scholarly journals Xigua Video as a Source of Information on Breast Cancer: Content Analysis (Preprint)

2020 ◽  
Author(s):  
Peng Pan ◽  
Changhua Yu ◽  
Tao Li ◽  
Xilei Zhou ◽  
Tingting Dai ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Health Information ◽  
Health Care Professionals ◽  
Medical Information ◽  
Statistical Significance ◽  
Misleading Information ◽  
Global Quality ◽  
Information Group ◽  
Source Of Information

BACKGROUND Seeking health information on the internet is a popular trend. Xigua Video, a short video platform in China, ranks among the most accessed websites in the country and hosts an increasing number of videos with medical information. However, the nature of these videos is frequently unscientific, misleading, or even harmful. OBJECTIVE Little is known about Xigua Video as a source of information on breast cancer. Thus, the study aimed to investigate the contents, quality, and reliability of breast cancer–related content on Xigua Video. METHODS On February 4, 2020, a Xigua Video search was performed using the keyword “breast cancer.” Videos were categorized by 2 doctors based on whether the video content provided useful or misleading information. Furthermore, the reliability and quality of the videos were assessed using the 5-point DISCERN tool and 5-point global quality score criteria. RESULTS Out of the 170 videos selected for the study, 64 (37.6%) were classified as useful, whereas 106 (62.4%) provided misleading information. A total of 41.8% videos (71/170) were generated by individuals compared to 19.4% videos (33/170) contributed by health care professionals. The topics mainly covered etiology, anatomy, symptoms, preventions, treatments, and prognosis. The top topic was “treatments” (119/170, 70%). The reliability scores and global quality scores of the videos in the useful information group were high (<i>P</i>&lt;.001). No differences were observed between the 2 groups in terms of video length, duration in months, and comments. The number of total views was higher for the misleading information group (819,478.5 vs 647,940) but did not reach a level of statistical significance (<i>P</i>=.112). The uploading sources of the videos were mainly health care professionals, health information websites, medical advertisements, and individuals. Statistical differences were found between the uploading source groups in terms of reliability scores and global quality scores (<i>P</i>&lt;.001). In terms of total views, video length, duration, and comments, no statistical differences were indicated among the said groups. However, a statistical difference was noted between the useful and misleading information video groups with respect to the uploading sources (<i>P</i>&lt;.001). CONCLUSIONS A large number of Xigua videos pertaining to breast cancer contain misleading information. There is a need for accurate health information to be provided on Xigua Video and other social media; health care professionals should address this challenge.

scholarly journals Xigua Video as a Source of Information on Breast Cancer: Content Analysis

10.2196/19668 ◽  
2020 ◽  
Vol 22 (9) ◽  
pp. e19668
Author(s):  
Peng Pan ◽  
Changhua Yu ◽  
Tao Li ◽  
Xilei Zhou ◽  
Tingting Dai ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Health Information ◽  
Health Care Professionals ◽  
Medical Information ◽  
Statistical Significance ◽  
Misleading Information ◽  
Global Quality ◽  
Information Group ◽  
Source Of Information

Background Seeking health information on the internet is a popular trend. Xigua Video, a short video platform in China, ranks among the most accessed websites in the country and hosts an increasing number of videos with medical information. However, the nature of these videos is frequently unscientific, misleading, or even harmful. Objective Little is known about Xigua Video as a source of information on breast cancer. Thus, the study aimed to investigate the contents, quality, and reliability of breast cancer–related content on Xigua Video. Methods On February 4, 2020, a Xigua Video search was performed using the keyword “breast cancer.” Videos were categorized by 2 doctors based on whether the video content provided useful or misleading information. Furthermore, the reliability and quality of the videos were assessed using the 5-point DISCERN tool and 5-point global quality score criteria. Results Out of the 170 videos selected for the study, 64 (37.6%) were classified as useful, whereas 106 (62.4%) provided misleading information. A total of 41.8% videos (71/170) were generated by individuals compared to 19.4% videos (33/170) contributed by health care professionals. The topics mainly covered etiology, anatomy, symptoms, preventions, treatments, and prognosis. The top topic was “treatments” (119/170, 70%). The reliability scores and global quality scores of the videos in the useful information group were high (P<.001). No differences were observed between the 2 groups in terms of video length, duration in months, and comments. The number of total views was higher for the misleading information group (819,478.5 vs 647,940) but did not reach a level of statistical significance (P=.112). The uploading sources of the videos were mainly health care professionals, health information websites, medical advertisements, and individuals. Statistical differences were found between the uploading source groups in terms of reliability scores and global quality scores (P<.001). In terms of total views, video length, duration, and comments, no statistical differences were indicated among the said groups. However, a statistical difference was noted between the useful and misleading information video groups with respect to the uploading sources (P<.001). Conclusions A large number of Xigua videos pertaining to breast cancer contain misleading information. There is a need for accurate health information to be provided on Xigua Video and other social media; health care professionals should address this challenge.

scholarly journals Use of Social Media in Health Communication: Findings From the Health Information National Trends Survey 2013, 2014, and 2017

2019 ◽  
Vol 26 (1) ◽  
pp. 107327481984144 ◽  
Author(s):  
Jinhai Huo ◽  
Raj Desai ◽  
Young-Rock Hong ◽  
Kea Turner ◽  
Arch G. Mainous ◽  
...  
Keyword(s):  
Health Care ◽  
Social Media ◽  
Health Communication ◽  
Sample Size ◽  
Health Information ◽  
Health Care Professionals ◽  
Medical Information ◽  
Use Of Social Media ◽  
National Trends ◽  
Pooled Sample

The number of social media users has increased substantially in the past decade, creating an opportunity for health-care professionals and patients to leverage social media for health communication. This study examines the recent use and predictors of social media for health communication in a nationally representative sample of US adults over time. We used 2013, 2014, and 2017 National Cancer Institute’s Health Information National Trends Survey to identify respondents’ use of social media for sharing health information or exchanging medical information with a health-care professional. We conducted bivariate analysis using the Pearson χ2 test to assess the association of respondents’ basic demographic characteristics as well as health status and the use of social media for health communication. We performed multivariable logistic regression models to examine factors associated with the use of social media for health communication. We identified 4242 respondents (weighted sample size: 343 465 241 [2-year pooled sample]) who used social media for sharing health information and 4834 respondents (weighted sample size: 354 419 489 [2-year pooled sample]) who used social media for exchanging medical information. Multivariable analyses indicated the proportion of respondents who used social media for sharing health information has decreased (odds ratio [OR], 0.65; 95% confidence interval [CI], 0.49-0.85, P = .002), while the use of social media for exchanging medical information with a health-care professional has increased (OR, 1.88; 95% CI, 1.09-3.26, P = .025). The younger population had significantly higher odds of using social media for health communication. The study found no racial/ethnic disparities in the use of social media for health communication. Use of social media for sharing health information has declined, while exchanging medical information with health-care professionals has increased. Future research is needed to determine how to engage the population in social media–based health interventions, particularly for older adults.

scholarly journals Transition from pandemic to infodemic: an analysis of Turkish-language COVID-19 YouTube videos

2021 ◽  
Author(s):  
Fatih Cakmak ◽  
Seda Ozkan ◽  
Afsin Ipekci ◽  
Altug Kanbakan ◽  
Turker Demirtakan ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Medical Information ◽  
Video Content ◽  
Global Quality ◽  
Content Index ◽  
Health Related ◽  
Youtube Videos ◽  
Turkish Language

Background: YouTube can be a powerful educational tool for the dissemination of health information. However, if uploaded health-related videos are inaccurate, it can mislead, create confusion and generate panic. Aims: This study aimed to determine the success of the most-watched Turkish-language COVID-19 YouTube videos regarding information and guidance on the disease for the public. The secondary aim of this study was to evaluate the accuracy and quality of such video content. Methods: The study was conducted during May 2020 and analysed 133 videos. The length of the videos, the number of likes and dislikes, comments and views, how long they have been on YouTube, Medical Information and Content Index (MICI) Score, mDISCERN scores, global quality scores, and the source and target audiences of the videos were all determined. Results: The average MICI Scores of videos was 2.48±3.74 and the global quality scores was 1.27±0.64. When MICI Scores were compared between video sources, the scores of academic hospitals and government videos were significantly higher. The global quality scores of videos from news agencies and independent users was significantly lower (P < 0.001). Among the targeted videos, only the global quality scores of the videos made for health-care workers were found to be significantly higher. Conclusion: Health-care professionals should upload more videos to improve the quality of health-related video content available on YouTube. Accompanied by evidence-based information, the issues of diagnosis, ways of transmission, prevention and treatment of diseases should be emphasized.

scholarly journals Youtube English videos as a source of information on shoulder exercise after breast cancer surgery

2021 ◽  
Author(s):  
Selen Guloglu ◽  
Yunus Ozdemir ◽  
Pelin Basim ◽  
Sena Tolu
Keyword(s):  
Breast Cancer ◽  
Cancer Surgery ◽  
Professional Organizations ◽  
Breast Cancer Surgery ◽  
Accurate Information ◽  
Misleading Information ◽  
Content Quality ◽  
Global Quality ◽  
Significant Difference ◽  
Information Group

Abstract Purpose To examine the content, quality and reliability of YouTube videos on exercises that can be performed after breast cancer surgery. Methods Videos selected from YouTube using the search terms “shoulder exercise and breast cancer surgery”, “arm exercise and breast cancer surgery”, and “physiotherapy/physical therapy and breast cancer surgery” were categorized as useful or misleading by a doctor and a physiotherapist. The videos were analyzed using the five-point DISCERN scale for reliability, the five-point Global Quality Scale (GQS) for quality, and a 10-item scale for comprehensiveness. Results Of the 180 videos initially analyzed, 82 were included in the study, and 42 (51.2%) were classified as having misleading information and 40 (48.8%) as having useful information. The reliability, content and quality scores of the videos containing useful information were higher (p<0.001). Most of the videos in the useful information group (80%) were uploaded by universities/professional organizations/physicians/physiotherapists, while the majority of those in the misleading information group (47.6%) were uploaded by websites providing independent healthcare information. The total and daily views of the videos were higher in the useful information group than in the misleading information group (p<0.001 and p=0.004, respectively). When the video parameters were evaluated between the two groups, no significant difference was found in the number of likes and comments and video length. Conclusion YouTube can be an important instrument to protect patients from musculoskeletal system complications after breast cancer surgery and improve existing complications. Universities, physicians, and physiotherapists should be encouraged to prepare more videos containing full and accurate information on this subject.

scholarly journals Perspectives of Patients, Health Care Professionals, and Developers Toward Blockchain-Based Health Information Exchange: Qualitative Study (Preprint)

2020 ◽  
Author(s):  
Keehyuck Lee ◽  
Kahyun Lim ◽  
Se Young Jung ◽  
Hyerim Ji ◽  
Kyungpyo Hong ◽  
...  
Keyword(s):  
Health Care ◽  
Qualitative Study ◽  
Health Information ◽  
Health Care Professionals ◽  
Information Exchange ◽  
Medical Information ◽  
Health Information Exchange ◽  
Health Management ◽  
The United States ◽  
Record System

BACKGROUND Although the electronic health record system adoption rate has reached 96% in the United States, implementation and usage of health information exchange (HIE) is still lagging behind. Blockchain has come into the spotlight as a technology to solve this problem. However, there have been no studies assessing the perspectives of different stakeholders regarding blockchain-based patient-centered HIE. OBJECTIVE The objective of this study was to analyze the awareness among patients, health care professionals, and information technology developers toward blockchain-based HIE, and compare their different perspectives related to the platform using a qualitative research methodology. METHODS In this qualitative study, we applied grounded theory and the Promoting Action on Research Implementation in the Health Service (PARiHS) framework. We interviewed 7 patients, 7 physicians, and 7 developers, for a total of 21 interviewees. RESULTS Regarding the leakage of health information, the patient group did not have concerns in contrast to the physician and developer groups. Physicians were particularly concerned about the fact that errors in the data cannot be easily fixed due to the nature of blockchain technology. Patients were not against the idea of providing information for clinical trials or research institutions. They wished to be provided with the results of clinical research rather than being compensated for providing data. The developers emphasized that blockchain must be technically mature before it can be applied to the health care scene, and standards of medical information to be exchanged must first be established. CONCLUSIONS The three groups’ perceptions of blockchain were generally positive about the idea of patients having the control of sharing their own health information. However, they were skeptical about the cooperation among various institutions and implementation for data standardization in the establishment process, in addition to how the service will be employed in practice. Taking these factors into consideration during planning, development, and operation of a platform will contribute to establishing practical treatment plans and tracking in a more convenient manner for both patients and physicians. Furthermore, it will help expand the related research and health management industry based on blockchain.

scholarly journals Perspectives of Patients, Health Care Professionals, and Developers Toward Blockchain-Based Health Information Exchange: Qualitative Study

10.2196/18582 ◽  
2020 ◽  
Vol 22 (11) ◽  
pp. e18582
Author(s):  
Keehyuck Lee ◽  
Kahyun Lim ◽  
Se Young Jung ◽  
Hyerim Ji ◽  
Kyungpyo Hong ◽  
...  
Keyword(s):  
Health Care ◽  
Qualitative Study ◽  
Health Information ◽  
Health Care Professionals ◽  
Information Exchange ◽  
Medical Information ◽  
Health Information Exchange ◽  
Health Management ◽  
The United States ◽  
Record System

Background Although the electronic health record system adoption rate has reached 96% in the United States, implementation and usage of health information exchange (HIE) is still lagging behind. Blockchain has come into the spotlight as a technology to solve this problem. However, there have been no studies assessing the perspectives of different stakeholders regarding blockchain-based patient-centered HIE. Objective The objective of this study was to analyze the awareness among patients, health care professionals, and information technology developers toward blockchain-based HIE, and compare their different perspectives related to the platform using a qualitative research methodology. Methods In this qualitative study, we applied grounded theory and the Promoting Action on Research Implementation in the Health Service (PARiHS) framework. We interviewed 7 patients, 7 physicians, and 7 developers, for a total of 21 interviewees. Results Regarding the leakage of health information, the patient group did not have concerns in contrast to the physician and developer groups. Physicians were particularly concerned about the fact that errors in the data cannot be easily fixed due to the nature of blockchain technology. Patients were not against the idea of providing information for clinical trials or research institutions. They wished to be provided with the results of clinical research rather than being compensated for providing data. The developers emphasized that blockchain must be technically mature before it can be applied to the health care scene, and standards of medical information to be exchanged must first be established. Conclusions The three groups’ perceptions of blockchain were generally positive about the idea of patients having the control of sharing their own health information. However, they were skeptical about the cooperation among various institutions and implementation for data standardization in the establishment process, in addition to how the service will be employed in practice. Taking these factors into consideration during planning, development, and operation of a platform will contribute to establishing practical treatment plans and tracking in a more convenient manner for both patients and physicians. Furthermore, it will help expand the related research and health management industry based on blockchain.

scholarly journals Evaluation of Breast Cancer Videos on Youtube in the Arab World 

2020 ◽  
Author(s):  
Georges Ayoub ◽  
Elie Chalhoub ◽  
Ghassan Sleilaty ◽  
Hampig Raphael Kourie
Keyword(s):  
Breast Cancer ◽  
Power Index ◽  
Arab World ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Misleading Information ◽  
The Public ◽  
Global Quality ◽  
First Time ◽  
Source Of Information

Abstract BackgroundPatients are increasingly using YouTube™ as a source of information on Breast cancer, the most frequent cancer among women. Educating patients is highly important to reduce mortality rates. This study aims to evaluate, for the first time, Breast Cancer Videos on YouTube™ in the Arab world that hosts their highest use.MethodsIn this cross-sectional study, the most viewed 60 videos were evaluated for global quality (GQS score), reliability (modified DISCERN score), usefulness (content-specific score), and misleading claims. Videos’ power index, popularity, duration, and viewers' interaction were assessed. Sources (professional/ non-professional) and speakers (physician/ non-physician) were categorized.ResultsThe median Global Quality (3/5), Reliability (2/5), and Usefulness scores (4/11) were overall low. Out of all videos, the speaker was a physician in 32% and misleading information was found in 42%. Although professional source videos (45%) were less viewed, they were less misleading, of higher quality, reliability, and usefulness than non-professional source videos (55%). Source categories did not affect viewers' interaction, video power index, nor duration. While Symptoms (55%) were discussed the most, genetic counseling (13%) and prevention (20%) were scarcely mentioned; professionals were more likely to highlight early diagnosis importance. ConclusionsYouTube™ is poorly informational on breast cancer and may be inaccurate in the Arab world where highly used. Although professional uploaders’ videos tend to be more adequate, they are of lower quantity and popularity. Governments and physicians should upload more intelligibly informational videos, guide the public for accurate sources, and encourage regulations.

scholarly journals Differences in Perceptions of Health Information Between the Public and Health Care Professionals: Nonprobability Sampling Questionnaire Survey (Preprint)

2019 ◽  
Author(s):  
Anat Gesser-Edelsburg ◽  
Nour Abed Elhadi Shahbari ◽  
Ricky Cohen ◽  
Adva Mir Halavi ◽  
Rana Hijazi ◽  
...  
Keyword(s):  
Health Care ◽  
Social Networks ◽  
New Media ◽  
Health Information ◽  
Health Care Professionals ◽  
Questionnaire Survey ◽  
General Public ◽  
The Public ◽  
Search For Information

BACKGROUND In the new media age, the public searches for information both online and offline. Many studies have examined how the public reads and understands this information but very few investigate how people assess the quality of journalistic articles as opposed to information generated by health professionals. OBJECTIVE The aim of this study was to examine how public health care workers (HCWs) and the general public seek, read, and understand health information and to investigate the criteria by which they assess the quality of journalistic articles. METHODS A Web-based nonprobability sampling questionnaire survey was distributed to Israeli HCWs and members of the public via 3 social media outlets: Facebook, WhatsApp, and Instagram. A total of 979 respondents participated in the online survey via the Qualtrics XM platform. RESULTS The findings indicate that HCWs find academic articles more reliable than do members of the general public (44.4% and 28.4%, respectively, P<.001). Within each group, we found disparities between the places where people search for information and the sources they consider reliable. HCWs consider academic articles to be the most reliable, yet these are not their main information sources. In addition, HCWs often use social networks to search for information (18.2%, P<.001), despite considering them very unreliable (only 2.2% found them reliable, P<.001). The same paradoxes were found among the general public, where 37.5% (P<.001) seek information via social networks yet only 8.4% (P<.001) find them reliable. Out of 6 quality criteria, 4 were important both to HCWs and to the general public. CONCLUSIONS In the new media age where information is accessible to all, the quality of articles about health is of critical importance. It is important that the criteria examined in this research become the norm in health writing for all stakeholders who write about health, whether they are professional journalists or citizen journalists writing in the new media.

scholarly journals Reconciliation of patient/doctor vocabulary in a structured resource

2018 ◽  
Vol 25 (4) ◽  
pp. 1219-1231
Author(s):  
Mike Donald Tapi Nzali ◽  
Jérôme Aze ◽  
Sandra Bringay ◽  
Christian Lavergne ◽  
Caroline Mollevi ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Care ◽  
Social Media ◽  
Health Care Professionals ◽  
Consumer Health ◽  
Simple Knowledge Organization System ◽  
Cancer Field ◽  
Knowledge Organization System ◽  
Statistical Approaches ◽  
Institut National Du Cancer

Today, social media is increasingly used by patients to openly discuss their health. Mining automatically such data is a challenging task because of the non-structured nature of the text and the use of many abbreviations and the slang terms. Our goal is to use Patient Authored Text to build a French Consumer Health Vocabulary on breast cancer field, by collecting various kinds of non-experts’ expressions that are related to their diseases and then compare them to biomedical terms used by health care professionals. We combine several methods of the literature based on linguistic and statistical approaches to extract candidate terms used by non-experts and to link them to expert terms. We use messages extracted from the forum on ‘ cancerdusein.org ’ and a vocabulary dedicated to breast cancer elaborated by the Institut National Du Cancer. We have built an efficient vocabulary composed of 192 validated relationships and formalized in Simple Knowledge Organization System ontology.

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