary to improve the livability of villages facing limited resources.


2020 ◽  
Vol 50 (9) ◽  
pp. 990-998
Author(s):  
Shigeko Umezaki ◽  
Yusuke Shinoda ◽  
Akitake Mukasa ◽  
Shota Tanaka ◽  
Shunsaku Takayanagi ◽  
...  

Abstract Objective The factors associated with health-related quality of life in patients with glioma remain unclear; particularly, the impact of symptoms on quality of life has not been studied comprehensively. This study aims to document the quality of life of patients with glioma and clarify the impact of symptoms. Methods In this cross-sectional study, participants were recruited from patients at The University of Tokyo Hospital and from patients who were registered at the Japan Brain Tumor Alliance. We included adult patients with World Health Organization grade II–IV glioma and excluded those with disturbances of consciousness or aphasia. We used the European Organization for Research and Treatment of Cancer QLQ-C30 and BN20 to evaluate quality of life and the symptoms. Multiple regression analyses were performed to investigate the impact of symptoms on European Organization for Research and Treatment of Cancer global health status and QLQ-C30 social functioning. In addition, we performed univariate subgroup analyses classified by World Health Organization grade and history of chemotherapy. Results This study included 76 patients. Seven symptoms occurred in more than 50% of the patients: fatigue, future uncertainty, drowsiness, communication deficit, financial difficulties, motor dysfunction and weakness of legs. Multiple regression analyses showed that insomnia affected their global health status, and appetite loss, financial difficulties and motor dysfunction were significantly related to their social functioning. In subgroup analysis, the number of symptom subscales that were significantly related to global health status and social functioning was larger in World Health Organization grade II patients compared with grade III/IV patients. Conclusions In addition to neurological deficits, symptoms were associated with poor quality of life in patients with glioma. This study provided the basis on further investigation of usefulness of symptom evaluation on quality of life improvement.


Author(s):  
Aldona Moceviciene

Quality of life – important area in health care system which requiring substantial adjustment of priorities and reallocation sources. It is necessary to allow welfare for recipients with disabilities to improve their quality of life too. World Health Organization, in defining the concept of quality of life, finds that it is a wide concept connected with person physical health, psychological state, level of independence, social communication and relationships with the environment. There is no consensus concerning the definition of Disability, Special Needs, inclusive education and concepts.


2013 ◽  
Vol 25 (4) ◽  
pp. 193-205 ◽  
Author(s):  
Francesco Corallo ◽  
Rosaria De Luca ◽  
Roberta Leonardi ◽  
Simona De Salvo ◽  
Placido Bramanti ◽  
...  

ObjectiveQuality of life (QoL) is a growing issue in medicine, particularly in the evaluation of rehabilitative care. The concept of QoL is included in and expands the definition of health given by the WHO (World Health Organization) and comprises complete physical, mental, and social well-being. It expresses the degree of satisfaction in various areas as a result of the opportunities that arise during one's lifetime despite the restrictions and impediments that life itself puts forth. The last decade has exponentially increased the number of studies on QoL, although they are still limited.MethodsWe performed a literature review on the QoL scales used in patients with neurological disorders.ResultsRecent studies have shown the importance of QoL assessment because standard treatments do not assess the treatment impact felt by the patient. In fact, by understanding the impact of treatment on survival and QoL, one can make a clearer interpretation of the health of the patient.ConclusionThis review has adopted an innovative holistic methodological approach, which allowed a global evaluation of the comfort reported by the patients. The scales applied in this study allowed to choose the most suitable therapeutic strategies and programme individual therapeutic treatment.


2020 ◽  
Vol 10 (32) ◽  
pp. 175-182
Author(s):  
Angela Rita Marçano Affonso ◽  
Cassia Cristina Venci Gonzales ◽  
Neusa Falbo Wandalsen

O principal objetivo desse estudo foi avaliar o impacto da dermatite atópica (DA) na qualidade de vida (QV) de cuidadores de crianças e adolescentes menores de 18 anos, com esse diagnóstico, acompanhados no município de Santo André, estes foram selecionados durante as consultas, sendo registrados dados gerais e sobre a doença, e aplicado o questionário, The World Health Organization instrument to evaluate quality of life - WHOQOL-BREF aos cuidadores. Para a análise estatística, foram utilizadas as variáveis qualitativas descritas por frequências absolutas e relativas. Os dados mostram um comprometimento da QV dos cuidadores das crianças e adolescentes com DA, quando comparada à de cuidadores de controles sadios, especialmente nos domínios físico, psicológico e de relações sociais. A presença da DA afeta a QV da família conduzindo a um alto grau de comprometimento da dinâmica familiar.Descritores: Dermatite Atópica, Qualidade de Vida, Pais, Cuidadores. Quality of life in caregivers of minors with atopic dermatitisAbstract: The main objective of this study was to assess the impact of atopic dermatitis (AD) on the quality of life (QOL) of caregivers of children and adolescents under 18, followed up in the municipality of Santo André. They were selected during consultations, being recorded general and disease data, and the questionnaire, The World Health Organization instrument to evaluate quality of life - WHOQOL-BREF, was applied to caregivers. For the statistical analysis, the qualitative variables described by absolute and relative frequencies were used. The data show a compromise in the QoL of caregivers of children and adolescents with AD, when compared to that of caregivers of healthy controls, especially in the physical, psychological and social relations domains. The presence of AD affects the family's QOL leading to a high degree of impairment of family dynamics.Descriptors: Atopic Dermatitis, Quality of Life, Parents, Caregivers. Calidad de vida en cuidadores de menores con dermatitis atópicaResumen: El objetivo principal de este estudio fue evaluar el impacto de la dermatitis aopica (DA) en la calidad de vida (CV) de los cuidadores de niños y adolescentes menores de 18 años, con este diagnóstico, seguido en el municipio de Santo André, fueron seleccionados durante las consultas. Se registraron datos generales y de enfermedades, y se aplicó el cuestionario, El instrumento de la Organización Mundial de la Salud para evaluar la calidad de vida - WHOQOL-BREF, a los cuidadores. Para el análisis estadístico, se utilizaron las variables cualitativas descritas por frecuencias absolutas y relativas. Los datos muestran un compromiso en la calidad de vida de los cuidadores de niños y adolescentes con EA, en comparación con la de los cuidadores de controles sanos, especialmente en los dominios de las relaciones físicas, psicológicas y sociales. La presencia de EA afecta la calidad de vida de la familia, lo que lleva a un alto grado de deterioro de la dinámica familiar.Descriptores: Dermatitis Atópica, Calidad de Vida, Padres, Cuidadores.


2020 ◽  
Vol 9 (8) ◽  
pp. e318985885
Author(s):  
Ana Karoline Brito de Oliveira ◽  
Matheus Sodré de Araújo ◽  
Samuel Filipe Lopes Alves ◽  
Letícia de Barros Rocha ◽  
Marianne Lucena Da Silva ◽  
...  

The city of Wuhan, capital of China's Hubei province, was the scene of an outbreak of a new coronavirus called the SARS-CoV-2 by the World Health Organization (WHO). Gradually, several countries developed strategies to reduce community contamination, including social isolation and lockdown. The purpose of this study is carry out a systematic review of studies that assessed quality of life in social distance during pandemics. A high sensitivity search was carried out in the main scientific databases associated with quality of life (MEDLINE via PUBMED, Embase, Lilacs, Scielo, PsycoInfo, Pepsic, Scopus e Cochrane Library).  The full-text versions were analyzed for methodological quality by two researchers independently and disagreement between reviewers was resolved by discussion or arbitration by the other researcher. Only cross-sectional studies that assessed health-related quality of life during SARS-CoV, MERS-CoV and SARS-CoV-2 outbreaks were included. Editorial, letter to the editor, point of view, case presentation or brief communication were excluded. 1072 studies were identified, of which 1067 were excluded following the PRISMA protocol, with 5 articles remaining at the end. Patients affected by SARS, MERS and COVID-19 had reduced quality of life and social distancing make it worse.


2021 ◽  
Vol 31 (Supplement_2) ◽  
Author(s):  
Maria do Carmo Figueiredo ◽  
José Amendoeira ◽  
Marta Rosa ◽  
Rui Matos ◽  
Mário Silva ◽  
...  

Abstract Background The epidemic of COVID-19 caused by the Coronavirus -SARS-CoV-2, was declared by the World Health Organization an International Public Health Emergency. The 2019–2020 coronavirus pandemic has affected educational systems worldwide, leading to the closure of educational institutions. This situation kept students socially distant, with little adaptation time, interfering with their quality of life. Methods The aim of this study is to evaluate the quality of life of higher education students in the face of the impact of the COVID-19 pandemic. 775 students were selected by convenience sampling. Study with a quantitative, descriptive, correlational approach. The WHOQOL-bref instrument adapted from WHO was applied. Data analysis was undertaken using the IBM SPSS Statistics for Windows, Version 27.0. Armonk, NY: IBM Corp. Results Students' self-assessment about Quality of Life is globally superior to the self-assessment with their satisfaction with health, where the female students have lower average values than the male students. The WHOQOL-bref domains referring to Quality of Life with higher values were the Physical and the Environment ones, with the Social Relations and Psychological domains having the lowest values. Conclusions The development of this study made it possible to achieve the objective set. The domain of social relations has low average values, with students from IPSantarem standing out, with lower self-assessment of QoL in this domain, compared to those from IPLeiria. In the psychological domain, the low average values in both institutes stand out, especially in IPLeiria, where the average is less than 50%, in both genders.


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