scholarly journals CUIDADOS PALIATIVOS: VISÃO DE ENFERMEIROS DE UM HOSPITAL DE ENSINO

2016 ◽  
Vol 7 (1) ◽  
pp. 28-32
Author(s):  
Mariana Carneiro De Oliveira ◽  
Francine Lima Gelbcke ◽  
Luciana Martins Da Rosa ◽  
Mara Ambrosina De Oliveira Vargas ◽  
Juliana Balbinot Girondi Reis
Keyword(s):  
Palliative Care ◽  
Chronic Disease ◽  
World Health ◽  
Structured Interviews ◽  
Team Members ◽  
Clinical Unit ◽  
Calidad De Vida ◽  
Philosophy Of Palliative Care ◽  
Health Organization

Objetivo: identificar se há a inserção do conceito e dos princípios dos Cuidados Paliativos definidos pela Organização Mundial de Saúde na atuação de enfermeiros de Unidades de Clínicas Médicas e da Comissão de Cuidados Paliativos e Controle da Dor de um Hospital- Escola da Região Sul do Brasil. Metodologia: pesquisa qualitativa com coleta de dados mediante entrevista semiestruturada com 22 enfermeiros, submetidas à técnica de análise de conteúdo. Resultados: o enfermeiro vincula os Cuidados Paliativos com o processo de morte dos pacientes. A comunicação limitada oblitera as condutas tomadas pelos membros da equipe. As pessoas com doença crônica são encaminhadas tardiamente, submetendo-se a ações reducionistas que não proporcionam qualidade de vida. Conclusões: os princípios da filosofia dos Cuidados Paliativos estão inseridos parcialmente na prática dos profissionais. Há demanda de formação acadêmica e em serviço.Descritores: Cuidados Paliativos, Doença Crônica, Cuidados de Enfermagem, Serviço Hospitalar de Enfermagem.PALLIATIVE CARE: NURSES VISION OF A TEACHING HOSPITALObjective: identify if there is the inclusion of the concept and the principles of palliative care as defined by the World Health Organization in the performance of Medical Clinical Unit nurses and the Committee on Palliative Care and Pain Management of a teaching hospital in southern Brazil. Methodology: qualitative research with data collection through semi-structured interviews with 22 nurses, submitted to the technique of content analysis. Results: the nurse links Palliative Care of death of patients process. The limited communication obliterates the steps taken by team members. People with chronic disease are referred late, undergoing reductionist actions that do not provide quality of life. Conclusion: the principles of the philosophy of palliative care are partially inserted in professional practice. There is demand for academic training and service.Descriptors: Palliative Care, Chronic Disease, Nursing Care, Nursing Service Hospital.CUIDADOS PALIATIVOS: VISIÓN DE ENFERMEROS DE UN HOSPITAL UNIVERSITARIOObjetivo: identificar si existe la inclusión del concepto y los principios de los cuidados paliativos según lo definido por la Organización Mundial de la Salud en el desempeño de médicos enfermeras Clinical Unit y el Comité de Cuidados Paliativos y Tratamiento del Dolor de un hospital universitario en el sur de Brasil. Metodología: la investigación cualitativa con la recolección de datos a través de entrevistas semiestructuradas con 22 enfermeras, sometidos a la técnica de análisis de contenido. Resultados: la enfermera une cuidados paliativos de la muerte del proceso de los pacientes. La comunicación limitada borra las medidas adoptadas por los miembros del equipo. Las personas con enfermedades crónicas se refieren tarde, sometidos a acciones reduccionistas que no proporcionan la calidad de vida. Conclusións: los principios de la filosofía de los cuidados paliativos se insertan parcialmente en la práctica profesional. Hay demanda de formación académica y de servicio.Descriptores: Cuidados Paliativos, Enfermedad Crónica, Atención de Enfermería, Servicio de Enfermería en Hospital.

scholarly journals PENGEMBANGAN KAPASITAS PEREMPUAN BAGI IBU-IBU RELAWAN PROGRAM PALIATIF DI DESA KAMBINGAN DAN DESA KREMBUNG, KECAMATAN CERME, KABUPATEN GRESIK

2020 ◽  
Vol 4 (1) ◽  
pp. 189
Author(s):  
Sulikah Asmorowati ◽  
Inge Dhamanty
Keyword(s):  
Palliative Care ◽  
High Rate ◽  
World Health ◽  
Target Area ◽  
Target Groups ◽  
Community Project ◽  
Health Organization ◽  
End Stage

The high rate of deaths caused by serious illnesses has led the World Health Organization (WHO) to recommend palliative care that is considered to be able to improve the quality of patient’s live Palliative care or service is service for patients with serious illnesses, such as cancer (stadium or end-stage). In this activity, however, palliative care and service is extended so that it includes diseases that are not contagious but deadly (thus, contributed significantly to mortality rate), including such illnesses as diabetes, high-blood pressure, cholesterol, stroke and other similar illnesses. These illnesses are now increasingly being suffered by and become the major cause of death (caused by illnesses) amongst Indonesians. In order to increase the availability of palliative services in the target area, this community project provides training and assistance to develop women’s capacity in the villages of Kambingan and Ngembung, Cerme, Gresik, so that they are ready to volunteers for palliative care and service in their respective communities. The projects were conducted by providing material through lectures, and modules; followed by assistance to form a team of palliative case and service. At the end, this project resulted in the increasing understanding, and capacity of women (and mothers or PKK member), as the target groups about palliative care and services. In turn, the women were then ready to become volunteers for palliative care and program.abstrakTingginya tingkat kematian akibat penyakit serius membuat WHO menyarankan untuk melakukan perawatan paliatif yang dianggap dapat meningkatkan kualitas hidup pasien. Program atau layanan paliatif adalah pelayanan kepada pasien dengan penyakit berat, yaitu kanker (stadium akhir). Dalam kegiatan pengabdian masyarakat (pengmas) ini, layanan paliatif diperluas sehingga meliputi pula penyakit-penyakit yang tidak menular namun mematikan, seperti penyakit diabates, darah tinggi, kolesterol, stroke dan sejenisnya yang dewasa ini semakin banyak di derita masyarakat Indonesia. Kegiatan pengmas ini memberikan pelatihan dan pendampingan untuk mengembangkan kapasitas ibu-ibu tim penggerak dan anggota PKK di Desa Kambingan dan Desa Ngembung, Kecamatan Cerme, Kabupaten Gresik agar siap untuk menjadi relawan program paliatif di lingkungan masyarakat masing-masing. Metode yang digunakan dalam kegiatan ini adalah dengan pemberian materi melalui ceramah, pemberian modul, serta pendampingan pembentukan tim paliatif sebagai follow-up kegiatan. Hasil yang dicapai dari kegiatan pengabdian masyarakat ini adalah meningkatnya pemahaman masyarakat khususnya ibu-ibu tentang layanan paliatif, serta meningkatnya kapasitas mereka,sehingga siap menjadi relawan program paliatif.

Ethnic and cultural aspects of palliative care

2015 ◽  
Author(s):  
LaVera Crawley ◽  
Jonathan Koffman
Keyword(s):  
Palliative Care ◽  
End Of Life Care ◽  
World Health ◽  
Life Care ◽  
Cultural Aspects ◽  
Physical Conditions ◽  
Appropriate Treatment ◽  
Definition Of ◽  
Health Organization

This chapter attempts to identify ‘differences that make a difference’ when individuals and groups negotiate institutions and practices for palliative and end-of-life care. Two influences on the practice of palliative care-immigration and health disparities-are examined. The World Health Organization definition of palliative care specifies two goals: improving quality of life of patients and families and preventing and relieving suffering. It identifies three ‘colour blind’ strategies for meeting those goals: early identification, impeccable assessment, and (appropriate) treatment. Lastly, the definition addresses four domains of care: (1) problems related to pain, (2) physical conditions, (3) the psychosocial, (4) and the spiritual. This chapter specifically addresses these goals, strategies, and domains in relation to delivering quality palliative care in cross- or multicultural settings.

scholarly journals Quality of life of victims of traumatic brain injury six months after the trauma

2013 ◽  
Vol 21 (4) ◽  
pp. 868-875 ◽  
Author(s):  
Rita de Cássia Almeida Vieira ◽  
Edilene Curvelo Hora ◽  
Daniel Vieira de Oliveira ◽  
Maria do Carmo de Oliveira Ribeiro ◽  
Regina Márcia Cardoso de Sousa
Keyword(s):  
Quality Of Life ◽  
Traumatic Brain Injury ◽  
Brain Injury ◽  
Mean Value ◽  
World Health ◽  
Structured Interviews ◽  
World Health Organization Quality ◽  
Productivity Data ◽  
Health Organization

OBJECTIVE: to describe the quality of life of victims of traumatic brain injury six months after the event and to show the relationship between the results observed and the clinical, sociodemographic and return to productivity data. METHOD: data were analyzed from 47 victims assisted in a trauma reference hospital in the municipality of Aracaju and monitored in an outpatient neurosurgery clinic. The data were obtained through analysis of the patient records and structured interviews, with the application of the World Health Organization Quality of Life, brief version, questionnaire. RESULTS: the victims presented positive perceptions of their quality of life, and the physical domain presented the highest mean value (68.4±22.9). Among the sociodemographic characteristics, a statistically significant correlation was found between marital status and the psychological domain. However, the return to productivity was related to all the domains. CONCLUSION: the return to productivity was an important factor for the quality of life of the victims of traumatic brain injury and should direct the public policies in promoting the health of these victims.

scholarly journals Calidad de vida y estado de ánimo de un paciente con miastenia gravis / Quality of life and mood of a patient with myasthenia gravis

2018 ◽  
Vol 7 (14) ◽  
pp. 39-56
Author(s):  
Claudia Rodríguez García ◽  
Ma. de Lourdes Vargas Santillán ◽  
Santiago Osnaya Baltierra ◽  
Itzel del Rocío Estrada Reyna
Keyword(s):  
Quality Of Life ◽  
Myasthenia Gravis ◽  
World Health Organization ◽  
World Health ◽  
Life Questionnaire ◽  
Calidad De Vida ◽  
Health Organization

La miastenia gravis (MG) es una enfermedad autoinmune, de origen desconocida y que repercute en la unión neuromuscular, lo que origina debilidad en la musculatura esquelética y, por lo tanto, tiene como característica la generación de fatiga. Esta sintomatología repercute en las actividades físicas de quienes la padecen y se suele contrarrestar con reposo (Suárez, 2000).El objetivo de este trabajo es dar a conocer el seguimiento de un paciente con MG: su diagnóstico, el tratamiento y la evolución de esta enfermedad. La persona en cuestión fue diagnosticada desde los cinco años de edad, por lo que también se evalúa cómo esta enfermedad ha repercutido en su calidad de vida y estado de ánimo.La presente investigación tiene un enfoque cuantitativo; el estudio es de tipo retro-prospectivo. Prospectivo porque se busca evaluar la calidad de vida y el estado de ánimo del paciente; retrospectivo porque se retoman los antecedentes de la evolución de la enfermedad por medio del expediente clínico.Para cumplir con ello, se realizó la historia clínica del paciente: se revisó su estado de salud general, sus antecedentes patológicos y no patológicos, sus notas de evolución y se efectuaron estudios diagnósticos y de laboratorio; dichos instrumentos de evaluación se aplicaron en un solo momento. Se utilizó, además, el test de depresión de Hamilton, el cual sirve para evaluar a los pacientes que se cree puedan estar sufriendo un trastorno de ansiedad o depresión. También se aplicó el World Health Organization Quiality of Life Questionnaire (WHOQOL). Este test se centra en la calidad de vida percibida por la persona, aportando un perfil de la misma y dando una puntuación global de las áreas. Entre los resultados se encontró que el paciente, un adulto joven de 21 años, presenta gastritis e insomnio. Además, debido a que desde los cinco años ha tomado pastillas para controlar la MG, sus dientes se fueron descalcificando y, en consecuencia, requirió del uso de dientes postizos. Con respecto a la aplicación del test de depresión de Hamilton, se descubrió que está sufriendo un trastorno de depresión severa. Sin embargo, siguiendo el resultado de la aplicación del instrumento de calidad de vida, el paciente cuenta una calidad de vida regular.

The Provision of Palliative Care for Noncancer Patients With Advanced Disease: Equity Does Matter

2019 ◽  
Vol 36 (10) ◽  
pp. 932-933
Author(s):  
Abbas Heydari ◽  
Hassan Sharifi ◽  
Ahmad Bagheri Moghaddam
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Clinical Guideline ◽  
Advanced Disease ◽  
World Health ◽  
The World ◽  
Primary Focus ◽  
Health Organization ◽  
Cancer Diseases

According to the World Health Organization, the main mission of palliative care is to optimize the quality of life of patients with serious chronic disease, as well as their caregivers, by providing biopsychosociospiritual care. However, historically, the primary focus of palliative care is on providing care only for cancer diseases. Based on the current literature, it is assumed that palliative care is not provided for many chronic diseases on a regular basis and in many cases, a clinical guideline does not exist for providing palliative care.

A Public Health Approach to Palliative Care in the Canadian Context

2019 ◽  
Vol 37 (7) ◽  
pp. 492-496 ◽  
Author(s):  
Giovanna Sirianni
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
Care Delivery ◽  
World Health ◽  
Public Health Approach ◽  
Multiple Streams ◽  
Multiple Streams Framework ◽  
Canadian Context ◽  
Health Organization

Palliative care helps improve the quality of life of individuals facing life-limiting illness throughout the course of their disease. In Canada, delivery and access to palliative care has been fraught with challenges including differential availability of services based on geography, funding, language, and socioeconomic status. Many groups, including the World Health Organization, have advocated for a public health approach to palliative care as an antidote to fragmented service delivery. Multiple scholars, academics, and public health advocates have suggested that a public health approach to palliative care can help with issues of access, equity, and cost. Through the lens of Kingdon’s Multiple Streams Framework, this commentary will explore potential reasons why a public health approach to palliative care has not been adopted in the Canadian context and why this is an opportune time to consider this policy innovation. The Compassionate Communities concept is discussed as a potential solution to a public health approach to palliative care delivery.

scholarly journals Factores relacionados con la calidad de vida de pacientes trasplantados

2019 ◽  
Vol 10 (2) ◽  
Author(s):  
Alana Mirelle Coelho Leite ◽  
Patrícia Shirley Alves Sousa ◽  
Joice Requião Costa ◽  
Rosana Alves de Melo ◽  
Ferdinando Oliveira Carvalho ◽  
...  
Keyword(s):  
Quality Of Life ◽  
World Health Organization ◽  
World Health ◽  
World Health Organization Quality ◽  
Calidad De Vida ◽  
Organization Quality ◽  
Health Organization

Introducción: El transplante es un procedimiento quirúrgico que constituye una forma de tratamiento eficaz para enfermedades en fase terminal. La realización del mismo puede generar mejoras en la calidad de vida de los individuos, así como en distintos factores que pueden interferir en esa percepción. El objetivo del presente estudio fue evaluar la influencia de factores socioeconómicos e inherentes al transplante en la percepción de la calidad de vida en pacientes que hayan sido sometidos a trasplantes de órganos. Materiales y Métodos: Estudio descriptivo, cuantitativo e de tipo transversal, realizado a través de un cuestionario socioeconómico y un cuestionario de calidad de vida, el World Health Organization Quality of Life- Bref. La muestra estuvo constituida por 258 participantes. Se realizaron las pruebas U de Mann Whitney y Kruskal Wallis, además de la correlación de Spearman. El nivel de significación adoptado fue p<0,05. Resultados: En los resultados se demuestra que recibir ingresos por encima de 2 salarios marcó una diferencia significativa con respecto a los participantes que reciben menores ingresos. Los casados presentaron una diferencia significativa en el área psicológica en comparación con los de otras situaciones conyugales. El trasplantado de hígado presentó diferencia significativa en la autoevaluación con respecto a los otros trasplantados. Discusión: El transplante, a pesar de no proporcionar una cura definitiva, rehabilita a los pacientes, lo que les posibilita que sientan placeres que habían sido olvidados debido a la enfermedad y que, poco a poco, hayan podido recuperarlos. Conclusiones: Los pacientes percibieron la calidad de vida de forma satisfactoria cuando recibían ingresos elevados, habían sido sometidos a transplante hepático y tenían pareja, esto impactó de manera positiva en esta percepción. Como citar este artigo: Leite AMC, Sousa PSA, Costa JR, Melo RA, Carvalho FO, Moura JC. Fatores relacionados à qualidade de vida de pacientes transplantados. Rev Cuid. 2019; 10(2): e715. http://dx.doi.org/10.15649/cuidarte.v10i2.715  

scholarly journals Qualidade de vida em cuidadores de menores com dermatite atópica

2020 ◽  
Vol 10 (32) ◽  
pp. 175-182
Author(s):  
Angela Rita Marçano Affonso ◽  
Cassia Cristina Venci Gonzales ◽  
Neusa Falbo Wandalsen
Keyword(s):  
Quality Of Life ◽  
Atopic Dermatitis ◽  
World Health Organization ◽  
Children And Adolescents ◽  
World Health ◽  
Calidad De Vida ◽  
The World ◽  
Health Organization ◽  
The Impact

O principal objetivo desse estudo foi avaliar o impacto da dermatite atópica (DA) na qualidade de vida (QV) de cuidadores de crianças e adolescentes menores de 18 anos, com esse diagnóstico, acompanhados no município de Santo André, estes foram selecionados durante as consultas, sendo registrados dados gerais e sobre a doença, e aplicado o questionário, The World Health Organization instrument to evaluate quality of life - WHOQOL-BREF aos cuidadores. Para a análise estatística, foram utilizadas as variáveis qualitativas descritas por frequências absolutas e relativas. Os dados mostram um comprometimento da QV dos cuidadores das crianças e adolescentes com DA, quando comparada à de cuidadores de controles sadios, especialmente nos domínios físico, psicológico e de relações sociais. A presença da DA afeta a QV da família conduzindo a um alto grau de comprometimento da dinâmica familiar.Descritores: Dermatite Atópica, Qualidade de Vida, Pais, Cuidadores. Quality of life in caregivers of minors with atopic dermatitisAbstract: The main objective of this study was to assess the impact of atopic dermatitis (AD) on the quality of life (QOL) of caregivers of children and adolescents under 18, followed up in the municipality of Santo André. They were selected during consultations, being recorded general and disease data, and the questionnaire, The World Health Organization instrument to evaluate quality of life - WHOQOL-BREF, was applied to caregivers. For the statistical analysis, the qualitative variables described by absolute and relative frequencies were used. The data show a compromise in the QoL of caregivers of children and adolescents with AD, when compared to that of caregivers of healthy controls, especially in the physical, psychological and social relations domains. The presence of AD affects the family's QOL leading to a high degree of impairment of family dynamics.Descriptors: Atopic Dermatitis, Quality of Life, Parents, Caregivers. Calidad de vida en cuidadores de menores con dermatitis atópicaResumen: El objetivo principal de este estudio fue evaluar el impacto de la dermatitis aopica (DA) en la calidad de vida (CV) de los cuidadores de niños y adolescentes menores de 18 años, con este diagnóstico, seguido en el municipio de Santo André, fueron seleccionados durante las consultas. Se registraron datos generales y de enfermedades, y se aplicó el cuestionario, El instrumento de la Organización Mundial de la Salud para evaluar la calidad de vida - WHOQOL-BREF, a los cuidadores. Para el análisis estadístico, se utilizaron las variables cualitativas descritas por frecuencias absolutas y relativas. Los datos muestran un compromiso en la calidad de vida de los cuidadores de niños y adolescentes con EA, en comparación con la de los cuidadores de controles sanos, especialmente en los dominios de las relaciones físicas, psicológicas y sociales. La presencia de EA afecta la calidad de vida de la familia, lo que lleva a un alto grado de deterioro de la dinámica familiar.Descriptores: Dermatitis Atópica, Calidad de Vida, Padres, Cuidadores.

scholarly journals Qualidade de vida e diagnósticos de enfermagem de mulheres com AIDS

2017 ◽  
Vol 16 (4) ◽  
pp. 121
Author(s):  
Herta De Oliveira Alexandre Herta ◽  
Marli Teresinha Gimeniz Galvão ◽  
Gilmara Holanda da Cunha
Keyword(s):  
Social Sciences ◽  
Quality Of Life ◽  
World Health Organization ◽  
World Health ◽  
World Health Organization Quality ◽  
Calidad De Vida ◽  
Organization Quality ◽  
Las Mujeres ◽  
Health Organization

<p>Objetivo: Evaluar la calidad de vida y los diagnósticos de enfermería de mujeres con sida.</p><p><br />Métodos: Estudio transversal, involucrando a 70 mujeres con sida en seguimiento ambulatorial. Para la recolección de datos, se utilizó el formulario sociodemográfico y clínico y la versión brasileña del instrumento World Health Organization Quality of Life - VIH. Los diagnósticos de enfermería se determinaron de acuerdo con la Taxonomía II de la NANDA-I. Se realizó análisis a través del software Statistical Package for Social Sciences® (SPSS) versión 18.<br /><br />Resultados: La mayoría de las mujeres tenían entre 18 y 59 años (98,6%), era heterosexual (97,2%) y con carga viral indetectable (54,3%). Presentaron calidad de vida intermedia en todos los campos de la escala y se encontraron 14 diagnósticos de enfermería, destacándose el Patrón de Sexualidad Ineficaz, Miedo y la Ansiedad Relacionada con la Muerte.<br /><br />Conclusión: Mujeres con sida presentaron calidad de vida intermedia, necesitando de atención de enfermería integral y holística.<br /><br /></p>

scholarly journals A Qualitative Study of the Impact of COVID-19 on Hospice and Home-Based Palliative Care in Taiwan

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1029-1030
Author(s):  
YuHsuan (Olivia) Wang ◽  
Susan Enguidanos
Keyword(s):  
Palliative Care ◽  
Medical Team ◽  
Structured Interviews ◽  
Team Members ◽  
Time Points ◽  
Home Based ◽  
Alpha Variant ◽  
The Impact ◽  
Tremendous Impact

Abstract COVID-19 has had a tremendous impact on individuals and health care, particularly among those with serious illnesses. Although Taiwan initially reported low rates of COVID-19 (20.7 cases per million in 2020), by early 2021 the Alpha variant began spreading in Taiwan, which went into a soft lockdown from May to July. This study aimed to investigate the impact of COVID-19 on Hospice and Home-Based Palliative Care (HBPC) patients, family, and medical team member in Taiwan during different COVID-related time points. From November 2020 to May 2021, we conducted semi-structured interviews with 2 patient, 5 caregivers, and 8 medical team members in the hospice and HBPC setting to elicit their views about the impact of COVID-19 on care. Content analysis was used to guide the analysis of themes. Two researchers independently coded transcripts and met to reconcile codes. Results showed varying impact across the time points. In 2020, patients, caregivers, medical team members felt little impact of COVID-19. However, in 2021, HBPC caregivers reduced the frequency of HBPC visits to lower the household COVID-19 infection risk. Hospice and HBPC team members reported that more caregivers selected HBPC over hospice. They also observed an increase in complicated grief among family survivors following the soft lockdown. The impact of the pandemic on homecare provision increased as prevalence of COVID-19 increased, impacting care and quality of hospice and HBPC. Further research is needed to better understand the impact of the pandemic on the quality of hospice /HBPC and grief experiences.

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