scholarly journals Validity testing and cultural adaptation of the eHealth Literacy Questionnaire (eHLQ) among people with chronic diseases in Taiwan: A mixed methods study (Preprint)

Author(s):  
Yu-Chi Chen ◽  
Christina Cheng ◽  
Richard H Osborne ◽  
Lars Kayser ◽  
Chieh-Yu Liu ◽  
...  
2021 ◽  
Author(s):  
Yu-Chi Chen ◽  
Christina Cheng ◽  
Richard H Osborne ◽  
Lars Kayser ◽  
Chieh-Yu Liu ◽  
...  

BACKGROUND Advancements in digital technologies seek to promote health and access to services. However, people lacking abilities and confidence to use technology are likely to be left behind, leading to health disparities. In providing digital health services, health care providers need to be aware of users diverse electronic health (eHealth) literacy to address particular needs and ensure equitable uptake and use of digital services. To understand such needs, an instrument that captures user’s knowledge, skills, trust, motivation and experiences in relation to technology is required. The eHealth Literacy Questionnaire (eHLQ) is a multi-dimensional tool with 7 scales covering diverse dimensions of eHealth literacy. The tool was simultaneously developed in English and Danish using a grounded and validity-driven approach and was shown to have strong psychometric properties. OBJECTIVE This study aimed to translate and culturally adapt the eHLQ for application among Chinese-speaking people with chronic diseases in Taiwan, and then undertake a rigorous set of validity testing procedures. METHODS The cross-cultural adaptation of the eHLQ included translation and evaluation of the translations. The measurement properties were assessed using classical test theory and Item Response Theory (IRT) approaches. Content validity, known groups validity and internal consistency were explored, as well as item characteristic curves (ICCs), item discrimination and item location/difficulty. RESULTS The adapted version was reviewed and a recommended forward translation was confirmed through consensus meetings. The tool exhibited good content validity. A total of 420 people with one or more chronic diseases participated in a validity testing survey. The eHLQ showed good internal consistency (Cronbach’s α .75 ~.95). For known groups validity, all 7 eHLQ scales showed strong expected associations with education. Unidimensionality and local independence assumptions were met, except for Scale 2. IRT analysis showed that all items demonstrated good discrimination and a good range of difficulty, except for 2 items in Scale 7. CONCLUSIONS Using a rigorous process, the eHLQ was translated from English into a culturally appropriate tool for use in the Chinese language. Validity testing provided evidence of satisfactory to strong psychometric properties of the eHLQ. The 7 scales are likely to be useful research tools for evaluating digital health interventions and for informing the development of health technology products and interventions that equitably suit diverse users’ needs. CLINICALTRIAL Inapplicable This study was not a clinical trial.


BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e039920
Author(s):  
Ailbhe Spillane ◽  
Sarahjane Belton ◽  
Clare McDermott ◽  
Johann Issartel ◽  
Richard H Osborne ◽  
...  

IntroductionHealth literacy research has focused predominantly on the adult population, and much less is understood about this concept from an adolescent perspective. The tools currently available to measure adolescent health literacy have been adapted from adult versions. This limits their applicability to young people because of the developmental characteristics that impact on adolescents’ behaviour, including impulse control and judgement skills. This protocol describes the intended development and validity testing of a questionnaire to measure health literacy in adolescents.Methods and analysisThis protocol describes this mixed methods study that has three phases: the first phase will involve grounded research with adolescents using qualitative group interviews, co-design and concept mapping workshops to understand what health and healthy behaviours mean to adolescents and to explore their health literacy needs and the potential domains for the questionnaire. The draft health literacy domains identified will be presented to the youth advisory panel, and the questionnaire will be altered based on their feedback. Cognitive pretesting of the questionnaire items will also be conducted. Phase 2 will involve piloting the questionnaire to a two-stage random sample of young people in five urban and rural schools in Ireland. Test–retest reliability will be conducted using Pearson correlation coefficient. Confirmatory factor analysis will also be conducted to analyse the psychometric properties of the questionnaire. Phase 3 will involve the questionnaire being rolled out to a nationally representative sample of adolescents (n=6052) in Ireland to assess their levels of health literacy.Ethics and disseminationEthical approval to conduct this study has been granted from the University College Dublin Human Research Ethics Committee – Sciences (LS-20–08). Informed assent from adolescents and informed consent from parents/guardians will be sought. The findings of this research will be disseminated at national and international conferences, as well as through publication in peer-reviewed journals.


BMJ Open ◽  
2019 ◽  
Vol 9 (2) ◽  
pp. e028529
Author(s):  
Tim Baerwalde ◽  
Britta Gebhard ◽  
Laura Hoffmann ◽  
Julia Roick ◽  
Olaf Martin ◽  
...  

IntroductionSocial participation is an important part of a young person’s life. It influences the social experience, social-emotional development and dimensions of competence experience. This applies to people with or without physical disabilities or chronic diseases. Currently, there is no reliable assessment tool for measuring social participation of adolescents in Germany although social participation is a central goal of rehabilitation. The aim of this study is to develop, test and pilot an instrument that assesses social participation for adolescents between the ages of 12 and 17 years and to start a psychometric test.Methods and analysisIn a sequential mixed-methods study, adolescents with and without physical disabilities or chronic diseases are asked about their experiences with social participation as well as the individual significance of self-determination through semistructured interviews. The perspective of adolescents is supplemented by focus groups that will be conducted first with experts from social paediatric care and second with legal guardians. Based on this, an assessment instrument will be developed, evaluated and implemented in exemplary social paediatric centres (SPCs) and rehabilitation clinics and psychometrically tested in a pilot study.Ethics and disseminationThe study will be conducted in accordance with the principles of the revised Helsinki Declaration. The study was approved by the Ethics Review Committee at the Martin-Luther-University Halle-Wittenberg. The developed assessment instrument can be used in science to identify disadvantaged groups and to compensate for the disadvantages that could impair development. For this purpose, the results will be presented at scientific conferences and published in international peer-reviewed journals. In practice, the instrument can be used to determine the goals of rehabilitation together with the adolescents and to evaluate the achievement of these goals. For this, implementation workshops and further training will be organised and carried out in children’s rehabilitation clinics and SPCs.Trial registration numberDRKS00014739; Pre-results.


2014 ◽  
Vol 163 ◽  
pp. 88-101 ◽  
Author(s):  
Neil Krishan Aggarwal ◽  
Madhumitha Balaji ◽  
Shuba Kumar ◽  
Rani Mohanraj ◽  
Atif Rahman ◽  
...  

2014 ◽  
Vol 23 (10) ◽  
pp. 867-876 ◽  
Author(s):  
Rosalind Raine ◽  
Penny Xanthopoulou ◽  
Isla Wallace ◽  
Caoimhe Nic a’ Bháird ◽  
Anne Lanceley ◽  
...  

2019 ◽  
Vol 28 (3) ◽  
pp. 660-672
Author(s):  
Suzanne H. Kimball ◽  
Toby Hamilton ◽  
Erin Benear ◽  
Jonathan Baldwin

Purpose The purpose of this study was to evaluate the emotional tone and verbal behavior of social media users who self-identified as having tinnitus and/or hyperacusis that caused self-described negative consequences on daily life or health. Research Design and Method An explanatory mixed-methods design was utilized. Two hundred “initial” and 200 “reply” Facebook posts were collected from members of a tinnitus group and a hyperacusis group. Data were analyzed via the LIWC 2015 software program and compared to typical bloggers. As this was an explanatory mixed-methods study, we used qualitative thematic analyses to explain, interpret, and illustrate the quantitative results. Results Overall, quantitative results indicated lower overall emotional tone for all categories (tinnitus and hyperacusis, initial and reply), which was mostly influenced by higher negative emotion. Higher levels of authenticity or truth were found in the hyperacusis sample but not in the tinnitus sample. Lower levels of clout (social standing) were indicated in all groups, and a lower level of analytical thinking style (concepts and complex categories rather than narratives) was found in the hyperacusis sample. Additional analysis of the language indicated higher levels of sadness and anxiety in all groups and lower levels of anger, particularly for initial replies. These data support prior findings indicating higher levels of anxiety and depression in this patient population based on the actual words in blog posts and not from self-report questionnaires. Qualitative results identified 3 major themes from both the tinnitus and hyperacusis texts: suffering, negative emotional tone, and coping strategies. Conclusions Results from this study suggest support for the predominant clinical view that patients with tinnitus and hyperacusis have higher levels of anxiety and depression than the general population. The extent of the suffering described and patterns of coping strategies suggest clinical practice patterns and the need for research in implementing improved practice plans.


Author(s):  
D. J. Sullivan ◽  
S. Labby ◽  
A. Koptelov ◽  
S. L. Sullivan

The purpose of this mixed methods study was to determine the barriers that special educator teachers encounter when using iPads within the Life Skills classroom. The research investigates the experiences, frustrations, and barriers through educators’ perceptions of iPad implementation. The influence of these issues suggests why iPad usage is not a device that special education classrooms are using in a widespread daily manner. Exploration of iPads as an educational tool and as a communication device is also discussed, along with considerations of other communications systems such as Picture Exchange Communication Systems and Alternative and Augmented Communication Devices is considered. Recommendations for further possible research are also discussed.


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