Data visualization in chronic neurological and mental health condition self-management: a systematic review of user perspectives (Preprint)

2020 ◽  
Author(s):  
Ashley Polhemus ◽  
Jan Novak ◽  
Shazmin Majid ◽  
Sara Simblett ◽  
Stuart Bruce ◽  
...  

BACKGROUND Remote measurement technology (RMT) such as mobile health devices and applications, are increasingly used by those living with chronic neurological and mental health conditions. RMT enables real-world data collection and regular feedback, providing users with insights about their own conditions. Data visualizations are an integral part of RMT, though little is known about visualization design preferences from the perspectives of those living with chronic conditions. OBJECTIVE Explore the experiences and preferences of individuals with chronic neurological and mental health conditions on data visualizations derived from RMT to manage health. METHODS In this systematic review, we searched peer-reviewed literature and conference proceedings (PubMed, IEEE Xplore, EMBASE, Web of Science, ACM Computer-Human Interface proceedings, and the Cochrane Library) for original articles published between January 2007 and February 2020 that reported perspectives on data visualization of people living with chronic neurological and mental health conditions. Two reviewers independently screened each abstract and full-text article, with disagreements resolved through discussion. Studies were critically appraised and extracted data underwent thematic synthesis. RESULTS We identified 28 eligible publications from 24 studies representing 11 conditions. Coded data coalesced into four themes: desire for data visualization, the impact of visualizations on condition management, visualizations as data reporting tools, and visualization design considerations. Data visualizations were viewed an integral part of users’ experiences with RMT, impacting satisfaction and engagement. However, user preferences were diverse and often conflicting, both between and within conditions. CONCLUSIONS When used effectively, data visualizations are valuable, engaging components of RMT. They can provide structure and insight, allowing individuals to manage their own health more effectively. However, visualizations are not “one-size-fits-all,” and it is important to engage with potential user during visualization design to understand when, how, and with whom the visualizations will be used to manage health.

2020 ◽  
Author(s):  
Heather Catt ◽  
Jane Beenstock ◽  
Ummaz Nadeem ◽  
Adam Joiner

Objective There is increasing interest in plant-based diets in the general population and an increasing evidence base for the positive impact of plant-based diets on health outcomes for many chronic diseases. This systematic review aims to identify the effects of plant-based diets on people with mental health conditions. Methods A systematic review of intervention and observational studies. We conducted a systematic electronic search of MEDLINE (Ovid), EMBASE (Ovid), PsycINFO (ProQuest), British Nursing Index (ProQuest), CINAHL (EBSCO) and the Cochrane library to April 2019, with no date limits. We extracted data on outcomes and assessed the studies for bias using validated tools. Results We retrieved 588 studies. One study met the inclusion criteria with high risk of bias. The intervention was a plant-based diet for people with moderate to severe depression, without a control group. The study recruited 500 people, but recorded 66.8% attrition. Of the completers, 62% reported improvements in depressive symptoms, and 59% in anxiety symptoms. Completers lost 5.7lbs (2.6kg) during the trial and 15lb (6.8kg) at six month follow up. Conclusion There is not enough research to make conclusions about the effects of plant-based diets on people with mental health conditions. Given the evidence for positive effects of plant-based diets on physical health, further research is urgently required to understand the effects on people with mental health conditions. This will support the provision of advice and guidance for patients with mental illness who want to optimise their diet to improve their mental and physical health. PROSPERO registration: CRD42019133440


2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Signe Heuckendorff ◽  
Martin Nygård Johansen ◽  
Søren Paaske Johnsen ◽  
Charlotte Overgaard ◽  
Kirsten Fonager

Abstract Background Parental mental health conditions have been associated with increased morbidity and use of healthcare services in offspring. Existing studies have not examined different severities of parental mental health conditions, and the impact of paternal mental health has been overlooked. We examined the association between two severities of parental mental health conditions and use of healthcare services for children during the first year of life and explored the impact of both maternal and paternal mental health conditions. Methods This register-based cohort study included all live-born children born in Denmark from 2000 to 2016. Information on socioeconomics, diagnoses, drug prescriptions, and healthcare contacts was extracted from nationwide public registries. Parents were grouped according to severity of mental condition based on the place of treatment of the mental health condition. Negative binominal regression analyses were performed to estimate the incidence rate ratio (IRR) of contacts to general practice (GP), out-of-hour medical service, emergency room (ER), and out- and inpatient hospital contacts during the first 12 months of the child’s life. Results The analyses included 964,395 children. Twenty percent of the mothers and 12 % of the fathers were identified with mental health conditions. Paternal mental health conditions were independently associated with increased risk of infant healthcare contacts (GP IRR 1.05 (CI95% 1.04–1.06) and out-of-hour IRR 1.20 (CI95% 1.18–1.22)). Risks were higher for maternal mental health conditions (GP IRR 1.18 (CI95% 1.17–1.19) and out-of-hour IRR 1.39 (CI95% 1.37–1.41)). The risks were even higher if both parents were classified with a mental health condition (GP IRR 1.25 (CI95% 1.23–1.27) and out-of-hour contacts IRR 1.49 (CI95% 1.45–1.54)), including minor mental health condition (GP IRR 1.22 (CI95% 1.21–1.24) and out-of-hour IRR 1.37 (CI95% 1.34–1.41)). This pattern was the same for all types of healthcare contacts. Conclusions Both maternal and paternal mental health conditions, including minor mental health conditions, were associated with increased utilization of healthcare services. Focus on both parents’ mental health conditions (even if minor) may be warranted in service planning.


2020 ◽  
Author(s):  
Steven Gillard ◽  
Ceri Dare ◽  
Jackie Hardy ◽  
Patrick Nyikavaranda ◽  
Rachel Rowan Olive ◽  
...  

AbstractPurposeResearch is beginning to quantify the impact of COVID-19 on people with pre-existing mental health conditions. Our paper addresses a lack of in-depth qualitative research exploring their experiences and perceptions of how life has changed at this time.MethodsWe used qualitative interviews (N=49) to explore experiences of the pandemic for people with pre-existing mental health conditions. In a participatory, coproduced approach, researchers with lived experiences of mental health conditions conducted interviews and analysed data as part of a multi-disciplinary research team.ResultsExisting mental health difficulties were exacerbated for many people. People experienced specific psychological impacts of the pandemic, struggles with social connectedness, and inadequate access to mental health services, while some found new ways to cope and connect to community. New remote ways to access mental health care, including digital solutions, provided continuity of care for some but presented substantial barriers for others. People from black and ethnic minority (BAME) communities experienced heightened anxiety, stigma and racism associated with the pandemic, further impacting their mental health.ConclusionThere is a need for evidence-based solutions to achieve accessible and effective mental health care in response to the pandemic, especially remote approaches to care. Further research should explore the long-term impacts of COVID-19 on people with pre-existing mental health conditions. Particular attention should be paid to understanding inequalities of impact on mental health, especially for people from BAME communities.


Author(s):  
Lewis Cowie ◽  
Luke Hendrickson

By linking Education, Health, and Welfare data in the Multi-Agency Data Integration Project (MADIP), our analysis looked at the impact of poor mental health on the likelihood of completing an undergraduate degree in Australia. IntroductionCompletion of a bachelor degree is important to both the student and the government, as it provides lifelong benefits and prevents investment loss. Previous research has reported conflicting findings regarding whether students with mental ill health are less likely to complete a degree, with an estimated 25 per cent of young adult university students experiencing mental ill-health each year. Objectives and ApproachOur research analysed national mental health service use and related pharmaceutical prescriptions linked with education data to determine the extent and effect of known mental health conditions on undergraduate student six-year completion rates. We followed a de-identified cohort of 120,000 students who commenced an undergraduate degree for the first time in 2011 for six years. Summary statistics and a binomial logit was used on a matched sample to confirm significance. ResultsWe found that students with a known mental health condition had a significantly lower six-year completion rate (58 per cent) than those students with no known mental health condition (71 per cent). By simulating a randomised control trial controlling for a wide range of demographics, we showed that these results held and that completion rates worsened with increasing severity of mental health conditions, as measured by usage of psychiatric services. ConclusionIntegrated data assets such as MADIP help us better understand the interaction between student success and mental health conditions which in turn will help us improve policy and better evaluate programs.


2018 ◽  
Vol 18 (5) ◽  
pp. 505-517 ◽  
Author(s):  
Jaya S. Khushalani ◽  
Jin Qin ◽  
John Cyrus ◽  
Natasha Buchanan Lunsford ◽  
Sun Hee Rim ◽  
...  

2020 ◽  
Vol 9 (1) ◽  
Author(s):  
Cheryl L. Currie ◽  
Richard Larouche ◽  
M. Lauren Voss ◽  
Erin K. Higa ◽  
Rae Spiwak ◽  
...  

Abstract Background COVID-19 has resulted in an increased demand for eHealth services globally. There is emerging evidence for the efficacy for group eHealth interventions that support population-based mental health and wellbeing, but a systematic review is lacking. The primary objective of this systematic review is to summarize the evidence for eHealth group counseling and coaching programs for adults. A second objective is to assess, within studies selected for our primary objective, the impact of programs that encourage PA on outcomes compared to those that do not. Methods Randomized controlled trials that assess the impact of eHealth group counseling or coaching programs on mental health, health behavior, or physical health activity among community-dwelling adults will be included. We will search the following electronic databases (from January 2005 onwards): MEDLINE, PsycINFO, CINHAL, and the Central Register of Controlled Trials. The primary outcomes will be changes in mental health conditions (e.g., depression, anxiety, stress, quality of life), behavioral health conditions (e.g., substance use, smoking, sexual behavior, eating behavior, medication adherence), and physical health conditions (e.g., coping with cancer, menopausal symptoms, arthritis pain). Secondary outcomes will be changes in physical activity. Two reviewers will independently screen all citations, full-text articles, and abstract data. Potential conflicts will be resolved through discussion with a third reviewer. A narrative synthesis without meta-analysis will be conducted. The strength of the body of evidence will be assessed using GRADE. The risk of bias in individual studies will be appraised using the Cochrane Risk of Bias 2.0 tool. Potential sources of gender bias in included studies will be considered at all stages of the planned review. Discussion This review will contribute to the literature by providing evidence on the effectiveness of eHealth counseling and coaching programs delivered to adults in a group format. Systematic review registration The protocol has been registered at the International Prospective Register of Systematic Reviews (PROSPERO: CRD42020187551).


2020 ◽  
Author(s):  
Signe Heuckendorff ◽  
Martin Nygård Johansen ◽  
Søren Paaske Johnsen ◽  
Charlotte Overgaard ◽  
Kirsten Fonager

Abstract Background Parental mental health conditions have been associated with increased morbidity and use of healthcare services in offspring. Existing studies have not examined different severities of parental mental health conditions, and the impact of paternal mental health has been overlooked.We examined the association between two severities of parental mental health conditions and use of healthcare services for children during the first year of life and explored the impact of both maternal and paternal mental health conditions. Methods This register-based cohort study included all live-born children born in Denmark from 2000-2016. Information on socioeconomics, diagnoses, drug prescriptions, and healthcare contacts was extracted from nationwide public registries. Parents were grouped according to severity of mental condition based on the place of treatment of the mental health condition. Poisson regression analyses were performed to estimate the incidence rate ratio (IRR) of contacts to general practice (GP), out-of-hour medical service, emergency room (ER), and out- and inpatient hospital contacts during the first 12 months of the child’s life.Results The analyses included 964395 children. Twenty percent of the mothers and twelve percent of the fathers were identified with mental health conditions. Paternal mental health conditions were independently associated with increased risk of infant healthcare contacts (GP IRR 1.05 (CI95% 1.04-1.05) and out-of-hour IRR 1.20 (CI95% 1.18-1.21)). Risks were higher for maternal mental health conditions (GP IRR 1.17 (CI95% 1.17-1.18) and out-of-hour IRR 1.38 (CI95% 1.37-1.37)). The risks were even higher if both parents were classified with a mental health condition (GP IRR 1.24 (CI95% 1.23-1.25) and out-of-hour contacts IRR 1.48 (CI95% 1.45-1.51)), including minor mental health condition (GP IRR 1.22 (CI95% 1.22-1.23) and out-of-hour IRR 1.37 (CI95% 1.35-1.39)). This pattern was the same for all types of healthcare contacts.Conclusions Both maternal and paternal mental health conditions, including minor mental health conditions, were associated with increased utilization of healthcare services. Focus on both parents’ mental health conditions (even if minor) may be warranted in service planning.


Author(s):  
Allison Dunne ◽  
Steve Haake ◽  
Helen Quirk ◽  
Alice Bullas

Participation in regular physical activity is a well-established strategy to support good mental wellbeing in adults with, and without, mental health conditions. The physical activity initiative parkrun is a free, weekly, timed, running and walking event which is attended by people from the local community of all abilities. The purpose of this study was to investigate the mental wellbeing of UK parkrun participants along with their motives for taking part and the impact of participation. Mental health conditions were self-reported in 2.5% of 60,000 respondents to an online survey of parkrunners, with the most prevalent being depression and anxiety. Those with mental health conditions were more motivated than those without to first participate in parkrun to manage their health conditions and improve their mental health. Those with mental health conditions were equally motivated to improve their physical health when compared to those without, and reported similar levels of improvement. Mental wellbeing scores for those with mental health conditions were close to the normal range, suggesting that engagement in parkrun may have had a role in limiting the effect of their illness. Community initiatives could replicate parkrun’s model, and use the potential for both mental and physical health improvement, as well as health condition management, as a motivation for participation.


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