Study on the Correlation between Caregiver Burden and Social Support of Low-Income Home-Based Patients with Advanced Cancer

2021 ◽  
Vol 7 (5) ◽  
pp. 1495-1502
Author(s):  
Ping LIU ◽  
Yan LIU
Keyword(s):  
Social Support ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Caregiver Burden ◽  
Low Income ◽  
General Information ◽  
Home Based ◽  
Close Relationship ◽  
Social Support Scale ◽  
Burden Scale

Objective To explore the correlation between caregiver burden and social support of low-income home-based patients with advanced cancer. Methods A self-made questionnaire was used to investigate 110 caregivers of low-income home-based patients with advanced cancer. The questionnaire included general information of patients and caregivers, Zarit Caregiver Burden Scale (ZBI), and social support scale, etc. The survey data were sorted out by Excel software and entered into the database, and the statistical analysis was completed with R3.5.2 software. The data of patients and caregivers were analyzed by frequency, rate, and means ± standard deviation (x±s). The correlation index was used to analyze the relationship between caregiver burden and social support. Results According to the investigation and analysis, the home-based caregivers of low-income cancer patients have a heavy burden. The ZBI score is (33.76 + 13.67) points, with a median of 33.0 points, which belongs to moderate and severe burden; the caregivers of low-income cancer patients received less social support, and the utilization of social support was low, with an average of (32.70 + 7.17) points and a median of 32.5 points, lower than the norm of (34.56 + 3.73) points. There was a negative correlation between caregiver burden and social support and each dimension (P; 0.001). Conclusion There is a close relationship between the burden of home-based caregivers and social support of low-income patients with advanced cancer. More attention should be paid to this group and more practical support and assistance should be provided to help reduce the pressure and burden of caregivers.

Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) medical center

2003 ◽  
Vol 1 (4) ◽  
pp. 319-329 ◽  
Author(s):  
SHIRLEY S. HWANG ◽  
VICTOR T. CHANG ◽  
YVETTE ALEJANDRO ◽  
PAMELA OSENENKO ◽  
CASAUNDRA DAVIS ◽  
...  
Keyword(s):  
Social Support ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Caregiver Burden ◽  
Information Needs ◽  
Unmet Needs ◽  
Pearson Correlation ◽  
Family Satisfaction ◽  
Advanced Cancer Patients ◽  
Caregiver Satisfaction

Objectives: Caregiver outcomes among those caring for symptomatic advanced cancer patients at VA Medical Centers have not been well reported. The purposes of this study were (1) to identify the caregiver characteristics and their unmet needs; (2) to examine the association between caregiver unmet needs, caregiver burden, and caregiver satisfaction; and (3) to identify the independent predictors of different caregiver outcomes.Methods: One hundred caregivers completed three caregiver outcomes instruments: Family Inventory of Needs (FIN), Care Strain Index (CSI), and Family Satisfaction with Advanced Cancer Care (FAMCARE). The caregivers' demographics and their function, depression, health status, and social support status as well as the caregivers' perception of the patients' unmet needs (PPUN) were obtained. Principal component analysis was performed to examine the underlying dimensions of caregiver outcome measures. Pearson correlation and stepwise multivariate regression analyses were performed.Results: The median number of unmet needs was 2 and the median CSI score was 4. Most of unmet needs were related to information needs (needing more information related to home care, finding help with the problems at home, and disease prognosis) and symptom management. The majority of caregivers were satisfied or very satisfied by the care patients received. Spouse caregivers (N = 60, 60%) were significantly older (p = 0.006) with higher unemployment rates (p = 0.001), higher depression scores (p = 0.04), and lower social support scores (p < 0.0001) than nonspouse caregivers (N = 40, 40%). The PPUN predicted caregiver burden and the presence of caregiver unmet needs independently. The presence of caregiver unmet needs was the only independent predictor of caregiver satisfaction. Caregivers with a high PPUN and higher depression score experienced a higher burden.Significance of the research: The caregiver outcome model is proposed and needs to be further validated in a new cohort of caregivers.

What is related to the well-being of the siblings of patients with schizophrenia: An evaluation within the Lazarus and Folkman’s Transactional Stress and Coping Model

2019 ◽  
Vol 65 (3) ◽  
pp. 252-261 ◽  
Author(s):  
Muazzez Merve Avcıoğlu ◽  
Ayşe Nuray Karanci ◽  
Haldun Soygur
Keyword(s):  
Social Support ◽  
Perceived Social Support ◽  
Well Being ◽  
Subjective Well Being ◽  
Social Support Scale ◽  
Burden Scale ◽  
Coping Scale ◽  
Close Relatives ◽  
And Coping ◽  
The Relationship

Background: Schizophrenia is a chronic mental illness that strongly affects not only the patients with schizophrenia, but also their families and close relatives. So far, family research on patients with schizophrenia has mainly focused on parents, but has neglected siblings. Aim: This study aims to evaluate the well-being of 103 siblings of patients with schizophrenia within the Lazarus and Folkman’s Transactional Coping and Stress Model. Materials: A Sociodemographic Information Form, Subjective Well-being Scale, Zarit Caregiver Burden Scale, Multidimensional Perceived Social Support Scale, Ways of Coping Scale and Shortened Perceived Parental Rearing Styles Form were administered to the siblings of patients with schizophrenia. Results: The results of this study revealed that well-being was associated with perceived mother overprotection, perceived social support, problem-focused coping and indirect coping. Social support moderated the relationship between burden and well-being as a buffering factor. Conclusion: Therefore, siblings of patients with schizophrenia should be given access to social support and their problem-focused coping strategies should be strengthened. Besides, parents should be supported to provide suitable care for the siblings of patients with schizophrenia.

Quality of Life in Chinese Home-Based Advanced Cancer Patients: Does Awareness of Cancer Diagnosis Matter?

2011 ◽  
Vol 14 (10) ◽  
pp. 1104-1108 ◽  
Author(s):  
Xiaoping Fan ◽  
Hua Huang ◽  
Qiong Luo ◽  
Jiying Zhou ◽  
Ge Tan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Cancer Diagnosis ◽  
Advanced Cancer Patients ◽  
Home Based

scholarly journals An Assessment of the Burden on Polish Caregivers of Patients With Dementia: A Preliminary Study

2017 ◽  
Vol 32 (8) ◽  
pp. 509-515 ◽  
Author(s):  
Joanna Kowalska ◽  
Agata Gorączko ◽  
Lilianna Jaworska ◽  
Joanna Szczepańska-Gieracha
Keyword(s):  
Caregiver Burden ◽  
Satisfaction With Life ◽  
Satisfaction With Life Scale ◽  
Study Group ◽  
The Family ◽  
Life Scale ◽  
Social Support Scale ◽  
Medium Level ◽  
Burden Scale ◽  
Preliminary Study

Introduction: The aim of the study was to assess the level of burden of caregivers of persons with dementia and to analyze the factors related to the sense of burden. Methods: The study group consisted of 58 caregivers with an average age of 54.7 (± 12.6) and 45 (78%) were women. The Caregiver Burden Scale, the Beck Depression Inventory (BDI), the Berlin Social Support Scale (BSSS), and the Satisfaction with Life Scale (SWLS) were used. Results: In the study group, 93% could rely on help in caring for the patient, provided mainly by the family. Most caregivers demonstrated a medium level of burden (2.63 ± 0.61). A significant correlation was found between the level of caregiver burden and caregiving frequency, BSSS, BDI, and SWLS. Conclusions: A lot of factors influence the caregivers’ burden. It appears necessary to take into consideration the cultural, religious, and economic distinctiveness of the country in question.

Development of an Experience-Based Caregiver Burden Scale in Advanced Cancer

2016 ◽  
Vol 39 (1) ◽  
pp. 12-19 ◽  
Author(s):  
Kwo-Chen Lee ◽  
Jia-Jean Yiin ◽  
Yann-Fen Chao
Keyword(s):  
Advanced Cancer ◽  
Caregiver Burden ◽  
Burden Scale

scholarly journals Suporte social e qualidade de vida de indivíduos com coinfecção tuberculose/HIV

2018 ◽  
Vol 17 (2) ◽  
pp. 1-29
Author(s):  
Lis Aparecida de Souza Neves ◽  
Carolina de Castro Castrighini ◽  
Renata Karina Reis ◽  
Silvia Rita Marin da Silva Canini ◽  
Elucir Gir
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Low Income ◽  
People Living With Hiv ◽  
Negative Consequences ◽  
Calidad De Vida ◽  
Social Support Scale ◽  
Apoyo Social ◽  
Hiv Aids

Objetivo: Analizar la asociación entre calidad de vida y el apoyo social de las personas con coinfección TB / VIH. Métodos: Estudio descriptivo transversal, con individuos coinfectados TB / VIH, presentes en Ribeirão Preto-SP, Brasil. Se aplicó un cuestionario de caracterización sociodemográfica, la Escala de WHOQOL-HIV-BREF y la Escala de Apoyo Social para las personas que viven con el VIH / SIDA. En el análisis de los datos se utilizó la estadística descriptiva e inferencial. Se contemplaron todos los aspectos éticos. Resultados: De 57 personas entrevistadas, la mayoría eran varones, heterosexuales, con bajo nivel de educación e ingresos. Las puntuaciones medias de la calidad de vida y el apoyo social fue intermedia; Se identificaron asociaciones entre el apoyo instrumental y los dominios físicos y las relaciones sociales. El apoyo emocional se correlacionó con todos los dominios excepto Espiritualidad. Se concluye que se observaron asociaciones positivas entre calidad de vida y apoyo social. El apoyo social puede mitigar las consecuencias negativas de ambas enfermedades, lo que afecta directamente a la calidad de vida del individuo. Objective: To analyze the association of quality of life with social support in people with tuberculosis/HIV. Methods: Descriptive study whose sample consisted of outpatients coinfected with tuberculosis and HIV from Ribeirão Preto, state of São Paulo, Brazil. Data was collected using three instruments: the WHOQOL-HIV BREF Scale; the Social Support Scale for People Living with HIV/AIDS; and a questionnaire to gather clinical and sociodemographic information. Descriptive and inferential statistics were used in data analysis. All ethical requirements were met. Results: Among the 57 people interviewed, males predominated, as did those who were heterosexual, those with few years of education, and those with low income. Average scores for quality of life and social support were intermediate; associations were identified for instrumental support and the domains physical and social relationships. Emotional support was correlated to all domains except spirituality. Conclusion: Positive associations were found between social support and quality of life. Social support can mitigate the negative consequences of both diseases, directly affecting the quality of life of patients. Objetivo: Analisar a associação entre qualidade de vida e suporte social dos indivíduos com a coinfecção tuberculose/HIV. Métodos: Estudo descritivo, transversal, envolvendo indivíduos coinfectados com tuberculose/HIV, em acompanhamento ambulatorial em Ribeirão Preto-SP, Brasil. Foi aplicado um questionário para caracterização sociodemográfica, a Escala WHOQOL-HIV Bref e a Escala de Suporte Social para Pessoas Vivendo com HIV/aids. Na análise dos dados utilizou-se estatística descritiva e inferencial. Foram contemplados todos os aspectos éticos. Resultados: Dos 57 indivíduos entrevistados, a maioria do sexo masculino, heterossexual, com baixa escolaridade e renda. A média dos escores de qualidade de vida e do suporte social foi intermediária; foram identificadas associações entre Apoio Instrumental e os domínios Físico e Relações Sociais. O apoio emocional correlacionou-se com todos os domínios, exceto Espiritualidade. Conclui-se que foram evidenciadas associações positivas entre suporte social e qualidade de vida.O suporte social pode amenizar consequências negativas de ambas as enfermidade, afetando diretamente a qualidade de vida do indivíduo.

Rates and risks of suicidality in young adults (YAs) with advanced cancer.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. 9015-9015
Author(s):  
Kelly Marie Trevino ◽  
Karen Fasciano ◽  
Holly Gwen Prigerson
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Major Depressive Disorder ◽  
Depressive Disorder ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Performance Status ◽  
Major Depressive ◽  
Targeted Interventions

9015 Background: Suicide rates in YA cancer patients are higher than in the general population. Although cancer is associated with a four-fold increase in the likelihood of a suicide attempt, little is known about suicidality in YAs with cancer. This study examined rates and clinical risk factors associated with suicidality in a sample of YAs with advanced cancer. Methods: Structured interviews were conducted between 4/2010 and 9/2011 with 70 YA advanced cancer patients (range 20-40 yrs, M=33.97, SD=5.61) receiving care at the Dana-Farber Cancer Institute. Validated measures assessed suicidality (i.e., Yale Evaluation of Suicidality), quality of life, major depressive disorder, grief over cancer-related losses, and social support. Scores on the suicidality measure were dichotomized into positive screen = 1 and negative screen = 0. Chi-square, t-test, and logistic regression analyses evaluated the relationship between suicidality and participant characteristics and psychosocial variables, controlling for confounding variables. Results: Over one-fifth (21.4%) of the sample screened positive for suicidality. Female gender χ2(1, N = 70) = 4.95, p = .026), breast compared with other cancer diagnosis χ2(1, N = 70) = 5.66, p = .017), and better performance status (t(68) = 3.13, p < .01) were associated with lower rates of suicidality. Participants who met criteria for current (OR [95% CI] 8.67 [1.78, 42.22]) or lifetime major depressive disorder (5.38 [1.60, 18.12]) endorsed higher rates of suicidality. Better overall (.97 [.94, .99]), psychological (.93 [.87, .94]), and existential quality of life (.91 [.85, .98]) were associated with reduced suicidality risk. More severe grief was associated with greater risk (1.15 [1.04, 1.28]) whereas greater social support was associated with lower suicidality risk (.85 [.74, .97]). Conclusions: YAs with advanced cancer reported higher rates of suicidality than observed in other age groups. Developmentally targeted interventions that promote physical function, effectively treat depression, improve quality of life and reduce grief, and provide opportunities for social support may reduce rates of and risk for suicidality in this population.

Evaluation of patient social support, caregiver burden, and their relationship with the course of the disease in patients with bipolar disorder

2021 ◽  
pp. 002076402110619
Author(s):  
Somayeh Shokrgozar ◽  
Vida Rouzbehan ◽  
Roghayeh Zare ◽  
Elahe Abdollahi
Keyword(s):  
Social Support ◽  
Bipolar Disorder ◽  
Caregiver Burden ◽  
Clinical Course ◽  
Recovery Phase ◽  
Response To Treatment ◽  
Recurrence Time ◽  
Type I ◽  
Clinical Variables ◽  
Social Support Scale

Background: Bipolar disorder is a chronic disorder that causes significant effects on the patient and exerts a significant care burden on caregivers. This study aimed to investigate the social support of patients, caregivers’ burden and their impact on the clinical course of the disease. Methods: The study included 85 patients with bipolar disorder type I and II (in the recovery phase of the disease) and their caregivers in the age range of 18 to 60 years. It was conducted in Shafa psychiatry Hospital in Rasht (Guilan, Iran, 2020). To assess social support and burden, patients and caregivers completed the Multidimensional Perceived Social Support Scale (MSPSS) and Caregiver Burden Inventory (CBI), respectively. Clinical variables were also obtained from patients’ medical records; Then ANOVA, MANOVA, Independent T-test were used to compare the data and Regression Analysis and Spearman correlation coefficient were used to find the relationships between variables. Results: It was showed that increasing patient social support is associated with reducing caregiver burden. Among the clinical variables, less social support and more caregiver burden were associated with longer duration of illness ( p < .0029, p < .012), decrease in last recurrence time ( p < .0013, p < .0001), increased number of hospitalizations ( p < .0001, r = −.43 and p < .0001, r = +.49), decreased response to treatment ( p < .0001, p < .0001), and reduced follow-up ( p = .001, OR = 1.12 and p = .001, OR = 0.95). Conclusion: The relationship between low social support and high caregiver burden and their significant effect on the disease course indicates a vicious cycle that affects patients, caregivers, and the clinical course of the disease. Therefore, it seems that interventions to break this cycle can change the situation in favor of patients and caregivers and improve the clinical course of the disease.

Sign in / Sign up

Export Citation Format

Share Document