scholarly journals Notches on the dial: a call to action to develop plain language communication with the public about users and uses of health data

Author(s):  
P Alison Paprica ◽  
Kimberlyn McGrail ◽  
Michael J Schull

Population data science [1] researchers are not alone in recognizing the value of health and health-related data. In the era of big data, and with advent of machine learning and other artificial intelligence methods, organizations around the world are actively working to turn data into knowledge, and, in some cases, profit. The media and members of the public have taken notice, with high profile news stories about data breaches and privacy concerns [2-4] alongside some stories that call for increased use of data [5,6]. In response, public and private sector data-holding organizations and jurisdictions are turning their attention to policies, processes and regulations intended to ensure that personal data are used in ways that that the public supports. In some cases, these efforts include involving “publics” in decisions about data, such as using patient and lay person advice and other inputs to help shape policies [7-10].

2021 ◽  
Vol 17 (1) ◽  
Author(s):  
Paul Quinn

AbstractScientific research is indispensable inter alia in order to treat harmful diseases, address societal challenges and foster economic innovation. Such research is not the domain of a single type of organization but can be conducted by a range of different entities in both the public and private sectors. Given that the use of personal data may be indispensable for many forms of research, the data protection framework will play an important role in determining not only what types of research may occur but also which types of actors may carry it out. This article looks at the role the EU’s General Data Regulation plays in determining which types of actors can conduct research with personal data. In doing so it focuses on the various legal bases that are available and attempts to discern whether the GDPR can be said to favour research in either the public or private domains. As this article explains, the picture is nuanced, with either type of research actor enjoying advantages and disadvantages in specific contexts.


SEEU Review ◽  
2020 ◽  
Vol 15 (2) ◽  
pp. 21-30
Author(s):  
Candidate Dashnim Ebibi

Abstract The right of citizens to privacy in the Republic of Kosovo is guaranteed under the Law on Personal Data Protection. Moreover, this right is guaranteed by the Constitution (Official Gazette, 2008), which is the highest legal act. The purpose of this academic paper goes beyond a superficial assessment of the level of implementation of this fundamental right of the citizen. The core of this paper focuses on highlighting the existing challenges and those that may persist in guaranteeing the privacy of each of us under the reign of the 'Covid 19' Virus in the geographical and psychological space of all citizens of Kosovo. Despite the existence of an independent authority, mandated to oversee the implementation of this right in the public and private sector, its implementation is a permanent mission of this authority, which in our country is the Information and Privacy Agency, but also is subject to challenges, which are not always generated by human negligence. To give the deserved physiognomy to this article, official accessible sources of the sole authority that oversees the implementation of this right in our country have been used. Statistical data presented within the trunk of the paper reinforce the thesis introduced in the introduction of the article, which is confirmed during its full elaboration, reinforcing the view that part of the main challenges for Information and Privacy Agency persists being the limited number of human professional resources, as a guarantee for establishing an unwavering trust among the citizens that their privacy is guaranteed.


2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Moumita Acharyya ◽  
Tanuja Agarwala

PurposeThe paper aims to understand the different motivations / reasons for engaging in CSR initiatives by the organizations. In addition, the study also examines the relationship between CSR motivations and corporate social performance (CSP).Design/methodology/approachThe data were collected from two power sector organizations: one was a private sector firm and the other was a public sector firm. A comparative analysis of the variables with respect to private and public sector organizations was conducted. A questionnaire survey was administered among 370 employees working in the power sector, with 199 executives from public sector and 171 from private sector.Findings“Philanthropic” motivation emerged as the most dominant CSR motivation among both the public and private sector firms. The private sector firm was found to be significantly higher with respect to “philanthropic”, “enlightened self-interest” and “normative” CSR motivations when compared with the public sector firms. Findings suggest that public and private sector firms differed significantly on four CSR motivations, namely, “philanthropic”, “enlightened self-interest”, “normative” and “coercive”. The CSP score was significantly different among the two power sector firms of public and private sectors. The private sector firm had a higher CSP level than the public sector undertaking.Research limitations/implicationsFurther studies in the domain need to address differences in CSR motivations and CSP across other sectors to understand the role of industry characteristics in influencing social development targets of organizations. Research also needs to focus on demonstrating the relationship between CSP and financial performance of the firms. Further, the HR outcomes of CSR initiatives and measurement of CSP indicators, such as attracting and retaining talent, employee commitment and organizational climate factors, need to be assessed.Originality/valueThe social issues are now directly linked with the business model to ensure consistency and community development. The results reveal a need for “enlightened self-interest” which is the second dominant CSR motivation among the organizations. The study makes a novel contribution by determining that competitive and coercive motivations are not functional as part of organizational CSR strategy. CSR can never be forced as the very idea is to do social good. Eventually, the CSR approach demands a commitment from within. The organizations need to emphasize more voluntary engagement of employees and go beyond statutory requirements for realizing the true CSR benefits.


2021 ◽  
Author(s):  
Jovita Varias De Guzman

This study seeks to survey and assess the preference, insights or views of the Chinese-Filipinos regarding business. It attempts to present the preferences or non-preferences of the respondents in the areas of study and its relevance to the community, to show a clearer picture of the Chinese-Filipinos in relation to business thus augmenting closer cooperation, expansion of understanding, and line of communication with Non-Chinese Filipinos. Analysis of the results may serve as an eye-opener for the public and private sector to initiate programs or actions for the creation of guidelines and policies for the awareness of those concerned.


2018 ◽  
Vol 4 (1) ◽  
pp. 49-55
Author(s):  
Salome Sakvarelidze

Abstract The motivated employee represents the essential condition of any organization’s success. Public and private sector managers should constantly work toward coordinating and increasing employee motivation in order to ensure the timely and effective implementation of the plans set by the organization. Accordingly, proper assessment of processes and prompt determination of individuals’ driving motives are needed. Studies have shown that public service employees from all around the world face challenges, such as: incompatibility of knowledge, experience and position, as well as hard and lightweight work. Consequently, public managers should be aware of modern human resource management methods that can be used in effective and efficient ways to increase employee work quality. The main purpose of the paper is to determine the current situation of the public sector in Georgia. In addition, the research seeks to identify and examine the factors that influence employee demotivation and to determine under what conditions motivation can be a worthwhile investment in a public organizations. Methodologically, the work is based on analysis of the available literature and the results of the research statistically processed based on the survey example of 449 respondents from different Georgian ministries selected by a random simple.


2021 ◽  
Vol 6 (5) ◽  
Author(s):  
Kumaran Kanapathipillaii

<p>Social media such as Facebook has become an essential strategic tool for organisations. Facebook is a platform where a large pool of consumers would use to make purchase decisions. Organisations are designing and maintaining their Facebook account to expand their social networks and build relationships with the public. This research explains current situations regarding the influence of online social media technology with reference to Facebook on employees' work performance in Malaysia. The problem statement focuses on both the public and private sectors in Malaysia. Additionally, various literature was reviewed, indicating the relationship between social media (usage at work, sociability, and trust) and work performance. The mediating role of the organisational framework on the relationship between online social media technology (Facebook) and work performance was also scrutinised to formulate the research hypothesis. The findings of this research established a significant relationship between online social media (Facebook) and organisational framework and work performance. Conclusively, the hypothesis depicted that the organisational framework fully mediates the relationship between online social media technology (Facebook) and employees' work performance in public and private sectors in Malaysia. This study also verifies that both the public and private sector organisations that incorporate Facebook can enhance networking and information sharing, influencing employees' work performance, creating a stable organisational framework, generating value for customers, and improving employee relationships with all stakeholders. In conclusion, work performance can be heightened by a well planned and structured organisational framework. Additionally, through a well planned and implemented online social media technology such as Facebook, an organisation would have a smooth operating organisational framework and a workforce with enhanced performance.</p><p> </p><p><strong> Article visualizations:</strong></p><p><img src="/-counters-/edu_01/0854/a.php" alt="Hit counter" /></p>


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