scholarly journals Supportive Care Needs Survey Short Form-34(SCNS-SF-34) Nepali Version: Psychometric Assessment Among Cervical Cancer Patients in Nepal

2021 ◽  
Author(s):  
Kamala Dhakal ◽  
Panpan Wang ◽  
Joanes Faustine Mboineki ◽  
Mikiyas Amare Getu ◽  
Changying Chen ◽  
...  
Keyword(s):  
Cervical Cancer ◽  
Supportive Care ◽  
Cancer Patients ◽  
Factor Structure ◽  
Internal Consistency ◽  
Convergent Validity ◽  
Discriminant Validity ◽  
Supportive Care Needs ◽  
Treatment Modalities ◽  
Care Needs

Abstract PurposePsychometrically valid and reliable supportive care need survey(SCNS) instrument explores perceived supportive care needs of cervical cancer patients in comprehensively. No Nepali validated version so we decided to test the psychometric properties of the translated Nepali version of SCNS-SF 34-N(Nepali) among cervical cancer patients.Methods334 participants were recruited purposively from 5 cancers specific hospital. Factor structure was assessed by using Exploratory factor analysis (EFA). Structure validity, Internal consistency convergent validity, and discriminant validity of the resulting factor structure were calculated and confirmed. ResultsUsing EFA a five-factor structure was developed considering higher loading factor for multiple loaded items which was similar with the dimensions of the original version of the SCNS-SF34 (psychological, health system and information, physical and daily living, patient care and support, and sexuality), accounting for 65.48% of the total variance. Internal consistency was achieved at an acceptable level, with Cronbach's alpha coefficients ranging from 0.789 to 0.929for all five domains and 0.887 for the whole scale. Convergent validity was confirmed by significant inter item correlations with all corresponding items. Independent 't' test between known subgroups on age, marital status, stage of disease and treatment modalities confirmed discriminant validity.ConclusionsIt was confirmed that the SCNS-SF 34 N(Nepali) is a valid and reliable instrument for the assessment of the supportive care needs of cervical cancer patients in Nepal

Psychometric Evaluation of the Turkish Adaptation of the Supportive Care Needs Survey–Short Form

2018 ◽  
Vol 26 (1) ◽  
pp. E16-E27
Author(s):  
Ilknur Aydin Avci ◽  
Hatice Kumcagiz
Keyword(s):  
Supportive Care ◽  
Cancer Patients ◽  
Internal Consistency ◽  
Short Form ◽  
Target Language ◽  
Supportive Care Needs ◽  
Validity And Reliability ◽  
Turkish Version ◽  
Care Needs ◽  
Source Language

Background and Purpose: The aim of this study is to explore the construct validity and reliability of the Turkish version of the 34-item Supportive Care Needs Survey–Short Form (SCNS-SF34), which was developed by Boyes, Girgis, and Lecathelinais (2009), to assess the needs of cancer patients in Turkey. Methods: The SCNS-SF34 has been translated and tested in various studies in other countries and cultures. The current study examined the validity and reliability of the Turkish adaptation of this survey among Turkish cancer patients. The instrument was translated using a back-translation technique, which includes the use of a panel of experts and interpreters to translate the items from the source language to the target language and then back-translate them into the source language. The study was conducted in Samsun, a city in north Turkey. A total of 573 cancer patients participated in this study. Statistical analyses were made using R program and SPSS, and included internal consistency, reliability, confirmatory and exploratory factor analyses. Results: Exploratory factor analysis adjusted a 5-factor structure (psychological, health systems and information, patient care and support, physical and daily living, and sexuality) explaining 74% of the variance. Cronbach’s α ranged from .71 to .90. Conclusion: Psychometric testing demonstrated satisfactory internal consistency and validity of the instrument for cancer patients. The Turkish version of the SCNS-SF34 can be used in planning and testing interventions to improve supportive care needs for cancer patients in Turkey.

scholarly journals Translation of Supportive Care Needs Survey Short Form 34 (SCNS-SF34) into Nepali Language with Cultural Validation

2021 ◽  
Author(s):  
Kamala Dhakal ◽  
Panpan Wang ◽  
Joanes Faustine Mboineki ◽  
Mikiyas Amare Getu ◽  
Changying Chen ◽  
...  
Keyword(s):  
Cervical Cancer ◽  
Supportive Care ◽  
Cancer Patients ◽  
Content Validity ◽  
Short Form ◽  
Likert Scale ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Validity Index ◽  
Content Validity Index

Abstract PurposeSupportive Care Needs Survey (SCNS) is one of the strongest and complete tools to assess the perceived supportive care needs of cancer patients. SCNS –SF34 has been translated into various other culture based languages, validated and established its psychometric properties. Till now no Nepali version, so we planned to assess the linguistic and cultural validity of Nepali version of the SCNS-SF34 in Nepali population.MethodsTranslation of Supportive Care Need Survey – Short Form 34 (SCNS-SF 34) was done by following Beaton’s guidelines in collaboration with a research team. Cultural adaptation was established through content validity assessment, clarity assessment of questionnaire and pretest. Content validity in terms of semantic, cultural and conceptual was assessed by 10 experts by using Likert scale and clarity of questionnaire was assessed among 15 cervical cancer patients by using Likert scale. The pretest was done among 34 cervical cancer patients to assess the feasibility and practicality of the tool. For reliability of tool test –retest method was used among 50 cervical cancer patients. ResultsThe Nepali version SCNS-SF 34 maintained the content validity (Item Content validity index (I-CVI) >0.78 in semantic, cultural and conceptual aspects and S-CVI (Scale Content Validity Index) was found,89.00% (0.89) 91.88 % (0.91) 90.00%(0.90) in semantic, cultural and conceptual aspects respectively. Content validity ratio (CVR) - 0.9 to 1) and construct validity (0.902) with 91.29 % clarity of questionnaire. This version had good internal consistency, with Cronbach’s alpha coefficients ranging from 0.89 to 0.91 with Composite Cronbach's Alpha 0.90. Correlation significant at the 0.01 level (2-tailed). More simple Nepali words were chosen as suggested by participants in items no 2,3,7, 9,10, 12, 18,19, 25, 27and 30 than the preliminary Nepali version along with the acceptance of all original items.ConclusionsThis finding shows that the SCNS-SF34 was translated and culturally adapted for use in Nepal with high practicality. This translated instrument can be used to assess the supportive care need and correlation between supportive care need and health related quality of life among cervical cancer patients.

scholarly journals Supportive Care Needs of Patients with Cervical Cancer in the Northeast of Thailand

2021 ◽  
Vol 18 (9) ◽  
Author(s):  
Supan UNJAI ◽  
Busaba SOMJAIVONG ◽  
Allison BOYES
Keyword(s):  
Cervical Cancer ◽  
Supportive Care ◽  
Health System ◽  
Cancer Patients ◽  
Unmet Need ◽  
Supportive Care Needs ◽  
Care Staff ◽  
Care Needs ◽  
Written Information ◽  
Information Domain

In this study, a descriptive design was used to explain the supportive care needs of cervical cancer patients in the Northeast of Thailand. The purposive sample was recruited from inpatient and outpatient departments of a university hospital. A total of 144 patients with cervical cancer in stage I - IV or recurrent stage completed the Thai version of the Supportive Care Needs Survey-Short Form 34 (SCNSF-34 Thai version). Descriptive statistics were used to identify the domains and items of the greatest unmet need. Results showed that standardized five domain scores indicated that participant’s unmet needs were highest in the health system and information domain ( = 2.95, S.D. = 1.15), and lowest in the sexuality domain ( = 1.63, S.D. = 0.94). The five most frequently endorsed items of moderate to high unmet need were all from the health system and information domain as follows: receiving information about things can do to help in recovering from illness (74.3 %), receiving information from documents, charts, or paintings about illness management and side effects that may occur at home (66 %), receiving information about cancer which is under control or in remission (63.2 %), support from at least one health care staff that can discuss illness, treatment, and follow up (63.2 %), receiving written information about the essential aspects of care (59.7 %), and receiving written information about the importance of care (59.7 %). It was clear that a large proportion of cervical cancer patients in Thailand reported unmet supportive care needs. Therefore, nurses should design nursing care services that are consistent with the supportive care needs.

scholarly journals A qualitative approach in determining the patient-centered information and supportive care needs of cancer patients in Singapore

BMJ Open ◽  
2020 ◽  
Vol 10 (2) ◽  
pp. e034178
Author(s):  
Gek Phin Chua ◽  
Hiang Khoon Tan
Keyword(s):  
Supportive Care ◽  
Cancer Patients ◽  
Quantitative Study ◽  
Information Needs ◽  
Supportive Care Needs ◽  
Research Approach ◽  
Detailed Knowledge ◽  
Care Needs ◽  
Treatment Unit ◽  
Ambulatory Treatment

ObjectivesTo qualitatively interpret the information and supportive care needs perceived by cancer patients undergoing treatment in order to get a deeper appreciation of patients’ needs and concerns. The intended outcome is to provide baseline knowledge for improving patient-centred strategies to better meet the information and supportive needs of patients.DesignA qualitative research approach, based on conventional content analysis, was used throughout the research process. The three open-ended questions obtained from a previous quantitative study guided the researchers to explore the information and supportive care needs of patients. Data from patients’ responses were analysed and coded in themes.Participants and settingPatients attending the Ambulatory Treatment Unit of the National Cancer Centre Singapore were invited to participate in the study. We determined from these subjects the type of information that cancer patients need, and to measure the extent to which these information needs are met by measuring patients’ level of satisfaction. Included in the quantitative study were three open-ended questions designed to gain a deeper understanding of their needs and concerns. All subjects were aged 21 years and above and able to understand and communicate in English/Mandarin. They were also aware of their diagnosis, they were not cognitively impaired and were not at the end-of-life situation.ResultsA variety of information and supportive care needs were identified, and three specific areas of concerns were identified: (1) psychosocial and supportive care needs, (2) information needs and (3) information delivery by professionals.ConclusionThe information and supportive care needs expressed were consistent with issues of cancer patients undergoing treatment. The strategies to improve patients’ coping abilities through patient-centred care are discussed. Further studies assessing the barriers of information provision by healthcare professionals should provide more detailed knowledge about unmet information needs.

scholarly journals Psychometric validation of a Patient-Centred Quality of Cancer Care Questionnaire in Mexico

BMJ Open ◽  
2020 ◽  
Vol 10 (3) ◽  
pp. e033114 ◽  
Author(s):  
Svetlana V Doubova ◽  
Ingrid Patricia Martinez-Vega ◽  
Marcos Gutiérrez-De-la-Barrera ◽  
Claudia Infante-Castañeda ◽  
Carlos E Aranda-Flores ◽  
...  
Keyword(s):  
Supportive Care ◽  
Cancer Care ◽  
Convergent Validity ◽  
Supportive Care Needs ◽  
Psychometric Validation ◽  
Cronbach’S Alpha ◽  
Care Needs ◽  
Cronbach's Alpha ◽  
Quality Of Life Scale

ObjectivesTo develop and validate a Patient-Centred Quality of Cancer Care Questionnaire in Spanish (PCQCCQ-S) appropriate to the Mexican context.DesignPsychometric validation of a questionnaire.SettingTwo public oncology hospitals in Mexico City.Participants1809 patients with cancer aged ≥18 years.Source of informationCross-sectional survey.MethodsThe validation procedures comprised (1) content validity through a group of experts and patients; (2) item reduction and evaluation of the factor structure, through an exploratory factor analysis based on the polychoric correlation matrix; (3) internal consistency using Cronbach’s alpha; (4) convergent validity between the PCQCCQ-S and supportive care needs scale; (5) correlation analysis between the PCQCCQ-S and quality of life scale by calculating Spearman’s rank-correlation coefficient; and (6) differentiation by ‘known groups’ through the Wilcoxon rank-sum test.ResultsThe PCQCCQ-S has 30 items with the following five factors accounting for 96.5% of the total variance: (1) timely care; (2) clarity of the information; (3) information for treatment decision-making; (4) activities to address biopsychosocial needs; and (5) respectful and coordinated care. Cronbach’s alpha values ranged from 0.73 to 0.90 among the factors. PCQCCQ-S has moderate convergent validity with supportive care needs scale, revealing that higher quality is correlated with lower patient needs. PCQCCQ-S has acceptable ability to differentiate by ‘known groups’, showing that older patients and those with low levels of education perceived lower total quality of care as compared with their counterparts.ConclusionPCQCCQ-S has acceptable psychometric properties and can be used to measure quality of patient-centred cancer care in Mexico and serve as a reference to develop PCQCCQ-S in other Spanish-speaking countries.

scholarly journals Course and predictors of supportive care needs among Mexican breast cancer patients: A longitudinal study

2018 ◽  
Vol 27 (9) ◽  
pp. 2132-2140 ◽  
Author(s):  
Adriana Pérez-Fortis ◽  
Joke Fleer ◽  
Maya J. Schroevers ◽  
Patricia Alanís López ◽  
Juan José Sánchez Sosa ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Longitudinal Study ◽  
Supportive Care ◽  
Cancer Patients ◽  
Supportive Care Needs ◽  
Breast Cancer Patients ◽  
Care Needs

Unmet supportive care needs and predictor of breast cancer patients in Bangladesh: A cross-sectional study

2021 ◽  
pp. 107815522110391
Author(s):  
Sujana H Chowdhury ◽  
Bilkis Banu ◽  
Nasrin Akter ◽  
Sarder M Hossain
Keyword(s):  
Breast Cancer ◽  
Supportive Care ◽  
Cancer Patients ◽  
Unmet Needs ◽  
Cross Sectional Study ◽  
Supportive Care Needs ◽  
Breast Cancer Patients ◽  
Sectional Study ◽  
Care Needs ◽  
Cross Sectional

Background Breast cancer survivor goes through a period of needs in their post-treatment daily life. Relatively few studies have been conducted to understand the unmet needs among breast cancer survivors in Bangladesh. Recognize and measure patterns and predictors of unmet needs of breast cancer patients was the aim of the study. Objective To identify and measure patterns and predictors of unmet needs of breast cancer patients in Bangladesh. Method A cross-sectional study among 138 breast cancer patients; conveniently selected from two public and two private cancer institutes. Face-to-face interview for data collection and medical record review for checklist was done. Unmet needs have been determined by the supportive care needs survey short form 34 scale. Logistic regression analyses were performed to identify the predictors of unmet needs. Results The study indicated the top 10 moderate-to-high needs; among which the top five needs were from the information need domain. Surprisingly, private cancer treatment centers were identified as a significant predictor for unmet needs. Patients from private cancer institutes reported more explanation needs as well as needs with their physical and daily living and sexuality. Furthermore, the type of treatment like patient receiving combine treatment therapy reported more need for help compared to the patient receiving chemotherapy alone. Moreover, housewives reported the low need for patient care and support systems as a result of their reluctant behavior towards their health. Conclusion Individual’s unmet need assessment should be a part of every treatment protocol of breast cancer for a better treatment outcome.

scholarly journals ‘Haematological cancers, they’re a funny bunch’: A qualitative study of non-Hodgkin’s lymphoma patient experiences of unmet supportive care needs

2016 ◽  
Vol 23 (11) ◽  
pp. 1464-1475 ◽  
Author(s):  
Brooke Swash ◽  
Nick Hulbert-Williams ◽  
Ros Bramwell
Keyword(s):  
Qualitative Study ◽  
Supportive Care ◽  
Cancer Patients ◽  
Hodgkin’S Lymphoma ◽  
Information Needs ◽  
Supportive Care Needs ◽  
Hodgkin's Lymphoma ◽  
Care Needs ◽  
Non Hodgkin’S Lymphoma ◽  
Non Hodgkin's Lymphoma

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin’s lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.

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