Preparing for Dying: Meaningful Practices in Palliative Care

2004 ◽  
Vol 49 (2) ◽  
pp. 99-107 ◽  
Author(s):  
Sharon Bourgeois ◽  
Amanda Johnson
Keyword(s):  
Palliative Care ◽  
Health Professionals ◽  
Cultural Practices ◽  
Family Unit ◽  
The Family ◽  
The Individual ◽  
The Way

This article describes three exemplars that depict the meaningful practices associated with caring for the dying. The exemplars are illustrative of the way culture shapes our attitudes toward dying and the practices adopted by groups that assist them to make sense of their world. Acknowledging these practices enables health professionals to provide interventions that support the dying and their family within their own cultural network. Acceptance of the cultural practices displayed by the family unit allows for the expression of grieving behaviors and has the potential to contribute to the peaceful death of the individual. The provision of quality palliative care is enhanced when health professionals acknowledge the significance that culture plays in the meaningful practices associated with the dying process.

Is the assessment under Article 8 ECHR for migrants justifiable?

2021 ◽  
pp. 1023263X2110614
Author(s):  
Jennie Edlund ◽  
Václav Stehlík
Keyword(s):  
Human Rights ◽  
Family Life ◽  
Case Law ◽  
European Convention ◽  
Individual Rights ◽  
Foreign Nationals ◽  
European Court ◽  
The Family ◽  
The Individual ◽  
The Way

The paper analyses the protection granted under Article 8 of the European Convention of Human Rights for different immigration cases. The way the European Court of Human Rights determines compliance with Article 8 for settled migrants differs from the way the Court determines compliance for foreign nationals seeking entry or requesting to regularize their irregular migration status. The paper argues that the European Court of Human Rights application of different principles when determining a States’ positive and negative obligations is contradicting its own case law. It also argues that the absence of justification grounds for the refusal of foreign nationals who are seeking entry lacks legitimacy. By treating all immigration cases under Article 8(2) the paper suggests that the differentiation between cases should be based on how a refusal of entry or an expulsion would impact on the family life. The paper also suggests that more consideration should be given towards the insiders interests when balancing the individual rights against the state's interests. These changes would lead to a more consistent and fair case law and generate a more convergent practice by the states which will increase the precedent value of the Court's judgements.

scholarly journals The dialogic life-death in care delivery to adolescents with cancer

2012 ◽  
Vol 20 (1) ◽  
pp. 126-134 ◽  
Author(s):  
Maria José Menossi ◽  
Juliana Cardeal da Costa Zorzo ◽  
Regina Aparecida Garcia de Lima
Keyword(s):  
Data Collection ◽  
Health Professionals ◽  
Care Delivery ◽  
Theoretical Framework ◽  
Loved One ◽  
Cancer Family ◽  
Health Team ◽  
The Family ◽  
The Way

This study aims to understand the experience of adolescents with cancer, family and the health team regarding death in the healthcare context, in the light of Edgar Morin's proposed theoretical framework of complexity. Participants were 12 adolescents, 14 relatives and 25 health professionals. The interview was used for data collection. The discussion of data was guided by the dialogic life-death in the context of care to adolescents with cancer. It was observed that the singularity in the way the adolescent experiences time and faces death and the possibility that the family will lose a loved one may not be in accordance with the care the health team offers, considering structural, organizational and affective aspects. It is not enough for the team just to rationally make choices on the use of diagnostic-therapeutic devices, in line with predefined moments in the disease. Instead, a contextualized and sensitive understanding of each situation is needed.

Assessing Families (Not Just Individuals) for Missionary Service

2016 ◽  
Vol 44 (4) ◽  
pp. 329-347 ◽  
Author(s):  
Fred C. Gingrich
Keyword(s):  
Family Relationships ◽  
Family Assessment ◽  
Family Unit ◽  
The Family ◽  
History Of ◽  
Assessment Techniques ◽  
Missionary Service ◽  
Mission Service ◽  
The One ◽  
The Individual

The assessment of missionaries tends to focus on the adult members of the family unit being approved for service. Yet, the family is the one consistent relational network that missionaries are connected to throughout the pre-field, on the field, and post-field phases of mission service. In addition, throughout the history of missions sending bodies have struggled to balance the needs of the missions context, the ministry gifts that the adult members of the family bring to the field, and the dynamics of their marital and family relationships. While the literature on missionary children has grown significantly, adopting a perspective that prioritizes the family unit as the unit being “sent” may result in helpful information regarding missionary attrition and longevity. Therefore, assessing missionary families, not only the individual members of the family, at the various stages of missionary service is warranted. Using concepts and techniques from systems theory, a model and logistical factors for assessing missionary families are presented, along with suggestions for whom to assess, what to assess, and how to conduct family assessment. Resources and possible assessment techniques are also provided.

Informatics and Literature Search

2015 ◽  
Author(s):  
Jennifer J. Tieman ◽  
David C. Currow
Keyword(s):  
Palliative Care ◽  
Health Professionals ◽  
Domain Knowledge ◽  
Literature Search ◽  
Evidence Base ◽  
Practice Research ◽  
Clinical Knowledge ◽  
Research And Education ◽  
The Individual

Health information technology is changing how health professionals engage with and use knowledge and how health systems organize care. Tools and resources can facilitate access to evidence and enable its application in practice improving outcomes for the individual patient and for the health-care system. However, the quality of these applications relies on the quality and currency of the domain knowledge that is embedded within them and distributed through them. Therefore being able to identify and retrieve palliative care’s evidence base is more critical than ever. Given the complexity of timely, efficient, and effective retrieval of needed knowledge, new approaches are needed to manage the expanding and diffuse knowledge base for palliative care. Such strategies include developing online repositories of clinical knowledge to ensure immediate access and creating search solutions that shortcut access to literature and evidence to support practice, research, and education.

Back to the Cave

2021 ◽  
pp. 70-88
Author(s):  
David L. Pike
Keyword(s):  
New Species ◽  
Social Structure ◽  
Social Forces ◽  
Family Unit ◽  
Lone Wolf ◽  
The Family ◽  
Dominant Individual ◽  
New Space ◽  
The Individual ◽  
A New Species

While the individual fallout shelter provided a new space for imagining the family unit in the context of broader social forces, the cave shelter stressed the animal nature of modern man. Whether fighting for survival in a savage postnuclear world, evolving into a new species, or devolving into animal behavior, the inhabitants of cave shelters display a feral identity. The cave has long carried this resonance regardless of whether composed of natural formations, human or machine-excavated tunnels and mines, or some combination of the two. As a postwar bunker space, the cave’s particular affordances are non-technologized shelter, an exposed passage to the outside world, and the animal survival of the dominant individual. Sometimes, we find a reduced and childless family unit, generally the male and his mate or mates; at others a lone wolf hidden from and pitted against a hostile world. In the cave, any remaining social structure is troped as animalistic or otherwise non-human and often a threat to the surviving individuals. The cave-space presumes not the home shelter’s projection of a strong and paternalistic government but the Hobbesian specter of the loss of any kind of humane community, homo homini lupus, the bunkered mentality that would eventually emerge in the 1980s as survivalism.

Supporting families in palliative care

2015 ◽  
pp. 500-514 ◽  
Author(s):  
Rose Steele ◽  
Betty Davies
Keyword(s):  
Palliative Care ◽  
Family System ◽  
Terminally Ill ◽  
Nursing Interventions ◽  
Family Experience ◽  
The Family ◽  
Centered Care ◽  
The Individual ◽  
Levels Of Functioning ◽  
Family Centered

Family-centered care is a basic tenet of palliative care philosophy, which recognizes that terminally ill patients exist within the family system. The patient’s illness affects the whole family, and, in turn, the family’s responses affect the patient. Supporting families in palliative care means that nurses must plan their care with an understanding not only of the individual patient’s needs but also of the family system within which the patient functions. Families with a member who requires palliative care are in a “transition of fading away,” characterized by seven dimensions that help nurses to understand families’ experiences and to support them. Level of family functioning also plays a role in family experience and serves to guide nursing interventions for families with varying levels of functioning.

How a Utopian Education Paves the Way for the Usurpation of the Family

Moreana ◽  
2012 ◽  
Vol 49 (Number 187- (1-2) ◽  
pp. 77-103
Author(s):  
Matthew Spring
Keyword(s):  
Family Life ◽  
Single Family ◽  
The Family ◽  
Entire Society ◽  
The Individual ◽  
The Way

Raphael’s statements that nothing is private in Utopia and that “the whole island [of Utopia] is like a single family” lead one to consider whether the Utopian system of education and habituation is an attempt to undo the natural connections that join parents to children. While Raphael argues that the community can only supersede the individual once these natural ties have been loosened and the role of the family been usurped, More recognizes that the love that serves as the foundation of family life should be allowed to flourish because it is also the proper foundation of an entire society.

The Father and the Bride in Shakespeare

PMLA ◽  
1982 ◽  
Vol 97 (3) ◽  
pp. 325-347 ◽  
Author(s):  
Lynda E. Boose
Keyword(s):  
Sixteenth Century ◽  
Family Structure ◽  
Economic Burden ◽  
Family Unit ◽  
Marriage Ceremony ◽  
The Family ◽  
Rival Male ◽  
Original Family ◽  
The Individual

Although sixteenth-century daughters were evidently an economic burden on their fathers, Shakespeare consistently depicts fathers whose love for their daughters is so possessive that it endangers the family unit. To delineate the tensions of this bond at its liminal moment, Shakespeare evokes the altar tableau of the marriage service. This paradigmatic substructure illuminates the central conflict in the father-daughter relationship: the father who resists the ritual's demands to give his daughter to a rival male destroys both his paternal authority and his family's generative future; yet the daughter who escapes without undergoing ritual severance violates the family structure and thus becomes both guiltlessly agentive in ruining her original family and tragically incapable of creating a new one. The marriage ceremony is designed to resolve this paradox. In Shakespeare's dramas, submission to this rite ensures the only possibility of freedom for the individual and of continuity for the family.

Bereavement

2016 ◽  
Author(s):  
Richard D.W. Hain ◽  
Satbir Singh Jassal
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
Multidisciplinary Team ◽  
Health Care Professionals ◽  
Chronically Ill ◽  
Grieving Process ◽  
Paediatric Palliative Care ◽  
The Family ◽  
The Individual ◽  
Different Levels

Death generates different levels of grief in people, most often linked to our relationship with the individual and our social cultural upbringing. As paediatric palliative care professionals dealing with the family, we are looked towards by other health-care professionals and society to help deal with the bereavement and its associated grief. It is important to recognize that it is not our sole responsibility. This chapter approaches grief through the models of bereavement theory, in order to provide a deeper understanding of this stage. It examines bereavement issues experienced by the chronically ill child, as well as those experienced by siblings, parents, and the community around the dying child. Attention is also given to managing bereavement, with advice provided on how the multidisciplinary team can help parents during the grieving process.

Users’ Views of Palliative Care Services: ethical implications

2000 ◽  
Vol 7 (4) ◽  
pp. 314-326 ◽  
Author(s):  
Simon Woods ◽  
Kinta Beaver ◽  
Karen Luker
Keyword(s):  
Palliative Care ◽  
Health Professionals ◽  
Ethical Issues ◽  
Community Services ◽  
Ethical Challenges ◽  
Best Interest ◽  
Ethical Implications ◽  
Care Services ◽  
The Family ◽  
Palliative Care Services

This article is based on the findings of a study that elicited the views of terminally ill patients ( n = 15), their carers ( n = 10) and bereaved carers ( n = 19) on the palliative care services they received. It explores the range of ethical issues revealed by the data. Although the focus of the original study was on community services, the participants frequently commented on all aspects of their experience. They described some of its positive and negative aspects. Of concern was the reported lack of sensitivity to the role of the family among health professionals. The family, as carers, service users and advocates, represent a challenge to professional boundaries and the ethical norms of confidentiality and best interest. The accounts reveal the complexity of the ethical issues that characterize terminal care, issuing specific ethical challenges to nurses and other health professionals involved in this field.

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