A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS), a pilot study

Abstract Background: Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey made by patients to analize the quality of life (QoL) & patient perceptions of care across countries. The goal was to collect data on OA patients' perception of OA to understand patients’ needs and expectations to improve OA management.Methods: Observational, cross-sectional study by online survey data collection from six countries, translated into three languages. The survey was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients' answers. Additionally, Cronbach's alpha was calculated to determine internal consistency validity.Results. A total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3% and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA. The Cronbach's alpha was 0.61.Conclusions: OA has a significant impact on patients’ daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

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A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS), a pilot study

BMC Musculoskeletal Disorders ◽

10.1186/s12891-020-03741-0 ◽

2020 ◽

Vol 21 (1) ◽

Author(s):

Marianna Vitaloni ◽

Angie Botto-van Bemden ◽

Rosa Sciortino ◽

Xavier Carné ◽

Maritza Quintero ◽

...

Keyword(s):

Value Chain ◽

Online Survey ◽

Task Force ◽

Patient Perception ◽

Cronbach’S Alpha ◽

Cross Sectional ◽

Data Set ◽

Cronbach's Alpha ◽

Surgical Treatments ◽

Perception Survey

Abstract Background Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey made by patients to analize the quality of life (QoL) & patient perceptions of care. The goal was to collect data on OA patients’ perception of OA to understand patients’ needs and expectations to improve OA management. Methods Observational, cross-sectional study by online survey data collection from six countries, translated into three languages. The questionnaire was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients’ answers. Additionally, Cronbach’s alpha was calculated to determine internal consistency validity. Results A total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3 and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA. The Cronbach’s alpha was 0.61. Conclusions OA has a significant impact on patients’ daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

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A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS), a pilot study

10.21203/rs.3.rs-19845/v3 ◽

2020 ◽

Author(s):

Marianna Vitaloni ◽

Angie Botto-van Bemden ◽

Rosa Sciortino ◽

Xavier Carné ◽

Maritza Quintero ◽

...

Keyword(s):

Value Chain ◽

Online Survey ◽

Task Force ◽

Patient Perception ◽

Cronbach’S Alpha ◽

Cross Sectional ◽

Data Set ◽

Cronbach's Alpha ◽

Surgical Treatments ◽

Perception Survey

Abstract Background: Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey made by patients to analize the quality of life (QoL) & patient perceptions of care across countries. The goal was to collect data on OA patients' perception of OA to understand patients’ needs and expectations to improve OA management. Methods: Observational, cross-sectional study by online survey data collection from six countries, translated into three languages. The survey was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients' answers. Additionally, Cronbach's alpha was calculated to determine internal consistency validity. Results. A total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3% and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA. The Cronbach's alpha was 0.61. Conclusions: OA has a significant impact on patients’ daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

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A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS)

10.21203/rs.3.rs-19845/v2 ◽

2020 ◽

Author(s):

Marianna Vitaloni ◽

Angie Botto-van Bemden ◽

Rosa Sciortino ◽

Xavier Carné ◽

Maritza Quintero ◽

...

Keyword(s):

Value Chain ◽

Online Survey ◽

Task Force ◽

Active Role ◽

Cross Sectional Study ◽

Patient Perception ◽

Cross Sectional ◽

Data Set ◽

Surgical Treatments ◽

Perception Survey

Abstract Background: Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey to compare the quality of life (QoL) & patient perceptions of care across countries. The goal was to collect data on OA patients' perception of OA to understand patients’ needs and expectations to improve OA management.Methods: Observational, cross-sectional study by online survey data collection from six countries, translated into three languages. The survey was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients' answers using the IBM SPSS® software.Results. A total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3% and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA Conclusions: OA has a significant impact on patients’ daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

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A patients’ view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS)

10.21203/rs.3.rs-19845/v1 ◽

2020 ◽

Author(s):

Marianna Vitaloni ◽

Angie Botto-van Bemden ◽

Rosa Sciortino ◽

Xavier Carné ◽

Maritza Quintero ◽

...

Keyword(s):

Value Chain ◽

Online Survey ◽

Task Force ◽

Active Role ◽

Cross Sectional Study ◽

Patient Perception ◽

Cross Sectional ◽

Treatment Information ◽

Poor Treatment ◽

Perception Survey

Abstract Background Globally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what’s important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey to compare the quality of life (QoL) & patient perceptions of care across countries. The goal was to collect data on OA patients' perception of OA to understand patients’ needs and expectations to improve OA management.Methods Observational, cross-sectional study by online survey data collection into three languages. Patient demographics, symptomology, OA impact on daily activity and QoL data were collected. The questionnaire comprised of 4 sections: clinical characteristics, relationship with physicians, perception of attention, treatment, information, and QoL.Results A total of 1512 surveys were filled in 7 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3% and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 51.7% considered their QoL satisfactory.Conclusions OA has a significant impact on patients’ daily activities and the desire to play an active role in managing their disease. Patients seek additional treatments stressing the need for investing in clinical research, implementing OA preventive measures and managing interventions to improve the healthcare value chain in OA.

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Perceived changes of specific attitudes, perceptions and behaviors during the Corona pandemic and their relation to wellbeing

Health and Quality of Life Outcomes ◽

10.1186/s12955-020-01623-6 ◽

2020 ◽

Vol 18 (1) ◽

Author(s):

Arndt Büssing ◽

Daniela Rodrigues Recchia ◽

Rudolf Hein ◽

Thomas Dienberg

Keyword(s):

Life Satisfaction ◽

Digital Media ◽

Online Survey ◽

Well Being ◽

Cronbach’S Alpha ◽

Satisfaction Scale ◽

Cross Sectional ◽

Cronbach's Alpha ◽

Attitudes And Behaviors ◽

And Behaviors

Abstract Background During the COVID-19 pandemic, most people had to cope with the restrictions of the lockdown, leaving them to their fears, insecurity and isolation. On the other hand, due to the unexpected ‘extra time’ there was room for new experiences and for personal reflections on what is essential in life, to perceive nature and relations more consciously etc. We, therefore, intended to analyze perceived changes of attitudes and behaviors during the time of lockdown, and whether these perceptions would contribute to personal wellbeing during the pandemic. Methods An anonym cross-sectional online survey was performed for data collection, using standardized questionnaires, i.e., the WHO-Five Well-being Index (WHO-5), Brief Multidimensional Life Satisfaction Scale (BMLSS), Awe/Gratitude scale (GrAw-7), and the newly developed Perceived Changes Questionnaire (PCQ). Results Within the number of respondents (n = 1277), women were predominating (67.5%). Participants’ mean age was 50.9 ± 14.9 years. Exploratory factor analyses showed that the 24-item Perceived Changes Questionnaire differentiated five factors that would account for 61% of variance: (1) Nature/Silence/Contemplation (Cronbach’s alpha = .87), (2) Spirituality (Cronbach’s alpha = .83), (3) Relationships (Cronbach’s alpha = .80), (4) Reflection on life (Cronbach’s alpha = .74), (5) Digital media usage (Cronbach’s alpha = .74). Strongest changes were observed for Relationships and Nature/Silence/Contemplation. Perceived changes were stronger among older persons, among persons with higher wellbeing, and among those who relied on their faith as a resource. These changes were predicted best by a person’s perception of wondering awe in distinct situations with subsequent feelings of gratitude. Stepwise regression analyzes revealed that participants’ wellbeing was explained best by low perceived burden and high life satisfaction (R2 = .46). Awe/gratitude, perceived changes in terms of Nature/Silence/Contemplation and low Reflections of live are further variables that would predict a person’s wellbeing among the COVID-19 pandemic. Conclusions During the Corona pandemic, people tried to find ways to adapt to the outcomes of the restrictions. The perceived changes of attitudes and behaviors can be interpreted in terms of a reappraisal strategy. These can be measured with the extended version of the PCQ which was found to have good quality indices and a plausible factor structure. The reported changes contribute to persons’ wellbeing only to some extend, indicating that they represent an independent quality of relevance in peoples’ life.

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Psychometric Properties of the Hungarian Version of the Iowa Infant Feeding Attitude Scale

10.21203/rs.3.rs-108656/v1 ◽

2020 ◽

Author(s):

Ungvary Renata ◽

András Ittzés ◽

Veronika Bóné ◽

Szabolcs Török

Keyword(s):

Psychometric Properties ◽

Infant Feeding ◽

Online Survey ◽

International Comparisons ◽

Attitude Scale ◽

Breastfeeding Duration ◽

Breastfeeding Support ◽

Cronbach’S Alpha ◽

Cross Sectional ◽

Cronbach's Alpha

Abstract Background: The Iowa Infant Feeding Attitude Scale (IIFAS) is a widely used tool to assess attitudes toward infant feeding methods. Attitudes toward breastfeeding are one of the main influencing factors of feeding choice and breastfeeding duration. Adaptation of IIFAS to Hungarian provides an opportunity for cross-cultural comparisons and helps targeting breastfeeding support interventions.Methods: The original IIFAS was translated into Hungarian and back-translated to English. A cross-sectional study was conducted among 553 mothers whose latest child’s age was between 6 and 36 months. In addition to the Hungarian IIFAS, infant feeding status and socioeconomic properties were self-reported in the online survey. Psychometric properties, validity and internal consistency were determined and compared with international results.Results: The 17 item IIFAS-H showed good psychometric properties with that of Cronbach alpha=0.733. Further analyses proved that two shortened versions of the IIFAS-17 consisting of 11 and 9 items also showed good properties (Cronbach’s alpha=0.789, 0.787). After comparing our results to the international short versions of IIFAS, we found that they share 8 identical items. These common 8 items have similar good properties with the Cronbach’s alpha=0.763.Conclusions: The benefits of possible use of international comparisons of the 8-item version outweigh its slightly lower reliability compared to the 9 or 11-item versions. Based on our analyses, we suggest the use of the 8-item-long, shortened version (IIFAS-H8) of the scale.

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Portuguese European spoken cross-cultural adaptation and validation of the patient perception of patient-centredness (PPPC)

European Journal of Public Health ◽

10.1093/eurpub/ckab120.016 ◽

2021 ◽

Vol 31 (Supplement_2) ◽

Author(s):

Luiz Miguel Santiago ◽

Beatriz Coelho

Keyword(s):

Internal Consistency ◽

Educational Level ◽

Person Perception ◽

English Language ◽

Patient Perception ◽

High Educational Level ◽

Cronbach’S Alpha ◽

Patient Centeredness ◽

Cross Sectional ◽

Cronbach's Alpha

Abstract Background There is growing evidence supporting the relevance of practicing Person-Centered Medicine (PCM). An English language tools exists to evaluate it from the person’s perspective. The aim of this study was to culturally adapt and validate for the European spoken Portuguese the Patient Perception of Patient-Centeredness (PPPC), a 9-item questionnaire 4 grade answering, created by Moira Stewart with an internal consistency of 0.80, Cronbach's alpha. Methods PPPC translation to Portuguese (PPPC-Pt), medical experts analisys, back-translation and degree of readability measurement were performed. Cross-sectional multicentric observational studies in convenience samples of persons having attended medical appointments and applying the PPPC-Pt and gender, age and academic training epidemiologic questioning were performed. Internal consistence by Cronbach’s alpha and descriptive and inferential statistical analysis were made for P < 0.01 level for difference. Results PPPC-Pt internal consistency of Cronbach’s alpha = 0.724, range 0.691 to 0.720, item-total correlations between 0.324–0.652, F-test of F = 32 343.086, P < 0.001, reliability of ρ = 0.960; P < 0.001, and Flesh Index of ‘easy’ were found. In n = 570, 36.8% women, 17.0% under 35 and 36.3% above 65 years, 48.9% at 6th level and 16.3% high educational level, a mean ± SD of 32.7 ± 3.7, median 33, minimum 13 maximum 36 points no differences were found for gender P = 0.732, age P = 0.572 and educational level P = 0.436 for the mean score of the PPPC-Pt. Conclusions The PPPC-Pt was cross-culturally adapted and is reliable and a valid measure of the measure of person perception of a PCM for the Portuguese population, even though with slight internal consistency (0.724 Pt and 0.800 Eng)

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Psychometric Properties of Grief Traits and State Scale for Nurses to Measure Levels of Grief

OMEGA - Journal of Death and Dying ◽

10.1177/00302228211036862 ◽

2021 ◽

pp. 003022282110368

Author(s):

Feni Betriana ◽

Tetsuya Tanioka ◽

Tomoya Yokotani ◽

Youko Nakano ◽

Hirokazu Ito ◽

...

Keyword(s):

Psychometric Properties ◽

Online Survey ◽

Nurse Managers ◽

Cross Sectional Study ◽

Cronbach’S Alpha ◽

Cross Sectional ◽

Unresolved Grief ◽

Cronbach's Alpha ◽

Two Factors ◽

State Scale

Frequent exposure to patient deaths prompts nurses to experience grief. Unresolved grief leads to harmful consequences of nurses’ mental health and quality of nursing care. A cross-sectional study using an online survey was conducted to determine the psychometric properties of the Grief traits and State Scale for Nurses. Exploratory factor analysis revealed two factors measuring the level of nurses’ grief traits (Cronbach’s alpha: 0.84) and two factors in grief state (Cronbach’s alpha: 0.86). Nurses’ feelings of unable to provide good care were associated with a higher risk of grief (odds ratio (OR): 4.30, 95% confidence interval (CI): 1.45–12.75), uncomfortable feeling toward deaths (OR: 11.29, 95%CI: 1.48–85.91), and emotional exhaustion (OR: 7.12, 95%CI: 1.63–30.99). Results indicated that the scale was reliable in determining the levels of their grief. Nurse managers can use the scale to identify their nurses’ levels of grief, creating opportunities to influence the resolution of the grief experiences.

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Cross Sectional Survey of Pakistani Muslims Coping Health Anxiety through Religiosity during COVID-19 Pandemic

10.21203/rs.3.rs-64185/v1 ◽

2020 ◽

Author(s):

Qaisar Khalid Mahmood ◽

Malik Muhammad Sohail ◽

Muhammad Babar Akram

Keyword(s):

Religious Coping ◽

Online Survey ◽

Health Anxiety ◽

Survey Method ◽

Fit Indices ◽

Cronbach’S Alpha ◽

Cross Sectional Survey ◽

Cross Sectional ◽

Cronbach's Alpha ◽

Composite Reliability

Abstract This study aims to investigate the role of religiosity in coping with health anxiety during the outbreak of COVID-19, a deadliest pandemic of century which is still affecting billions of lives globally. Using online survey method, the researchers collected the data from 408 Pakistani Muslim respondents. Health anxiety and religious coping were measured through seven items Likert scales. Psychometric analysis showed that both scales, health anxiety (Cronbach’s alpha ά=.87, composite reliability CR=.869) and religious coping (Cronbach’s alpha ά=.893, composite reliability CR=.888), showed good internal consistency. Path analysis, structural equational modeling performed, was performed. All the fit indices (GFI=.932, CFI=.954, TLI=.941, RMSEA=.073 & RMR=.035) were within acceptable limit. The regression results indicated that those who were suffering with health anxiety opted religious coping (β=.54, R2=.29, p<.001). These findings can be helpful for psychiatrists, physicians and researchers to understand psychological complications pertaining infectious diseases.

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Louisiana Medicaid access for treatment and care for hepatitis C virus (LA-MATCH) project: A cross-sectional study protocol

PLoS ONE ◽

10.1371/journal.pone.0257437 ◽

2021 ◽

Vol 16 (10) ◽

pp. e0257437

Author(s):

Hasheemah Afaneh ◽

Susanne Straif-Bourgeois ◽

Evrim Oral ◽

Ashley Wennerstrom ◽

Olivia Sugarman ◽

...

Keyword(s):

Hepatitis C ◽

Online Survey ◽

Cross Sectional Study ◽

Fixed Cost ◽

Sectional Study ◽

Hcv Treatment ◽

Cross Sectional ◽

Data Set ◽

Direct Acting Antiviral ◽

Louisiana State University

Introduction This article presents the Louisiana Hepatitis C Elimination Program’s evaluation protocol underway at the Louisiana State University Health Sciences Center–New Orleans. With the availability of direct-acting antiviral (DAA) agents, the elimination of Hepatitis C (HCV) has become a possibility. The HCV Elimination Program was initiated by the Louisiana Department of Health (LDH) Office of Public Health (OPH), LDH Bureau of Health Services Financing (Medicaid), and the Louisiana Department of Public Safety and Corrections (DPSC) to provide HCV treatment through an innovative pricing arrangement with Asegua Therapeutics, whereby a fixed cost is set for a supply of treatment over five years. Materials and methods A cross-sectional study design will be used. Data will be gathered from two sources: 1) an online survey administered via REDCap to a sample of Medicaid members who are receiving HCV treatment, and 2) a de-identified data set that includes both Medicaid claims data and OPH surveillance data procured via a Data Use Agreement between LSUHSC-NO and Louisiana Medicaid. Discussion The evaluation will contribute to an understanding of the scope and reach of this innovative treatment model, and as a result, an understanding of areas for improvement. Further, this evaluation may provide insight for other states considering similar contracting mechanisms and programs.

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