A Transformative Impact of Theory in Clinical Practice: A Study in a Cardiogenetics Clinic

2020 ◽  
Vol 34 (2) ◽  
pp. 129-143
Author(s):  
Esma D. Paljevic
Keyword(s):  
New York ◽  
Lived Experience ◽  
Family Member ◽  
Phenomenological Study ◽  
Family Members ◽  
Phenomenological Approach ◽  
Genetic Profile ◽  
Delivery Of Care ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study

Background and PurposeThis qualitative phenomenological study explored the lived experiences of family members who have been referred to a cardiogenetics clinic following the loss of a family member to sudden cardiac death (SCD). These family members were evaluated in a Cardiogenetics Clinic in a Children's Hospital in the New York region, which utilizes an interprofessional approach to care.MethodsA qualitative phenomenological approach was used to explore the lived experience of family members that were referred following the SCD of a family member. The researcher used hermeneutic dialectics and interviewed family members that attended the Cardiogenetics Clinic.ResultsInsights gained through discussion were discussed in the following themes: stories of feelings being heard, stories of meaningfulness, and stories of mutual process. This led to the transformation of the typical linear clinic process to a transformative and dynamic model for integrated delivery of care.Implications for PracticeThis interprofessional model of care offers information regarding SCD, a genetic profile to determine risk for SCD, an integrative collaborative approach to care as well as nursing, medical interventions, psychological support, and counseling for families.

Impact of Spirituality on the Lived Experience of Christians During OT Rehabilitation

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512510228p1-7512510228p1
Author(s):  
Debra Hanson ◽  
Cherae C. Reeves ◽  
Alyssa Raiber ◽  
Megan K. Hamann
Keyword(s):  
Lived Experience ◽  
Conceptual Model ◽  
Culturally Relevant ◽  
Phenomenological Study ◽  
Rehabilitation Process ◽  
Occupational Participation ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study ◽  
Primary Author

Abstract Date Presented 04/13/21 Results of a qualitative phenomenological study of the influence of spirituality on the lived experience of Christians during the rehabilitation process are shared. Findings show the pervasive impact of spirituality on occupational participation, performance, and engagement and align with the concepts of Humbert’s conceptual model of spirituality. This study of spirituality as expressed from a specific worldview perspective advances the provision of holistic, culturally relevant OT services. Primary Author and Speaker: Debra Hanson Contributing Authors: Heather Roberts, Angela Shierk

scholarly journals Nurses lived experiences of conscience reaction: a qualitative phenomenological study

2012 ◽  
Vol 2 (3) ◽  
pp. 3-9 ◽  
Author(s):  
Parkhideh Hasani ◽  
Rostam Jalali ◽  
Zhila Abedsaeedi
Keyword(s):  
Lived Experience ◽  
Phenomenological Study ◽  
Quality Care ◽  
Care Practice ◽  
Professional Lives ◽  
Personal Integrity ◽  
Next Of Kin ◽  
Health Care Practice ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study

Background and objectives: Conscience is a cornerstone of ethics, affecting both our private and professional lives. Everyday health care practice raises questions about conscience and how to understand its role. Conscience has also been described as inducing self-growth and protecting personal integrity. Nurses views on their reactions to behaviors consistent or contrary to conscience could therefore help us to understand the meaning of the reactions of conscience. This study aimed to illuminate meanings of nurses lived experience of conscience reaction in their daily practices.Material and methods: Interviews with nine nurses were interpreted using a phenomenological hermeneutic (Colaizzi, 1978) method. Data was collected in 2010 among nurses working in various hospitals in Kermanshah. The nurses were selected for participation purposively.Results: The nurses lived experience of conscience reaction was formulated in three themes and ten sub-themes. The first theme is ‘being peace, which includes three sub-themes: Being calm, being pleased, and being satisfying. The second theme is ‘trouble conscience’ which includes four subthemes: guilt, thinking engagement, discomfort, and fretfulness. The third theme is responding which includes three sub-themes: expressing, compensation, and lack of repeat.Conclusions: The nurses lived experience of conscience reaction showed that nurses considered conscience reaction to be an important factor in the exercise of their profession, as revealed by the descriptive categories: being peace when they act consistent with conscience; trouble conscience when they act contrary on conscience; and responding after doing an anti conscience practice. They perceived that conscience played a role in nursing actions involving patients and next of kin, and guided them in their efforts to provide high quality care.  DOI: http://dx.doi.org/10.3329/bioethics.v2i3.10257Bangladesh Journal of Bioethics 2011;2(3):3-9

Transitioning Out of Foster Care

2017 ◽  
Vol 51 (4) ◽  
pp. 529-547 ◽  
Author(s):  
Sunny Harris Rome ◽  
Miriam Raskin
Keyword(s):  
Foster Care ◽  
Lived Experience ◽  
Phenomenological Study ◽  
Mental Health Problems ◽  
Aging Out ◽  
First Year ◽  
Full Time ◽  
Employment Education ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study

Youth aging out of foster care are at particular risk for negative outcomes including school dropout, homelessness, poverty, unemployment, substance abuse, health and mental health problems, and victimization. Yet we know little about how, when, and why these youth find themselves on a downward trajectory. This qualitative, phenomenological study—conducted in partnership with four public child welfare agencies—examined the lived experience of 19 youth during their first year after exiting foster care. The authors used monthly, contemporaneous interviews to explore domains including housing, employment, education, and relationships with trusted adults. Although outcomes in employment were poorest, participants’ experience in all domains was characterized by frequent changes and instability. Adverse events began immediately and many youth were unsure how to navigate the system to get help. Yet youth who were successful in one domain were more likely to be successful in others. Risk factors included having four or more foster care placements, being on probation, accumulating fines, and losing government assistance. Protective factors included living with an adult who shares the rent and maintains a positive, consistent presence; being a full-time student; receiving educational and housing subsidies; having reliable means of transportation and communication; and maintaining the same job throughout the transitional year. Despite facing significant obstacles, the youth demonstrated resilience and optimism as they contemplated their futures. Recommendations include providing specialized services that target youth as they exit the system, and emphasizing stability rather than self-sufficiency.

scholarly journals A Phenomenological Study of the Lived Experiences of the Generation X and Y Entrepreneurs

2017 ◽  
Vol 7 (2) ◽  
Author(s):  
Patrick Khor
Keyword(s):  
Lived Experience ◽  
Generation X ◽  
Generation Y ◽  
Phenomenological Study ◽  
Phenomenological Approach ◽  
Work Attitudes ◽  
Social Variables ◽  
Contributing Factors ◽  
Similar Work ◽  
Qualitative Phenomenological

This qualitative phenomenological approach examined the Generation X and Y cohorts in terms of their lived experience towards the  entrepreneurial journey in Singapore, which can consequently fill empirical gap on entrepreneurship among generational cohorts of Asian entrepreneurs.  The study sample comprised  15 generation X and 15 Y Singaporean entrepreneurs from 30 companies who identified their involvement in starting a business venture and in the day-to-day running of the business. Using NVIVO to cull down key components and ideas from the data, the study revealed that Generation X and Generation Y to have similar work attitudes, values and behaviours. The differences between the generations include differences in age, experience as well as obligations in life such as to one’s family. Further studies are needed to examine the differences of these cohorts in terms demographic, psychological and social variables to provide additional insights and identify contributing factors to successful entrepreneurial venture.

scholarly journals La relación enfermera-paciente: “a veces lo único que necesitas… es tomar la mano de la persona…”

2016 ◽  
Vol 3 (1) ◽  
pp. 12
Author(s):  
Cecilia Landman-Navarro ◽  
Carolina Salazar-Pérez ◽  
Damaris González-Cea ◽  
Francisca Romero-Benavides ◽  
Nicole Conejera-González ◽  
...  
Keyword(s):  
Lived Experience ◽  
Phenomenological Study ◽  
Sample Selection ◽  
Homogeneous Sample ◽  
Extensive Experience ◽  
The People ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study ◽  
Perception Of Care ◽  
Depth Interviews

Introduction: Watson established the humanized care as a research phenomenon. It remains an ethical responsibility of nurses in the context of a transpersonal relationship that enhance the harmony and individuals integrity. Humanized care now faces a dilemma for a coexistence of diverse institutional, biomedical, administrative-economist and humanist axiological models. Objective: To know the perception of care, according to lived experience of three retired nurses, through authentic stories. Methodology: A qualitative, phenomenological study describes the experiences through authentic stories of three retired nurses obtained by in-depth interviews. Homogeneous sample selection criteria: nurses belonging to 3 generations removed extensive experience in closed care, participation in training students. Results: four categories were found concatenated with each other, which reconfigure the essence of care, emphasizing the integral character of the people and harmonizing the relational dimension with the technical-scientific dimension. Nurse as a caregiver; person as being of care; essence of care and vocational training. Conclusion: Knowing the perception of retired nurses, regarding care is a contribution for reflection. It is necessary to aim for humanized care, as an ethical duty of nurses. The intervention of various institutional axiological models weakens the possibility of guiding care towards humanization. There is a risk of fragmenting people, leaving aside individualized, warmth care, generated through a transpersonal relationship.

scholarly journals Family members’ experiences of caring for a person with dementia at end-of-life

2021 ◽  
Author(s):  
◽  
Lucy Hester Nunns
Keyword(s):  
Lived Experience ◽  
End Of Life ◽  
Family Member ◽  
Terminal Illness ◽  
Living Arrangement ◽  
Family Members ◽  
Phenomenological Approach ◽  
Care Needs ◽  
Optimal Care ◽  
People With Dementia

<p>Dementia is now recognised as a progressive terminal illness causing significant health-care needs for people with dementia and challenges to their family member caregivers. The purpose of this study was to understand the lived experience of family member caregivers of people with dementia at end-of-life. The research was conducted using a phenomenological approach and data were analysed using Colaizzi’s framework. Five family members were interviewed about their experiences of caregiving for six people with dementia. Four themes were revealed. These were: ‘Being at the Coalface’ with subthemes of overload, and experiencing guilt, shame and resentment; ‘Moving Heaven and Earth’ with subthemes of love and preserving dignity; ‘Facing the Change’ with subthemes of loss of the person, living arrangement transitions, and one dimensional conversations; and the fourth theme was ‘Finding the Answers’ with subthemes of diagnosis and preparedness. All the themes are closely interrelated and throughout all of the participants’ narratives, ‘love’ was the one constant that wove the themes together. This study gives voice to the inner experiences of the family caregivers who were supporting people with dementia in New Zealand. The findings of this study have elucidated many implications for practice and areas for innovation in supporting family member caregivers of people with dementia. This study has identified that the areas in most need of improvement are timely diagnosis, access to wrap-around support services, advance care planning opportunities and optimal care at end-of-life.</p>

scholarly journals Paint A Portrait: Lived Experience of Parents in the Implementation of Modular Distance Learning

2021 ◽  
Vol 3 (2) ◽  
pp. 37-50
Author(s):  
Daphnee S. Paco ◽  
Alberto D. Yazon ◽  
Karen A. Manaig ◽  
Sherwin B. Sapin ◽  
Marcial M. Bandoy
Keyword(s):  
Distance Learning ◽  
Lived Experience ◽  
Phenomenological Study ◽  
Narrative Form ◽  
Simple Task ◽  
Key Informant ◽  
Learning At Home ◽  
Qualitative Phenomenological ◽  
Key Informant Interview ◽  
Qualitative Phenomenological Study

This study determined the issues and challenges encountered by the parents who facilitated learning at home. This research was a Qualitative-Phenomenological study that utilized the Narrative Form using the responses of the parent-participants in the Key Informant Interview conducted by the researcher. Creswell Method applied in qualitative analysis of these reactions to explore the lived experience of parents who served as Learning Facilitators in Modular Distance Learning. From the responses of the participants in the Key Informant Interview conducted, the researcher was able to extract the following themes that describe their overall ability in painting the portrait of their children: FB: Keeping You Informed, Education Must Continue, Education Cannot Wait, MDL Finds a Way, Painting a Portrait as Consecrated Responsibility, Race Against Time, and Time Works Wonders.           The researcher was able to draw out issues with implications of the findings on the lived experiences of the parents in painting the portrait of their children as not just a simple task. Their ability to paint the picture and helping their children with their studies were perceived as challenging but added colors in making their future even more meaningful.   Keywords: Paint a Portrait, Modular Distance Learning, Learning Facilitator

scholarly journals Family members’ experiences of caring for a person with dementia at end-of-life

2021 ◽  
Author(s):  
◽  
Lucy Hester Nunns
Keyword(s):  
Lived Experience ◽  
End Of Life ◽  
Family Member ◽  
Terminal Illness ◽  
Living Arrangement ◽  
Family Members ◽  
Phenomenological Approach ◽  
Care Needs ◽  
Optimal Care ◽  
People With Dementia

<p>Dementia is now recognised as a progressive terminal illness causing significant health-care needs for people with dementia and challenges to their family member caregivers. The purpose of this study was to understand the lived experience of family member caregivers of people with dementia at end-of-life. The research was conducted using a phenomenological approach and data were analysed using Colaizzi’s framework. Five family members were interviewed about their experiences of caregiving for six people with dementia. Four themes were revealed. These were: ‘Being at the Coalface’ with subthemes of overload, and experiencing guilt, shame and resentment; ‘Moving Heaven and Earth’ with subthemes of love and preserving dignity; ‘Facing the Change’ with subthemes of loss of the person, living arrangement transitions, and one dimensional conversations; and the fourth theme was ‘Finding the Answers’ with subthemes of diagnosis and preparedness. All the themes are closely interrelated and throughout all of the participants’ narratives, ‘love’ was the one constant that wove the themes together. This study gives voice to the inner experiences of the family caregivers who were supporting people with dementia in New Zealand. The findings of this study have elucidated many implications for practice and areas for innovation in supporting family member caregivers of people with dementia. This study has identified that the areas in most need of improvement are timely diagnosis, access to wrap-around support services, advance care planning opportunities and optimal care at end-of-life.</p>

Therapeutic paralysis of critically ill trauma patients: perceptions of patients and their family members

1999 ◽  
Vol 8 (1) ◽  
pp. 490-498 ◽  
Author(s):  
KL Johnson ◽  
RB Cheung ◽  
SB Johnson ◽  
M Roberts ◽  
J Niblett ◽  
...  
Keyword(s):  
Lived Experience ◽  
Critically Ill ◽  
Emotional Support ◽  
Family Members ◽  
Phenomenological Approach ◽  
Neuromuscular Blocking ◽  
Trauma Patients ◽  
Confounding Variables ◽  
Qualitative Phenomenological ◽  
Additional Education

BACKGROUND: Neuromuscular blocking agents are used in critically ill patients to induce therapeutic paralysis. These drugs leave patients fully immobile but conscious. Analgesics and sedatives are concomitantly administered with the paralytic agents. Little is known about what patients remember when they receive these combinations of drugs. Even less is known about the experiences and needs of the patients' family members during the patients' paralysis. OBJECTIVES: To obtain recollections of therapeutic paralysis in critically ill adult trauma patients and to determine the psychological, emotional, and educational needs of the patients' family members during the time the patients were paralyzed. METHODS: A qualitative phenomenological approach was used to investigate the "lived" experience of therapeutic paralysis of 11 pairs of subjects. Each pair consisted of one critically ill adult trauma patient and one member of the patient's family. RESULTS: The patients recalled their experience of therapeutic paralysis with vagueness, as if they had been dreaming. Few recalled pain or painful procedures. Patients remembered having nurses and family members provide emotional support and encouragement. Family members understood the rationale for use of the drugs. They remembered being encouraged to touch and talk with patients. The subjects suggested providing additional education about events that occur when paralysis is being reversed. CONCLUSIONS: Two confounding variables may have affected these findings: a liberalized visiting policy and use of effective pain and sedation protocols. Healthcare professionals and patients' family members should monitor bedside conversations and use touch and words of encouragement to support patients during therapeutic paralysis.

scholarly journals Researching the Intangible: A Qualitative Phenomenological Study of the Everyday Practices of Belonging

2014 ◽  
Vol 19 (1) ◽  
pp. 67-77 ◽  
Author(s):  
Julia Bennett
Keyword(s):  
Phenomenological Study ◽  
Phenomenological Approach ◽  
Daily Lives ◽  
Insider Information ◽  
Everyday Practices ◽  
Interview Situation ◽  
The Everyday ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study ◽  
Family Groups

How can the intangible aspects of everyday life be uncovered? A phenomenological approach has its origins in the everyday but also allows everything to be questioned. In studying belonging a phenomenological approach supported by a variety of qualitative methods produced a wealth of ‘insider’ information that could have been missed using more traditional methods. The research was based around multi-generational family groups as a family narrative focuses on relations between different family members over the generations rather than on an individual biography. Biographical interviews in family groups allowed families to talk about their lives together. Diaries put the direction of the research in the hands of the participants thus reversing, to some extent, the traditional power relations between researcher and researched. Through written and photo diaries participants shared details of their daily lives which might have been more difficult to elicit in a formal interview situation. The photos allowed the researcher to ‘visit’ places which are a part of the daily life of participants in a subtle and non-intrusive manner. These research approaches privilege the voices of the participants in research into their lives. Through demonstrating the richness of the data collected this article argues that such approaches could be used more widely.

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