Pengalaman Hidup Pasien Stoma Pascakolostomi

1970 ◽  
Vol 2 (2) ◽  
Author(s):  
La Rangki ◽  
Kusman Ibrahim ◽  
Aan Nuraeni
Keyword(s):  
Colorectal Cancer ◽  
Phenomenological Study ◽  
Life Experience ◽  
Life Experiences ◽  
Nursing Interventions ◽  
Health Providers ◽  
Spiritual Distress ◽  
Sources Of Support ◽  
Depth Interviews

Jumlah pasien pasca kolostomi akibat kanker kolon dan rektal di Indonesia mengalami peningkatan yang signifikan. Kolostomi menyebabkan masalah fisik, psikososial dan spiritual serta ekonomi. Tenaga kesehatan terutama perawat perlu memberikan asuhan keperawatan terhadap pasien pasca kolostomi secara menyeluruh. Penelitian kualitatif terhadap pasien kolostomi sangat diperlukan sebagai upaya untuk mengungkap secara mendalam pengalaman hidup pasien pasca kolostomi dan menemukan new insight, sehingga dapat menambah pengetahuan perawat dalam upaya meningkatkan kualitas asuhan keperawatan yang diberikan pada pasien. Penelitian ini menggunakan metode kualitatif dengan pendekatan fenomenologi. Data didapatkan dengan wawancara mendalam terhadap delapan informan yang merupakan pasien rawat jalan, terdiri dari lima laki-laki dan tiga perempuan, usia antara 30 tahun sampai dengan 73 tahun. Lamanya hidup dengan kolostomi antara empat bulan sampai dengan enam tahun. Analisis hasil wawancara menggunakan metode Colaizzi. Tema yang didapatkan dari pengalaman hidup pasien kolostomi antara lain: keterbatasan dalam melakukan aktivitas sehari-hari, perubahan psikososial informan, perubahan dalam perilaku ibadah dan distres spiritual, perubahan pada aktivitas seksual, sumber-sumber dukungan bagi informan, upaya menjalani hidup dengan kolostomi, adaptasi terhadap perubahan yang terjadi, serta penyulit dalam menjalani hidup dengan kolostomi. Individu yang hidup dengan kolostomi mengalami keterbatasan dalam pemenuhan kebutuhan dasarnya, termasuk perubahan psikososial, distres spiritual dan masalah ekonomi. Berdasarkan penelitian ini, perawat disarankan memberikan dukungan dan dan perhatian pada pasien pasca kolostomi.Kata kunci:Kanker kolorektal, kolostomi, pengalaman hidup AbstractThe number of patient with colostomy that it caused by colorectal cancer has been increasing significantlyin Indonesia. Colostomy was affected to physical, psychosocial, spiritual and economic of patients. Health providers, especially nurses need to provide holistic care for post colostomy patients. The aims of this qualitative study were to describe the life experience of post colostomy patients and to explore new insight of nursing interventions. The new insight would increase nurses’ knowledge and improve the quality of nursing care. This phenomenological study was obtained data using in-depth interviews to 8 informants. The informants consist of 5 men and 3 women. The characteristic of informants included age between 30-73 years, and the length of time living with a colostomy between 4 months to 6 years. The data were analyzed using the Colaizzi method. This study found several themes such as limited daily activities, psychosocial changes; spiritual distress; changes in sexualactivities;sources of support;live with a colostomy; live adaptation; the burdens living with a colostomy. Living with a colostomy faced problems including the limitation to fulfill their needs, psychosocial changes, spiritual distress, and economic problems. Based on those problems, nurses can give support and attention for post colostomy patients.Key words: Colorectal cancer, colostomy, life experiences

scholarly journals Pengalaman Hidup Pasien Stoma Pascakolostomi

2015 ◽  
Vol 2 (2) ◽  
Author(s):  
La Rangki ◽  
Kusman Ibrahim ◽  
Aan Nuraeni
Keyword(s):  
Colorectal Cancer ◽  
Phenomenological Study ◽  
Life Experience ◽  
Life Experiences ◽  
Nursing Interventions ◽  
Health Providers ◽  
Spiritual Distress ◽  
Sources Of Support ◽  
Depth Interviews

Jumlah pasien pasca kolostomi akibat kanker kolon dan rektal di Indonesia mengalami peningkatan yang signifikan. Kolostomi menyebabkan masalah fisik, psikososial dan spiritual serta ekonomi. Tenaga kesehatan terutama perawat perlu memberikan asuhan keperawatan terhadap pasien pasca kolostomi secara menyeluruh. Penelitian kualitatif terhadap pasien kolostomi sangat diperlukan sebagai upaya untuk mengungkap secara mendalam pengalaman hidup pasien pasca kolostomi dan menemukan new insight, sehingga dapat menambah pengetahuan perawat dalam upaya meningkatkan kualitas asuhan keperawatan yang diberikan pada pasien. Penelitian ini menggunakan metode kualitatif dengan pendekatan fenomenologi. Data didapatkan dengan wawancara mendalam terhadap delapan informan yang merupakan pasien rawat jalan, terdiri dari lima laki-laki dan tiga perempuan, usia antara 30 tahun sampai dengan 73 tahun. Lamanya hidup dengan kolostomi antara empat bulan sampai dengan enam tahun. Analisis hasil wawancara menggunakan metode Colaizzi. Tema yang didapatkan dari pengalaman hidup pasien kolostomi antara lain: keterbatasan dalam melakukan aktivitas sehari-hari, perubahan psikososial informan, perubahan dalam perilaku ibadah dan distres spiritual, perubahan pada aktivitas seksual, sumber-sumber dukungan bagi informan, upaya menjalani hidup dengan kolostomi, adaptasi terhadap perubahan yang terjadi, serta penyulit dalam menjalani hidup dengan kolostomi. Individu yang hidup dengan kolostomi mengalami keterbatasan dalam pemenuhan kebutuhan dasarnya, termasuk perubahan psikososial, distres spiritual dan masalah ekonomi. Berdasarkan penelitian ini, perawat disarankan memberikan dukungan dan dan perhatian pada pasien pasca kolostomi.Kata kunci: Kanker kolorektal, kolostomi, pengalaman hidup The Life Experiences of Patients with Post ColostomyAbstractThe number of patient with colostomy that it caused by colorectal cancer has been increasing significantlyin Indonesia. Colostomy was affected to physical, psychosocial, spiritual and economic of patients. Health providers, especially nurses need to provide holistic care for post colostomy patients. The aims of this qualitative study were to describe the life experience of post colostomy patients and to explore new insight of nursing interventions. The new insight would increase nurses’ knowledge and improve the quality of nursing care. This phenomenological study was obtained data using in-depth interviews to 8 informants. The informants consist of 5 men and 3 women. The characteristic of informants included age between 30-73 years, and the length of time living with a colostomy between 4 months to 6 years. The data were analyzed using the Colaizzi method. This study found several themes such as limited daily activities, psychosocial changes; spiritual distress; changes in sexualactivities;sources of support;live with a colostomy; live adaptation; the burdens living with a colostomy. Living with a colostomy faced problems including the limitation to fulfill their needs, psychosocial changes, spiritual distress, and economic problems. Based on those problems, nurses can give support and attention for post colostomy patients.Key words: Colorectal cancer, colostomy, life experiences

scholarly journals Hermeneutic Phenomenological Study on Life Experience of the 30-40’s Voluntary Single Women

2020 ◽  
Vol 58 (2) ◽  
pp. 201-214
Author(s):  
Hyerim Han ◽  
Jimin Lee
Keyword(s):  
Social Support ◽  
Phenomenological Study ◽  
Life Experience ◽  
Social Economic ◽  
Life Experiences ◽  
Single Women ◽  
Economic Base ◽  
Hermeneutic Phenomenological ◽  
Van Manen ◽  
Hermeneutic Phenomenological Study

This study researched the life experiences of 30-40’s voluntary single women. Currently, a growing number of women in their 30s and 40s in South Korea are voluntarily choosing single life to achieve self-realization and focus on their lives. We want to take note of this phenomenon and take an in-depth the lives of voluntary single life beings they are experiencing by using hermeneutic phenomenological study method of Van Manen. The results of this study are as follows. First, 30-40s voluntary single women have experienced desire of self-realization through their single life. Second, they were satisfied with their lives based on the concept of having free choices, stable social support and they social-economic base. Third, they have experienced a low awareness of single life in society and many people. Last, they were preparing for their future lives for their physical health, finances, and role as parents’ provider. This study provides a better understanding of the lives of 30-40s voluntary single women.

scholarly journals Protocol for an observational cohort study identifying factors predicting accurately end of life in dementia with Lewy bodies and promoting quality end-of-life experiences: the PACE-DLB study

BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e047554
Author(s):  
Melissa J Armstrong ◽  
Henry L Paulson ◽  
Susan M Maixner ◽  
Julie A Fields ◽  
Angela M Lunde ◽  
...  
Keyword(s):  
Cohort Study ◽  
End Of Life ◽  
Lewy Body ◽  
Dementia With Lewy Bodies ◽  
Life Experience ◽  
Life Experiences ◽  
Lewy Bodies ◽  
Lewy Body Dementia ◽  
The Individual

IntroductionDementia with Lewy bodies (DLB) is one of the most common degenerative dementias. Despite the fact that most individuals with DLB die from complications of the disease, little is known regarding what factors predict impending end of life or are associated with a quality end of life.Methods and analysisThis is a multisite longitudinal cohort study. Participants are being recruited from five academic centres providing subspecialty DLB care and volunteers through the Lewy Body Dementia Association (not receiving specialty care). Dyads must be US residents, include individuals with a clinical diagnosis of DLB and at least moderate-to-severe dementia and include the primary caregiver, who must pass a brief cognitive screen. The first dyad was enrolled 25 February 2021; recruitment is ongoing. Dyads will attend study visits every 6 months through the end of life or 3 years. Study visits will occur in-person or virtually. Measures include demographics, DLB characteristics, caregiver considerations, quality of life and satisfaction with end-of-life experiences. For dyads where the individual with DLB dies, the caregiver will complete a final study visit 3 months after the death to assess grief, recovery and quality of the end-of-life experience. Terminal trend models will be employed to identify significant predictors of approaching end of life (death in the next 6 months). Similar models will assess caregiver factors (eg, grief, satisfaction with end-of-life experience) after the death of the individual with DLB. A qualitative descriptive analysis approach will evaluate interview transcripts regarding end-of-life experiences.Ethics and disseminationThis study was approved by the University of Florida institutional review board (IRB202001438) and is listed on clinicaltrials.gov (NCT04829656). Data sharing follows National Institutes of Health policies. Study results will be disseminated via traditional scientific strategies (conferences, publications) and through collaborating with the Lewy Body Dementia Association, National Institute on Aging and other partnerships.

scholarly journals The Lived Experiences of Fibromyalgia in Taiwanese Women

2018 ◽  
Vol 14 (18) ◽  
pp. 49
Author(s):  
Shih Whei-Mei ◽  
Tsao Lee-Ing ◽  
Hsu Hsiu-Chin ◽  
Hsiao Pin-Ru
Keyword(s):  
Health Care Professionals ◽  
Life Experience ◽  
Quality Of Healthcare ◽  
Taiwanese Women ◽  
Physical Suffering ◽  
Associated Symptoms ◽  
Severe Chronic Pain ◽  
The Mind ◽  
Depth Interviews

Fibromyalgia is characterized by chronic widespread musculoskeletal pain and associated symptoms. It affects people physically, mentally, and socially. The aim of this study was to explore the life experience of women with fibromyalgia in order to gain knowledge which can contribute to increased quality of healthcare. In-depth interviews were used to collect information from nineteen Taiwanese women who were diagnosed with fibromyalgia. Data were analyzed using the content analysis approach. Data analysis revealed four categories: life torture by physical suffering, torment of the mind, treatment seeking, and facing an incurable and unknown illness alone. Each category was described in terms of its properties and subcategories. This article provides information to fibromyalgia patients who suffer from severe chronic pain and related discomforts. Recommendations focus on helping women with fibromyalgia achieve or maintain integrity especially in the conservative oriental people. It is beneficial for both health care professionals and patients.

Evaluation of the Quality of Care for Sexually Transmitted Infections in Primary Health Care Centres in South Africa

2002 ◽  
Vol 32 (4) ◽  
pp. 33-40 ◽  
Author(s):  
Nokuthula Shabalala ◽  
Anna Strebel ◽  
Tammy Shefer ◽  
Leickness Simbayi ◽  
Tanya Wilson ◽  
...  
Keyword(s):  
South Africa ◽  
Health Care ◽  
Quality Of Care ◽  
Primary Health Care ◽  
Health Workers ◽  
Health Providers ◽  
Sexually Transmitted ◽  
Primary Health ◽  
Depth Interviews

Sexually transmitted infections (STIs) are one of the most common illnesses among adolescents and adults in developing countries. While research from other countries indicates that a lack of financial, infra-structural and human resources are central determinants of the quality of care for STIs, South African studies suggest that there are also problems in health workers' interactions with STI patients. This study investigates the quality of care for STIs at 24 primary health care (PHC) centres in four provinces of South Africa (SA). Semi-structured interviews were conducted with STI patients and health providers. In addition, in-depth interviews were conducted with a sample of STI patients, and focus group discussions were held with diverse community groupings. Simulated patients also completed questionnaires on the care they received at the centres. Frequencies were computed on close-ended questions in order to describe patterns and trends in the data. Cross-tabulations were calculated to check for gender, provincial and urban-rural differences. Composite scores were also generated for the purpose of comparing quality of care across the different participating groups. Finally, the depth interviews and focus groups were analysed thematically. The results show that PHC centres in SA are relatively well-resourced. However, problems were found in the actual encounter between health workers and STI patients, which severely undermines the quality and effectiveness of treatment. It is strongly recommended that attention be given to health providers, in particular through the provision of further training and support in relation to effective STI management.

A Longitudinal Perspective on Bereaved Parent's Changes in Life Experience after the 2014 Sewol Ferry Sinking

2020 ◽  
pp. 003022282094723
Author(s):  
Yewon Kim ◽  
Dong Hun Lee ◽  
Hong Jin Jeon
Keyword(s):  
Social Relationship ◽  
Life Experience ◽  
Life Experiences ◽  
Qualitative Content Analysis ◽  
Family Relationship ◽  
Detailed Examination ◽  
Bereaved Parents ◽  
Personal Changes ◽  
Depth Interviews ◽  
Over Time

This study compared reports of parental life experiences from bereaved parents at two and five years after the death of their adolescent children due to the sinking of the Sewol Ferry in South Korea. Twelve bereaved parents (eight mothers and four fathers from eight families) were interviewed regarding the changes and stabilities they experienced over time at two time points of data collection. Twenty-eight in-depth interviews were transcribed verbatim and analyzed using qualitative content analysis. Outcomes of parental bereavement and changes in life over time may be classified into four main categories: (a) personal changes, (b) changes in perspectives, (c) changes in family relationship, and (d) changes in social relationship and work attitude. This study includes a detailed examination of the phenomenon among the bereaved parents. Discussions and implications are provided based on the results.

scholarly journals FAMILY’S LIFE EXPERIENCE IN TAKING CARE CHILDREN WITH HIV/AIDS IN CIMAHI CITY

2018 ◽  
Vol 1 (2) ◽  
pp. 147
Author(s):  
Lina Safarina
Keyword(s):  
Quality Of Life ◽  
Lived Experience ◽  
Life Experience ◽  
Psychosocial Problems ◽  
The Family ◽  
Motivation Enhancement ◽  
Disability Education ◽  
Depth Interviews ◽  
Hiv Aids

Introduction. Indonesia has increase in cases of HIV/AIDS significantly. HIV/AIDS incidence in children is increase too. Children with HIV infection are vulnerable to physical and psychosocial problems are complex. This raises the issue of the family in caring for children with HIV/AIDS. The purpose of this study was to explore in depth the experiences of family life in the care of children with HIV/AIDS. Methods. The study used a qualitative approach was phenomenological. This research was conducted during the months of July-August 2012 in Cimahi. The study was conducted on families who have children with HIV/AIDS. Method of data collection study using in-depth interviews. Analysis of the data used to describe the lived experience of families in caring for children with HIV/AIDS with Colaizi data analysis. Results. Children with HIV/AIDS had experience a variety of problems related to the infection opportunity, growth and development disability, education, social skills and acceptance in society. Discussion. Nurse can give information about caring children with HIV/AIDS, give the support to family to get VCT program, ARV supervision, motivation enhancement, child health, children need to learn and play, support family to join with PMTCT program to increase quality of life of the children and family. Keywords: Children with HIV/AIDS, Family’s Experience, Quality of Life

Falls and Fear of Falling among Community-Dwelling Seniors: The Dynamic Tension between Exercising Precaution and Striving for Independence

2004 ◽  
Vol 23 (4) ◽  
pp. 307-318 ◽  
Author(s):  
Catherine Ward-Griffin ◽  
Sandra Hobson ◽  
Pauline Melles ◽  
Marita Kloseck ◽  
Anthony Vandervoort ◽  
...  
Keyword(s):  
Phenomenological Study ◽  
Fear Of Falling ◽  
Community Dwelling ◽  
Policy Implications ◽  
The Everyday ◽  
Health Promoting ◽  
Life Force ◽  
Holistic Interpretation ◽  
Depth Interviews

ABSTRACTThe purpose of this phenomenological study was to explore the everyday experience of community-dwelling elders, with particular attention to seniors' perceptions of safety, fear of falling, independence, and quality of life. We also aimed to identify contextual factors that influence the health of elders who had fallen and/or had a fear of falling. Data from in-depth interviews with a purposeful sample (n = 9) of elders were analysed using interpretative analysis procedures. Both individual and team analysis was undertaken until interpretations of the experiences of the participants were inductively developed and crystallized into a holistic interpretation of the participants' shared experience. The holistic experience was comprised of two opposing, dynamic life forces: exercising precaution and striving for independence. Within each life force, participants used five major strategies that simultaneously constrained and expanded their life space. Health-promoting practice and policy implications, as well as areas for further research, are discussed.

Understanding Dignity: Experiences of Impairment in an Exercise Facility

2015 ◽  
Vol 32 (2) ◽  
pp. 106-124 ◽  
Author(s):  
Keith R. Johnston ◽  
Donna L. Goodwin ◽  
Jennifer Leo
Keyword(s):  
Phenomenological Study ◽  
Life Experiences ◽  
Visual Images ◽  
Cultural Norms ◽  
Exercise Participation ◽  
Essential Quality ◽  
Self Worth ◽  
Field Notes ◽  
Exercise Environment

Dignity, as an essential quality of being human, has been overlooked in exercise contexts. The aim of this interpretative phenomenological study was to understand the meaning of dignity and its importance to exercise participation. The experiences of 21 adults (11 women and 10 men) from 19 to 65 yr of age who experience disability, who attended a specialized community exercise facility, were gathered using the methods of focus-group and one-on-one interviews, visual images, and field notes. The thematic analysis revealed 4 themes: the comfort of feeling welcome, perceptions of otherness, negotiating public spaces, and lost autonomy. Dignity was subjectively understood and nurtured through the respect of others. Indignities occurred when enacted social and cultural norms brought dignity to consciousness through humiliation or removal of autonomy. The specialized exercise environment promoted self-worth and positive self-beliefs through shared life experiences and a norm of respect.

scholarly journals Quality-of-life experiences from the perspective of patients receiving haemodialysis for chronic renal failure

2010 ◽  
Vol 15 (1) ◽  
Author(s):  
Louis F. Small
Keyword(s):  
Quality Of Life ◽  
Renal Failure ◽  
Chronic Renal Failure ◽  
Financial Constraints ◽  
Psychosocial Support ◽  
Life Experiences ◽  
Physiological Changes ◽  
Spontaneous Activities ◽  
Depth Interviews

This study describes the experiences of patients receiving haemodialysis for chronic renal failure at the only dialysis centre in Windhoek, Namibia. A qualitative, explorative and descriptive design was used. Data were collected by means of in-depth interviews and analysed using Tesch’s process.Four themes emerged from the data, relating to (1) financial constraints, (2) loss of independence and spontaneous activities, (3) strain on relationships and (4) feelings of significant physiological changes and weakness. Based on the results, recommendations were submitted for psychosocial support and the establishment of support groups.OpsommingHierdie studie beskryf die ervarings van pasiënte wat gehemodialiseer word vir chroniese nierversaking in die enigste dialise-eenheid in Windhoek. ʼn Kwalitatiewe, verkennende en beskrywende studie is gedoen. Die data is deur middel van diepte-onderhoude ingesamel, waarna die data aan die hand van Tesch se metode geanaliseer is. Daar het vier temas uit die studie na vore gekom (1) finansiële beperkings, (2) verlies van onafhanklikheid en spontane aktiwiteite, (3) druk in verhoudings en (4) gewaarwordings van beduidende fisiologiese veranderinge en swakheid.Na aanleiding van hierdie bevindings is die daarstel van psigososiale ondersteuning asook ondersteuningsgroepe aanbeveel.

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