scholarly journals Living with hypertrophic cardiomyopathy: the patient’s perspective

2021 ◽  
Author(s):  
Wendy Borsari ◽  
Lindsay Davis ◽  
Eric Meiers ◽  
Lisa Salberg ◽  
Barbara McDonough
Keyword(s):  
Quality Of Life ◽  
Hypertrophic Cardiomyopathy ◽  
Complex Disease ◽  
Symptomatic Relief ◽  
Disease Diagnosis ◽  
Implantable Cardioverter Defibrillator Therapy ◽  
Septal Myectomy ◽  
Potential Impact ◽  
Humanistic Burden

Hypertrophic cardiomyopathy (HCM) is a complex disease characterized by thickening of the cardiac muscle. Common symptoms include chest pain, shortness of breath, palpitations, fatigue and syncope (fainting), which are often confused for other conditions. Clinical treatment focuses on the relief of symptoms with medical therapies, which provide adequate to more variable symptomatic relief. Patients may experience more severe complications that require surgical intervention, such as implantable cardioverter-defibrillator therapy or septal myectomy. Despite the potential impact on quality of life, the humanistic burden of HCM is not well established. Here, we present four patient testimonials that highlight challenges faced by patients and clinicians in diagnosing HCM and managing symptoms. These testimonials provide valuable information on the spectrum and expression of HCM across generations. Such testimonials can better inform disease diagnosis and monitoring, maximizing quality of life and improving disease outcome.

scholarly journals The role of trans obturator tape as a surgical procedure for female stress urinary incontinence and its impact on quality of life in Jammu region

2019 ◽  
Vol 8 (12) ◽  
pp. 4975
Author(s):  
Sapna Puri ◽  
Manisha Kohli
Keyword(s):  
Quality Of Life ◽  
Stress Incontinence ◽  
Symptomatic Relief ◽  
Female Stress Urinary Incontinence ◽  
Medical Sciences ◽  
King’S Health Questionnaire ◽  
Promising Treatment ◽  
Pre Treatment

Background: Stress incontinence is one of the most common but debilitating health issue among women. It has a detrimental effect on overall health and quality of life of women. Trans obturator tape (TOT) has emerged as a promising treatment modality. The aim of present study was to assess the usefulness of TOT in terms of change in quality of life of stress incontinence patients.Methods: The study was performed at Department of Obstetrics and Gynecology, Acharya Shri Chandler of Medical Sciences (ASCOMS), Jammu. A total of 50 symptomatic women were enrolled in the study and underwent TOT procedure using outside-in technique. The quality of life of women was assessed at enrolment and 12 months after the procedure using King’s Health Questionnaire (KHQ). Change in QOL was assessed using paired ‘t’-test.Results: After 12 months follow-up, a total of 27 (54%) patients were entirely symptom free. As compared to pre-treatment QOL assessment on KHQ for general health/incontinence impact, quality of life and symptom scores a % decline of 73.2%, 79.8% and 78.4% was observed. For all the three parts, the change in scores was significant statistically. No other complications and side effects were reported.Conclusions: TOT is a useful procedure which provided symptomatic relief as well as QOL enhancement.

scholarly journals Comorbidity of Fibromyalgia in Primary Knee Osteoarthritis: Potential Impact on Functional Status and Quality of Life [Corrigendum]

2020 ◽  
Vol Volume 12 ◽  
pp. 125-126
Author(s):  
Marwa Yahia Mahgoub ◽  
Basant Mohamed Elnady ◽  
Haytham Sayed Abdelkader ◽  
Raghdaa Abdelkhaleq Abdelhalem ◽  
Waleed Ahmed Hassan
Keyword(s):  
Quality Of Life ◽  
Knee Osteoarthritis ◽  
Functional Status ◽  
Potential Impact

Sleep Quality and Quality of Life in Patients with Hypertrophic Cardiomyopathy

Cardiology ◽  
2010 ◽  
Vol 117 (3) ◽  
pp. 200-206 ◽  
Author(s):  
Rodrigo P. Pedrosa ◽  
Sandro G. Lima ◽  
Luciano F. Drager ◽  
Pedro R. Genta ◽  
Aline C.S. Amaro ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hypertrophic Cardiomyopathy ◽  
Sleep Quality

scholarly journals B-PO03-068 HEALTH RELATED QUALITY OF LIFE IN PATIENTS WITH ATRIAL FIBRILLATION AND HYPERTROPHIC CARDIOMYOPATHY

Heart Rhythm ◽  
2021 ◽  
Vol 18 (8) ◽  
pp. S216
Author(s):  
Mohita Singh ◽  
Lisa R. Salberg ◽  
Ellen Kornkven ◽  
Aslan Turer ◽  
Khadyoth Nanneboyina ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Atrial Fibrillation ◽  
Hypertrophic Cardiomyopathy ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Symptomatic Fluid Drainage: Peritoneovenous Shunt Placement

2017 ◽  
Vol 34 (04) ◽  
pp. 343-348
Author(s):  
George Getrajdman ◽  
Hooman Yarmohammadi
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Symptomatic Relief ◽  
Malignant Ascites ◽  
Indwelling Catheters ◽  
Shunt Placement ◽  
Peritoneovenous Shunt ◽  
Peritoneovenous Shunts ◽  
Denver Shunt

AbstractAscites causes significant discomfort and has negative impact on patient's quality of life. Medical therapies including dietary restriction and diuretics are successful in only 40 to 44% of patients with malignant ascites and repeated paracentesis only provides temporary symptomatic relief. Therefore, a more permanent solution is necessary. Indwelling catheters or peritoneovenous shunt placement can provide more permanent symptomatic relief and improve patients' quality of life. Unlike indwelling catheters, peritoneovenous shunts do not limit patients' life style and therefore should be offered as first option in patients who are good candidates. Denver shunt (CareFusion-BD Worldwide) is the current available peritoneovenous shunt. In this article, the indications, contraindications, technical aspects of shunt placement, and techniques to prevent postprocedure complications will be discussed.

scholarly journals Quality of life in nursing home residents with pain: pain interference, depression and multiple pain-related diseases as important determinants

2019 ◽  
Vol 29 (1) ◽  
pp. 91-97 ◽  
Author(s):  
A. Brandauer ◽  
S. Berger ◽  
N. Freywald ◽  
I. Gnass ◽  
J. Osterbrink ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Nursing Home ◽  
Depressive Symptoms ◽  
Pain Intensity ◽  
Nursing Home Residents ◽  
Pain Interference ◽  
Impact Factors ◽  
Important Indicator ◽  
Potential Impact

Abstract Aim Quality of life is an essential outcome parameter in geriatric research and presents an important indicator for the evaluation of care treatments. The present study analyses potential impact factors on health-related quality of life (HRQOL) of nursing home residents (NHR) who are in pain. Methods Data came from the cRCT ‘PIASMA’. Statistical analyses of 146 respondents were carried out by multiple linear regressions based on the EQ-5D index (Euroquol Quality of Life) as dependent variable. Potential impact factors were applied and categorised in five blocks: pain intensity and interference (according to the Brief Pain Inventory), intervention effect, sex and age, pain-related diagnoses, and scales regarding depressive symptoms and cognitive impairment (based on the Geriatric Depression Scale and the Mini-Mental State Examination). Results On average, residents showed a pain intensity of 18.49, a pain interference of 29.61, a MMSE score of 22.84, a GDS score of 5.65 and an EQ-5D index of 0.52. Residents with more diagnoses, more depressive symptoms, and a higher pain interference showed a significantly reduced HRQOL. Conclusion Findings underline the importance of identifying and applying treatment options for both pain (especially interference) and depressive disorders to maintain HRQOL of NHR.

scholarly journals Diagnosis and management of gastroesophageal reflux disease

2014 ◽  
Vol 27 (3) ◽  
pp. 210-215 ◽  
Author(s):  
Maria Aparecida Coelho de Arruda Henry
Keyword(s):  
Quality Of Life ◽  
Surgical Treatment ◽  
Gastroesophageal Reflux Disease ◽  
Drug Use ◽  
Gastroesophageal Reflux ◽  
Reflux Disease ◽  
Disease Diagnosis ◽  
Clinical Treatment ◽  
Atypical Symptoms

INTRODUCTION: Gastroesophageal reflux disease (GERD) is probably one of the most prevalent diseases in the world that also compromises the quality of life of the affected significantly. Its incidence in Brazil is 12%, corresponding to 20 million individuals. OBJECTIVE: To update the GERD management and the new trends on diagnosis and treatment, reviewing the international and Brazilian experience on it. METHOD: The literature review was based on papers published on Medline/Pubmed, SciELO, Lilacs, Embase and Cochrane crossing the following headings: gastroesophageal reflux disease, diagnosis, clinical treatment, surgery, fundoplication. RESULTS: Various factors are involved on GERD physiopathology, the most important being the transient lower esophageal sphincter relaxation. Clinical manifestations are heartburn, regurgitation (typical symptoms), cough, chest pain, asthma, hoarseness and throat clearing (atypical symptoms), which may be followed or not by typical symptoms. GERD patients may present complications such as peptic stenosis, hemorrhage, and Barrett's esophagus, which is the most important predisposing factor to adenocarcinoma. The GERD diagnosis must be based on the anamnesis and the symptoms must be evaluated in terms of duration, intensity, frequency, triggering and relief factors, pattern of evolution and impact on the patient's quality of life. The diagnosis requires confirmation with different exams. The goal of the clinical treatment is to relieve the symptoms and surgical treatment is indicated for patients who require continued drug use, with intolerance to prolonged clinical treatment and with GERD complications. CONCLUSION: GERD is a major digestive health problem and affect 12% of Brazilian people. The anamnesis is fundamental for the diagnosis of GERD, with special analysis of the typical and atypical symptoms (duration, intensity, frequency, triggering and relief factors, evolution and impact on the life quality). High digestive endoscopy and esophageal pHmetry are the most sensitive diagnosctic methods. The clinical treatment is useful in controlling the symptoms; however, the great problem is keeping the patients asymptomatic over time. Surgical treatment is indicated for patients who required continued drug use, intolerant to the drugs and with complicated forms of GERD.

scholarly journals Short Review On Varicose Vein And Its Management

2021 ◽  
Vol 12 (1) ◽  
pp. 832-836
Author(s):  
Pranav N ◽  
Anila K N ◽  
Riju.R.Menon
Keyword(s):  
Quality Of Life ◽  
Varicose Vein ◽  
Inflammatory Responses ◽  
Early Stage ◽  
Treatment Strategies ◽  
Short Review ◽  
Disease Diagnosis ◽  
Treated Group ◽  
Severe Condition

A varicose vein is a condition which affects a large number of people in Western countries and India especially, the northern areas. For curing this proper disease diagnosis, sufficient care for patient and treatment strategies are required, to control the symptoms and signs of varicose vein, the flavonoid group of drugs have been widely used for many years. Under this group, Daflon is the most potent and efficient drug which can be used. This enhances the bioavailability and absorption from the gastrointestinal area. Improved quality of patient's life and efficacy makes this drug therapy more potent and significant. Some of the clinical studies have shown its better action for increased venous tone, lymphatic drainage, decreases cosmetic disfigurement, inflammatory responses occur in microcirculation, protection from free radicals and improved quality of life and efficacy. When compared with other available drugs like Polidocanol, Sotradecol, Asclera, Varithena, Sodium tetradecyl sulfate etc. .clinical benefits of Daflon is more. This drug is useful in the early stage and can be used in severe condition along with sclerotherapy, compression treatment and surgery. Increased patient’s quality of life and increased efficacy were observed in Daflon treated group. Thus it is efficacious as a standard therapy alone and also in combination with other conservative treatment.

Palliative Design Meets Palliative Medicine: A Strategic Approach to the Design, Construction, and Operation of Healthcare Facilities to Improve Quality of Life and Reduce Suffering for Patients, Families, and Caregivers

2019 ◽  
Vol 12 (3) ◽  
pp. 179-186
Author(s):  
Rana Sagha Zadeh ◽  
Paul Eshelman
Keyword(s):  
Quality Of Life ◽  
Built Environment ◽  
Psychological Symptoms ◽  
Healthcare Facilities ◽  
Emerging Trends ◽  
Strategic Approach ◽  
Potential Impact ◽  
Definition Of ◽  
Design Construction

A built environment designed to be appropriate for palliative care can make a profound difference for people with life-limiting illnesses. The built environment affects a patient’s quality of life, the management of physical and psychological symptoms, and the quality of social interactions with loved ones and caregivers. This article is informed by the emerging trends in the research and practice in the disciplines of architecture, design, medicine, and nursing. The article is intended to provide a definition of palliative design and invite discussion of its potential impact on patients, families, and caregivers. Our goal is to initiate conversation about palliative design, foster sharing of experiences and feedback among building professionals, and discuss future paths for formal adoption into practice.

scholarly journals Study on the Correlation between Continuity of Care and Quality of Life for Patients with Coronary Heart Disease

2020 ◽  
Vol 17 (23) ◽  
pp. 9125
Author(s):  
Hsiang-Chu Pai ◽  
Yi-Fang Hu ◽  
Shu-Yuan Chao ◽  
Hsiao-Mei Chen
Keyword(s):  
Quality Of Life ◽  
Coronary Heart Disease ◽  
Heart Disease ◽  
Continuity Of Care ◽  
Information Transfer ◽  
Complex Disease ◽  
General Situation ◽  
Average Score ◽  
Living Situation

Background: As coronary heart disease (CHD) is a highly complex disease, complex continuity of care (CoC) service should be provided for the patients, and the quality of life (QoL) needs to be regarded as an important measuring indicator for the health-care outcome. Purpose: To understand the general situation of CHD QoL and important predictors. Method: A cross-sectional study design was adopted from August 2019 to July 2020 by structured questionnaires. A total of 163 patients were enrolled, and data were statistically analyzed using SPSS 25.0. Result: The average score of the QoL questionnaire is 56.56/80, and the CoC is 4.32. The overall regression model can explain 58.7% of the variance regarding QoL. Patients’ instrumental activities of daily living (IADLs) (26.1%), age (18.1%), living situation (7%), information transfer (4.8%), main source of income (1.8%), and risk of disability are significantly different from their overall QoL in depression (0.9%). Conclusions: In order to improve the QoL of patients, it is suggested that medical teams should assess the needs of patients immediately upon hospitalization, provide patients with individual CoC, encourage them to participate in community health promotion activities, and strengthen the function of IADL to improve the QoL of patients.

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