scholarly journals A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS)

2020 ◽  
Author(s):  
Marianna Vitaloni ◽  
Angie Botto-van Bemden ◽  
Rosa Sciortino ◽  
Xavier Carné ◽  
Maritza Quintero ◽  
...  
Keyword(s):  
Value Chain ◽  
Online Survey ◽  
Task Force ◽  
Active Role ◽  
Cross Sectional Study ◽  
Patient Perception ◽  
Cross Sectional ◽  
Data Set ◽  
Surgical Treatments ◽  
Perception Survey

Abstract Background: Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey to compare the quality of life (QoL) & patient perceptions of care across countries. The goal was to collect data on OA patients' perception of OA to understand patients’ needs and expectations to improve OA management.Methods: Observational, cross-sectional study by online survey data collection from six countries, translated into three languages. The survey was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients' answers using the IBM SPSS® software.Results. A total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3% and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA Conclusions: OA has a significant impact on patients’ daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

scholarly journals A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS)

2020 ◽  
Author(s):  
Marianna Vitaloni ◽  
Angie Botto-van Bemden ◽  
Rosa Sciortino ◽  
Xavier Carné ◽  
Maritza Quintero ◽  
...  
Keyword(s):  
Value Chain ◽  
Online Survey ◽  
Task Force ◽  
Active Role ◽  
Cross Sectional Study ◽  
Patient Perception ◽  
Cross Sectional ◽  
Treatment Information ◽  
Poor Treatment ◽  
Perception Survey

Abstract Background Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey to compare the quality of life (QoL) & patient perceptions of care across countries. The goal was to collect data on OA patients' perception of OA to understand patients’ needs and expectations to improve OA management.Methods Observational, cross-sectional study by online survey data collection into three languages. Patient demographics, symptomology, OA impact on daily activity and QoL data were collected. The questionnaire comprised of 4 sections: clinical characteristics, relationship with physicians, perception of attention, treatment, information, and QoL.Results A total of 1512 surveys were filled in 7 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3% and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 51.7% considered their QoL satisfactory.Conclusions OA has a significant impact on patients’ daily activities and the desire to play an active role in managing their disease. Patients seek additional treatments stressing the need for investing in clinical research, implementing OA preventive measures and managing interventions to improve the healthcare value chain in OA.

scholarly journals A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS), a pilot study

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Marianna Vitaloni ◽  
Angie Botto-van Bemden ◽  
Rosa Sciortino ◽  
Xavier Carné ◽  
Maritza Quintero ◽  
...  
Keyword(s):  
Value Chain ◽  
Online Survey ◽  
Task Force ◽  
Patient Perception ◽  
Cronbach’S Alpha ◽  
Cross Sectional ◽  
Data Set ◽  
Cronbach's Alpha ◽  
Surgical Treatments ◽  
Perception Survey

Abstract Background Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey made by patients to analize the quality of life (QoL) & patient perceptions of care. The goal was to collect data on OA patients’ perception of OA to understand patients’ needs and expectations to improve OA management. Methods Observational, cross-sectional study by online survey data collection from six countries, translated into three languages. The questionnaire was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients’ answers. Additionally, Cronbach’s alpha was calculated to determine internal consistency validity. Results A total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3 and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA. The Cronbach’s alpha was 0.61. Conclusions OA has a significant impact on patients’ daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

scholarly journals A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS), a pilot study

2020 ◽  
Author(s):  
Marianna Vitaloni ◽  
Angie Botto-van Bemden ◽  
Rosa Sciortino ◽  
Xavier Carné ◽  
Maritza Quintero ◽  
...  
Keyword(s):  
Value Chain ◽  
Online Survey ◽  
Task Force ◽  
Patient Perception ◽  
Cronbach’S Alpha ◽  
Cross Sectional ◽  
Data Set ◽  
Cronbach's Alpha ◽  
Surgical Treatments ◽  
Perception Survey

Abstract Background: Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey made by patients to analize the quality of life (QoL) & patient perceptions of care across countries. The goal was to collect data on OA patients' perception of OA to understand patients’ needs and expectations to improve OA management.Methods: Observational, cross-sectional study by online survey data collection from six countries, translated into three languages. The survey was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients' answers. Additionally, Cronbach's alpha was calculated to determine internal consistency validity.Results. A total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3% and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA. The Cronbach's alpha was 0.61.Conclusions: OA has a significant impact on patients’ daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

scholarly journals A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS), a pilot study

2020 ◽  
Author(s):  
Marianna Vitaloni ◽  
Angie Botto-van Bemden ◽  
Rosa Sciortino ◽  
Xavier Carné ◽  
Maritza Quintero ◽  
...  
Keyword(s):  
Value Chain ◽  
Online Survey ◽  
Task Force ◽  
Patient Perception ◽  
Cronbach’S Alpha ◽  
Cross Sectional ◽  
Data Set ◽  
Cronbach's Alpha ◽  
Surgical Treatments ◽  
Perception Survey

Abstract Background: Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey made by patients to analize the quality of life (QoL) & patient perceptions of care across countries. The goal was to collect data on OA patients' perception of OA to understand patients’ needs and expectations to improve OA management. Methods: Observational, cross-sectional study by online survey data collection from six countries, translated into three languages. The survey was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients' answers. Additionally, Cronbach's alpha was calculated to determine internal consistency validity. Results. A total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3% and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA. The Cronbach's alpha was 0.61. Conclusions: OA has a significant impact on patients’ daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

scholarly journals Louisiana Medicaid access for treatment and care for hepatitis C virus (LA-MATCH) project: A cross-sectional study protocol

PLoS ONE ◽  
2021 ◽  
Vol 16 (10) ◽  
pp. e0257437
Author(s):  
Hasheemah Afaneh ◽  
Susanne Straif-Bourgeois ◽  
Evrim Oral ◽  
Ashley Wennerstrom ◽  
Olivia Sugarman ◽  
...  
Keyword(s):  
Hepatitis C ◽  
Online Survey ◽  
Cross Sectional Study ◽  
Fixed Cost ◽  
Sectional Study ◽  
Hcv Treatment ◽  
Cross Sectional ◽  
Data Set ◽  
Direct Acting Antiviral ◽  
Louisiana State University

Introduction This article presents the Louisiana Hepatitis C Elimination Program’s evaluation protocol underway at the Louisiana State University Health Sciences Center–New Orleans. With the availability of direct-acting antiviral (DAA) agents, the elimination of Hepatitis C (HCV) has become a possibility. The HCV Elimination Program was initiated by the Louisiana Department of Health (LDH) Office of Public Health (OPH), LDH Bureau of Health Services Financing (Medicaid), and the Louisiana Department of Public Safety and Corrections (DPSC) to provide HCV treatment through an innovative pricing arrangement with Asegua Therapeutics, whereby a fixed cost is set for a supply of treatment over five years. Materials and methods A cross-sectional study design will be used. Data will be gathered from two sources: 1) an online survey administered via REDCap to a sample of Medicaid members who are receiving HCV treatment, and 2) a de-identified data set that includes both Medicaid claims data and OPH surveillance data procured via a Data Use Agreement between LSUHSC-NO and Louisiana Medicaid. Discussion The evaluation will contribute to an understanding of the scope and reach of this innovative treatment model, and as a result, an understanding of areas for improvement. Further, this evaluation may provide insight for other states considering similar contracting mechanisms and programs.

scholarly journals The Public Attitudes, Concerns and Behaviors towards Children Vaccination

2021 ◽  
pp. 39-43
Author(s):  
Nehad J. Ahmed ◽  
Abdulrahman S. Alrawili ◽  
Faisal Z. Alkhawaja
Keyword(s):  
Online Survey ◽  
Public Attitudes ◽  
Active Role ◽  
Arabic Language ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
The Public ◽  
And Behavior ◽  
Attitudes And Behavior ◽  
Public Concerns

Aim: The aim of this study was to identify the public concerns, attitudes and behavior towards vaccination. Methodology: This was a cross-sectional study that included an online survey about the public concerns, attitudes and behavior towards vaccination in Saudi Arabia. The survey was translated to Arabic language and converted to an online form using google forms and after that it was sent to be filled by the parents. Results: About 92% of the respondents said that children should be vaccinated in order to protect them and about 86% of them believed that vaccinations are safe for children in general. Regarding the concerns about vaccination, about 69% of the respondents were concerned about the distress to children of the injection itself and 59% of them were concerned about the increasing number of vaccines recommended for children. Furthermore, about 62% of the respondents were concerned that vaccines are not tested enough for safety. Conclusion: The majority of respondents in this study reported positive attitude but more than half of them expressed some degree of concern regarding children vaccination. Healthcare professionals should play an active role in clarifying these concerns about vaccination with the public. Moreover, they should communicate with parents regarding the vaccinations and provide them with a trusted information about the vaccine.

Endometriosis-Associated Symptoms and Diagnostic Delay: An Online Survey

2020 ◽  
Author(s):  
Maryam Moradi ◽  
Azin Niazi ◽  
Melissa Parker ◽  
Anne Sneddon ◽  
Violeta Lopez ◽  
...  
Keyword(s):  
Online Survey ◽  
Age Of Onset ◽  
Diagnostic Delay ◽  
Delayed Diagnosis ◽  
Cross Sectional Study ◽  
Diagnosis Delay ◽  
Cross Sectional ◽  
Delay In Diagnosis ◽  
Associated Symptoms ◽  
Surgical Treatments

Abstract Background: Endometriosis is found in women of all ethnic and social groups with a prevalence of around 10%. However, data on diagnostic-delay and associated symptoms are limited. The aim of this study was to determine the endometriosis-associated symptoms and diagnosis-delay through an online survey. Methods: A cross-sectional study was conducted in Australia using an online web-based survey. All data were entered and analyzed using STATA (version 14/1). A total of 903 responders completed an online survey from September 2013 to October 2015.Results: Total participants of 903, 71.10% Australians (were born in Australia) and 28.90% Non-Australian (were not born in Australia), with self-reported diagnosis of endometriosis was confirmed by surgery in 86.5% of participants completed the online survey. Delay in diagnosis was 8.1±6.2 years. There was no difference between age range (p = 0.35), mean age of onset of the first symptoms (p = 0.93), and delay in diagnosis (p = 0.11) in both groups. Most common endometriosis-related symptoms that all responders had experienced in their lifetime were period pain 98.11%, fatigue 94.01%, bloating 90.69%, ovulation pain 88.70%, pelvic pain 87.26%, pain during before/after sexual activity 82.72% and heavy bleeding 82.17% and delayed fertility 37.98%. Treatments used in affected women included: pain killers 96.01% (n=867), hormonal medication 84.71% and surgical treatments 84.49 %. Rate of miscarriage or stillbirth was 13.4% and hysterectomy because of endometriosis was 9.6%. Conclusions: Vast similarities in demographics and endometriosis-associated symptoms among the Australian and non-Australian women with endometriosis support the universality of the disease characteristics. Delay in diagnosis of endometriosis is a problem and the reasons for delayed diagnosis must be better understood to try to shorten this delay. Except for pain, endometriosis patients suffer from a variety of symptoms and treatment must take into account the most prominent symptoms.

scholarly journals Doctors Perception of the Use of Hydroxychloroquine as Prophylaxis for COVID-19 Infection

2021 ◽  
Author(s):  
Proteesh Rana ◽  
Manik Ghadlinge ◽  
Pratap Singh ◽  
R. D. Chandane ◽  
Arjun Khanna
Keyword(s):  
Online Survey ◽  
Task Force ◽  
Scientific Evidence ◽  
Tertiary Care ◽  
Cross Sectional Study ◽  
Scientific Data ◽  
New Delhi ◽  
Cross Sectional ◽  
Attitudes And Practices ◽  
International Agencies

Background: The National Task force constituted by the Indian Council of Medical Research (ICMR) and various International agencies has recommended the use of Hydroxychloroquine (HCQ) as prophylaxis for Coronavirus Disease 2019 (COVID-19). This measure was taken because of the urgent need to protect high-risk individuals like Health Care Workers (HCW) from contracting COVID-19. Objectives: This study aimed to assess the awareness, attitudes, and practices on using HCQ as prophylaxis to prevent COVID-19 infection. Methods: A cross-sectional study was conducted among the doctors working in Dr RML Hospital, New Delhi, India, a tertiary care public hospital involved in the care of COVID-19 patients. The invitation to participate was electronically circulated, and the consenting participants were allowed to access an online survey. The survey had a total of 23 questions that were designed to understand the awareness, perception, and practices of doctors regarding the use of HCQ as prophylaxis in COVID-19. Results: About 147 doctors participated in this survey. The major source of knowledge regarding HCQ prophylaxis was quoted as regulatory agencies (44%), particularly ICMR, and the main indication was reported as being a healthcare worker (60%). Most of the participants (91%) believed that the HCQ effect is not clear and felt more scientific data regarding the use of HCQ as prophylaxis for COVID-19. But many doctors (51%) still recommend using HCQ to their colleagues. Conclusion: In this study, we observed that most doctors were aware of the recommendations regarding the HCQ prophylaxis in COVID-19 and had good adherence to therapy but felt the need for more concrete scientific evidence for using HCQ.

scholarly journals A Questionnaire-based Survey on Challenges Faced and Strategies Adopted by Pain and Palliative Care Physicians Working in Oncology Setup During Novel COVID-19 Pandemic – A Descriptive Cross-sectional Study

2021 ◽  
Vol 27 ◽  
pp. 319-329
Author(s):  
Raghav Gupta ◽  
Seema Mishra ◽  
Sushma Bhatnagar ◽  
Sachidanand Jee Bharati ◽  
Rakesh Garg ◽  
...  
Keyword(s):  
Palliative Care ◽  
Online Survey ◽  
Task Force ◽  
Absolute Number ◽  
Cross Sectional Study ◽  
Online Questionnaire ◽  
Cross Sectional ◽  
Exact Test ◽  
Novel Coronavirus ◽  
Number Percentage

Objectives: Novel coronavirus (COVID-19) pandemic has brought to the fore various challenges faced by pain and palliative care physicians working in oncology setup all over the country. Cancer care has been afflicted a lot during the pandemic, with challenges faced by patients and their caregivers as well as the healthcare workers. The questionnaire based online survey was conducted to explore the personal challenges faced, strategies adopted and to compare the challenges between different oncology setups. Materials and Methods: After obtaining institutional ethical clearance the online questionnaire prepared through Google forms was rolled out to pain and palliative care physicians working all over the country with the help of social media platforms. The results were expressed in absolute number, percentage and comparisons were made with the help of Fisher’s exact test. Results: Maximum challenges faced were the fear of carrying infection back home (91%), the possibility of attending to a COVID positive case in day to day clinical practice because of inadequate space and screening (62%) and limited services provided by NGO’s during pandemic (71%). Strategies commonly adopted were the provision of necessary personal protective equipment (83%), the conduct of educational sessions for the task force members (67%), maximum utilization of available space in the hospital (85%) and stockpiling of necessary medications and equipment (75%). Conclusion: It is the need of the hour to formulate strong and effective strategies to overcome the challenges encountered by pain and palliative care physicians so that we are equipped in the future to deal with any kind of pandemics.

Breakfast Skipping Is an Independent Predictor of Obesity but not Overweight Among Children in a Southeastern European Population

2016 ◽  
Vol 86 (5-6) ◽  
pp. 242-248 ◽  
Author(s):  
Genc Burazeri ◽  
Jolanda Hyska ◽  
Iris Mone ◽  
Enver Roshi
Keyword(s):  
Task Force ◽  
Demographic Data ◽  
Cross Sectional Study ◽  
European Population ◽  
Overweight And Obesity ◽  
World Health ◽  
Communist Country ◽  
Western Balkans ◽  
Cross Sectional ◽  
Breakfast Skipping

Abstract.Aim: To assess the association of breakfast skipping with overweight and obesity among children in Albania, a post-communist country in the Western Balkans, which is undergoing a long and difficult political and socioeconomic transition towards a market-oriented economy. Methods: A nationwide cross-sectional study was carried out in Albania in 2013 including a representative sample of 5810 children aged 7.0 – 9.9 years (49.5% girls aged 8.4 ± 0.6 years and 51.5% boys aged 8.5 ± 0.6 years; overall response rate: 97%). Children were measured for height and weight, and body mass index (BMI) calculated. Cut-off BMI values of the World Health Organization (WHO) and the International Obesity Task Force (IOTF) were used to define overweight and obesity in children. Demographic data were also collected. Results: Upon adjustment for age, sex, and place of residence, breakfast skipping was positively related to obesity (WHO criteria: OR = 1.5, 95% CI = 1.3–1.9; IOTF criteria: OR = 1.9, 95% CI = 1.4–2.5), but not overweight (OR = 1.1, 95% CI = 0.9–1.3 and OR = 1.1, 95% CI = 0.9–1.4, respectively). Furthermore, breakfast skipping was associated with a higher BMI (multivariable-adjusted OR = 1.05, 95% CI = 1.02–1.07). Conclusions: Our findings point to a strong and consistent positive relationship between breakfast skipping and obesity, but not overweight, among children in this transitional southeastern European population. Future studies in Albania and other transitional settings should prospectively examine the causal role of breakfast skipping in the development of overweight and obesity.

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