Development of an Experience-Based Caregiver Burden Scale in Advanced Cancer

2016 ◽  
Vol 39 (1) ◽  
pp. 12-19 ◽  
Author(s):  
Kwo-Chen Lee ◽  
Jia-Jean Yiin ◽  
Yann-Fen Chao
Keyword(s):  
Advanced Cancer ◽  
Caregiver Burden ◽  
Burden Scale

Study on the Correlation between Caregiver Burden and Social Support of Low-Income Home-Based Patients with Advanced Cancer

2021 ◽  
Vol 7 (5) ◽  
pp. 1495-1502
Author(s):  
Ping LIU ◽  
Yan LIU
Keyword(s):  
Social Support ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Caregiver Burden ◽  
Low Income ◽  
General Information ◽  
Home Based ◽  
Close Relationship ◽  
Social Support Scale ◽  
Burden Scale

Objective To explore the correlation between caregiver burden and social support of low-income home-based patients with advanced cancer. Methods A self-made questionnaire was used to investigate 110 caregivers of low-income home-based patients with advanced cancer. The questionnaire included general information of patients and caregivers, Zarit Caregiver Burden Scale (ZBI), and social support scale, etc. The survey data were sorted out by Excel software and entered into the database, and the statistical analysis was completed with R3.5.2 software. The data of patients and caregivers were analyzed by frequency, rate, and means ± standard deviation (x±s). The correlation index was used to analyze the relationship between caregiver burden and social support. Results According to the investigation and analysis, the home-based caregivers of low-income cancer patients have a heavy burden. The ZBI score is (33.76 + 13.67) points, with a median of 33.0 points, which belongs to moderate and severe burden; the caregivers of low-income cancer patients received less social support, and the utilization of social support was low, with an average of (32.70 + 7.17) points and a median of 32.5 points, lower than the norm of (34.56 + 3.73) points. There was a negative correlation between caregiver burden and social support and each dimension (P; 0.001). Conclusion There is a close relationship between the burden of home-based caregivers and social support of low-income patients with advanced cancer. More attention should be paid to this group and more practical support and assistance should be provided to help reduce the pressure and burden of caregivers.

scholarly journals Self-care, resilience, and caregiver burden in relatives of patients with advanced cancer: results from the eQuiPe study

2021 ◽  
Author(s):  
Janneke van Roij ◽  
Linda Brom ◽  
Dirkje Sommeijer ◽  
Lonneke van de Poll-Franse ◽  
Natasja Raijmakers ◽  
...  
Keyword(s):  
Advanced Cancer ◽  
Caregiver Burden ◽  
Informal Caregiver ◽  
Causal Relation ◽  
Self Care ◽  
Multivariable Logistic Regression Analysis ◽  
Multicenter Observational Study ◽  
Highly Educated ◽  
Resilience Scale ◽  
Prospective Longitudinal

Abstract Purpose Relatives are often involved in caregiving for patients with advanced cancer and carry a heavy burden. Self-care and resilience might be beneficial to enhance their wellbeing and burden-bearing capacity. This study assessed the engagement in self-care and resilience in relatives of patients with advanced cancer and its association with their caregiver burden. Methods This study analyzed baseline data of the eQuiPe study, a prospective longitudinal, multicenter, observational study on quality of care and life of patients with advanced cancer and their relatives in which self-care (Self-care Practices Scale), resilience (Connor-Davidson Resilience Scale), and caregiver burden (Zarit Burden Interview (ZBI)) of relatives were included. Their scores were compared with a gender- and age-matched normative population. Multivariable logistic regression analysis was performed to assess the association between self-care and resilience with caregiver burden. Results Most of the 746 relatives were the patient’s partner (78%) and 54% reported to be an informal caregiver of the patient. The median hours of caregiving a week for all relatives was 15 and 11% experienced high caregiver burden (ZBI > 20). Relatives who reported a high caregiver burden engaged less often in self-care (OR = .87) and were less resilient (OR = .76) compared to relatives with low/medium caregiver burden. Relatives with high caregiver burden were younger (OR = .96), highly educated (OR = 2.08), often reported to be an informal caregiver of the patient (OR = 2.24), and were less well informed about the importance of self-care (OR = .39). Conclusion A significant number of relatives of patients with advanced cancer experienced high caregiver burden. As more self-care and resilience were associated with lower experienced caregiver burden, creating awareness of the beneficial potential of self-care is important. Future studies should illuminate the causal relation. Trial registration number NTR6584 (date of registration: 30 June 2017)

scholarly journals Caregiver Burden: Caregiving Workshops Have a Positive Impact on Those Caring for Individuals With Dementia in Arkansas

2021 ◽  
Vol 8 ◽  
pp. 237437352110180
Author(s):  
Robin E. McAtee ◽  
Laura Spradley ◽  
Leah Tobey ◽  
Whitney Thomasson ◽  
Gohar Azhar ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Health Care Providers ◽  
Positive Impact ◽  
Educational Programs ◽  
Vital Role ◽  
Complex Care ◽  
Care Providers ◽  
Dementia Caregivers ◽  
Before And After ◽  
Burden Scale

Millions of Americans live with dementia. Caregivers of this population provide countless hours of multifaceted, complex care that frequently cause unrelenting stress which can result in immense burden. However, it is not fully understood what efforts can be made to reduce the stress among caregivers of persons with dementia (PWD). Therefore, the aim of this pretest–posttest designed study was to evaluate changes in caregiver burden after providing an educational intervention to those caring for PWD in Arkansas. Forty-one participants completed the Zarit Caregiver Burden Scale before and after attending a 4-hour dementia-focused caregiving workshop. The analysis of the means, standard deviations, and paired t tests showed that there was an increase in the confidence and competence in caring for PWD 30 to 45 days after attending the workshop. Health care providers need to understand both the vital role caregivers provide in managing a PWD and the importance of the caregiver receiving education about their role as a caregiver. Utilizing caregiver educational programs is a first step.

scholarly journals Development of a measure of caregiver burden in paediatric chronic kidney disease: The Paediatric Renal Caregiver Burden Scale

2014 ◽  
Vol 21 (2) ◽  
pp. 193-205 ◽  
Author(s):  
Rhian Parham ◽  
Nicola Jacyna ◽  
Daljit Hothi ◽  
Stephen D Marks ◽  
Sue Holttum ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Caregiver Burden ◽  
Burden Scale

Abstract TP365: Design of a Mobile-friendly Website to Reduce Stroke Caregiver Burden: a Focus Group Study

Stroke ◽  
2017 ◽  
Vol 48 (suppl_1) ◽  
Author(s):  
Michelle R Caunca ◽  
Maria V Diaz ◽  
Andres De Leon-Benedetti ◽  
Gregory Hartley ◽  
Sara J Czaja ◽  
...  
Keyword(s):  
Focus Groups ◽  
Caregiver Burden ◽  
Short Form ◽  
The United States ◽  
Internet Technology ◽  
User Centered Design ◽  
Focus Group Study ◽  
Caregiver Support ◽  
Behavioral Issues ◽  
Burden Scale

Background: Stroke is a leading cause of disability in the United States. Family members often have to assume the role of informal caregiver. Despite an abundance of resources, caregiver burden continues to be a major issue, leading to negative outcomes such as depression. Objective: To characterize the needs of stroke caregivers in order to inform the design of a mobile-friendly website intervention. We hypothesized that a website intervention, designed using a user-centered design approach, will help equip caregivers for the caregiving role and reduce associated caregiver burden. Methods: Focus groups with caregivers of stroke patients were conducted in English (N=3) and Spanish (N=4) to gather data on major obstacles experienced by caregivers. Participants were also asked about the challenging aspects of caregiving and their use of mobile devices. Results: Of seven total caregivers (86% Hispanic, 100% female, mean [SD] age=60 [9] years), 86% were smartphone users. The median (interquartile range) score on the short form Zarit Burden scale was 18 (12-20), indicating elevated caregiver burden in our sample. Across all participants, 100% cited lack of training as a major challenge, 86% cited financial difficulties and dealing with patient cognitive issues, 71% reported physical and emotional challenges, 43% participants cited time constraints and patient behavioral issues, and 29% reported problems with patient communication and acceptance of their situation. Using these findings, we designed a Stroke Caregiver Support System prototype by collecting existing resources from publically available sources based on the issues identified by our focus groups. Website usability testing was conducted to gather feedback caregivers and further refine our intervention. Conclusions: We plan a small pilot test of this intervention in our community to measure its usability and gather more feedback on acceptability and usefulness of the intervention. Given the prevalence of mobile and internet technology, we believe that a mobile-friendly website may be a practical and easily accessible tool for caregivers as they navigate their new roles.

Exploratory and Confirmatory Factor Analysis of the Burden Scale for Family Caregivers-Short Form

2021 ◽  
pp. 106648072110524
Author(s):  
Rachel R. Tambling ◽  
Carissa D’Aniello ◽  
Beth S. Russell
Keyword(s):  
Factor Analysis ◽  
Confirmatory Factor Analysis ◽  
Family Caregivers ◽  
Exploratory Factor Analysis ◽  
Caregiver Burden ◽  
Short Form ◽  
Research Attention ◽  
Caregiving Burden ◽  
Confirmatory Factor ◽  
Burden Scale

Caregiver burden describes the physical, psychological, social, and financial demands of providing care to others. Caregiver burden has been investigated in general, and off-time caregiving often specific to chronic, recurring conditions. Despite the substantial research attention to caregiving burden, there have been few studies aimed establishing the psychometric evaluation of measurement tools used to measure the construct ( Pendergrass et al., 2018 ). Accurate measurement of caregiving burden is essential for studying the myriad effects on caregivers’ mental, physical, financial, and relational health. To begin to fill this gap, we conducted an exploratory factor analysis and a confirmatory factor analysis of the Burden Scale for Family Caregivers ( Pendergrass et al., 2018 ) in two distinct samples. Results of an exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) indicated a one factor solution. Implications for these findings on the study of caregiver burden are included.

scholarly journals Assessment of caregiver burden with elderly having cognitive deficit

2012 ◽  
Vol 25 (6) ◽  
pp. 908-913 ◽  
Author(s):  
Aline Cristina Martins Gratao ◽  
Luana Flávia da Silva Talmelli ◽  
Vanderlei José Haas ◽  
Sueli Marques ◽  
Luciana Kusumota ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Cognitive Deficit ◽  
The Elderly ◽  
Cross Sectional Study ◽  
Cognitive Capacity ◽  
Cross Sectional ◽  
Caregiver Health ◽  
Burden Scale ◽  
Double Entry ◽  
Self Reporting Questionnaire

To characterize the elderly with cognitive déficit, and family caregivers who live in the urban communit,y and to identify the caregiver burden. METHODS: An observational, cross-sectional study, conducted between January and July 2009. Seventy elderly (aged 65 and older) were assessed for cognitive deficit using the Mini Mental State Examination (MMSE); their 70 caregivers were evaluated by the Zarit Burden Scale (ZBS) and the Self Reporting Questionnaire (SRQ). The data were entered and validated by double entry in the MS Excel Program, and were analyzed using SPSS software, version 15.0. RESULTS: Of the caregivers, 47.1% were children. We obtained a mean for the ZBS of 30.3 (± 17.3) and 6.2 (± 3.2) for the SRQ, p <0.05, correlating lower scores of the MMSE with high scores on ZBS and SRQ. CONCLUSIONS: Cognitive deficit of the elderly was a predictive factor for burden and emotional distress of caregivers. Knowing the reduction of cognitive capacity related to caregiver burden is essential for preserving caregiver health.

scholarly journals Caregiver Burden Associated-Risk Factor of Chronic Kidney Disease Patients with Hemodialysis

2020 ◽  
Vol 9 (2) ◽  
pp. 481-487
Author(s):  
Rahmat Alfi Syahri ◽  
Said Usma ◽  
Irwan Saputra ◽  
Hajjul Kamil ◽  
Nurjannah Nurjannah
Keyword(s):  
Caregiver Burden ◽  
Treatment Duration ◽  
Well Being ◽  
P Value ◽  
Knowledge Level ◽  
Inclusion Criteria ◽  
Dialysis Treatment ◽  
Study Enrollment ◽  
Burden Scale ◽  
Relationship Of

All respondents who were suitable for the inclusion criteria would automatically include into the study. Respondents must be a caregiver for one of his family members who underwent dialysis treatment in the center and signed informed consent for the study enrollment. Caregiver burden was assessed using standardized questionnaire based on Zarit Burden Scale and The Montgomery Borgotta Caregiver Burden Scale which consists of 39 questions. There were 40 respondents who included into the study with following results, the statistical analysis has been proved that significant relationship of gender and knowledge level was evident in the study with the high CB (p-value < 0.05) while age, education level, and treatment duration was not associated with CB in the study. The linkage between those risk factors must be considered in every circumstance for patient well-being since its relationship with higher CB was evident through the study

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