scholarly journals Quality of life and challenges experienced by the surviving adults with transfusion dependent thalassaemia in Malaysia: a cross sectional study

2022 ◽  
Vol 20 (1) ◽  
Author(s):  
Wai Cheng Foong ◽  
Kooi Yau Chean ◽  
Fairuz Fadzilah Rahim ◽  
Ai Sim Goh ◽  
Seoh Leng Yeoh ◽  
...  

Abstract Background Improvement in medical management has enabled transfusion dependent thalassaemia (TDT) patients to survive beyond childhood, building families, and contributing to the labour force and society. Knowledge about their adult life would provide guidance on how to support their needs. This study aims to explore the general well-being of adults with TDT, their employment status and challenges. Methods This study recruited 450 people with TDT, aged 18 and above, of both genders through all regional Thalassaemia societies in Malaysia and from the two participating hospitals, over five months in year 2016. A self-administered questionnaire including ‘Healthy Days Core Module’, WHOQOL-BREF and employment measurements was used. Multiple linear regression models were fitted with associations adjusted for several potential confounders. Results A total of 196 adults with TDT responded to the survey (43.6% response rate). Almost half (45%) had comorbidities and 9% suffered multiple complications: bone-related (13%), hormonal (12%), cardiac (3%) and infections (2%), resulting in 23% seeking treatment more than twice monthly. Within a month, they suffered from at least three days with poor physical and or mental health and their normal daily activities were disrupted up to three days. 36% were jobless and 38% of those with a job were receiving salaries below RM1000. The mean WHOQOL-BREF score (mean (SD)) was: physical health 62.6 (15.5), psychological health 64.7 (15.7), social relationship 64 (15.9), environmental health 60.8 (16.7). Having days with mental issues, financial status, education level, ethnic and marital status were main factors affecting QOL scores. Open questions showed dissatisfaction with health service provision, conflicting judgement in prioritising between health and job, and poor public empathy. Conclusion The adults with TDT perceived their health as good and had less unhealthy days when compared with people with other chronic diseases. However, some perceived themselves to be facing more life disruption in a rather non-supportive community and that health services do not meet their needs. Future qualitative studies are needed to focus on their perceived needs and to look for more tailored supportive approaches.

2021 ◽  
Author(s):  
Wai Cheng Foong ◽  
Kooi Yau Chean ◽  
Fairuz Fadzilah Rahim ◽  
Ai Sim Goh ◽  
Seoh Leng Yeoh ◽  
...  

Abstract Background Improvement in medical management has enabled transfusion dependent thalassaemia (TDT) patients to survive beyond childhood, building families, and contributing to the labour force and society. Knowledge about their adult life would provide guidance on how to support their needs. This study aims to explore the general well-being of adults with TDT, their employment status and challenges. Methods We contacted all regional Thalassaemia societies in Malaysia to invite TDT members aged 18 or over to participate. Participants were also recruited from the two participating hospitals. A self-administered questionnaire including ‘CDC Healthy-days’, WHOQOL-BREF and employment measurements was used. Multiple linear regression models were fitted with associations adjusted for several potential confounders. Results Of the 196 participants, almost half (45%) had comorbidities and 20% suffered multiple types: bone-related (13%), hormonal (12%), cardiac (3%) and infections (2%), resulting in 23% seeking treatment more than twice monthly. Within a month, they suffered from a mean 3.1 (SD 3.0) days of feeling unhealthy physically, a mean 2.6 (SD 3.5) days mentally unhealthy and their normal daily activities performance were affected for approximately 2.5 (SD 3.3) days - leading to 36% being jobless and 38% of those with a job receiving salaries below RM1000. The mean quality of life (QOL) score (mean (SD) for each QOL domain was: physical health 62.6 (15.5), psychological health 64.7 (15.7), social relationship 64 (15.9), environmental health 60.8 (16.7). Frequent activities limited days, being single, unwillingness to disclose thalassaemia status, presence of comorbidities, discrimination experiences and perceptions about employment difficulties were associated with lower QOL scores. Dissatisfaction with health service provision, conflicting judgement in prioritising between health and job, and poor public empathy were expressed. Conclusion Adults with TDT appeared to be fairly positive about their life in spite of high number of dysfunctional days and had perceptions that health services do not meet their needs. They continued to face life disruption in a rather non-supportive community. Supportive approaches and life-skill training are necessary where interventions should be started during childhood. Adjustment to health services should be considered.


2018 ◽  
Vol 9 (4) ◽  
pp. 73
Author(s):  
Asmaa Ghareeb Mohamed ◽  
Celso L. Souza

The college students, representing the young age population of community, for different reasons are prone to eat unhealthy foods and to have bad health habits during their college years which might affect their well-being and increase the risk of obesity, diabetes, and coronary heart disease; like fast food consumption, lower vegetable and fruit intake in face of less physical activities and a lot of computer & TV watching hours. This study aimed to assess eating habits and patterns, factors affecting food choices and anthropometric measurements. Descriptive cross-sectional study method was followed. 230 students were included in the study. The findings revealed that 50.9% of the study sample were at age group (< 20 years), nearly half 48.7% were at a preparatory year. Results show also that 44.3% of the study sample don't take breakfast regularly; the most reported causes were not enough time at home 49% and that they don't prefer cafeteria food 24.6% nor there is no for a break in the timetable 21.6%. The results show that 53.04% had a normal BMI and 24.35% were overweight. The BMI had a significant relation with the consumption and snacking patterns among students (p = .000). So, there is a greater need for constructing educational programs to be directed to enhance the nutritional status of the university adolescent students.


2021 ◽  
Vol 14 (2) ◽  
pp. 51-62
Author(s):  
Berta Ausín ◽  
Clara González-Sanguino ◽  
Miguel Ángel Castellanos ◽  
Jesús Saiz ◽  
Carolina Ugidos ◽  
...  

The study aim was to assess the effects of the health emergency and the stay-at-home restrictions on loneliness variables in the Spanish population during the initial stage of COVID-19. A cross-sectional study was conducted through an online survey of 3480 people. From March 14, 2020, screening tests were used to evaluate sociodemographic and COVID-19-related data on loneliness, social support, the presence of mental health symptoms, discrimination, and spiritual well-being. Descriptive analyses were conducted and linear regression models were constructed. A negative association was found between loneliness and being older, being partnered, having children, being a university graduate, being retired or still working, having stronger religious beliefs, believing that information provided about the pandemic was adequate, having social support, and having self-compassion. Actions that promote social support and further studies on loneliness in groups of older people are needed to prevent the pandemic having a stronger impact on mental health and well-being.


2020 ◽  
Vol 2 (3) ◽  
pp. 117
Author(s):  
Li Kai

Psychological health is the expression of harmonic expression of harmonic expression of human’s personality and is often disrupted by multiple factors. The aim of this study to assess psychological health status and its associated factors among diploma nursing students. A cross-sectional study design was employed. The sample comprised 542 nursing students attending this anonymous survey by completed The Symptom Checklist 90 questionnaire. Descriptive statistics and logistic regression analysis were attempted to analyze overall data. The positive rate of psychological symptoms of diploma nursing students is 20.9%; the total score of SCL-90 and the scores of each factor are higher than the national norm; grade, personality, number of friends, parenting style, love experience, whether it is an only child, and physical exercise are influential. The main factors of the mental health status of secondary vocational nursing students. The contribution of Emotional Intelligence and Spirituality is crucial to the acquisition of well-being, happiness and meaning in life.


2021 ◽  
Vol 2 (6) ◽  
pp. 32-38
Author(s):  
Jasbir D. Upadhyaya ◽  
Vimi Sunil Mutalik ◽  
Mê-Linh Lê ◽  
Dieter J. Schönwetter

Objectives: The COVID-19 pandemic has significantly affected dental professionals, thus contributing to adverse psychological outcomes. The aim of this cross-sectional study was to investigate the psychosocial state of American and Canadian dental practitioners, with special emphasis on their affective well-being (both during lockdown and after re-opening), behavioral impact and cognitive responses. Methodology: Dental practitioners in Canada and USA were invited to participate in an online survey after the initial lockdown period. The questions evaluated the pandemic’s effect on affective, behavioral, and cognitive responses. Results: A total of 587 practitioners completed the online survey. The strongest emotions experienced during the lockdown were sadness followed by fear. Female practitioners, those in the 35-44 age group, and those with less work experience reported higher scores on fear. Following lockdown, participants reported higher anticipation. Males expressed higher feelings of disgust and anger during both phases. Canadians were trustful of the situation in both phases of the pandemic, whereas the emotions of Americans were more towards disgust. About 56.7% practitioners provided teledentistry during lockdown, mainly through video calling, with Canadians being significantly more involved than the American participants. The highest scores for participants’ experiences during lockdown were for a lack of social interaction, followed by concern for contracting infection, and stress from distressing media coverage. Most practitioners were very receptive of receiving the COVID-19 vaccine. Conclusions: The emotions and behaviors of dental practitioners varied significantly during and after the initial lockdown, highlighting their psychosocial state during the pandemic. The scarcity of literature focusing on these basic emotions during similar outbreaks calls attention for pursuing more research in these areas as they significantly contribute to the overall psychological health of professionals, especially in times of crises. Given the emotions reported by dental practitioners, it would be of value to develop standardized protocols and provide remote psychological support during such periods of uncertainty.


2020 ◽  
Vol 2 (1) ◽  
pp. 1-8
Author(s):  
Rifki Rifaldi

Sick on humans not only presented by come to the hospital and drink medicine. Individuals with sick can be screening by disruption of psychological health and increased anxiety. The Unhealthy psychological state signed with old age people feel anxiety more than usual. Feelings of comfort with life can emerge from Psychological well-Being. The main objective of this study was to determine a description of Psychological Well Being in the Elderly. This research is descriptive quantitative research using a cross-sectional study. Research held on 13 May 2019 until 14 May 2019. Population in this research is the elderly in RT IV RW IV Lateng Village and a total people has age 60- ≥90 year is 30 people. Saturated sample techniques used in this research. Data was collected using the general wellbeing schedule questionnaire. The data processed through phase cleaning, coding, and then tabulate the data then presented in table form as well as in descriptive. The results showed the elderly have Psychological Well-Being on a good category of 28 respondents (93,3%). The conclusion of this research the level of psychological well being elderly in RT IV RW IV Lateng Village be at a good level. The good PWB well influenced by social support, interaction, activities to prevent the decline of organ function. It is recommended for the elderly to maintain physical activity and communication with their neighbors so that psychological well-being is maintained.


2016 ◽  
Vol 22 (4) ◽  
pp. 493-504 ◽  
Author(s):  
Mary-Beth Coty ◽  
Elizabeth G Salt ◽  
John A Myers ◽  
Said K Abusalem

This article examines role stress, key psychosocial variables, and well-being in adults recently diagnosed with rheumatoid arthritis. Patients recently diagnosed with rheumatoid arthritis must often learn to balance disease and role-related responsibilities. This was cross-sectional, descriptive study ( N = 80). Data were analyzed using correlation coefficients and linear regression models. Participants were predominantly female (78%), married, and employed. Mean age and disease duration were 54.2 years and 24.2 months, respectively. The findings suggest that well-being is influenced by feelings of being self-efficacious and having balance in their roles and less to do with social support received from others.


Author(s):  
Jesús Saiz ◽  
Clara González-Sanguino ◽  
Berta Ausín ◽  
Miguel Ángel Castellanos ◽  
Ana Abad ◽  
...  

AbstractIn this study we intend to understand the impact of the COVID-19 crisis and the subsequent stay-at-home orders, on the Spanish population's sense of belonging at three moments in time: at the beginning of the lockdown, after one month of lockdown and with the return to the “new normality”. A cross-sectional study was conducted through an online survey (N0 = 3480; N1 = 1041; N2 = 569). The sense of belonging was evaluated by means of four Likert-type items. These questions included membership in different groups: work/studies, friends, family and neighborhood or community. Sociodemographic and COVID-19-related data were collected. Additionally, mental health, spiritual well-being, loneliness, social support and discrimination were assessed. Descriptive analyses were carried out and linear regression models compiled. The sense of belonging increased significantly during confinement, dropping dramatically with the start of the return to the “new normality” process. The only variable that showed interaction with time and sense of belonging was discrimination. Work condition (not working providing the lowest sense of belonging scores), social support from friends and loneliness were the main predictors of the sense of belonging. The impact caused by the pandemic and the actions adopted during the first weeks regarding the sense of belonging is evident. It has been a key variable in dealing with COVID-19. Actions are now needed to increase our sense of belonging to face the post-epidemic crisis and avoid a greater impact in other areas.


2019 ◽  
Author(s):  
Popie Damaskinos ◽  
Haritini Koletsi-Kounari ◽  
Eleni Mamai-Homata ◽  
William Papaioannou

Abstract Background The study aims to explore the social influences, gradients and predictors of self-rated oral health (SROH) and self-rated health (SRH) and well-being in Greek elders. Methods Cross-sectional study, of elderly men and women, aged 65 years and over (N=743), in two municipalities in Greece. Descriptive and statistical analyses were performed for dentate and edentulous participants. For the association between socioeconomic exposures and binary outcomes, logistic regression was performed to estimate odds ratios and 95% confidence intervals (OR, 5% CI); levels of association and Cramer’s V were applied to calculate associations and p-values. Results Household income, education level and last main occupation were predictors and determinants of both SROH and self-rated health (SRH). All objective socioeconomic measures (income, education and occupation) and subjective social status (SSS) were predictors of SROH and SRH; however, the objective socioeconomic measures were not predictors of satisfaction with life (SWL). SSS was statistically significant for SROH, SRH and SWL, p<0.01. Conclusions Gender, municipality, long-standing illness, SSS and loneliness were predictors of SWL in the examined dentate population. For SROH and SRH, the results showed that household income less than 800 euros per month, education level, occupation and SSS were significant predictors. To the best of our knowledge, this is the first study to examine the effect of subjective and objective socioeconomic measures and find inequalities in both oral and general health and in the gradient of SROH among elderly adults in Greece.


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