scholarly journals The Lived Experiences of Parents of Iranian Young Women with Multiple Sclerosis

2019 ◽  
Author(s):  
Marzieh Panahi ◽  
Zahra Tazakori ◽  
Mansoureh Karimollahi

Abstract Background: Chronic illness in children causes more mental health risks for parents than other members of the family. Therefore, exploring the experiences of parents living with young women who have multiple sclerosis and presenting them to healthcare planners and managers can have a positive impact on community health. This study aimed to explore the experiences of parents of young women with multiple sclerosis in Iran. Methods: This research was a phenomenological study, and sampling was continued until data saturation, and 12 participants were chosen. The data were gathered using semi-structured interviews and analyzed using Colaizzi's method. Results: Open coding resulted in 450 codes, and after several stages of analysis and integration of similar codes, five main concepts, and 21 sub-concepts was produced. The main concepts included distress, trapping, adaptation barriers, response to illness, and reconciliation with the disease. Conclusion: This study showed the disease affects all dimensions of the parents' life and can lead to the experiences that are new to them and may lead to confusion. These findings can lead to more effective parental care for their daughters. It can also reduce the burden of disease on the family, the health system, and the community.

2021 ◽  
pp. 174498712110075
Author(s):  
Loretta Yuet Foon Chung ◽  
Lin Han ◽  
Yifei Du ◽  
Libo Liu

Background With epidemics emerging at a hastened pace, a phenomenological study allows researchers to cast aside their perceptions to understand nurses’ lived experiences, and from there to discover previously unavailable insights at the epicentre of a pandemic. Aims To understand volunteer nurses’ lived experiences in Wuhan. Methods A descriptive phenomenological study with a purposive sampling strategy was used to describe volunteer nurses’ experiences in Wuhan. Interviews continued until data saturation. Ten semi-structured interviews of 30 to 60 minutes duration were conducted from 27 to 30 March 2020. The narrative data were audiotaped, transcribed and analysed using Colaizzi’s method. Results Four themes emerged: mission and challenges denoted the participants’ realisation of the grim challenges ahead; challenges called for actions that described the concerted actions through partnerships and familial bonds; caring acts from all around revealed an external support system; and actions that made a difference portrayed the interplay of actions with feelings, thoughts and further actions to accomplish the mission. Conclusions This phenomenological study showed the interplay of nurses’ intentions and actions, and ‘actions speak louder than words’ when nurses were motivated by workmates’ actions to change their feelings, thoughts and actions. The concerted efforts can be used to develop educational programmes, management strategies and institutional policy on structure, system and resource utilisation, as well as dissemination of scientific knowledge to global healthcare workers and the public.


Author(s):  
Shoaleh Bigdeli ◽  
Hamid Reza Koohestani ◽  
Seyed Kamran Soltani Arabshahi ◽  
Mohammad Hasan Keshavarzi

The hidden curriculum refers to student experiences that occur outside the formal structure of the curriculum, and especially the messages provided by the education system concerning values, perspectives, behaviors, and attitudes which has a strong influence on students' professional development. This study aimed at explaining the lived experiences of undergraduate medical students about the “hidden curriculum.” This was a qualitative phenomenological study. Participants were medical students of Iran University of Medical Sciences and they were chosen by purposive sampling method based on the inclusion criteria. Semi-structured interviews with open-ended questions were conducted with 10 students until data saturation, and 7-step Colaizzi's method was utilized for the purposes of analyzing the study findings. In the process of analyzing data from medical students' lived experiences about hidden curriculum, the following three themes were extracted: 1. Conflict in value beliefs (sub-themes: not giving priority to students education, applicability to the clinical practice of  basic sciences, attitude towards discipline, professional ethics, justice in evaluation”) 2. Modeling teacher’s communication skills patterns (sub-themes: “teacher-patient relationship,” “teacher -student relationship and professor-colleagues relationship) 3. Effective teaching (sub-themes: “clinical teaching” and “theoretical teaching”). Based on the results of the study, the hidden curriculum has both positive and negative impacts on various aspects of learning, especially the attitudinal domain. Consequently, paying specific attention to hidden curriculums is an absolute need. © 2019 Tehran University of Medical Sciences. All rights reserved. Acta Med Iran 2019;57(5):308-315.


Author(s):  
Maryam Heydarian ◽  
Maryam Gholamzadehjefreh ◽  
Shahbazi Masoud

Aim: Dyspareunia and vaginismus are important issues in the lives of women with these disorders and have adverse, damaging consequences for the individual, the family, and the couple's intimacy. Therefore, the purpose of the present study was to investigate the lived experience of women with dyspareunia and vaginismus. Methods: The method of this study was descriptive-phenomenological psychological in which nine female participants suffering from dyspareunia and vaginismus were selected through purposeful sampling and data collection was continued through semi-structured interviews until data saturation was reached. After collecting the data and transcribing them, the researcher used Giorgi’s five-step phenomenological data analysis method. Results: Analyzing data led to 12 contributing components of the lived experience of women with dyspareunia and vaginismus which included: lack of awareness, experiencing the physical symptoms of anxiety, fear, predicting pain, feeling of inadequacy and inferiority, feeling of shame, hatred of sex and of spouse, a feeling of suffering, feeling of anger, feeling of guilt, decreased emotional and sexual intimacy, and regret about marriage. Conclusion: The results of this study also enrich the previous research literature on the lived experience of dyspareunia and vaginismus. Also, the structure of the lived experience of dyspareunia and vaginismus derived from this study is widely used to develop and apply preventive and therapeutic programs for this condition and its consequences.


Author(s):  
Pedro Aguas

Furthering innovation in English as a foreign language curriculum has been a concern for the Colombian educational system for many years. Nevertheless, the major attempts at the national level continue to fail. Through this phenomenological study of 12 participants at a an urban public school in grades 6-12 I attempted to answer the phenomenological question, “What were the lived experiences of key stakeholders involved in implementing an aligned curriculum at an urban public school in a northern city in Colombia, South America? “The theoretical framework that guides this study included innovation, the theory of policy attribution, and the learner-centered philosophy. The study employed Moustakas’ modification of the Stevick-Colaizzi’s-Keen method of phenomenological analysis and van Manen’s (1990) hermeneutic approach to phenomenology. The researcher collected the data through in-depth, semi-structured interviews, focus groups, and reflective diaries. Seven themes emerged from the data: (a) aligned curriculum and political aims, (b) awareness of the significance of affectiveness, (c) a sense of ownership and lifelong learning, (d) communication as the cornerstone of implementation, (e) ability to face uncertainty and challenges, (f) ability to create transformational leadership, and (g) transcendence toward innovation. The study highlights the feasibility of curriculum innovation at the secondary level with key stakeholders’ commitment and full potential.


2012 ◽  
Vol 17 (1) ◽  
Author(s):  
Juliana J. Willemse ◽  
Elma W. Kortenbout

The practice of community health nursing (CHN) may enhance the life experiences of families and communities, particularly amongst the poor and socially marginalised. CHN provides for a deeper understanding of the health status of families living within communities, for example, where and how they live, their cultural context and their ability to identify resources available to assist with their health care (Allender, Rector & Warner 2010:17).This qualitative phenomenological study reflects on the self-reported lived experiences of undergraduate CHN students at the University of the Western Cape in the City of Cape Town, South Africa. These students conducted a family health assessment (FHA) learning task at the homes of families within communities.Purposive and convenience sampling was used by students who had conducted an FHA. Fourteen students agreed to participate in the study, of whom nine were interviewed, two withdrew and the remaining three were not interviewed since no new data were emerging during interviews, indicating that saturation had been reached.During in-depth interviews with seven female and two male students, data for the exploration of the lived experiences was gathered through the following question: ‘How did you experience the FHA?’ Field notes were taken and used to capture non-verbal communication of participants. The focus of the study was to explore the lived experiences of students and not those of the family on whom the FHA was completed.Data collected were categorised into themes, guided by the systematic data analysis process of Tesch (1990) cited in Cresswell (2003:192). Four themes emerged: challenges of family selection, challenges of safety, socio-cultural challenges and academic challenges experienced by the participants. This study will inform future research and curriculum planning for CHN education in a multifaceted context.OpsommingDie praktyk van gemeenskapsgesondheidverpleging (GGV) het die potentiaal om die lewenservaringe van families en gemeenskappe te verryk, veral in arm en voorheen benadeelde gemeenskappe. GGV verskaf ‘n dieper begrip met betrekking tot die welstand van families in hulle gemeenskappe, byvoorbeeld, waar en hoe hulle leef, hul kultuur en hulle vermoë om beskikbare hulpbronne te identifiseer om sodoende hulle gesondheid te bevorder (Allender, Rector & Warner 2010:17).Hierdie kwalitatiewe fenomonologiese studie is ʼn refleksie op die self-gerapporteerde persoonlike ervaringe van voorgraadse gemeenskapsgesondheidverpleging studente (VGVS) verbonde aan die Universiteit van Wes Kaapland, in Kaapstad, Suid-Afrika. Hierdie studente het as ʼn werksopdrag ʼn familie gesondheidsberaming (FGB) by wonings van gesinne in die gemeenskap voltooi.ʼn Gerieflikheids- en doelgerigte steekproefneming is gedoen met studente wat die FGB voltooi het. Veertien studente het ingestem om aan die studie deel te neem, waarvan daar onderhoude met nege gevoer is. Twee studente het onttrek en die oorblywende drie is nie genader nie weens die feit dat daar geen nuwe data na vore gekom het nie, wat daarop dui dat saturasie bereik was.Data vir die verkenning van persoonlike ervaringe is deur in-diepte onderhoude met sewe vroulike en twee manlike studente ingesamel deur die volgende vraag te vra: ‘Wat was jou ervaring met die voltooing van die FGB?’ Veldnotas was geneem om nie-verbale kommunikasie van die studente aan te teken. Die fokus van die studie was gerig om die persoonlike ervarings van die VGVS te verken met verwysing na die FGB wat hulle voltooi het. Die fokus was nie gerig op die ondervindinge van die familie op wie die FGB gedoen is nie.Die ingesamelde data is in temas gekategoriseer volgens die sistematiese data analitiese proses van Tesch (1990), soos omskryf in Cresswell (2003:192). Vier temas is geïdentifiseer naamlik: uitdagings ten opsigte van die keuring van ‘n geskikte familie: uitdagings ten opsigte van veiligheid, sosiokulturele uitdagings en akademiese uitdagings soos ervaar is deur die deelnemende studente. Die belangrikheid van die studie is om toekomstige navorsing en kurrikulumbeplanning in gemeenskapsgesondheidverpleging binne ‘n diverse konteks te bevorder.


2020 ◽  
Vol 2 (3) ◽  
pp. 373-411
Author(s):  
Lolita A. Dulay ◽  
Elvira Sumbalan

This study explored the lived experiences of the Bukidnon State University Graduate student scholars in the Mindanao Regions during the School Year 2014-2020. The study delved into the scholars’ experiences in the six related factors, namely: students, BukSU faculty, BukSU administration, DepEd administration, work, and family. A phenomenological qualitative research design was employed. Twelve graduate student scholars were the participants of the study. The triangulation approach employing interviews, focus group discussions, and document review in the gathering of data assured the validity of the findings. Participants’ narratives on their lived experiences underwent transcriptions and analysis using Colaizzi’s method (1978). There were six (6) themes that surfaced-out from the lived experiences of the graduate student scholars, namely: Challenging yet, fulfilling Student-Learning Experiences; Satisfying Learning Experience with Well-rounded graduate faculty; Heart-warming learning experience with the BukSU Administration; Impressive support from the DepEd Administration; Pressured learning experience; and encouraging support system.  A model showcasing the meaningful experiences of the graduate scholars and the attributes of how these scholars succeed in the pursuit of a graduate degree came out from these emerging themes.


2016 ◽  
Vol 6 (2) ◽  
pp. 451-477
Author(s):  
Fei Wang

This phenomenological study provided an in-depth description of the internal meaning of the lived experiences of Canadian-born and foreign-born Chinese students in Canada and uncovered the differences in their social experiences. The study used semi-structured interviews to allow the participants to express their views on their lives in Northern Ontario, Canada. Four themes emerged: (a) perceptions of ethnic identity; (b) cultural integration; (c) perceptions of academic performance and (d) the effect of Canadian education on career options. The study revealed that Canadian-born Chinese students differed from their foreign-born counterparts in their viewpoints on ethnic identity; their perceptions concerning acculturation; and academic performance. They shared similarities in their views about Canadian and Chinese educational systems, teaching styles, and their career expectations.


2020 ◽  
Author(s):  
Fatemeh Touhidi Nezhad ◽  
Rostam Jalali ◽  
Fozieh Karimi

Abstract Background: Obstetric fistulas are one of the most tragic injuries that occur after difficult, prolonged childbirth without timely intervention. These fistulas cause discomfort to patients and result in emotional, social, and even physical suffering. The aim of the present study was to explore the experiences of women with rectovaginal fistula in Kamyaran city, in Kurdestan province, west of Iran. Methods: In a phenomenological study, 16 patients, healthcare personnel and patients' families were investigated. Purposive sampling was performed and Study participants were interviewed in-depth semi-structured interviews. All interviews were audio-recorded, transcribed verbatim (word by word) and analyzed by Colaizzi's method. In order to determine the validity of the study, Lincoln and Guba’s criteria, which include credibility, dependability, transferability, and confirmability, were considered. Results: Five general themes and ten sub-themes emerged after investigating interviews. Themes include religious harassment the sub-theme of being defiled), fail (subthemes of loss and negative attitudes, disrupted sex (the subtheme of sexual dissatisfaction), consequence (three subthemes of sleep disturbance, mental crisis, and isolation), and ultimately panic (three subthemes of humiliation, secrecy, and fear). Conclusion: The rectovaginal fistula is a complex and multifaceted problem with social, individual, familial, religious, and ethnic-environmental dimensions, so there is no simple solution to interact with this problem and there is a need to find a solution, considering the dimensions of the problem and plan for help these patients cope with their disease, and take steps to fully treat it.


Author(s):  
Zenobia Chan ◽  
Yuen-ling Fung ◽  
Wai-tong Chien

Our aim with this article is to demonstrate how the researchers use bracketing as a method of demonstrating the validity after initiating a phenomenological study. Although bracketing is a method of demonstrating the validity of the da ta collection and analysis process in most phenomenological studies, how the researchers use them in practice is rarely demonstrated explicitly. We collected data through our experiences in preparing a phenomenological research study. We suggest that the concept of bracketing should be adopted upon initiating the research proposal and not merely in the data collection and analysis process. We propose four strategies for doing bracketing that are guided by the thinking activity of reflexivity: mentality assessment and preparation before deciding the research paradigm, deciding the scope of the literature review according to the prevailing gate - keeping policy, planning for data collection using semi - structured interviews guided by open - ended questions, and planning for data analysis using Colaizzi’s method. Our proposition highlights that thorough preparation for doing bracketing is essential before entering the data collection and analysis process in phenomenology, because they are sequentially related.


2011 ◽  
Vol 17 (4) ◽  
pp. 441-462 ◽  
Author(s):  
Øyfrid Larsen Moen ◽  
Marie Louise Hall-Lord ◽  
Birgitta Hedelin

Attention deficit hyperactivity disorder (ADHD) is one of the most common childhood disorders, and little attention has been paid to the parents and their experiences. The aim of this study was to gain a deeper understanding of the Norwegian parents’ lived experiences of having a child with an ADHD diagnosis. A descriptive design using phenomenological approach was chosen as the research method. Individual qualitative interviews with nine parents, who were members of the ADHD Association, were conducted. The interviews were analyzed according to Colaizzi’s method. The essential structure of the parents’ experiences was Contending and Adapting Every Day—Windsurfing in unpredictable waters which was embedded in the interrelated main themes: Maintaining the Self and Parenthood, and Interacting With the Surrounding World. Being the parent of a child with ADHD is a demanding situation. Nurses need to address the needs of these parents and focus on the family unit.


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