scholarly journals Quality of Life and Challenges Experienced by the Surviving Adults With Transfusion Dependent Thalassaemia in Malaysia: A Cross Sectional Study

2021 ◽  
Author(s):  
Wai Cheng Foong ◽  
Kooi Yau Chean ◽  
Fairuz Fadzilah Rahim ◽  
Ai Sim Goh ◽  
Seoh Leng Yeoh ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Services ◽  
Psychological Health ◽  
Labour Force ◽  
Skill Training ◽  
Adult Life ◽  
Well Being ◽  
Linear Regression Models ◽  
Health Service Provision

Abstract Background Improvement in medical management has enabled transfusion dependent thalassaemia (TDT) patients to survive beyond childhood, building families, and contributing to the labour force and society. Knowledge about their adult life would provide guidance on how to support their needs. This study aims to explore the general well-being of adults with TDT, their employment status and challenges. Methods We contacted all regional Thalassaemia societies in Malaysia to invite TDT members aged 18 or over to participate. Participants were also recruited from the two participating hospitals. A self-administered questionnaire including ‘CDC Healthy-days’, WHOQOL-BREF and employment measurements was used. Multiple linear regression models were fitted with associations adjusted for several potential confounders. Results Of the 196 participants, almost half (45%) had comorbidities and 20% suffered multiple types: bone-related (13%), hormonal (12%), cardiac (3%) and infections (2%), resulting in 23% seeking treatment more than twice monthly. Within a month, they suffered from a mean 3.1 (SD 3.0) days of feeling unhealthy physically, a mean 2.6 (SD 3.5) days mentally unhealthy and their normal daily activities performance were affected for approximately 2.5 (SD 3.3) days - leading to 36% being jobless and 38% of those with a job receiving salaries below RM1000. The mean quality of life (QOL) score (mean (SD) for each QOL domain was: physical health 62.6 (15.5), psychological health 64.7 (15.7), social relationship 64 (15.9), environmental health 60.8 (16.7). Frequent activities limited days, being single, unwillingness to disclose thalassaemia status, presence of comorbidities, discrimination experiences and perceptions about employment difficulties were associated with lower QOL scores. Dissatisfaction with health service provision, conflicting judgement in prioritising between health and job, and poor public empathy were expressed. Conclusion Adults with TDT appeared to be fairly positive about their life in spite of high number of dysfunctional days and had perceptions that health services do not meet their needs. They continued to face life disruption in a rather non-supportive community. Supportive approaches and life-skill training are necessary where interventions should be started during childhood. Adjustment to health services should be considered.

scholarly journals Quality of life and challenges experienced by the surviving adults with transfusion dependent thalassaemia in Malaysia: a cross sectional study

2022 ◽  
Vol 20 (1) ◽  
Author(s):  
Wai Cheng Foong ◽  
Kooi Yau Chean ◽  
Fairuz Fadzilah Rahim ◽  
Ai Sim Goh ◽  
Seoh Leng Yeoh ◽  
...  
Keyword(s):  
Psychological Health ◽  
Labour Force ◽  
Adult Life ◽  
Well Being ◽  
Cross Sectional Study ◽  
Linear Regression Models ◽  
Cross Sectional ◽  
Health Service Provision ◽  
Factors Affecting ◽  
Open Questions

Abstract Background Improvement in medical management has enabled transfusion dependent thalassaemia (TDT) patients to survive beyond childhood, building families, and contributing to the labour force and society. Knowledge about their adult life would provide guidance on how to support their needs. This study aims to explore the general well-being of adults with TDT, their employment status and challenges. Methods This study recruited 450 people with TDT, aged 18 and above, of both genders through all regional Thalassaemia societies in Malaysia and from the two participating hospitals, over five months in year 2016. A self-administered questionnaire including ‘Healthy Days Core Module’, WHOQOL-BREF and employment measurements was used. Multiple linear regression models were fitted with associations adjusted for several potential confounders. Results A total of 196 adults with TDT responded to the survey (43.6% response rate). Almost half (45%) had comorbidities and 9% suffered multiple complications: bone-related (13%), hormonal (12%), cardiac (3%) and infections (2%), resulting in 23% seeking treatment more than twice monthly. Within a month, they suffered from at least three days with poor physical and or mental health and their normal daily activities were disrupted up to three days. 36% were jobless and 38% of those with a job were receiving salaries below RM1000. The mean WHOQOL-BREF score (mean (SD)) was: physical health 62.6 (15.5), psychological health 64.7 (15.7), social relationship 64 (15.9), environmental health 60.8 (16.7). Having days with mental issues, financial status, education level, ethnic and marital status were main factors affecting QOL scores. Open questions showed dissatisfaction with health service provision, conflicting judgement in prioritising between health and job, and poor public empathy. Conclusion The adults with TDT perceived their health as good and had less unhealthy days when compared with people with other chronic diseases. However, some perceived themselves to be facing more life disruption in a rather non-supportive community and that health services do not meet their needs. Future qualitative studies are needed to focus on their perceived needs and to look for more tailored supportive approaches.

Quality of Life in Employee with Workaholism

2020 ◽  
Author(s):  
Ozlem Koseoglu Ornek ◽  
Nurcan Kolac
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Labour Force ◽  
Well Being ◽  
Negative Influence ◽  
Obsessive Compulsive ◽  
Related Factors ◽  
Physical And Psychological Health ◽  
Occupational Healthcare

Workaholism has been a growing issue among the labour force worldwide. However, there is no consensus between scholars about its definition yet. It might be described as “being overly concerned about work, driven by a strong and uncontrollable desire to work, and spending so much energy and effort on work that it impairs private relationships, personal hobbies/activities, and/or health”. Generally, people with specific personality traits may have an increased chance of developing workaholism. In addition, there are other factors, such as sociocultural characteristics, relationships with colleagues and significant others, and organizational culture might also play an important influence on developing workaholism. It causes many physical and psychological health problems, such as high blood pressure, anxiety, depression, and family and lifestyle dissatisfaction, and a reduction in job satisfaction, presenteeism, and motivation. Putting all of this together, it is clear that workaholism has a negative influence on employees’ quality of life and overall well-being. Therefore, this study aimed at examining a variety of approaches to define “workaholism” in related literature, defining its etiology, related factors, outcomes, prevention, and treatment. The PubMed/Medline database was also used for related studies that were published in English. “Workaholism”, “obsessive–compulsive behavior”, and “quality of health” were used as keywords. It is crucial to take action to prevent people from becoming workaholics. Early diagnoses of workaholism, using predictive factors by occupational healthcare professionals in the workplace, would help decrease its impact on workers’ health, and an effective treatment of workaholism should be applied.

Psychological Well-being and Active Ageing: Maintaining Quality of Life in Older Age

2009 ◽  
Vol 24 (S1) ◽  
pp. 1-1 ◽  
Author(s):  
T. McFarquhar ◽  
A. Bowling
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
General Health Questionnaire ◽  
Well Being ◽  
Poor Mental Health ◽  
Postal Survey ◽  
Active Ageing ◽  
Psychological Well Being ◽  
British Sample

Aims:To investigate the relationship between psychological well-being and measures of active ageing in a British sample of older people. Active ageing is the process of optimising opportunities for health, participation and security to embrace quality of life as people age.Methods:A national survey of quality of life and psychological well-being including 999 people aged ≥65 years living in private households in Britain commenced in 1999. in the most recent follow up of 2007, 323 survivors aged ≥72 years completed a postal survey regarding their quality of life and specifically the process of active ageing. A subset of 42 participants was also interviewed qualitatively in 2008 about their perceptions of active ageing. Psychological well-being at baseline was measured using the 12 item General Health Questionnaire (GHQ12) and correlated with measures of active ageing at baseline and in subsequent follow ups. Measures of active ageing included number and frequency of leisure and social activities, physical ability and access to support networks.Results:A significant positive relationship between psychological well being and measures of active ageing was found at baseline (p< 0.05). Measure of active ageing in 2007 were also correlated with psychological well-being at baseline (p< 0.05). Qualitative interviews in 2008 provided additional insights into this relationship.Conclusions:Results suggesting a strong relationship between psychological health and ageing actively. Good psychological health may allow the elderly to maintain an active and fulfilling lifestyle and reduce isolation and dependence, which in turn may protect against some aspects of poor mental health.

Beyond vision loss: the independent impact of diabetic retinopathy on vision-related quality of life in a Chinese Singaporean population

2018 ◽  
Vol 103 (9) ◽  
pp. 1314-1319 ◽  
Author(s):  
Eva K Fenwick ◽  
Ryan E K Man ◽  
Alfred Tau Liang Gan ◽  
Neelam Kumari ◽  
Charlene Wong ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Diabetic Retinopathy ◽  
Vision Loss ◽  
Well Being ◽  
Linear Regression Models ◽  
Cross Sectional ◽  
Significant Difference ◽  
Related Quality ◽  
The Impact

Background/aimsTo assess the independent impact of diabetic retinopathy (DR) on three domains of vision-related quality of life (VRQoL) in a Chinese Singapore population.MethodsThe Singapore Chinese Eye Study (n=3353; 2009–2011) was a population-based, prospective, cross-sectional study conducted at the Singapore Eye Research Institute. The study population included 292 adults with diabetes, with and without DR. DR (better eye) was categorised as presence and absence of any DR; severity of DR (no vision-threatening DR (VTDR); severe non-proliferative DR (NPDR); PDR and/or clinically significant macular oedema and VTDR). Our main outcome was VRQoL which was measured using Rasch-calibrated scores from the ‘Reading’, ‘Mobility’ and ‘Emotional’ domains of the Impact of Vision Impairment questionnaire. The relationship between DR and VRQoL was assessed using multiple linear regression models.ResultsOf the 292 individuals (mean age 61.35 ± 9.66 years; 55.8% male), 201 (68.8%), 49 (16.8%), 20 (6.8%), 22 (7.5%) and 27 (9.2%) had no DR, minimal-mild NPDR, moderate-severe NPDR, PDR and VTDR, respectively. Any DR and VTDR were independently associated with 6% and 12% worse Reading scores and 7% and 18% poorer Emotional well-being, respectively, compared with those without DR. These associations persisted after separate adjustment for visual impairment and presenting visual acuity. No significant difference was found in the Mobility domain between persons with and without DR.ConclusionsWe documented that DR, particularly VTDR, was independently associated with restrictions in Reading and Emotional well-being. Understanding factors underlying the detrimental DR-VRQoL relationship may optimise rehabilitation outcomes for individuals with DR.

scholarly journals Compassionate Coach and Psychological Quality of Life in Portuguese Athletes: Effect of Mediating Variables

2021 ◽  
pp. 1-17
Author(s):  
Sara Oliveira ◽  
Marina Cunha ◽  
António Rosado ◽  
Cláudia Ferreira
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Path Analysis ◽  
Psychological Health ◽  
Well Being ◽  
Competitive Sports ◽  
Social Safeness ◽  
Emotional Processes ◽  
Proposed Model

This study aimed to test a model that hypothesized that the compassionate coach, as perceived by the athletes, has an impact on athlete-related social safeness and psychological health, through shame and self-criticism. The sample comprised 270 Portuguese adult athletes, who practiced different competitive sports. The path analysis results confirmed the adequacy of the proposed model, which explained 45% of the psychological health’s variance. Results demonstrated that athletes who perceive their coaches as more compassionate tend to present higher levels of social safeness (feelings of belonging to the team) and of psychological health, through lower levels of shame and self-criticism. These novel findings suggest the importance of the adoption of supportive, warm, safe, and compassionate attitudes from coaches in athletes’ mental health. This study also offers important insights by suggesting that feelings of acceptance and connectedness in team relationships may be at the root of athletes’ emotional processes and well-being.

scholarly journals Biological Measures of the Standard of Living

2008 ◽  
Vol 22 (1) ◽  
pp. 129-152 ◽  
Author(s):  
Richard H Steckel
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Well Being ◽  
Standard Of Living ◽  
Socioeconomic Differences ◽  
Future Evolution ◽  
Material Goods ◽  
Long Term Trends

When economists investigate long-term trends and socioeconomic differences in the standard of living or quality of life, they have traditionally focused on monetary measures such as gross domestic product—which has occupied center stage for over 50 years. In recent decades, however, scholars have increasingly recognized the limitations of monetary measures while seeking useful alternatives. This essay examines the unique and valuable contributions of four biological measures—life expectancy, morbidity, stature, and certain features of skeletal remains—to understand levels and changes in human well-being. People desire far more than material goods and in fact they are quite willing to trade or give up material things in return for better physical or psychological health. For most people, health is so important to their quality of life that it is useful to refer to the “biological standard of living.” Biological measures may be especially valuable for historical studies and for other research circumstances where monetary measures are thin or lacking. A concluding section ruminates on the future evolution of biological approaches in measuring happiness.

scholarly journals The Influence of COVID-19 Pandemic on Physical Health–Psychological Health, Physical Activity, and Overall Well-Being: The Mediating Role of Emotional Regulation

2021 ◽  
Vol 12 ◽  
Author(s):  
Jianhui Dai ◽  
Xuehui Sang ◽  
Rashid Menhas ◽  
Xia Xu ◽  
Sumaira Khurshid ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Psychological Health ◽  
Emotional Regulation ◽  
Negative Relationship ◽  
Well Being ◽  
Mediating Role ◽  
Significant Negative Relationship

Background: Highly infectious respiratory disease COVID-19 emerged in Wuhan, China, and spread worldwide. Different measures have been adopted worldwide to contain the COVID-19, and these measures have various impacts on health-related quality of life (HRQoL). This study aimed to assess the impact of the COVID-19 pandemic (CP) and lockdown policy on physical health (PH)–psychological health (PsH), physical activity (PA), and overall well-being (OW) in the context of HRQoL, exploring the mediating role of emotional regulation (ER).Method: The current study was conducted in two provincial cities of China. An online survey was conducted in both the cities to collect the data. After quantifying the data, a total of 2,200 respondents data were analyzed through appropriate statistical techniques.Results: The study results indicate that CP was found significantly and negatively related to PH (β = −0.157, t = 9.444, p &lt; 0.001). A significant relationship was found between CP and PsH (β = 0.779, t = 45.013, p &lt; 0.001). The third prediction revealed a significant negative relationship between the CP and OW (β = −0.080, t = 5.261, p &lt; 0.001). The CP and PA had a significant negative relationship (β = −0.047, t = 3.351, p &lt; 0.001).Conclusion: The PH, PsH, and OW of the Chinese people were affected due to the CP and lockdown measures. It is suggested that ER intervention reduces the negative psychological impacts for improving quality of life. ER can function one's sentiments in their social environment effectively for quality of life.

scholarly journals The 2019 Universiti Teknologi MARA, Malaysia Staff Survey: Determining the Level and Predictors of Quality of Life

2021 ◽  
Vol 12 ◽  
Author(s):  
Mohd Izwan Mat Nazali ◽  
Salmi Razali ◽  
Suthahar Ariaratnam ◽  
Yuhaniz Ahmad ◽  
Hapizah Nawawi
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Well Being ◽  
World Health ◽  
Academic Excellence ◽  
Medical Illness ◽  
University Staff ◽  
World Health Organization Quality ◽  
Level Of Education

Experiencing good quality of life (QOL) among university staff is extremely crucial to ensuring academic excellence; however, there are limited data on factors that contribute to QOL among university staff. This study aims to determine the level and the predictors for good QOL among university staff. The consenting participants were selected using a stratified sampling method. Participants who had fulfilled the selection criteria were provided with socio-demographic, medical illness, job factor, and family background questionnaires. QOL and psychological well-being (depression, anxiety, and stress) were assessed using the World Health Organization Quality of Life brief version (WHOQOL-BREF) and Depression, Anxiety, and Stress Scale (DASS-21) questionnaires, respectively. A total of 278 staff (mean ± SD age: 38.84 ± 7.85 years, 44.2% males, 82.7% married) had participated in this study. This study found that participants had low QOL in the domains of physical health [P-QOL] (11.2%), psychological health [PSY-QOL] (9.7%), social relationships [SR-QOL] (19.1%), and environment [E-QOL] (14.4%). The predictors of P-QOL were depression, medical illness, and number of dependents, while those of PSY-QOL were work promotion, depression, medical illness, and number of dependents. Additionally, the predictors of SR-QOL were campus location, depression, and work promotion, while those of E-QOL were age, level of education, depression, work promotion, and medical illness. Depression significantly affected all domains of QOL. Younger participants without medical illness and those with tertiary level of education had increased odds of having good QOL. Participants having dependents without work promotion and employed in suburban areas had decreased odds of having good QOL. The relevant authority should be identified and then assist staff with difficulties to ensure the staff benefited from having a good QOL.

The Concept of Mindfulness in Integrative Preventive Medicine

2017 ◽  
Author(s):  
Kim Aikens ◽  
Shauna Shapiro
Keyword(s):  
Quality Of Life ◽  
Health Promotion ◽  
Preventive Medicine ◽  
Psychological Health ◽  
Healthy Lifestyle ◽  
Well Being ◽  
Tertiary Prevention ◽  
Preventive Strategy ◽  
The Impact

This chapter discusses mindfulness as it applies to integrative preventive medicine. Defining mindfulness as the awareness that arises through intentionally attending in an open, caring, and discerning way, the chapter proposes three core mindfulness elements: intention, attention, and attitude. It explores the potential application of mindfulness to primary, secondary, and tertiary prevention. The chapter looks at the impact of mindfulness on health promotion and examines mindfulness as a secondary prevention strategy, particularly in hypertension and diabetes. It then addresses tertiary prevention and the impact of mindfulness in chronic disease. Lastly, mindfulness as a preventive strategy for psychological well-being is explored. Overall, there is strong evidence suggesting that mindfulness is positively associated with healthy lifestyle as well as improvements in depressive symptoms, stress, anxiety, quality of life, physical outcomes, and positive psychological health.

scholarly journals Effectiveness of plant-based diets in promoting well-being in the management of type 2 diabetes: a systematic review

2018 ◽  
Vol 6 (1) ◽  
pp. e000534 ◽  
Author(s):  
Anastasios Toumpanakis ◽  
Triece Turnbull ◽  
Isaura Alba-Barba
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Psychological Health ◽  
Health Management ◽  
Density Lipoprotein ◽  
Well Being ◽  
Controlled Trials ◽  
Cochrane Central Register ◽  
Hba1c Levels

Diet interventions have suggested an association between plant-based diets and improvements in psychological well-being, quality of life and glycated hemoglobin (HbA1c) control in populations with diabetes. The aims of this review are to systematically analyze the available literature on plant-based diet interventions targeting diabetes in adults and to clearly define the benefits on well-being of such interventions. This is a systematic review of controlled trials. A computerized systematic literature search was conducted in the following electronic databases: Allied and Complementary Medicine, Cochrane Central Register of Controlled Trials, Cumulative Index to Nursing and Allied Health Literature, E-Journals, Excerpta Medica Database, MEDLINE, Health Management Information Consortium, PsycARTICLES, PsycINFO, PubMed, SocINDEX and Web of Science. The search strategy retrieved 1240 articles, of which 11 met the inclusion criteria (n=433; mean sample age 54.8 years). Plant-based diets were associated with significant improvement in emotional well-being, physical well-being, depression, quality of life, general health, HbA1c levels, weight, total cholesterol and low-density lipoprotein cholesterol, compared with several diabetic associations’ official guidelines and other comparator diets. Plant-based diets can significantly improve psychological health, quality of life, HbA1c levels and weight and therefore the management of diabetes.

Sign in / Sign up

Export Citation Format

Share Document